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Sarcoidosis, liposarcoma
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helianthus1
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Joined: Mon Feb 20th, 2012
Location: North Dakota USA
Posts: 2
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 Posted: Mon Feb 20th, 2012 05:48

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I have recurrent liposarcoma of the abdominal cavity.  Initial surgery in 2005 removed a football sized tumor (grade 1) (and totally unrelated healthy appendix.)  Second surgery in 2009  removed a second large liposarcoma, my left kidney and left colon ((grade 1 with focal dedifferentiation to grade 2-3.)  A biopsy at that time confirmed diagnosis of sarcoidosis in the lymph nodes in the middle of my chest, with my ACE at 32.  The oncologist and rheumatologist both felt that neither condition required any further treatment besides an annual CT scan and chest xray.  August of this year  a CT revealed a 21.2 x 12.5 x 8.2 cm mass.  I began researching alternatives to surgery and consulted with my naturopathic physician about glyconutrients (6 forms of monosaccharides which enable immune cells to communicate more effectively, produced by Mannatech.)  She also recommended a low level laser, which adds ions to increase alkalinity, and has specific frequencies designed to counter the frequencies of the cancer.  However, the tumor continues to grow rapidly.  I still want to avoid surgery because I believe the surgeon will remove any organ abutting the tumor; it is so traumatic; and the tumor just comes back faster and more aggressively.  I am wondering if the Th1 is interferring with the benefits of the glyconutrients on my immune system.  (I may  have had Th1 since birth or childhood, comparing my symptoms to your articles).  I am not looking for a quick fix, but the problem is that the tumor is putting pressure on my stomach.  I have read many articles on your site and get the impression that MP is not recommended for active cancer cases because it works slowly.  But I need further assistance to my immune system, to prevent the liposarcoma from compromising my organs.  I also want to address the sarcoidosis, which I only recently learned is a serious condition while researching my cancer (the rheumatologist said it was a good thing that indicated my immune system is active, and that the lymph tissue would grow back healthy in a year or two.)  So, to MP or not to MP? Can I MP while continuing glyconutrients and lasering?

Seth
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Joined: Fri Sep 25th, 2009
Location: Dublin, Ireland
Posts: 15
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 Posted: Wed Feb 22nd, 2012 19:26

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helianthus,

I'm not highly knowledgeable on your condition, but sorry to hear you have to go through all this.

I have sarc, and I feel that the MP really is working for me, although I'm not sure if it would be right for you while your system is undergoing such changes and treatment.
Sarc is a serious disease too, although it's a slower-moving one.

The liposarcoma seems more like the priority, before starting on the MP.

On the other hand, it sounds as though yours is not metastasizing (?) so that is a good thing.
I think there also have been no reports of metastasizing cancer in patients on the MP (somebody correct me if I'm wrong), and it may turn out to be benefical.

I can understand not wanting to go under the knife again, and I would probably look at many options, including the MP. A lot of people are on the protocol because there has been no other answer for them.

There are a lot of drugs and treatments that are contraindicated on the MP, so you will have to decide whether to go one way or the other.

Did you have radiation after the surgery? Perhaps post some more information on what kind of liposarcoma, your current meds/treatments, blood results, etc. and someone else can provide a bit more advice.

Seth



____________________
Sarcoidosis(lungs) 25D16(Nov09) Ph1Feb10 StoppedMar10 restarted Ph1Apr10
Dr Trevor Marshall
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Joined: Fri Oct 12th, 2007
Location: Thousand Oaks, California USA
Posts: 1378
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 Posted: Wed Feb 22nd, 2012 22:32

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We can help members who are already on the MP, as, once recovering on the MP, very, very few of them have developed cancers, and those found have been old, inactive, tumors.

In your case you have chosen therapies which are not scientifically accepted, and which are likely to interfere with the actions of the Olmesartan.

Unfortunately the action of commonly used supplements and drugs on the immune system is invariably to palliate symptoms, which prevents healing. Our focus is on healing. I trust you understand,

Sincerely
Trevor

helianthus1
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Joined: Mon Feb 20th, 2012
Location: North Dakota USA
Posts: 2
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 Posted: Wed Feb 22nd, 2012 23:09

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Dr. Marshall, Thank you for your response.  I have tried to select therapies that allow my immune system to fight the cancer, and the glyconutrient's role in cell communication and the immune system has been extensively studied in research that was awarded the Nobel Prize.  I have asked my supplier to visit your sites to learn more about Th1 and your protocol.  My understanding is that the MP is not recommended for addressing tumors that are active and large.  Would it be beneficial to avoid "Vitamin"D and light exposure, without using the Benicar and antibiotics?  My goal is ultimately to clear my system of bacteria and cancer cells.

Cynthia Schnitz
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Joined: Tue Jul 29th, 2008
Location: USA
Posts: 3681
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 Posted: Thu Feb 23rd, 2012 16:25

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These are the only things I could find on glyconutrients (D-mannose, D-ribose),
http://mpkb.org/home/othertreatments/immuneboosters
http://mpkb.org/home/starting/safety_warnings
and this one, under immune boosters says to wean,
http://mpkb.org/home/starting/safety_warnings

Cynthia



____________________
MP start 10/08 (no breaks),Spondylitis'97,early Diverticulosis'98,early AMD'08,Calcium anomaly'95,TypeII Diabetes(?)'02,Degenerative hip disease'12, 25D=8.6ng/mL 1/14(preMP 125D/25D=47/43) My progress: http://www.marshallprotocol.com/forum30/13911.html
Sallie Q
Foundation Staff


Joined: Sat Aug 9th, 2008
Location: N.S.W., Australia
Posts: 1263
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 Posted: Thu Feb 23rd, 2012 23:40

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helianthus1 wrote: ........addressing tumors that are active and large.  Would it be beneficial to avoid "Vitamin"D and light exposure, without using the Benicar and antibiotics?  My goal is ultimately to clear my system of bacteria and cancer cells.
avoiding v.D and light : yes, it is of benefit to feel more comfortable.

ultimately to clear  system of bacteria
: the function of Benicar 4-6 hourly is to unblock your VDR, allowing your immune system to recover and fight bacteria.

tumors that are active  your doctor can help you gain evidence.
If you are getting surgery, then early is best, to avoid losing bits (I lost a chunk and a few little bits).

the sarcoidosis, .... (the rheumatologist said it was a good thing that indicated my immune system is active, and that the lymph tissue would grow back healthy in a year or two.)
here we might interpret your sarcoidosis differently and look at it as an indication that your immune system was becoming overwhelmed and microbial defenses becoming entrenched.
When sarcoid or cancerous conditions go into remission of their own accord, that indicates there is enough lymphatic activity left to cope. IMO if it doesn't there isn't.




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