 |
| Author | Post |
|---|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Thu Feb 26th, 2009 17:05 |
|
Hi everyone!
Thought it was about time i wrote again about how im progressing...
Am on phase 2; benicar 40mg (6 houly consistently (i have only had to take 3 sublingual 20mg benicars when herxing got intolerable), eighth of zith, 100mg mino (48 hourly).
So far iv done the 25mg, 50mg, 75mg and 100mg mino (48 hourly) cycles with the eighth of zith every 10 days (a few days longer on the 75mg cycle) and am now on my repeat cycle of 100mg mino.
Wow does zith hit you! but i think im doing pretty well. The most taxing herxes im getting at the moment are headaches, abdomen and ovarian pains, fatigue, dizziness, nausea, bloating, candida, constipation, anxiety, OCD symptoms, low moods and panic attacks (especially on the low mino dosings with the zith). My complexion is fairly yellowy at the moment, i have headaches practically constantly, muscle fatigue and for some reason my right wrist and joints in my hand get very painful sometimes - didn't even know i had anything wrong there!! I'm sleeping a lot at the moment too, when i can, however at the beginning of phase 2 i had a lot of insommnia riddled nights.
Now for the improvements; my menstrual cycle has always been very irregular, being between 15and25days or missing it completely. However for the first time in ages i've had a 28 day cycle - yey! For a few days my stomach wasn't bloated to the extent it normally is regardless of what i ate and i normally have an incredibly tempermental and stubborn bowel. However im herxing a bit more now so thats back to being fairly bloated again. I'm trying to do a psychology Alevel at the moment and ive found im able to concentrate better, for longer and retain more information when i have a good day. My appetite has generally reduced a bit and im not having too many cravings anymore, which makes the weight issue slightly easier to deal with!
Overall, i'm happy with how things are going at the moment, and plan to take my first 1/4 of zith on the 9th March at the earliest, if the herxings very low. Now THAT makes me nervous!! Especially after my reaction to my first eighth of zith... but here goes!!
Hope everyone is progressing well! Take care,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
seanlane
Member
|
Posted: Sat Feb 28th, 2009 19:11 |
|
Yeah Zith is almost unpredictable......I was able to tolerate 3/8 dosage a while back and now having very intense herxing at 1/8.
I think it is wise to cut back on mino when you up the zith......when I go up again on zith I am going back to 25 mg mino.
____________________
Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08] 25D=11.7 July/09 Ph3 9/09
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Sat Feb 28th, 2009 19:23 |
|
Hi Sean,
I think that's what ive been doing. Everytime i go up on zith i start on 25mg mino. Is this what you meant?
Also can i ask you (or anyone else!) a question? If even after the repeat of the 100mg at the end of a zith level, you are herxing but in a tolerable manner then should you just wait until the herxing has stopped before moving up on the zith or should you repeat another ten days of 100mg mino and the same level of zith? I hope that makes sense.... always very clear in my head but very confusing when trying to explain what i mean!!
Gosh, so you had to start again from eighth of zith?? Oh man, i really hope that doesnt happen.  I hope you're still progressing well. Have you had any more improvments or has it been constant herxing for ages now?? Sorry to bombard you with questions, im just interested!
Take care,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Dr Trevor Marshall
Foundation Staff
|
Posted: Sat Feb 28th, 2009 21:40 |
|
The guidelines are intended to guide you towards a timeline where it takes about 9 months to work up to the full dosage of Zith. Please take a look at this Knowledge Base article:
http://mpkb.mp-dev.com/doku.php/home:basics:mp_duration
|
seanlane
Member
|
Posted: Mon Mar 2nd, 2009 03:12 |
|
Overall.....compared to what I was going through before the Marshall Protocol.....it has been nothing short of a miracle.
My food sensitivities were so bad I could not eat an apple sometimes without some bad reaction....and the Guinne Barre that set in was causing incredible twitching along with some slow progressing paralyisis in my lower left leg and constant heart palpitations..........and a fatigue that is hard to even describe in words.
On top of that I had a bipolar diagnoses previously .....so the mood swings were accompanied by all of the above.
What a miracle it was to find out what the food sensitivities were caused by[anti microbials blocked]
why I had developed neuropathy...why I had low serotonin[inflammatory cytokines]
why I had heart palpitations and tychycardia......why I had ADD[Too much 1,25 D]
After 8 months all of the food sensitivities are gone.....no heart problems whatsoever
ADD is amost completley gone.....even the neuropathy is amost gone......I think this happened fast because it came on fast...and I found the MP 6 months after the diagnoses......mood swings are dramatically improved....so again I cannot say enough about the relief it has brought......it is like being saved from hell
so I have come out of hell on earth....really.
It is just that I am probably too impatient......zith just knocks me down....not into hell
but into a state where it is very hard to do anything......
so don't get me wrong....the MP has already been a huge thing.....I just need to find a balance where I can keep my business afloat and still kill bacteria at the same time
Peace,
Sean
____________________
Bi-polar hypervitaminosis d neuropathy CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08] 25D=11.7 July/09 Ph3 9/09
|
Barney
Moderator
|
Posted: Mon Mar 2nd, 2009 23:02 |
|
Sean,
I know that I sound like a broken record, but extra Benicar will help level the IP's.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Thu Mar 12th, 2009 21:20 |
|
Hi All!
Am still in phase 2 and am now cycle 2 (quarter zith) and level 1 (mino 25mg).
I was quite worried for the days leading up to when i should have moved up a dose of zith because for some reason i seemed to be getting worse and herxing more, the longer i stayed on eighth of zith. So i decided to just increase to quarter zith and mino 25mg. I waited literally clutching my 20mg benicar supply, expecting to go down immediately... but instead i actually felt better - the zith actually made me feel better?! Very confusing and a bit startling but hey - there it is!! I'm on my 4th day at the moment and i still feel quite good.
I'm very mildly herxing atm. I'm having headaches, sore throat, very sore, itchy and dry eyes - very bloodshot and jaundiced. dizzy, tired, am restless, neck and back pain, also a feeling of skin burning/tingling/raw on my right arm and hand. All joints on my right hand and my right wrist are very painful (another problem i never knew existed comes to the forefront!!) Some abdo twinges and pains. Nothing too sinister yet but i hope im not speaking too soon...! Unfortunately my last menstrual cycle was 23 days. So hoping that will readjust itself in time.
If everything goes well then i should be increasing to 50mg mino and staying on quarter zith.
Best wishes to everyone and for their recovery, take care,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Fri Mar 27th, 2009 01:52 |
|
OK, update time again!
I'm on quarter zith (62mg), 50mg mino (48hourly) and 40mg benicar (6hourly).
I've been on this for the past 7 days and my main symptoms have been; headaches, bowel problems, nausea, fatigue and tiredness, flulike symtoms which lasted 2 days (e.g. sinus problems earache, hot on outside and cold on inside - get a lot of this!!) - but it's all been tolerable.
HOWEVER, the last 2 days my bowel has been extremely strange. It's started spasming, but all attempts of bowel movements are unsuccessful. I'm getting failry constipated and it's painful and my anxiety level is increasing (all similar to pre MP). I know this is probably a herx but still. It's really distressing with the bloating and painful bladder and everything feels inflammed and sore but i don't have any actual pain - it's just uncomfortable, anyone had experience in this or has anyones IBS/constipation totally resolved yet?? Would be great to hear from anyone about this as im kind of on edge.
I plan to start my 75mg mino cycle with quarter zith and of course good ol' benicar on sunday.
Take care and hope everyone is recovering well,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Barney
Moderator
|
Posted: Fri Mar 27th, 2009 02:26 |
|
I googled (at the top of this page) the word CONSTIPATION and here is your link:
I'm constipated. What should I do? - Marshall Protocol FAQs ...
Hope this helps!!!!
You can google (at the top of this page) also and just use even just one word.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
|
Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Hope, Australia |
| Posts: | 334 |
| Status: |
Offline
|
|
Posted: Fri Mar 27th, 2009 03:09 |
|
Hi Treefrog
Barney of course has pointed you towards the info you need
I know a little about how you have been feeling recently.... do not get the degree of IBS you have suffered with, but I do know how it can complicate my bladder inflammation which still comes and goes as I move through phase 2
(love the way the timed lights in some toilets send me into the dark in some facilities because I can take so long to “P”) 
Just a thought
Since you have new sx in last 2 days
Maybe consider revise your plan to progress mino up until new symptoms have settled a little ?
personally I am likely to get stronger herx when I hit 75 mino than at other dose rates
Good to read you have been doing so well
Sallie
____________________
Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 | http://mp-lifestyles.org/category1/ | for recipes, menus, clothing tips, discussion of various MP issues...
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Fri Mar 27th, 2009 14:36 |
|
Barney - thankyou as always for your help! I'm taking all the preventative measures already so may just have to use the suggested measures occasionally, when i feel like this.
Sallie - thankyou for your advice! I'm in two minds to be honest and rather confused because on the one hand i understand tht it is probably a herx and therefore the first thought would be to wait to see if it abaits. HOWEVER, i have been monitoring my patterns very closely and i seem to feel much better in ALL my symptoms when i move up on or take my next zith. But i'm taking my zith as much as is safely possible (every 10 days). Because, as you said i tend to feel worse towards the end of my zith cycles so i think i crave the zith. However if im herxing mostly towards the end of my zith cycle does that meanim only killing bacteria in those few days?? I'm so very very confused!! Any thoughts/experience/advice would be immensly appreciated (from anyone)!
Take care and thankyou so much!
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Fri Apr 10th, 2009 12:17 |
|
Hi everyone! Update time!
I have finished my quarter zith, 75mg mino cycle.
I definitely think i find 75mg mino cycles the most taxing herx-wise. I had a lot of abdo pain, bad bloating, bowel inflammation, nausea, headaches, sore throat in tonsil and thyroid region, painful legs, tired muscles, ovarian pain, stomach, liver, transverse colon region - pretty much everywhere in the abdomen. I got more tired and fatigued. Period pains but my menstrual cycle was 31 days long - the longest it's ever been without being missed all together! very exciting stuff!
On Wednesday the 8th i started my quarter zith, 100mg mino cycle.
I found that things have dulled down a bit (however im only just about to start day 3 - which is where i start herxing normally - so watch this space!!). I have been sleeping A LOT, have a headache, sore throat but less abdo pains. I seem to have more bowel movements the higher the abx are that i take. I've also been slightly jaundiced for a while. However my skin is also super soft! That says hormone rearrangment to me!! Also been having a lot of hot flushes - also feeling less cold than normal (i know people will this that this is a no brainer because the weather getting warmer so obviously im going to feel warmer but even during the summer when i used to stand in the direct sun i always felt FREEZING - so its a big thing for me!)
I also noticed that a spot on my arm appeared yesterday and that it was really hurting and was red and inflammed. I was thinking about it for a while and noticed its not a spot it's actually where i had my BCG jab! That got me quite excited for about a minute before i fell asleep again!
I tried going out for a meal with some friends as it was dusk about a week ago so during my 75mg mino quarter zith cycle, and i covered up, used zinc oxide cream, wore noires etc and took an extra 20mg sub benicar before i went out. The only effect i could see was that my heart was pretty fast but this couldve been because i was nervous? Im also not sure wether the herxs mentioned above wouldve happened anyway even if i hadnt gone out in the light or wether they are a reaction from about 20 mins of covered light exposure? I dont really know... will try again soon and see what happens i guess.
I plan to continue on this cycle (1/4 zith, 100mg mino) for at least the 10 day cycle and then when herxing is ok move up to 3/8ths zith 25mg mino.
Take care and i hope everyone is recovering well,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Sun Apr 12th, 2009 12:36 |
|
Hi everyone,
Just wondering wether my posts are visible at the moment as i got a PM saying that my posts havent been visible recently?
Thankyou and take care,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Barney
Moderator
|
Posted: Sun Apr 12th, 2009 14:57 |
|
Treefog,
As soon as you hit send, they are usually posted.
Who sent you the PM?
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Fri Apr 17th, 2009 22:03 |
|
Hi Barney,
Sorry but got the wrong end of the stick from somebody so dont worry! They meant on the main site rather than on curemy. Sorry!
Take care,
Treefrog
and there are no treefrog posts at the MP site.
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Sun Apr 26th, 2009 15:37 |
|
Ok, latest update (second time iv written this because i lost internet connection!);
Well, i've been on 3/8ths zith, 100mg mino and 40mg benicar 6 hourly consistently for one cycle so far.
Main herxes; extreme fatigue/ tiredness/ insommnia/ candida/ bloating/ eye pain/ ear pain/ headache/ neuro probs/ dizzy/ twiching and aching muscles...
Neuro herxing has been fairly occupying lately. One minute feel hypermotivated and the next i just want to sleep. I feel very confused about life in general and quite low. I've had my emotional moments, irritability, anger, annoyance, short temper... all in all my head's not happy.
I have a bit of a dilema at the moment too. I have my psychology Alevel on the 9th and 15th June. I am presently on 3/8th zith and 100mg mino and i plane ot do at least another cycle on this level. Then when happy on this level plan to move up to 1/2 zith 100mg mino. However wiht my exam being quite close i thought i would carry on with this plan but for 2 weeks over my exam period (to allow for cramming) i'd drop to 25mg mino and take sub benicar before my exams. Any advice would be greatly appreciated as always. I'm quite stressed out at the moment.
Revision for it isnt going overly well at the moment either because i keep feeling the need to sleep but whenever i try i cant. So unless by some way of a miracle i stumble across a method that'll let me sleep and revise simultaeneously then im in a bit of trouble... damn brainfog...
Take care and hope everyone is recovering well,
Treefrog ...with a headache
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Barney
Moderator
|
Posted: Sun Apr 26th, 2009 16:40 |
|
Treefrog,
You have an option of taking the Zith or not taking it. Here is the new video from Prague explaining that BENICAR is more important at killing the bugs and that abx is not necessary especially if you cannot tolerate the Zith and other abx and the new updated 11 page Phase 1 document. Lots to read and absorb. Would be great if you would print them out for future reference (11pages). You must keep up constant Benicar as instructed in this new Phase 1 doc. You must ween off abx and go up on Benicar (stage 5, page 2, this is the link to getting off abx). I have been on Beni only since 9/2007. Still have IP's but you use Benicar to calm them. I hardly even take a pain pill anymore. I hope this helps you:
http://AutoimmunityResearch.org/Phase1.pdf
During the recent Workshop on Clamydial Infection in Prague, Czech Republic, I gave an overview of the therapy which has become known as "The Marshall Protocol." An HD video of that presentation is available at:
http://vimeo.com/4293599
In Prague I also summarized the Science underlying that therapy. The HD video is at http://vimeo.com/4307469
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Thu May 14th, 2009 04:44 by Barney
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Tue May 12th, 2009 12:16 |
|
Thanks Barney!
Quick update on progress; I'm on 7/16ths zith atm, 100mg mino and 40mg benicar 6hourly consistently.
Am feeling very good at the moment and had a very good day yesterday, was able to go outside for the first time in the middle of the day (necessary precautions taken ofc) just for about 10 minutes but felt fine afterwards too. Also proceeded to do a few exercises later in the day. Still felt ok.
I plan to see how this cycle goes and then i'll update on my next plan of action depending on how i feel this week. Am able to get more revision done atm too which is definitely good!!
Take care everyone,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Barney
Moderator
|
Posted: Wed May 13th, 2009 01:38 |
|
Thanks treefrog!!!
HANG IN THERE, WE WILL MAKE IT!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
|
treefrog
Member
| Joined: | Tue Jun 17th, 2008 |
| Location: | United Kingdom |
| Posts: | 81 |
| Status: |
Offline
|
|
Posted: Sun Jun 7th, 2009 21:47 |
|
Just a thought, has anyone experienced already formed cysts resolving and disappearing completely on the MP?
I know that the MP obviously prevents the development of cysts but i was wondering if anyone has had any experience with fullyformed one going? As i have a few and one in my eye that i would particularly like to be rid of! Woulod love to hear any experiences.
Very quick update (will write a longer one after my exams). I am on 1/2 zith tablet, 100mg mino and 6 hourly benicar (occasionally ramping to 4hurly when needed and taking subs if necessary). This is my second cycle on 1/2 zith and am herxing considerably! All tolerable and when uncomfortable an increase in benicar solves problems. I plan to stay on this level until practically all IP is gone or unnoticable.
Main herxes; tired/sleepy/fatigued/headaches/fire in head/ eyepain and soreness/sore throat/dizziness/brain fog/constipation/neck pain/muscle pain and fatigue and twitches/either complete loss of appetite or huge appetite alternating/OCD behaviour and thought patterns/abdo spasms and pains/bladder spasms and irritability/spots under skin coming up/spots on legs coming up/itchy skin...
Main improvements; very soft skin/better mood-more content and less anger/last menstrual cycle 30 days (getting pretty consistent)/after spots have come up skin is becoming smoother and less spotty/have moments of good mental ability/less constipated as i herx less on this level/less bloating...
I've probably missed out a lot because i've got a headache atm and am not thinking entirely straight but i'll write again soon when im less stressed about exams!
Take care and hope everyone is recovering well,
Treefrog
____________________
IBS, PCOS, OCD, fatigue, anxiety, bitten by tick lyme, food sensitivities
no D supplements, light avoidance
initialD25preMP=18.8 D25Jan09=4.4
Ph12ndNov08 Ph2Jan09-30thAug09 Ph330thAug09
OnPhase3
|
Current time is 10:57 | Page:   1 2 3 4 5   |
|
|
|
|
