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gettysburg
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Posted: Sat Feb 18th, 2012 15:45 |
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is my blood/brain barrier forever damaged due to untreatedlyme. when i start M.P. will this help my mental illnes i take 800mgs seroquel a day, 25 mgs paxil will i be able in future to stop psyc meds
had major reaction herx first time taking doxycycline had to stop after 7 days 2mos. later took doxycycline 6mos. little herx reaction
is lyme dead or still have to do M.P. to get rid of other side effects like light sensitivity memory loss arthritis tintinitis bloating anxiety fibro type damage
mental illness shizo/affective disorder now 5yr before just major depression diagnosis, fatigue etc. forgot
other symptoms right now lol/
regards gettysburg
p.s. i understand that M.P. may get rid of symptomsLast edited on Sat Feb 18th, 2012 15:47 by gettysburg
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Cynthia Schnitz
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Posted: Sat Feb 18th, 2012 18:10 |
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gettysburg wrote: p.s. i understand that M.P. may get rid of symptoms
The Marshall Protocol (MP) gets rid of bacteria, and other microbiota, by enabling the innate immune system. Since the cause of chronic and 'autoimmune' diseases is the existence of many species of bacteria and other microbiota, you can expect a cure, not just a reduction or the elimination of your symptoms.
Your current symptoms you describe are extremely common among our members. You may want to watch this video of a talk by a doctor using the MP for psychiatric and neurologic dysfunctions.
http://mpkb.org/home/publications/goetze_asia2011
I hope you have found this site to do a lot of reading on. You can also put your symptoms or diagnoses and other words of interest to you in the search box, and go directly to subjects of interest to you. But reading from the beginning is a requirement for any one contemplating the MP, as you will be responsible to make sure that you and your doctor are following the protocol correctly.
http://mpkb.org/
And no, your bacteria (Lyme) is not dead. Certainly the acute form, those bacteria swimming in your blood are probably gone, but they aren't the real problem. You have hundreds of species of bacteria living inside the cells of your body, also in biofilms, and the sum total of the effects of these bacteria are your problem. The Lyme just made a discontinuous jump in the number of bacteria your body is dealing with. But you had plenty of bacteria before the tick or other carrier bit you. There are plenty of people that get bit by an infected tick that don't have the sky fall in on them, and probably because their underlying systemic infection of bacteria and other microbiota is so small at the time.
Remember that everybody has some infection of cell wall deficient bacteria in their bodies, it is only a question of how much. The bacteria grow with time, and are added to over a life time, until old people, if they live long enough without dying from auto accidents or shot by robbers, will die of TH1 disease (chronic/auto immune: heart attacks, stroke, dementia, etc), or cancer which is made possible by the microbiota.
Don't worry about your blood brain barrier, it wasn't much of a barrier to start with. It doesn't seem to keep the bacteria out, as they can go thru cell walls, and going out the other side of the cells in the barrier is just as easy.
You will probably want to stay on some of your psych meds on the MP, but eventually you should be able to get off of them. You can check on some of the individual meds here to see what the protocol says about them.
http://mpkb.org/home/othertreatments
Here is the page for neurological problems, and you can click on the links that apply to you and read what has been written about some of your symptoms.
http://mpkb.org/home/symptoms/neurological
Welcome to our forums, Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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gettysburg
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Posted: Sun Feb 19th, 2012 10:33 |
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thanks ever so much for your well written reply
yes i am going to be a voracious reader i have done a plan using M.P. research and to set up a program for myself and i believe i found a doctor here in ottawa that is a lyme doctor ( is a g.p.) and am waiting for an appointment. my specialist in toronto dr. baghdadlian dumped me as a patient (everbody with lyme) as he said he could not treat lyme people anymore
i was bitten by a tick at gettysburg- battle field exploration in may1990
i did not see a small sign at gift shop (my wife did but did not know lyme). i did from national geo article and it`s devastation of people. on way back from battlefield i saw sign saying lyme ticks may be present horrified i checked out body ,shorts and no socks in running shoes
i was p.o. with wife for not telling me but she wasn`t aware of the danger about 5 days later i saw a bullseye on back of calf thought i got hit with stone at work .
And then it began.
the sign should have been big!! i hope it is now! after
2010 may diagnosis i feel many times like sueing federal parks department for the poor warning
thank you again and i will read lots as since 2010 i have a computer i am 57 born 1954
thankfully yours
gettysburg ps i live in canada ontario
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gettysburg
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Posted: Sun Feb 19th, 2012 16:04 |
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marijuana smoking and low blood pressure
i have smoked marijuana before and after lyme less before lyme
7-13-21 a day more jts after contracting lyme =reduced anxiety and side effects muscle ligament tendon pain and general pain vs taking clonazepam (which made me much more sleepy)
for the 22yrs ive had lyme i smoked avg 12jts a day
i recently stopped smoking marijuana and cigs 5or 6weeks and i am having jarish herxheimer reactions increasing as time goes on not dts from quitting joints cigs maybe
does anyone else get addicted to marijuana to reduce lyme symptoms i had very low blood presure readings but high heart rate 109 bpm when on mj (low bp means 15%+ better than norm, both sistolic and diastolic). when stopped marijuana blood presure still below norm but heartbeats down to high80s92
did the marijuana help me not to die for 20 yrs with lyme or was it counterproductive also nictotine seems to help generally (mood)now nicotine puffer no cigs . does anyone get herx reaction from quitting smoking jts
herx reaction-i thought it was discvovered by jarish and herxheimer felt jarish should get credit too ie jherx
i could be dumb and his first name was jarish
or could marijuana lower immune system i think it does becuz slow healing of injury when on marijuana OR is it becuz marijuana suppresses the immune system so my body does not attack itself as well as if no marijuana
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Cynthia Schnitz
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Posted: Sun Feb 19th, 2012 17:22 |
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| OK, good start. But it will help if you will click on the 'My Account' button, upper right, then click and the 'Profile' tab and enter your location on the appropriate lines, then click on 'Save' at the bottom. This way your location will always show up under your name, and it is a piece of info we will always be needing, so please do this for us. Thank you, Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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gettysburg
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Posted: Sun Feb 19th, 2012 17:38 |
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marijuana and lyme update
i contracted lyme in 1990 may as time went on by 1999 iwas smoking more marijuana than in 1990 i also quit marijuana in 92 95 98 2002 2004 last time quit
it would take aproximately 2weeks to detoxify ie no dt symptoms after initial bad 2 weeks
the more the yrs went by after 2004 the more i smoked and my mental illness diagnosis was changed to shizo-affective disorder it seems longer with illness more need to increase marijuana intake first" mental" diagnosis bipolar then bp2 t5hen "mixed states " then depression then major depression then 2002 schzo-affective disorder
i quit marijuana jan02 now feb 19 still seem to be in throws of detoxing feels like hertz night sweats chills fever aches flu symptoms ear snsitivity rage added more light sensitvity wonder lyme consequences i did get real flu in jan 2012 2 weeks cough/bronchitis
took "penicillan" 24 days finished jan 26 pills jan 26 to now (feb 19) increasing herx. is this due to lack of marijuana or new foods shrimp craving and tuna and and lots of milk(in coffee mostly ) all of which are on the no eat list or does marijuana help lyme or hinder
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Sallie Q
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Posted: Sun Feb 19th, 2012 23:58 |
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gettysburg
I am putting all your questions together, mate, so they do not wind up all over the place. Also in a little while I, or another board housekeeping volunteer, will rename your thread "gettysburg's questions" (you can have your first name put in brackets as well if you want to)
I get the impression that people who smoke, whether the substance is legal or illegal, are doing it to reduce anxiety.
Anxiety may be adding to your general health problems, but the better answer is to substitute meditation for smoking.
Not an easy answer, but health is not easy unless you are born lucky.
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gettysburg
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Posted: Mon Feb 20th, 2012 00:51 |
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thank you for meditation answer and other help( i can be very dumb about cohesive answers and what a computer can do )
i was just so excited about mp , this site, and my illness
i agree with your observations mj is a no go ( i thought mj was just a crutch and it's negatives(mj) override the temporary and deceiving "good"). actually very bad in long run and short run. also trying small doses 1mg /.5 clonazepam to alleviate anxiety and "yuck" lyme affectations.
i have tryed meditation and still do so but will redouble my meditation system
inately i knew it was bad ( although it stopped me from committing suicide at times when i was overwhelmed by the lyme symptoms)i know better now. thxs. and mj probably made lyme worse- though at the time, i thought i had mental illness ,not lyme and lyme induced mental illness my doctor pysch said small doses ok.i now realize i am addicted to mj and thats why i quit jan02 2012 for good hopefully.i was diagnosed with mental illness in 1997+-
and did not find out till may 15 2010 i had lyme for 20 yrs and mental illness was not genetic or illict drug use- which damaged my brain. One pysch specialist(a star in the field of mental illness) said this(my illict drug use)was why i was having mental illness.i did not do many drugs in teen/young adult stage
other than mj/hash on weekends and was very sadden at the time (1999+-) that i screwed up my brain by doing drugs when young and i was at fault.
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Sallie Q
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Posted: Mon Feb 20th, 2012 02:29 |
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we have some people working their way through MP with serious psychiatric symptoms. It is difficult, but if you are patient and do not try to push your luck, it may not be as difficult as dealing with a couple of other serious issues I have in mind.
Those with serious psych issues should avoid alcohol (although it is on the permitted list)
and still use in consultation with their doctor, the antipsychotic best suited to keep them on a fairly even keel 
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gettysburg
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Posted: Mon Feb 20th, 2012 14:54 |
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thank you cynthia for your patience
i will comply as requested again thank you for all your outstanding work and compassion
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gettysburg
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Posted: Mon Feb 20th, 2012 16:18 |
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thank you for your feedback about patience and not pushing my luck i do really appreciate the observation and will try to learn from it
my serious mental disorder is not serious for me i can and haved lived well with mental illness ha semi lie
if i met you on the street work etc. you would never know i had mental illness the drugs i am on now 400mg pm seroquel and 2mgs clonazepam (also was on 25mgs methotrimeprazine - nozinan but got rid of same) 400 mgs am seroqel + 25mgs paxil a.m. and 2/1/.5 mgs clonazepam as required . in daytime coffee 5-10 cups to stay awwake(has nothing to do with frequent peeing differ only pee small amt and coffee for work or life to stay energised)
it took 12+- yrs and 20 to 25 trys of different meds and or combinations minimum i was always atypical and always on max. dose of whatever lithium serazone wellbutrin prozac tryptophan 6or 7 antidepreesents remeron was fun for a while bipolar high resperidal valium i cant remember right now but i can get a complete list from pychatrist/g.p. had a few stabs (meds)at it until turned over to pyschiatrist
i found the physical sypmtoms worse herniated disc 2 yrs crippled walking standing had to for work took 800mg /1600mgs advil constant fatigue irrability lyme rage photosensitivity had to wear long pants and long shirt and sunscreen due to psch meds memory loss constant peeing cognitive destruction from pych meds torn muscles rips tears pain hyper fibromyagia constant phsio flu symptoms look i have to stop now too tired interested in this diverticulitis doc mentioned it oh yeah big one anal fissure for 6yrs repaired in surgery but would not heal constant bleeding pain pain to walk cuz bum hurt hard to poo it hurt skid marks and oozing on my uderwear and thru PANTS! frozen shlder right shld wrecked nausea
this is just tip of iceberg as i went thru this for 20 yrs
day in day out lol anger sorry about that like you say may have problems up coming but i lost my body and mind and wife and son and the stigma of mental illness and lost job carreer and friends(just a few) again only short list
peace/love
gettysburg
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gettysburg
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Posted: Mon Feb 20th, 2012 22:53 |
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hi thanks for your input i dont drink much last8+_yrs as meds im on i get a headache after 2 beers or glasses of wine i have been just smoking mj when on other meds( psych) no problem drinking a bottle of wine with no side effects.
i forgot what you said last post and had to reread it to get it right other than trying to demistify mental illness and mental illness stigma and perception of a person who has mental illness
my question is "it may not be as difficult as dealing with a couple other serious issues i have in mind"
do tell please; i'm sitting on the edge of my seat wondering what they are. i mentioned in earlier reply today that i have been thru a few things in my lifetime and also 20yrs of untreated lyme some of which i touched upon please tell me what these serious issues are as they may or maynot be serious to me or have already passed thru that particular ring of fire
i would appreciate an answer at your convenience
some times i act and sound like i know it all but thats just false pride i realize there are people who have suffered more and some less
respectfully yours
gettysburg
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gettysburg
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Posted: Thu Mar 8th, 2012 23:33 |
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i have chronic lyme disorder which a symptom is mental illness
i was bitten by a" lyme tick" @ gettysburg may 15 1990
my lyme disorder was not diagnosed until may 15 2010
by that time my mental illness changed over the years from depression to shcizo-affective disorder as diagnosed by DR. Paul Grof ( world renoun bipolar/mental illness specialist) in 2001+-
when i tell my Dr or psychiatrist or anyone that i have lyme disorder
THEY THINK IT IS ALL IN MY HEAD AND A TALL TALE BECAUSE I HAVE A DIAGNOSIS OF MENTAL ILLNESS THEREFORE I AM JUST MAKING IT ALL UP BECAUSE I HAVE MENTAL ILLNESS DIAGNOSIS
BUT I HAVE MENTAL ILLNESS DUE TO THE LYME TICK BITE AND UNTREATED (FOR LYME) FOR 20 YEARS
THE STIGMA OF MENTAL ILLNESS IS WIDESPREAD. I MYSELF HAVE A "FEAR" OF PEOPLE WHO HAVE MENTAL ILLNESS. I HAVE BEEN IN MANY "GROUPS" OF PEOPLE WITH MENTAL ILLNESS- AS I WAS LED TO BELIEVE IT WAS GENETICS ETC.
hear lies THE CATCH 22 if i have mental illness i must not have lyme disease it's only mental illness fantasy; but lyme disease CAUSES MENTAL ILLNESS SPECIFICALY IN CHRONIC LYME- shizo/affective disorder
my next stop as i understand is dementia if i am not treated for chronic lyme disorder
how many people are out there who are in the same boat or have had the same stigma/problem-mental illness depression is the first stop on mental illness diagnosis train and treated for mental illness not the underlying cause
NAMELY LYME DISEASE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!which presents as mental illness symptoms
signed gettysburg dying slowly.but surely.
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s1nner
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Posted: Thu Mar 8th, 2012 23:46 |
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I so get it! YOU ARE NOT ALONE.
My daughter is 27 years old! and has been struggling for years with lyme having been told at age 18 she was bipolar and placed on psychotropic drugs like lithium, which seemed to make everything WORSE. She is currently in
an open community mental health rest home because she had trouble
functioning. She recently had the MRI that showed a brain lesion. This requires
Intravenous antibiotics, I have been told.
Anyhow I totally know what you are going through. But are you doing the
Marshall Protocol? I cannot get my daughter to try it but I certainly would in your
case, mainly because: you have nothing to lose, everything to gain, and
it is safe.
I know it is safe as I have been doing it for almost a year. My family physician
said I would end up in a heap on the floor! and would not help me with it, so
I do it on my own, to prove it is safe.
So far the only problem I have had is orthostatic hypotension(dizziness upon standing after stooping pr bending over, in my case). And the cost of the medication.
I am interested in knowing, do you or have you taken any psychotropic meds?
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MP Aug.’11 (no breaks)|Hypothyroid ’07, Triglycerides ’07, Candida 7/11, Hypertension ’11 | joint pain ’07, | last 25D= 34 ng/ml Oct ’09.
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gettysburg
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Posted: Fri Mar 9th, 2012 00:20 |
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gettysburg marijuana blood pressure update
2.5 mo.s off marijuana
blood pressure up to 135sys 85dia heartbeat 85 bpm
On mj 110sys 65 dia heartbeat 105
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gettysburg
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Posted: Fri Mar 9th, 2012 01:30 |
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update to catch 22
i have FULL DR.S records from day 1 1990 may25+-
after 2/3 yrs fired my gp because i was not feeling any improvement 1993/4
next gp after 5/6 yrs sent me to phsychiatrist 1996/7 +- after not responding well to her physical treatments She tryed paxil prescription for stress and possible depression illness then sent me to psychiatrist 1996/7
in 2009 fired 2nd gp as she would not believe any symptoms
and alwasy said i should not see her but see the pysch doctor she had referred me to
still have same psych dr since 1996/7 he does not believe i have lyme disease to date sent me to specialist dr paul grof for consult 2001 +- which i demanded due too little progress and trying approx 20combos from antidepressants bipolar drugs mood stablizers etc tryptophan herbs ect. asked for consult specialist dr bakesh pill pusher 1997/8 said bipolar 1 then bipolar 2 then mixed states- brain damaged from hash/marijuana in highschool THEN in 2004/5+-
my psychiatist after 20+- drugs found combo 800 mgs seroquel and 25mgs paxil 25 mgs nozinan 2-4mgs clonazepam seemed to help only some mental symptoms(not physical symptoms). When looked at wikipedia site may15 2010 saw schizo affective disorder from lyme recommended drugs SEREQUEL AND PAXIL (psych said 2 jts mj per day ok idea)
it took 20+ trys in the dark to achieve same prescription
Fired my gp again her- (from 1993/4 to 2009 sept)
because she would not believe any symptoms and i always came in with a" list "(becuz of memory problems from lyme/ +mj?) and would not treat symptoms
new gp oct 2009 no change, still skeptical, then 2010 may 15 saw lyme described on wikipedia site (just got computer 2009)and saw article in newspaper that was hauntingly familiar) and googled it "i,m feeling lucky" i remember the bullseye (thought i got hit with rock at work)and all the various symptoms i had 95% of all written down on website and more not detailed omg! 20 lost years! i have lyme disease
took to new gp ,she put me on doxycycline which i had MAJOR HERX so bad after 5days had to stop (i have high pain/trouble tolerance) sent me to dr. baghdadlian in T.O.
6 mos doxy then He quit lyme treatment to all patients
still suffering symptoms found curemyth1.org from friend
my entire experience is documented in all the visits to 3 gps and 1 phychiatrist(and consults) still same one (psych doc) since 1995/6 to date
always atypical to drugs and alwasy on maximum dose and 1 time on 1.5 times maximum -(remeron)
all illness documented by physicians and other specialists on the way and my journalling since i got sick from tick bite @ gettysburg in may 15 1990 !!!
i have all records (my gp does)and years of physio
Mental illness stigma clouded all their judgements on my illness
thats my story and i'm stickin to it
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gettysburg
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Posted: Fri Mar 9th, 2012 02:01 |
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oh yeah i was on lithium and other pyshcotropic drugs and many other drugs
yes i am doing ths M.P. diet as i wait for a lyme doc just a g.p. here in ontario canada to go on mp
i have some suggestions to improve m.p. and will post them at a later date too tired now still herxing a bit due to 24 days of clarithromycin(biaxin) prescribed for flu/bronchitis and a really bad diet(for a lyme patient) and vitamin b stress tabs-they make you herx also
thanks for your words
they made me very happy as i am not mentally ill just lyme just as you said and i am not alone anymore your daughter will be healed i suggest remeron(anti depressent max dose) to maybe get her out of her funk but check ,of course with docs.it-remeron-may drive her too manic so be careful
i found remeron was best drug for phych symptoms- major depression, it lifted me back to sanity for 3 mo.s then i had to stop it due to high creatin levels and muscle tears. liver function check is a must prior and while on remeron (i took 1.5times the maximum dose-prescribed by my phychiatrist)
oh yeh i have hypotension normally from the meds and also i was smoking marijuana for alleviation of some symptoms i do not smoke mj anymore and the hypotension is pretty much gone
i have hurt myself numerous times falling down running to catch phone etc. while in bed or sitting down lol
be well
and thank you again
i will talk to your daugter if that would help?????????????
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gettysburg
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s1nner
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Posted: Fri Mar 9th, 2012 02:08 |
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gettysburg,
Thanks for the information and it sure sounds like a pattern I have heard of before.
I am an RN, not an MD but I have been studying the MP for a while. Stumbled
upon it looking for help for daughter (whose case similar to yours).
Are you in a position to try the MP and stick to it? Or are you on it now? I hope you can try it.
My understanding is that you can only get better. I have met Amy Proal and
Paul Albert in NYC at a support group. I know their stories, and I can tell you
that they were
very sick people but they are not now! They are highly functioning
lovely people today. I do not believe that you have to go to "dementia."
By the way, I want to share that the man who is running my daughter's rest home
has recently dedicated his remaining years on this earth to fighting the
overuse/abuse of these psych drugs!
Let me know please if you are actually on the MP!
____________________
MP Aug.’11 (no breaks)|Hypothyroid ’07, Triglycerides ’07, Candida 7/11, Hypertension ’11 | joint pain ’07, | last 25D= 34 ng/ml Oct ’09.
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Cynthia Schnitz
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Posted: Fri Mar 9th, 2012 03:29 |
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Gettysburg, I think we can use the phrase 'the buck stops here'. You will get as much respect and concern from us here no matter if the diagnosis is lyme, sarcoidosis, arthritis, neurological, or mental, because we view them all as the same disease, just different manifestations of TH1 disease. They are all real and all serious.
Also, it would be good to not dwell too heavily on the lyme. Your symptoms of lyme were real, but the tick or other insect bite was just the icing on the cake. The cake was there before the lyme occurred to ice it. On the MP you will be working down all the bacteria, not just the increment you received with an insect bite. Lots of people get bitten by lyme infected tics and don't go down hill fast as you did. My guess is that the bite moved up a time table that you would have experienced any way, but caused it to happen a few years sooner, and maybe it would have been of a slightly different nature if you had not had the bite.
Cynthia
PS. I think we should merge this with your Question thread, as there is as lot of info on your history that should be there.
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Carricol
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Posted: Fri Mar 9th, 2012 04:32 |
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There might be some information here that you can use to help persuade your dosctors that Lyme is real and that the MP is the only approach to take.
http://www.lifelyme.org/
http://www.lymebook.com/marshall-protocol
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Sarcoidosis, Arthritis, Fallen Arch, Vascular Insufficiency, Cataracts,fatty liver,low thyroid,diverticulosis, Fuchs Dystrophy, depression| 1,25D 16 (Oct08) | Ph1 Nov07, Ph2 Jan08, Ph3 May 09 Ben Only: Jun 10- Sep 10|Break Sep 10-Dec 10|Resume MP Dec 10|
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