| Author | Post |
|---|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Wed Sep 30th, 2009 17:28 |
|
So I went to see my doctor yearstuday. He is the hot shot director of western ontario hepatology. I wanted to ask him about the Marshall Protocol. I gave him the Phase One document and the letter of introduction. He just skimmed through it real fast and said I don't know any thing about these medications, laguhed at me and gave me back the papers. So I told him If you take the time to read the whole thing, it will explain everything. The guy says NO. And then he says I never said you have autoimmune hepatitis. So I told him about my brothers case of having Rheumatoid arthritis, and asked him. don't you think this is connected some how? He has an autoimmune condition and you are suspecting me of having autoimmune hepatitis. I asked him if he can test me for Rheumatoid arthritis. And he tells me that he is not a Rheumatologist. Either way I told him I cant force him to read the Marshall Protocol. He told me he will do another test and let me know if he still thinks I have autoimmune hepatitis. Here is an article that can suggest liver cirrhosis in Rheumatoid arthritis, yet this guy doesn't think out side of the box.
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1006348
after looking at my medical summery. my previous blood work stated I have
ASMA positive titre 1:80
IgG of 17.2
Alkaline phosphaftase 232
I think this surely suggests an autoimmune disease with ASMA alone. Am I right here?
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs, 
|
Chris
Support Team*
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 803 |
| Status: |
Offline
|
|
Posted: Thu Oct 1st, 2009 18:30 |
|
I can't answer the science question, but if you are really interested in the MP, it sounds like finding another doc who would get you the VitD Metabolites tests would be a more productive path.
Diagnostic tests [Marshall Protocol Knowledge Base]
Requesting a Doctor
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Thu Oct 1st, 2009 19:03 |
|
I went to my family physician yesterday, he doesn't question me. I did the vitamin d metabolites and I also googled up some tests that will tell me what to look for to check for Rheumatoid arthritis. Still waiting for the results. The thing is, I wanted to have some one help me that knows what they are doing. It's hard to find a doctor that cares about their work. It's easy to get them to order tests, but its a different story when you want something prescribed because they would be liable.
Thanks
Last edited on Thu Oct 1st, 2009 19:03 by Marty.K
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Thu Oct 1st, 2009 19:11 |
|
The Diagnostic Test link should be a good read.
Thanks again
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Leroybrown
Board Staff
|
Posted: Thu Oct 1st, 2009 23:34 |
|
Hi Marty,
My GP of 20 years wouldn't prescribe anything to do with what he sent me to the specialist for. So I found a doctor in Vancouver to prescribe the MP. I see my GP next week and I'm going to fill him in on what I'm doing, and I'm sure he won't blame me for going that route, but it would have been easier if HE would have done this.
It would have been a 2.5 year wait for an MP doctor here. If my GP says anything about having a doctor that far away I will remind him when I was immune suppressed and got a UTI, it would have taken 3 weeks to get in to see him anyway. I know I'm lucky to even have a GP, but seriously sometimes I wonder why when I end up having to go to a walk in clinic half the time anyway.
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Fri Oct 2nd, 2009 18:49 |
|
| Thats crazy! I hope I wont have to wait that long or fly to vancouver. But this does seem to be taking allot of time. Usually you have to wait for appointments and tests. I still have some option in the same place I live.
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Thu Oct 8th, 2009 15:44 |
|
So my doctor got back to me, after I visited him last week, when he did couple more tests. So he says the numbers have changed this time. Now he thinks its Autoimmune, and he wants to put me on steroids (prednisone) followed by immuran. I'd like to try the MP, but I can't find a doctor just yet. I dunno if I should be taking the steroids since it contradics MP. But I can't start the benicar treatment either. What you guys think is the best thing to do?
I'm also debating what could have changed the autoimmune activicty recently? can it be because I limit my vitamin d consumption? would the lack of secosteroid like you say have such a powerful effect?
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Knochen
Member
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 467 |
| Status: |
Offline
|
|
Posted: Thu Oct 8th, 2009 16:57 |
|
I'd like to try the MP, but I can't find a doctor just yet. I dunno if I should be taking the steroids since it contradics MP. But I can't start the benicar treatment either. What you guys think is the best thing to do?
Ye gods, I wouldn't go near the steroids for any amount of money, knowing what I know now. Your limiting Vit D has probably had something to do with the change in the test results. These are all similar molecules. The immunosuppressive effects can last a very long time (read the warning labels!), and that's the last thing you want if you go on the MP later.
Just my opinion, but I'd do what I had to do to find a doctor who will work with you on the MP. Travel as far as you have to, agree to sign a release, pay out of pocket, but do what you have to do. There is a lot at stake here.
You can try to work with your GP by saying, "Look, I know this isn't standard, but this is what I want to do, and I'm not gong to take steroids. I'd rather you work with me on this than have to find a doctor who doesn't know me. UI understand the risks and am willing to take them. Help me to do this, OK? I just need a prescription and bloodwork every few months. I'm not going to be a 'problem patient' for you and call you every time I get a twinge." If that fails, you may have more luck with a more alternative type doctor. Face it, what you need is a legal prescription and somebody to request labs and let you know if things are getting too far out of whack. Everything else you can do and learn for yourself. Many of us have done exactly that, and the forums are here to help you learn what you need to know. Sure, you need to be under a doctor's care, but you just aren't going to find one who ""knows" the MP. That's your job. In 10 years, maybe things will be a bit different - at least in China!
Sorry things are not working smoothly for you yet. Keep pushing, you'll get there.
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Fri Oct 9th, 2009 18:18 |
|
So my doctor faxed over my lab work. I can't believe it. I went for 7 years without a diagnosis. Until now when I told my Dr to check for rheumatoid arthritis. RF High 63. According to google, I might have Rheumatoid Arthritis.
The link I posted earlier plus Dr. Marshall's studies that say all autoimmune diseases are linked very closely were big help in convincing me to check for it. Big Thanks!
Another funny thing is my family doctor, which I asked him to do the test as well, have totally different numbers in the lab work and on top of that the Vitamin D tests never came back.
At the same time my family doctor said that he doesn't know what to think about the Marshall Protocol. And I showed him the page about benicar safety. This convinced him that he will prescribe benicar to me. I told him I'm not ready just yet I still have to get NOIRs 
This medical system we got here in canada is screwed up!
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Leroybrown
Board Staff
|
Posted: Fri Oct 9th, 2009 18:28 |
|
Wow. You mean - YOU noticed the RF being high and nobody else has? Are you studying medicine?
I can't vouch for the medical system in the rest of Canada, but in Ontario there are problems for sure.
Congrats on being able to persuade your family dr. That is something I wish I could have done, although he does support me now that I have another dr writing the prescription. Go figure. (at some point some doctor has got to take that risk of writing that prescription...)
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Fri Oct 9th, 2009 18:41 |
|
I'm sure he noticed the RF being high that’s why he said he wants to treat me with steroids and now thinks it autoimmune. But I had to argue with him to check for it. He said he’s not a rheumatologist. But thank god he ordered it any way. Because, the tests I did with my family doctor came out all wrong. And I probably wouldn't have checked again, thinking it’s all good.
When I told him I’m not ready for the prescription because I need the NOIRs, he told me no no, I don't think you need that. Obviously he didn’t go through the Marshall Protocol like he said he would. I can't count on him being a good doctor but at least he will give me the prescription.
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Leroybrown
Board Staff
|
Posted: Fri Oct 9th, 2009 18:44 |
|
Get the prescription and run! Then get the NOIRs.
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
|
Marty.K
Member
| Joined: | Thu Sep 17th, 2009 |
| Location: | Ontario Canada |
| Posts: | 148 |
| Status: |
Offline
|
|
Posted: Fri Oct 9th, 2009 18:45 |
|
| Haha
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
|
Knochen
Member
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 467 |
| Status: |
Offline
|
|
Posted: Fri Oct 9th, 2009 21:57 |
|
Get the prescription and run! Then get the NOIRs.
Man, NEVER refuse a benicar prescription if it's offered. Don't let them think too much about it or the deal may be off next time you go in. Order your Noirs, go get the Rx ASAP and then wait till your glasses arrive before you take any. Call your docs office and have them phone in the Rx to your pharmacy, or better yet, ge the 3 month supply mail ordered. (nt sure if you can do that in Canada, but it's a good way to go if you can). Get everything else in your life in place and then start. It sounds like you've managed to squeak through the door, so get in and run like hell! Don't look back
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
|
Leroybrown
Board Staff
|
Posted: Fri Oct 9th, 2009 23:25 |
|
Those sites where you order generic olmesartan do not ship to Canada.
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
|
Knochen
Member
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 467 |
| Status: |
Offline
|
|
Posted: Fri Oct 9th, 2009 23:30 |
|
I get a 3 month supply of the real Sankyo stuff, but I'm in the US.
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
|
Leroybrown
Board Staff
|
Posted: Fri Oct 9th, 2009 23:33 |
|
In Canada it is brand name Olmetec, licensed by Sankyo to Schering-Plough (if I spelled that right). Tastes like butter.
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
|
Current time is 01:42 | |
|
