 |
| Author | Post |
|---|
cathk
Member
|
Posted: Thu May 20th, 2010 20:45 |
|
It's a novel....I promise I won't post anything this long ever again.
Here’s my story… I have not really ever felt great for any length of time since giving birth to my first child 13 ½ years ago . . .I suffered what they called post partum depression at that time. I think I was anxious but more than depressed I was completely fatigued and felt unable to take good care of my baby due to my low energy… I went to postpartum support groups and on anti depressants and struggled for 2 years. these things helped but the thing that had the biggest impact on my health was when I saw a naturopath and did the yeast cleanse and got off some of the sugar I was addicted to. I never fully recovered and was never really able to go back to the fast paced full time job I had but I was better than I had been… moving on…I quit smoking almost 9 years ago and that certainly helped but not as much as I would have hoped for. 5 years ago things got substantially worse… I was working nearly full time hours and long days as a hairdresser (self employed with a salon in the house) and it was just getting harder and harder… I couldn’t keep up with my house and I felt like I had nothing left for my kids. It was just work and then recover to go back to work. My life felt like chaos. But I seriously thought it was my fault somehow…I was eating the wrong things or I wasn’t exercising or something and that if I just did the right things I would be fine. I had lost about 70 pounds with the help of a 12 step program for food addiction and I thought my body should feel better but it didn’t. My back hurt all the time. I got planter fasciitis and had to quit running (which I had only just started 2 months prior for the first time in my life), in fact for awhile I had to even stop going for walks. Then a family member became ill and I felt I needed to help support them and was driving across the city to go visit and do her hair and I could feel the end of my rope….I felt like I was having to walk up an escalator that was going down while everyone else got to walk up the stairs. It felt like it took me 4x the effort to do what most “normal” people did. I just could not keep up with normal things like working, making dinner, keeping the house above a level of squalor. This went on for a year…getting worse. .. Then about 3 1/3 years ago I was diagnosed bi-polar and in a state of depression. Bipolar 2. Not real mania but hypo mania which never seemed a problem as much as a welcomed burst of “normal” energy levels. The problem was the depression and fatigue. I still swear that I got fatigued and had no energy and had to sleep all the time which is what caused my depression because when well I am a doer, I get a to-do list in my hand and I just go. So I refused lithium as it scared me and because I wasn’t convinced of the need for it given my hypo –mania was not what I perceived to be the problem it was the lack of energy all the rest of the time that was the problem. 8 months later I quit working completely (self employed hairstylist). I could not make myself over ride my system anymore. I did nothing for 3 months…I had no energy for anything. And it didn’t get any better. I slept all the time or played computer solitaire…ignoring my kids and zoning out for long periods of time. Finally I was hospitalized because I was suicidal 6 months after that (that was 2 years ago). In the hospital they did some random blood work and it showed that my thyroid numbers had jumped… and finally after complaining of hypothyroid symptoms for years they started treating me with synthroid. From the 3rd day on that I got a bit better every single day. It was a miracle for me. I started to feel more and more normal every day. I could make dinner occasionally and clean the house, I wasn’t vacant and staring blankly all day long anymore…all though it didn’t just stop overnight…I still played solitaire and felt the need to zone out often but I could be functional the rest of the time. So the energy level improved from one degree above dead to maybe 50% of what I think is normal. And that is as good as it got. I have good days and bad days but my physical ailments have gotten worse. I saw two rheumatoid specialists during the next 2 years because during these last 4 years my ana levels were constantly high …every single blood test, yet no rheumatoid factor despite my hands practically tripling in size for several weeks when I had a “flare up” once. My joints are always stiff and sore to some degree. Every time I try to embark on an exercise program I get either sick or my muscles hurt so badly I have to stop or both. And this has only gotten worse in the 4 years as well. Now I can’t walk around the block without getting a cold. In fact I have had a cold for the last 9 weeks straight now. I have about 1 day every 10 when my nose has clear mucus the rest of the time it is infected sickness. I have gone for massages fairly regularly in the last 4 years about every 3 weeks seemed to work. It was like forced relaxation….it doesn’t matter how much I meditate or stretch… those muscles bunch up and hurt. Now the massage benefits don’t last 3 days and I feel as bad as I did going in and I’m not talking about no therapeutic feel nice massage I’m talking about a make you squirm, work those nasty things out kind of a massage where you feel like you might be black and blue when you leave. Oh ya and I forgot to mention that in that depressed zoned out few years I gained back all the weight and have been unable to let it go thus far although I did finally give up sugar and most sweeteners (still use a bit of stevia or agave) completely in October 2009. I have known for 9 years or more that sugar gives me arthritis like symptoms in my joints and it causes me mental distress but still when push comes to shove and I am in severe pain of a physical or emotion nature I want to eat sweet anything….so I’ve upgraded…fruit smoothies with steevia now instead of whole cheese cakes.
So last Wednesday I finally had enough….enough of my pathetic misery and I looked up chronic fatigue syndrome and made an appointment to see the Doctor …again. That is when I first came across the Marshall protocol but didn’t have enough time to research it before my appointment. The dr. referred me to the chronic fatigue fibromyalgia specialist after comparing my symptoms against the CDC (I think that is what it is called but don’t quote me) and deciding that yes my history and symptomology would definitely fit that diagnosis…. but I just found out that I will have to wait 2 years before I can get to see her due to the long wait lists here. What else have I left out? My iron hit below 25 several months ago and I have been taking supplemental iron. My vitamin D plummeted and the Dr. started me on 400 IU per day about 9 weeks ago….that is when this cold started and has not left since. My thyroid levels were going up to so we increased my synthroid 9 weeks ago as well. My back hurts almost every day. My feet hurt every day…they feel brittle, like they might break and sore. My hands are usually some degree of sore. I wake from the drilling pain in my hips often. It feels like I have plantar fasciitis of the neck and head every day. Like something is too tight in there. Stiff, low range of motion, probably inflammation…definitely pain and fatigue. My knees almost always hurt to go up stairs. I went down a water slide 3x and tried to dance the same night (my feet hurt to badly to dance though) and that ended me up in bed for 3 days. I have Irritable bowl syndrome siding to the constipated side. There are a plethora of foods I can not eat including most processed foods, sweeteners, flours and many wheat products…many grains actually. My body will just not digest them without severe pain.
I think that is the main stuff. So I checked out the various MP sites and read and listened for 4 days straight. Made another Dr’s appt. and went in yesterday to see what she was willing to do for me. She was willing to request the blood work. She told me that maybe the specialist would treat me(I didn’t find out until today that I’m going to have to wait 2 years to see her) or that I could call the MP doctor from the list who is in Edmonton(3 hours away). So I went and got my blood work done and came home and called Edmonton. The receptionist was lovely and took all my info and she asked the Doctor about the MP , he said that he didn’t think the medication (olmesartan) was available in Canada but that he would check into it and I could call back next Wednesday to see if he would be willing to take me on as a patient.
That is where things have been left. I’m assuming the olmesartan is available in Canada….please someone tell me it is. I see several other Canadians on this site so it must be available right?
I’m going to wait until I have a doctor who is willing to treat me before I order my noIR’s . I have cut out all vitamin D from my diet. I have finished planting all my gardens now so I am prepared to avoid the sunlight mostly. This is actually the part I am finding the hardest to come around to. I’m willing to cover up and use the mega sunscreen but I’m not willing to not go out in my garden. I’m willing to do it at 5 am before the sun has risen but the light is just starting to show in the sky or at 10pm when the sun is setting but the sky is still light…but I it is one of the few things in life that I feel I get any joy from…plus I’m worried about the SAD factor….
Besides the vitamin D I gave up grapefruits which I was eating 2 a day of until I read about them on the site and I stopped taking all my supplements that I was taking but I will probably have to go back on the iron I suspect. Medications I take are syntroid.075mg’s for the thyroid problem and I take 300mg’s wellbutrin which was supposed to help with the depression…I’m not convinced it ever did but was too afraid to stop taking it in case it was contributing to feeling better in some degree. I checked the medication area of the website and did not see that wellbutrin was a don’t but I may have missed something…any information or thoughts on that?
I’m nervous about the prospect of signing on to be sick for 3-5 years but then I remember oh ya I am sick and have been in varying degrees for 13 years and more so even for the last 5. What is the alternative? At least this alternative has an ending at some point. I’m glad I belong to a 12 step program because the truth is I am a whiner and I will not try to pretend to be anything different. I have whined my way to recovery and I will whine my way through this if that is what it takes. I promise to do most of it to my friends and as little as possible on line. I also promise to keep further posts more efficient and less wordy…more fact and less feeling…but I did feel the need to say Hi this is who I am and here I go.
I do have a question that I really didn’t see addressed even though I did get a site that was supposed to address Candida. I have to wonder if I’m not going to be doing 3-5 years of yeast cleansing after my 3-5 years on antibiotics…this makes me nervous…not unwilling, just nervous.
I hope I can post again next week with good news about a doctor to treat me and my vit d levels.
With kindest regards,
Cate
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Cynthia Schnitz
Board Staff
| Joined: | Tue Jul 29th, 2008 |
| Location: | Arizona USA |
| Posts: | 790 |
| Status: |
Offline
|
|
Posted: Thu May 20th, 2010 23:03 |
|
| I wouldn't worry about the Candida, tho a few MPers have had bouts with symptoms on the MP. Candida is a co-infection, and your immune system will take care of the Candida once it is working again. My intestinal Candida was fought with for many years with Nystatin, and every so often when my low carb/low sugar diet eventually wasn't enough I'd go with another round of Nystatin. Even when I went for long periods without Candida symptoms, yellow cheese would always send me into a stupor for an hour or so. Had to avoid it like the plague if I was the responsible person to do the driving back home after a 2 hour drive to the big city. When I started a low D regimen for 4 months before starting the MP, it was at the 3 month mark I discovered I no longer got a reaction to yellow cheese. Seems the removal of D was enough of a break/stimulus for my immune system to allow it to finish off the Candida. Haven't had a problem with Candida in 1.5 years on the MP so far. Cynthia
____________________
Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | On Vacation |
| Posts: | 984 |
| Status: |
Offline
|
|
Posted: Fri May 21st, 2010 07:46 |
|
Welcome Cate.  Looks like you might just have "the right stuff" for recovery with the MP treatment.
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
heatherK
Member
|
Posted: Fri May 21st, 2010 11:00 |
|
Cate:
Olmesartan is available in Canada, called Olmetec ( Schering-Plough Canada Inc). It does contains lactose, so I get mine compounded without lactose.
I, like Cynthia found the MP takes care of candida, although I have experienced symptoms while on the treatment but its happening a lot less now. 32 months on MP.
Welcome the world of the MP!
Heather
Last edited on Fri May 21st, 2010 11:01 by heatherK
____________________
CFS for 5 yrs+ /started MP Sept20/07,Phase One,Started Phase Two on May 4/08. Start values( 25-D=24ng/ml, 1,25=47.5pg/ml.)In Dec 08 25-D is 8.8 /Still In blackout home/ wearing NoIRs/ Presumed celiac, wheat,gluten,dairy free.
|
cathk
Member
|
Posted: Fri May 21st, 2010 14:52 |
|
Cynthia, thanks for your quick reply... I have read many of your replies throughout the site.I love your photo and always enjoy reading your posts. 
Joyful, thanks for the welcome and the encouragement! 
Heatherk, thank you for telling me that. was there a time when it was not available in Canada? The Doctor seemed to think it wasn't available so I'm assuming at one time maybe that happened and maybe nobody has contacted him since in regards to the MP...which strikes me as strange ... but I'm thrilled it is available and now I will cross my fingers that he will take me on as a patient and that I can make the 3 hour trip to his office work out!!! one thing at a time though!
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
heatherK
Member
|
Posted: Fri May 21st, 2010 15:48 |
|
Olmetec became available in Canadian pharmacies last year. See Juanitas post in July of 2009 in this link
http://www.curemyth1.org/forum2/541-6.html
Heather
____________________
CFS for 5 yrs+ /started MP Sept20/07,Phase One,Started Phase Two on May 4/08. Start values( 25-D=24ng/ml, 1,25=47.5pg/ml.)In Dec 08 25-D is 8.8 /Still In blackout home/ wearing NoIRs/ Presumed celiac, wheat,gluten,dairy free.
|
cathk
Member
|
Posted: Fri May 21st, 2010 15:59 |
|
Thanks again Heather What is the link that you are posting your progress on? I'd love to read it.
Cate
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
PoochyMama
Member
|
Posted: Fri May 21st, 2010 16:58 |
|
Cate, I read your whole post. It was well written and easy to read and I appreciate your honesty. You will find a lot of support on this site as you move along on your healing journey.
When I started the MP in March of 2009, Olmesartan was only available in Canada through Yetvart Pharmacy in Quebec. Soon after, it slowly became available at all pharmacies. It seems that most of them don't stock it, so be careful to not let yourself run too low before reordering. It usually takes about 3 days to have it brought in.
Also, here is a link on iron supplementation which may be helpful to you.
http://www.marshallprotocol.com/view_topic.php?id=3479&forum_id=32&highlight=anemia
Live and very excellent radio interview with Paul Albert, a vitamin D researcher and expert on the subject. THIS IS VERY INFORMATIVE!
http://www.oneradionetwork2.com/mp3/health/healing/albert_paul_marshall_protocol_vitamin_d_L_form_bacteria_jan_17_10.mp3
____________________
Tickbite/1980.Diagnsd 2008,borrelia, mycoplasma, bartonella.Severe chronic pain/head-aches. 25D 18, Mar/09, 1,25D 37.5, Mar/09. 25D 16, Mar 2010.Began Olmesartan 4X40mg/daily, Mar17/09. 50mg mino/Q48 10mg morphine 1X/day, trazadone50mg@night,B12/Mag wkly
|
heatherK
Member
|
Posted: Fri May 21st, 2010 22:37 |
|
Cate: this is my story from Sept 2007
Benicar Forum http://www.marshallprotocol.com/forum19/10313.html
Phase 1 Alumni Forum http://www.marshallprotocol.com/forum30/10393.html
Phase 2 http://www.marshallprotocol.com/forum35/11400.html
I am recovering !!
Heather
____________________
CFS for 5 yrs+ /started MP Sept20/07,Phase One,Started Phase Two on May 4/08. Start values( 25-D=24ng/ml, 1,25=47.5pg/ml.)In Dec 08 25-D is 8.8 /Still In blackout home/ wearing NoIRs/ Presumed celiac, wheat,gluten,dairy free.
|
cathk
Member
|
Posted: Wed May 26th, 2010 05:41 |
|
Hi PoochyMama,
Thanks for you kind words and encouragement. I am listening to the radio show right now, thank you for the link. The one about iron I can't access as it is only for members unfortunately.
Heather,
I can't get into the first and third site but I did get into the second one you listed and read the first page. Wow girl you had it baaaaaaaaaaad for the first month that I have read about anyways. I look forward to reading it all as I get time on the computer. I hope I can get into the other sites at some point. It is good to know what to expect to some degree and a bit unerving to say the least but I'd rather know exactly how bad it could be and then be glad if it's not quite that bad. I am thinking more about changing the house lighting before going on the meds and then changing them back if it's not too bad as opposed to the other way around now that I have read about your experience. Thank you.
tomorrow is the day that I call the Edmonton doctor to see if he will take me on as a patient. If he says yes I will make my fist appointment for as soon as possible and I will order my noIRs. My blood tests have been in since Friday but none of the doctors could see me until next Monday.
I have a question about welbutrin... I didn't see it on the "Not recommended list". I'm not convinced it's doing anything for me and yet I'm a bit nervous about going off it just incase it has been. any thoughts on that?
with kindest regards,
Cate
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | On Vacation |
| Posts: | 984 |
| Status: |
Offline
|
|
Posted: Wed May 26th, 2010 10:12 |
|
Hi Cate.
I typed that medication's name into the MP knowledge base search box and it did find the right article...
http://mpkb.org/home/othertreatments/antianxieties#weaning_off_anti-anxiety_agents_and_antidepressants
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
cathk
Member
|
Posted: Mon May 31st, 2010 12:13 |
|
Thanks Joyful,
Your bottom line is a helpful quick resource for me, it seems I find things and then when I want to see them again I can't remember where it was I had found the link !! I am navigating better now.
I have an appointment to see my GP about my vitamin D levels today. I have printed off amy's "About the Marshall Protocol" and all the Phase 1-3 and related documents for her. I gave the last copies to the GP who saw me a few weeks ago so I printed off another copy for myself as well. Every time I read all these documents I understand it even better and can talk about it more confidently
The MP doctor in Edmonton is willing to take me on as a patient which is a relief for me. It is a 6 hour round trip for me to travel there but I am grateful to have a doctor within driving distance available. Even though I don't particularly like driving I am trying to look at the positive's, one being that I can listen to my books on Cd which I rarely seem to get a chance to do. My first appoinment with him is June 14.I will be "working on" my own GP ongoingly and hope she will come on board eventually. I continue to follow a "No D" diet and continue to try and steer it towards a lower carb plan.
With kindest regards,
Cate
PS Cynthia, I just read your posts and many others on the "celebrate your MP Anniversary Here" and needed kleenex!! It is so helpful to hear these hopeful stories. Thank you, Thank you , Thank you
Last edited on Mon May 31st, 2010 13:03 by cathk
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
cathk
Member
|
Posted: Mon May 31st, 2010 22:12 |
|
D levels are in.I'm not sure how the lab treated the 1,25...there were no specific instructions along with the request other than must be frozen. With the MPKB calculator I figured my canadian measurments into us measurments they are
25D is 22.96 ng/ml
1,25 D is 57.5 pg/ml
the 25 D is low and the doctor had put me on 4000 IU of D to bring that number up so I believe that number is a bit higher due to some supplementation which I have since ceased as of three weeks ago. My doctor personally didn't think this was a high number for 1,25 (no MP understanding whatsoever,nor interested in treating me with it) in fact she said it was right in a middle range. but I read on Amy's Bacteriality site that when 1,25 levels raise above 42ng/ml that calcium begins to be leached from the bones.... and regardless of these numbers or what the Canadian medical association thinks of them I feel like crap and can identify with so much of what I read on these sites and am thankful that I have a doctor within driving distance who is willing to treat me with the MP.only 2 more weeks to wait.
and sorry about the triple posting....appparently I am not quite savvy with the process yet.
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | On Vacation |
| Posts: | 984 |
| Status: |
Offline
|
|
Posted: Tue Jun 1st, 2010 06:22 |
|
edit to add:
You can use the vitamin D calculator here:
http://mpkb.org/home/tests/vitdinterpretation
also: http://mpkb.org/home/tests#pre-treatment_d_metabolite_tests
Hi Cate. I've had problems with long delays from the time I click the (Send) button to when the forum site manages to redisplay the topic thread with my post. I'll make a note to mention it to our administrator as soon as possible.
It's always a good idea to write posts using a "notepad" type tool on your desktop first and then cut/paste it into the post window so if something happens, it doesn't all get lost.
Last edited on Tue Jun 1st, 2010 06:31 by Joyful
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
cathk
Member
|
Posted: Sun Jun 20th, 2010 18:02 |
|
Hello,
I’m about to start the actual treatment within days so I thought I’d post my starting point and ask a few questions.
My current symptoms of my illness are:
Long term and mostly constant –
-Headache-feels like a tightening of muscles below crown to base of neck-like the fascia is too tight.(3-6) -Neck is always sore and has been for years now,it is always some degree of stiff and it feels weak-like it’s not strong enough to hold up my head. (3-6)
-Neck to shoulder soreness and stiffness, tension(relieved by massage ,but not lasting) (3-6)
-Low back/sacrum-sore and most often extrelely sore to touch-like through the roof. (1-7) -Glutes/hips-extremely painful to touch. Chronically sore. Hip drilling sensation in bed after an active day (2-8)
-Feet- sore-painful-plantar fasciitis-ankles feel weak and brittle-hurt in anything but runners w/orthotics and even those often. Toes ache-feet often stiff. (2-6)
-Hands-joints stiff-often sore.Wrists often irritated/brittle and weak feeling. (2-4, not including flare up which was 8or9)
-Knees-always sore-weak feeling. I always feel this when doing stairs. Bike riding feels impossible due to knee pain/weakness. (1-6)
-Fatique-wind blows and my energy level drops- then the wind blows and I have a good day-literally the wind blows.Can not link it to anything consistently. Sometimes it is affectd by
-previously overdoing/overriding or exerting to much
-too much stress/high energy exertion
-sugar/overeating/aspartame
-clean eating
-exercise
-having a few consistent good days is always followed by down days (1-8)
-Muscle fatigue-neck-arms-legs-feels like I just can’t hold them up-must sit or lie down. (0-6)
-Depression- almost always precipitated by fatigue(0-8)
Things that have happened
1-had mono in 1983
2-neurological migrane-felt like stroke 1995
3-postpartum depression/fatigue 1997
4-neck inflammation-had to lift head out of bed. Worst pain ever (9).lasted weeks.2006
5colonoscopy and throat thing due to severe indigestion/gastro intestinal pain/discomfort. 2005
6-back pain-tried acupuncture which made it worse-unable to walk up stairs-nerve like thing. 2009
7-hand inflamtion-3X normal size-unable to use hands at all for days unable to use comfortably for weeks. 2009
Havent really felt good for sure since first baby(14 years ago). Probably longer.
-ANA levels constantly high for last 4-5 years
-thyroid problems-hospitalization
-chronic pain and fatigue
-depression
-bipolar? Or high energy personality with chronic fatigue illness?
Newer things
1-base of skull/neck-sinus-ear thing-feels all connected.sore,achy-congested-draining.(4-6)
2-, infected(green), nose scabs,sometimes a mildly sore throat and cough but it comes and goes. 13 weeks now. (2-4)
3- unable to exercise without creating worse symptoms (8)
Comments-
I stopped eating vitamin D containing foods and all my regular supplements 5 weeks ago (I think the supplements definitely helped with my brain chemistry as I have been feeling progressively worse mentally the longer I go without them). I met with the Doctor who is willing to prescribe for the MP but he has not really treated many with this protocol and probably not any in years so I feel I need to take full responsibility for my treatment, and am very grateful to have him prescribing.
Non-MP meds:
-I started 500mg ciprofloxacin 2X day on June 12 for a bladder infection and took my last one on the evening of the 19th
-wellbutrin 300mg day
-syntroid .075 mg day
Other protocol info:
My sunglasses have arrived and I plan to black out the windows today in preparation.
Questions:
I thought I would wait until Tuesday to start the Olmasmarten so that the ciprofloxacin would be out of my system.
1- Should I wait longer?
2-Is it the Olmasmartan or the antibiotics or the herx that causes the sunsensitivity?
3- It is my understanding that the thyroid levels can change very quickly after starting the MP. Should I get blood work done a week after starting ? and then how often after that to check my thyroid levels?
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Rico
Moderator
| Joined: | Wed Oct 17th, 2007 |
| Location: | |
| Posts: | 320 |
| Status: |
Offline
|
|
Posted: Sun Jun 20th, 2010 18:21 |
|
Here's what the Phase One document states re Thyroid meds:
| Thyroid supplements. Need for these supplements may change within a day or two of starting the Olmesartan blockade. Monitor thyroid function closely and adjust the level of thyroid supplementation downward as needed. |
Here's another comment from the mp site:
Adjusting thyroid medications
It's important you work with your doctor to find the correct dose of supplement as you progress on the MP by monitoring thyroid function frequently. If symptoms appear to be due to improved thyroid function and too much thyroid supplement, reduce the dose and contact your doctor as soon as possible. |
Light restriction
Fluoroquinolone antibiotics
____________________
MP Knowledge Base; Bacteriality; Success Stories; Dr Marshall's Perspective
|
cathk
Member
|
Posted: Thu Jul 1st, 2010 05:27 |
|
Hi ,
Here is the update. Hopefully in an acceptable format, if not please give comments and I can adjust it accordingly.
Starting D levels- - D125 is 57.5 pg/ml D25 is 22.96 ng/ml
MP meds- 40 mg Olmesartan 4X per day since June 21/10
Non-MP meds -wellbutrin 300mg day -syntroid .075 mg day
Advil when symptoms go above 5 which is then intolerable without the pain relief. The Advil works well to keep any pain tolerable.
Natural light exposure- none in house-windows blacked out. Have spent about 1 hour out and about most days, usually wearing noIRs.
Symptoms – the only things that seems different since starting the Olmesartan is that I have a different headache 3-6 (different area of my head) and my eyes feel strained often 2-3. Other than that it is the same symptoms as usual
with the muscle weakness 3-6 getting more noticeable.
the need to lay down horizontally to feel relief from the fatigue 3-6 every day for a few hours.
I feel down/depressed 3-6 and a bit hard on myself because I have this sense of having to accept my limitations and that feels like giving up in a way to me because prior to this point I have been “fighting” it. Now I’m just to freaking fatigued to put up much of a fight.
Comments- I was shocked to realize how relived I felt when I blacked out my windows, I always knew being out in the sun sucked my energy but I had no idea that the light itself was doing it. I do miss the sunshine and the view however so I do peek out once in awhile. I do feel somewhat more sun sensitive(headaches) since starting the Olmesartan. I have been taking the Olmesartan 4X per day for 10 days now. I was going to wait until Monday to start the mino but I have clients every day next week and that is typically hard on me anyway so I thought I might start tomorrow as I have 0 plans for the next 4 days and would rather see if I have a reaction when I have less things on the go. I am also going to start a set of 10 Rolfing sessions after the referral of a few different people including the doctor who is prescribing the MP meds for me. My first appointment is next Friday.
Other things- a no D diet
Questions- is it ok to start the mino tomorrow?
With kindest regards,
Cate
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Deedee
Member
|
Posted: Thu Jul 1st, 2010 23:15 |
|
Current guidelines, are to stay on Benicar alone for several weeks or until your IP is stable, whichever is greater. Go slowly. Read and re-read this carefully:
http://autoimmunityresearch.org/Phase1.pdf
____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
|
cathk
Member
|
Posted: Fri Jul 2nd, 2010 01:12 |
|
Thanks Dee Dee,
When I wrote that I really thought my IP was well within the tolerable range…as it doesn’t feel any worse then my symptoms ever do…just slightly different. I did re-read the phase 1 document yesterday and again after you posted (thank you). And did some more reading on the MPKB and maybe my IP’s are way more then I thought but because they seem tolerable I thought I should get on with the bacteria killing process with the mino. Thank you again for posting. I will wait longer then the original plan of Monday and try next weekend as long as the IP doesn’t get any worse in that time. Is that several? Several is more than 2 in my estimation…I realize how much I minimize my symptoms, I think I am so used to them and so often think that I am just being a baby(compared to normal people) that I try to over-ride them often. I’m so used to feeling like crap that I just want to get on with it even if that involves feeling like more crap for awhile. In my head I can be patient once the killing has started but until I start the mino I guess I have been in a hurry…. Thanks for the patience reminder…
Cate
____________________
CFS,hypothyroid,IBS,food intolerance,chronic joint and muscle pain(most severly in neck and back),plantar fasciitis,TMJ,bi-polar,anxiety, starting D levels 05/10-D125/57.5,D25/22.96 PH1 start June 21/10. 07/10 D125/35,D25/8.36
|
Deedee
Member
|
Posted: Fri Jul 2nd, 2010 02:00 |
|
| Just remember that on the MP it is your own immune system that does the bacterial killing, not the antibiotics. Getting the D out of your system and stabilizing on the Benicar is the first step to awakening your immune system. Give that a chance to work and go slowly.
____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
|
Current time is 20:25 | Page: 1 2 3   |
|
|
|
|
