 |
| Author | Post |
|---|
Stage.2
Member
|
Posted: Sat Aug 25th, 2012 23:03 |
|
sarcoidosis
I am in need of some real help.
I was diagnosed with sarcoidosis of the lungs age 23. I am now 26 and still suffering from sarcoid. I am on 10mg of predinisonlone everyday and 100mg of aziathioprine.I am stage.2 sarcoidosis.
Steroids have and are slowly but surely destroying my health and my i have noticed over the years a deterioration of my mental health. I seem to be always angry and sometimes i think about suicide which i battle with quite often nowadays as i am sick of taking medicine and not being in control of my health. I get days when i cant breath much and days when i feel like i do not want to leave my bed. I also get very painful jolts of pain at any random time which can be really painful at times. I have learnt to cope over the years and i try my best just to be normal.
I have been doing a little bit of research about the marshall protocol and feel like i have nothing to lose so i would really appreciate some good solid advise or guidance about participating in the marshall protocol. I can be very disciplined when i have to be and i am willing to do anything to beat sarcoid.
I would be very grateful for a reply.
Thank you,
Kind regards,
Stage.2
____________________
Stage.2
|
Sallie Q
Board Staff
| Joined: | Sat Aug 9th, 2008 |
| Location: | NSW, Australia |
| Posts: | 1099 |
| Status: |
Offline
|
|
Posted: Sat Aug 25th, 2012 23:09 |
|
I hope we can be of some assistance, stage2
I have to go out, am listening for knock at the door,
meanwhile, you could have a look at the questions asked, and my replies in the previous topic from India on fibro, the 'journey' may be different, but the approach is the same
best wishes
Sallie
____________________
index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
|
Cynthia Schnitz
Board Staff
| Joined: | Tue Jul 29th, 2008 |
| Location: | USA |
| Posts: | 3335 |
| Status: |
Offline
|
|
Posted: Sun Aug 26th, 2012 05:51 |
|
Stage.2, we have a lot of people with sarcoidosis on the MP, and a number that have essentially been cured of it according to their doctors. Many of these cured members are still taking the olmesartan, the key medication, because they are still seeing small improvements in their life. Sarcoidosis is just one possible symptoms set of TH1 disease, and most people come here with many things wrong with them, even things they never recognized until they cleared while on the MP.
I highly recommend that you read up very thoroughly on the MPKB site, http://mpkb.org/ . It will be your responsibility to make sure that you and your doctor follow the protocol correctly. After you start the olmesartan, you will be able to gradually wean yourself from the pred.
Would you please go to your profile and put in your location. We are a very world wide group and some of our answers will be location dependent. To add your location to your profile, click on the 'My Account' button, upper right, and on the 'Profile' tab. Put your location on the correct line, then click on 'Save'.
Here is the link for asking for doctor's in your area,
Requesting a list of area doctors (please click here)
Welcome to our forums, Cynthia
____________________
MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
|
Stage.2
Member
|
Posted: Mon Sep 3rd, 2012 12:13 |
|
Thank you very much for your replies.
I live in lonon.
Can i ask you were do i do this marshall protocol or what type of treament this is and what type of treament this is.
Thank you,
Kind regards,
Stage.2
____________________
Stage.2
|
Cynthia Schnitz
Board Staff
| Joined: | Tue Jul 29th, 2008 |
| Location: | USA |
| Posts: | 3335 |
| Status: |
Offline
|
|
Posted: Mon Sep 3rd, 2012 17:34 |
|
Hi Stage.2.
This is an immune enhancement protocol. Most of modern medicine is aimed at immune suppression. Needless to say, this is a very hard thing for a doctor to get over, as he is used to making his patients feel better, and for most people on the MP (Marshall Protocol), there will be a worsening of their symptoms, but we hope to minimize this by the fact that the main medication is an ARB (angiotensin receptor blocker), so that the increased symptoms are modified, and for a few people, they get enough relief from some of their symptoms to have a net gain in quality of life, but for the majority, it is a little worse. This fact is why there are some people who can not go on the MP, and there will be those who will choose not to do it.
The reason why we need to stimulate the immune system is that the cause of auto immune and chronic disease is systemic infection with hundreds of species of microbiota. Antibiotics, by themselves, are not enough to clear the microbiota. The most efficient way to clear them is by having one's own immune system do the job. There are dozens of chemicals that your immune system creates that are far more effective than any ABx.
This protocol is a very serious undertaking, and will take years to reach a point where you are mostly free of the bacteria and friends, and possibly more years for your body to rebuild some of the tissues. However, most see changes early on that assure them they are on the right track.
Did you mean to write 'London'? It is unfortunate if that is so. Those living in the UK have it especially tough. The medical situation there makes it almost impossible for a doctor to work 'out of the box', and most of our UK members are going it without doctor assistance, or are traveling to other countries to get medical supervision. Even in the most open minded countries, the MP is a difficult protocol to get assistance with.
You will be required to get your own doctor, your own medications, and pay for these yourself. This is a protocol without any commercial interests. It is run completely by volunteers, and all are patients on the MP, so we help as we can, but have our own limitations because of our own illnesses. Dr. Marshall (PhD) realized early on that the only way to run a clinical trial on no money was to run it on the internet. So, we are here to help guide you thru the protocol.
So, read up diligently on the above info site, and come back here to ask questions where you don't understand something. Thorough reading on these sites is mandatory, as it will be your responsibility to see to it that you and your doctors are following the protocol correctly. Reporting here and on the Study Site when you start the MP is really the only way to be assured you are moving along correctly, and be a success. Those that don't report are much more often the ones who fail to make progress. There are dos and don'ts that must be followed, so reporting here can help us to identify when you are going astray.
Cynthia
PS. Please follow the instructions above for adding your location to your profile. If you do that, your location will show up on every one of your posts under your name. Telling us once in a post doesn't help, as you will make possibly hundreds of posts over time, and we won't know where to look for the info.
____________________
MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
|
Stage.2
Member
|
Posted: Mon Sep 3rd, 2012 17:54 |
|
Thank you very much,
I will read it all very carefully then get back to you.
Kind regards,
Stage.2
____________________
Stage.2
|
Gerard
Member
| Joined: | Mon Dec 6th, 2010 |
| Location: | Netherlands |
| Posts: | 35 |
| Status: |
Offline
|
|
Posted: Mon Sep 3rd, 2012 19:09 |
|
Welcom,
I am also a patient following the MP since 1.5 year.
The treatment is rather simple and is based on a drug what was developed for hypertension but as discovered by Dr. Marshall appeared to be able to activate the immune system however in a higher concentration than normally prescribed for high blood pressure.
This is necessary because this activation works only for about 4-6 hours.
It is not the only beneficial property of this drug, it is also protecting your organs.
The immune system itself takes care for the healing process.
If you can have this drug prescribed by a MP- Doctor you can start the Marshall Protocol.
You will get the support on MP-study forum from other "MP-ers" free of any costs.
It is not an easy road to curing because by activating your immune system it will kill the bacteria which are infecting your cells and this will cause inflammation making you feel worse in the beginning before it gets better.
Your reporting to the forum is also important to learn how you can manage the tolerability of these symptoms.
It is important to read a lot of http://mpkb.org/ knowledge base first to understand what you are starting with.
Gerard
____________________
MP start Jan'11 (no breaks) | rhinitis'78, sinusitis'78, COPD'82, asthma'82, eyes CSC left'86/right'99, hypertension,'99 hypercholesterolemia'03, legs varicose veins'03, tinnitus'05, hearing loss'05, BPH'06 | last 25D= 28 ng/mL Dec'10
|
Current time is 08:49 | |
|
|
|
|
