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fee
Member
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Posted: Sat Dec 17th, 2011 00:34 |
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HI everyone
I have just joined up so I hope I am getting this discussion thing right. I was diagnosed with Sarcoidosis 3 yrs ago. The last 3yrs have been hell, I had to quit my job because my symptoms were so bad, and it has had a profound effect on my family. I am in New Zealand and have had a major battle with actually trying to get any real decent help from doctors, they don't seem to know much about it here. I have been in and out of hospital so many times over the last 3yrs I couldn't even guess how many times any more. I have seen numerous specialists and had so many test done and the only treatment I have had is being put on steroids, which sometimes helps in the short term, but then I fell even more exhausted after I finish a course of these, and have put on a lot of weight because of them. I made the decision to not go on steroids anymore as the side effects far out weigh the benefits as far as I am concerned.
I suffer from chronic fatigue, fevers, headaches, swollen and painful joints, aching legs, uveitis, chronic sinusitis, chest pain, respiratory problems, stomach problems and swollen glands.
I am now suffering from depression, because this has been going on for so long, I would love to hear from anyone who has some advice on how to best manage this please, please.
Fee
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Cynthia Schnitz
Board Staff
| Joined: | Tue Jul 29th, 2008 |
| Location: | USA |
| Posts: | 3335 |
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Posted: Sat Dec 17th, 2011 04:03 |
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Fee, welcome. Have you found this web site yet, http://mpkb.org/ ? We are here to help people with learning about and starting the Marshall Protocol. It is very effective for numerous chronic and auto immune diseases including Sarcoidosis. It is curative, not just palliative. Steroids may give the lucky people remission, but in general remissions don't last, or are replaced by another serious disease. This is because the steroids suppress the immune system, when the root cause is systemic infection of many species of microbiota. Hence, suppressing the immune system is not really what you want to do. Please look seriously at this protocol. It is not easy and it is not quick, but it will eventually get you your health back, and there is plenty of reading you will be required to do.
If you will go to your profile, 'My Account' button, upper right, and the 'Profile' tab, and put your general location in your profile, it not only helps us to give you answers that are appropriate to your area, but you will see your location under your name in the left column of any post. Then you can click on the word New Zealand, and the forum will give you a list of all the members in New Zealand. I believe there are a few.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Nick B.
Member
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Posted: Thu Jun 7th, 2012 03:55 |
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Hi fee
Are you still interested in using the MP to cure your sarc ? 
Have you have your Vitamin D tested ?
regards
Nick
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Olmecip 20mg q4h [P1:started 28 July 11] antibiotics started 14 Aug 2011. Changed to 4 hourly dosing on 31 Oct 2011. | GERD | heartburn | rhinitis | irritable bowel syndrome | running nose | latest results 25D = 9.2 ng/ml June 2012.
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Nick B.
Member
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Posted: Tue Jul 10th, 2012 11:27 |
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private message sent to fee on 10 July 2012 as followup.
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Olmecip 20mg q4h [P1:started 28 July 11] antibiotics started 14 Aug 2011. Changed to 4 hourly dosing on 31 Oct 2011. | GERD | heartburn | rhinitis | irritable bowel syndrome | running nose | latest results 25D = 9.2 ng/ml June 2012.
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Nick B.
Member
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Posted: Mon Mar 4th, 2013 07:33 |
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| private message sent to fee on 04 Mar 2013 as followup.
____________________
Olmecip 20mg q4h [P1:started 28 July 11] antibiotics started 14 Aug 2011. Changed to 4 hourly dosing on 31 Oct 2011. | GERD | heartburn | rhinitis | irritable bowel syndrome | running nose | latest results 25D = 9.2 ng/ml June 2012.
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zodiacofire
Member
| Joined: | Sun Mar 10th, 2013 |
| Location: | |
| Posts: | 2 |
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Posted: Sun Mar 10th, 2013 13:34 |
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I also have been diagnosed with Sarcoidosis. I was diagnosed about 8 years ago. Since then I have developed kidney stones that are ruining my life. I have also recently been having heart troubles. Is there a doctor in Vermont, USA that would work with me on this. My urologist treats the kidney stones, my cardiologist treats my heart problems but no one is treating the sarcoidosis. Please help me.
They have tested my calcium levels and they are very high.
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Nick B.
Member
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Posted: Sun Mar 10th, 2013 22:27 |
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Hi zodiacofire
I suggest that you start a new question, under you own alias, by using the button called 'new topic' and not use this thread which was started by 'fee'.
Have you read or studied the Marshall Protocol Knowledge Base at http://mpkb.org/ ?
Have you read this thread about requesting a doctor in your area ?
http://www.curemyth1.org/forum2/4654.html
regards
Nick
Last edited on Mon Mar 11th, 2013 00:12 by Nick B.
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Olmecip 20mg q4h [P1:started 28 July 11] antibiotics started 14 Aug 2011. Changed to 4 hourly dosing on 31 Oct 2011. | GERD | heartburn | rhinitis | irritable bowel syndrome | running nose | latest results 25D = 9.2 ng/ml June 2012.
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