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Little My
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| Joined: | Tue Aug 19th, 2008 |
| Location: | Iceland |
| Posts: | 3 |
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Posted: Tue Aug 19th, 2008 11:51 |
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Hello, 
I am writing this for my 15 year old daughter, who has been very tired for almost three years now. We finally got around to find a pediatrician,who is examining her very thoroughly and I received the vitamin D metabolites test today, over the phone.
Her 25-D is 19,4 (european measurements) and her 1,25-D is 129.
My name is Lottis and I am about to start the MP as soon as I have filled in my questionnaire and sent it to you, but I am very concerned that my daughter will get on the treatment together with me, at the same time. I have three pair of NoIR's and we can manage until we have ordered more of those.
Her symptoms are all of those that are included in the CFS, according to Dr Leonard Jason on the DVD from Chicago 2005. Included the low count on the neutrophiles.
Is it possible or even advisable that we start at the same time?
/thank you for your help!
Lottis
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July-08: 1,25D: 58,3 / 25D: 7,6
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Little My
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| Joined: | Tue Aug 19th, 2008 |
| Location: | Iceland |
| Posts: | 3 |
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Posted: Tue Aug 19th, 2008 15:19 |
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-The date the blood was drawn Middle of july 2008
-Which lab did the tests? Capio in Sweden
-Was the 1,25-D sample was frozen for shipment? Probably
-How long have you been avoiding foods with vitamin D in them? No avoiding
-How long have you been avoiding sun/lights? No avoiding
-List all meds, supplements (both prescription and OTC) you have been taking and why. No meds except ibubrufen or paracetamol sometimes for headaches
-When and for how long have you taken prednisone or any other immunosuppressant in any form? Nothing
-When and for how long did you take Vitamin D supplements (including any vitamin-mineral supplements), omega-3 supplements and/or any kind of fish oil? No supplements or fish oil taken
-Were you taking Benicar when the sample was drawn? No
-Were you taking an ARB or or an ACE inhibitor when the sample was drawn? No
1,25D: 58,3 pg/ml and
25D: 7,6 ng/ml.
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July-08: 1,25D: 58,3 / 25D: 7,6
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P.Bear R.N.
Inactive Staff
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Posted: Wed Aug 20th, 2008 07:58 |
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Lottis,
Your 1,25-D is elevated at 58.3pg/ml (the population average is 25-29 pg/ml). It is 3.08 sigma high and based on population studies, 99.90% of the population would be expected to have a lower number.
Her1,25-D is above the maximum of 45pg/ml listed in the Merck Manual of Diagnosis and Therapy (15 Oct 2006 online). At levels above about 42 pg/ml, the 1,25-D (generated by the Th1 inflammation) begins to stimulate bone osteoclasts, causing bone to be resorbed (dissolved) back into the bloodstream. Not only does this lead to osteoporosis, but also to calcium being deposited into soft tissue of the body, including the lungs, breasts, and the kidneys (where it forms kidney stones). Please see Osteoporosis, osteopenia and Th1 illness.
Her level of elevation might suggest inflammation in major organs such as heart, liver and lungs.
Her 25-D of 7.6ng/ml is low for someone who has not been diligently avoiding ALL Vitamin D in their diet.
Because 25-D is immunosuppressive, she still needs to avoid ALL sources of Vitamin D to keep it down to a therapeutic level of 12ng/ml or less. Please see Foods To Avoid and The importance of avoiding vitamin D.
"The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids." Dr. Trevor Marshall, Ph.D.
Your daughter's D-tests, diagnosis and symptoms indicate Th1 inflammation. Please see Symptoms of Hypervitaminosis-D and you may recognize a few more. She will not get well and her health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?
Most supplements and many medications must be avoided on the MP.
Our clinical study is temporarily closed to enrollment. As vacancies occur, we will admit subjects based on an application. To obtain an application forum, please send an email to marshallprotocol2@yahoo.com with 'request MP application' in the subject line.
Whether it is best to both start at the same times depends upon your responses to treatment. Sometimes people can have very strong reactions so in those having a caregiver or support person who is not so sick can be helpful.
best, P.B.
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Nothing in this site should be considered medical advice. Sorry, My private message function has been disabled and I can not read any posts. I have never been "inactive" but have been using PMs to help patients to help their physicians with care
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Little My
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| Joined: | Tue Aug 19th, 2008 |
| Location: | Iceland |
| Posts: | 3 |
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Posted: Wed Aug 20th, 2008 09:52 |
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Thank you very much for your advise!
I will just start the MP myself at this point and see how it goes.
But she really needs some immediate support in her disease, so I am wondering if getting on the olmesartan alone, for a while, will help her. She has very bad migraines which she has to have a better treatment for.
Right now we are trying naproxen, but I would prefer an angiotensin II blocker, and I guess getting on an ordinary low dose of olmesartan would not be helpful for her, as it made me myself very sick indeed. I have read about other cases that getting on the olmesartan on high doses, took the migraine out.
She has had this bad migraine since she was six years old and it typically comes in periods, it is not there all the time.
/Lottis
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July-08: 1,25D: 58,3 / 25D: 7,6
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P.Bear R.N.
Inactive Staff
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Posted: Wed Aug 20th, 2008 17:53 |
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The MP can be very helpful for migraines in most, and the higher dose olmesartan alone can be very helpful in controling migraines in a great many. She would still need to do the antibiotics in time. Some may find that NOIR sunglasses can help control migraines as well.
best, P.B.
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Nothing in this site should be considered medical advice. Sorry, My private message function has been disabled and I can not read any posts. I have never been "inactive" but have been using PMs to help patients to help their physicians with care
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Charlotte
Member
| Joined: | Tue Apr 15th, 2008 |
| Location: | Akureyri, Iceland |
| Posts: | 5 |
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Posted: Thu Feb 26th, 2009 09:24 |
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A long time has passed since a last wrote, and I made the decision that we could not both be at the protocol at the same time. Since my last post, we have been to a couple of specialists in Reykjavik, a hematologist and a specialist in immune system disorders.
There have been no findings of pathogens, as far as I have been told, and no suggestions on to go further. He ignored the fact about her dysregulated vitamin D, and that I had the same result , even though I had supplemented more than enough, when the test was taken.
The only explanation from the hematologist was that she is low in iron, and could benefit from supplementing. I answered about my doubt about this, since it could indicate pathogens. The doctor mumbled something, but did not try to convince me I was wrong.
She is very, very, pale. compared to a few years ago. If she does sports two days in a row, she will be sick for at least two days. Especially her throat will be soar.
She has had some kind of cognitive dysfunction since she was small, and at ten years old I pushed for an examination and she had a thorough test period by a children's neuropsychiatric team. The result that came out then, was that her main problems concerned her auditive memory. The test were done twice, to be sure, but the results came out very poor, beneath the level of normal achievements.
Her visual perception and memory was instead extremely well developed, and in a total she got an IQ quote well over 130. That included the very low average of her auditive perception. She is doing very well at school, but is of course very tired at home.
She is strong and stubborn like a bull, just like the other women in the family tree.  She gives everything to the world, and has nothing left at home.
/Lottis, the worried mother
Last edited on Thu Feb 26th, 2009 09:30 by Charlotte
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HTN,LVH,CHF,arrhythmia,hypercholesterol,IBS? fibromyalgia? achne rosasea e.c.t.|15feb-07 init. 1,25D 37,5,|25-D 7,8(latest 15/2-07)| Ph1 29/5-08|http://www.energywave.lifepathunlimited.com/1
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