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mavis
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Posted: Sat Nov 21st, 2009 12:43 |
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I was just wondering if there is anyone who has been cured and is off the MP and is living a normal lifestlye?
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Rico
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Posted: Sat Nov 21st, 2009 14:26 |
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You be the judge - here are a few inspiring success stories:
http://bacteriality.com/category/interview-patient/
http://MarshallProtocol.com/MP_results_chart.jpg
http://tinyurl.com/2pm37t
http://www.carouselcharts.com/TranscriptRecoveryLAX2.pdf
http://winmlm.neostrada.pl/mp/townsend/Townsend_Letter_May2007.Part2.pdf
http://autoimmunityresearch.org/transcripts/arasaki_jssog_2006.pdf
http://tinyurl.com/2pm37t
http://bacteriality.com/2007/10/31/blaney/
I, myself, although not sure I would yet claim to be "cured" of every little issue being on the MP, have improved significantly. Depression and anxiety which gripped me for some 3 decades or so, is practically gone. My confidence level is higher than it's ever been. My mind clarity is also better. The previous social recluse is now able to mingle in crowds fairly well. In some ways, I feel like a new person. The previous negative person who had a difficult time coping with even the smallest situations is now better able to deal with difficult situations. So, even if I don't consider myself "cured", I'm much, much, better than I used to be.
Hope that helps.
____________________
Essential Info; FAQ; ABC's of MP; Side Topics; Perspectives
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Cynthia Schnitz
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Posted: Sat Nov 21st, 2009 18:03 |
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There has been some discussion about the fact that the many, if not most of the early adopters, who can easily claim to be cured, still take some olmesartan regularly, tho for many, at a lower dose. I would just like to point out that we are all exposed to small amounts of the bacteria all our lives, so accumulation of bacteria is a natural process, and the 'cured' folks don't want to gradually head back to disease again. So, I am going to predict that, in the future, our milk will be fortified with olmesartan instead of D. Cynthia 
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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
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paulalbert
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Posted: Mon Nov 23rd, 2009 14:27 |
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Mavis,
See the KB page on the 2008 survey:
http://mpkb.org/doku.php/home:publications:mp2008_survey
I don't know how you would consider me if not "recovered."
Best,
Paul
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mavis
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Posted: Mon Nov 23rd, 2009 18:11 |
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Thank you for the replies. I so far have only fybromyalgia, restless leg and asymptomatic asthma,and depression, but these are not as severe as some of the people on this site yet and at this point I have decided that the protocol is not for me.
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ammc
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Posted: Tue Nov 24th, 2009 03:59 |
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Sorry to hear you feel it's not for you. But just to let you know you don't have to be a sick as some of the first group who started was in order to do MP. I have hardly any symptoms and am going into my second month on the protocol. Very glad I started now so my path might be a little less rocky then if I waited till had three or four health issues/ diagnosis and then decided I to try it. Just something to think about.
Last edited on Tue Nov 24th, 2009 04:00 by ammc
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Sicca Symptoms since Jan 2007/ 37 years old /dry eyes/mouth/foot pain in arch|work full-time/exercise daily am highly functional/ 25-D positive Ricketssia/Olemetec Q6 10/20/09 mino q48 11/1/09
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Deedee
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Posted: Tue Nov 24th, 2009 04:09 |
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??asymptomatic asthma??
Never heard of that....asthma by it's very definition, causes symptoms from the inflammation and narrowing of airways.
By the way, my "asthma" is now gone after 14 months on MP, along with my constant cough, Plantar fasciitis, and nodules in my legs and feet. Cured? Not yet, but working on it!
My labs were also improved after 6 months on the MP, included an improved chest Xray and PFTs. I have all reason to hope the improvements will continue.
I started my in stage I, which is supposed to be early stages of sarcoidosis. Glad I didn't wait until more damage had been done before starting on the path to recovery. But I agree that the MP is not for everyone. The protocol does take a commitment to study and implement the guidelines, and the willingness to work through the IP.
Best to you....
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Sarcoidosis lymphopathy Dx 7/26/08| start MP 8/15/08|D25-15| Back to Phase I All labs normal except lipids high.100 mino/Benicar Quercetin, guaifenisenABC of MP|
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matthew.gatenby
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Posted: Tue Nov 24th, 2009 05:08 |
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we visit this question every couple of days ...
my asthma has now gone for 6months ....
my tinnitus has gone .. well i consider it gone .. i get slight ringing but compared to what it was ... bonus
dizziness - reduced
brain fog - almost non existant
depression - waxes and wanes but has improved be on a shadow of a doubt , doctors were ready to put me on antidepressants but now the subject doesnt come up...
parethesia - lessened.
i have spoken to a few people about cured and i know of a few that have been finished for 6-12mnths with no benicar/olmesarten
and some that have been finished for years , small amounts of benicar/olmetec...
that choose to see benifit vs it causing harm soo ....
i mean people are on bp medication their whole life , i know i was taking it before i went on mp so i dont see the fuss and the bp drop is minimal anyhow....
you make your own decisions and goodluck
i too have stage 1 sarc ... as deedee and looks like i have improved chest xray
and all in was really set on it not getting worse ..
but regardles of imaging , my lungs feel great.. and no asthma i been happy with this
what id really like to say is , find some people that are on it or a doctor that practices it and has paitents and talk to them ..
it wasnt till i met a doctor and chatted to them and saw this was not just something i saw on the internet that had real people and real story as sometimes , the electronic form lacks that empathy , that conveyance and certianly has not been a medium that we are being taught to trust ...
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Ph1 Nov 08/Mod Ph 2 May09/Phase 2 12Sep/ 25-D 26.4 ng/ml Apr/ DX Lung Sarc 08/08 elevated ALT/Avd vit d/Olmetec 4x/mino 100mg Zith 74mg| ABC of MP|
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Cynthia Schnitz
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Posted: Tue Nov 24th, 2009 18:38 |
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Hi Mavis. The good news is that you have plenty of time to let this idea percolate in your mind, maybe for a few years, maybe until improvements in the process take place, or maybe until it is your own doctor that will suggest doing this, as I know it will not be long before this catches on. It is just too fabulous not to. Just keep in mind that there is hardly a person on the MP that doesn't wish he/she had been able to start earlier. before the MP road became more difficult.
I personally started, apparently, very early in my disease process by comparison with others, and the whole process was fairly easy. You may well be in the same boat as me. I was just slowed down quite a bit by strong lethargy, but not by any kind of pain. And I must tell you, tho I haven't posted this yet on my report, that I have definitely seen my turn around. I started to have less lethargy at about 8 months, and now, at about the 1 year point, I am starting to feel better than pre-MP. I am over-dosing on music, and enjoying it immensely. It was a certain amount of deadness that was predominant pre-MP that came on so slowly over the years that I wasn't even aware of it. My ability to be active and get things done is improving each week.
So, keep thinking about us for the future. We'll still be here, Cynthia
My anniversary thread, about 20% up from the bottom:
http://mp-lifestyles.org/forum1/100-1.html
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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
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mavis
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Posted: Tue Nov 24th, 2009 20:23 |
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After reading all these replies i am still considering the MP. It is just too restrictive for me at this point and it will definitely have a great impact on my family.My current problems do not seem to have as much of an impact as i am sure going on this protocol will. So this is why I am hesitant.
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ammc
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Posted: Tue Nov 24th, 2009 20:47 |
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Well I am certainly not trying to convince you of anything but I too didn't start Mp in Feb when I had my first appt back in Feb of this year with my Mp Doc as I was afraid of not being able to deal with it. I finally decided to just try it in October my Dr said what is the worst you can happen if you hate it you quit you won't get better mind you. I didn't want to do this as I read alot for about 17 months before starting and at the time I was/ am travelling alot and living a very active life which I didn't want to give up.
But everyone kept saying how they wish they started sooner so it wouldn't be as bad. Well I am now 5+ weeks in which is really early days but I will be done Phase 1 in 3 weeks if I don't get any more IP. I am not light sensitive at all currently and and really don't feel any worse then I did before I started. Now "my" situation may be rare but had I based my decision on others stories I would never have found out how my specific path would be as far as issues good, bad or otherwise.
So far my journey to date is not like any others I have read on the boards I know people that I talk to regularly who are less symptomatic like me and are having a similar time like me. I almost didn't do this out of fear and it really hasn't been 1/4 of what I thought it would be. I expected the worst and am happy with not having it.
Last edited on Tue Nov 24th, 2009 20:49 by ammc
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Sicca Symptoms since Jan 2007/ 37 years old /dry eyes/mouth/foot pain in arch|work full-time/exercise daily am highly functional/ 25-D positive Ricketssia/Olemetec Q6 10/20/09 mino q48 11/1/09
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Leroybrown
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Posted: Tue Nov 24th, 2009 21:43 |
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I'm not finding the MP to be worse than the disease. I have also seen some amazing improvements - way less pain and being able to get a good night's sleep. I am going slow on the protocol, just taking olmesartan. I am still able to work and pain-wise am able to ride my horse 4-5x a week instead of only 3. The pain relief and sleep is worth it to me to stay on the protocol. I never thought I'd be able to ride more than 3x a week since my back injury in 2001.
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Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
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mavis
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Posted: Tue Nov 24th, 2009 22:02 |
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Leroybrown are you wearing those special sunglasses?, are you staying out of the sun?
I thought that is what we had to do.
I think I am admittedly a bit scared.
Last edited on Tue Nov 24th, 2009 22:08 by mavis
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matthew.gatenby
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Posted: Tue Nov 24th, 2009 22:13 |
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Hi mavis,
basically we try to prepare people for the worst because we dont want anyone to be caught out... then remove restrictions.
for me i have been on the protocol 12months and had mainly improvements with spaits of being as sick as i was previously.
i do not have light sensitivity however i do wear the glasses in the car and outside , not that i need them but we should all wear sunglasses anyhow 
i was scared and was not going to start it .. then someone told me it will be no worse than your feeling right now and well that was true to this date ..
your experience will be your experience and its kind of scary to read others , but you dont know how many years or how sick those people actually were.
take care
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Ph1 Nov 08/Mod Ph 2 May09/Phase 2 12Sep/ 25-D 26.4 ng/ml Apr/ DX Lung Sarc 08/08 elevated ALT/Avd vit d/Olmetec 4x/mino 100mg Zith 74mg| ABC of MP|
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Leroybrown
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Posted: Tue Nov 24th, 2009 22:26 |
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I have a pair of 10% NoIRs. I bought frames at the optical store and ordered the lenses and had them make the glasses. I only wear them driving to work in the car. The first week I was more light sensitive and the first day I had 2 waves of nausea that went away after a minute, but that was it. I work on a computer all day and dimmed the monitor but I don't need to wear the glasses indoors.
I am staying out of the sun, I ride in an indoor arena.
____________________
Autoimmune Pure Red Cell Aplasia, Jan 2009 * hgb: 82, wbc 1.5
Phase 1: Sept 25/09
25D=25 1,25D=58 Aug 18/09
benicar 40mg q6hrs
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mavis
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Posted: Tue Nov 24th, 2009 22:26 |
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Thank you Matthew your words are very comforting. I will probably go for it in the near future first i have to get me teeth pulled and new grills put on so that at least i can have a great smile when i go through the inevitable ip's ,lol
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csanassarian
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Posted: Tue Nov 24th, 2009 23:02 |
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Curious how many diabetics are on the MP and how they are doing
Love to hear from you
Craig 
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Rico
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Posted: Tue Nov 24th, 2009 23:53 |
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| Thank you for the replies. I so far have only fybromyalgia, restless leg and asymptomatic asthma,and depression, but these are not as severe as some of the people on this site yet and at this point I have decided that the protocol is not for me. |
mavis, the decision is yours to make. But I will tell you this. I always considered my symptoms minor. I rarely went to the doctor with the exception of frequent eye infections. I had noticed things getting slowly and progressively worse over the years but nothing major. When I researched the MP for my wife, it soon became clear to me that my issues were Th1 related. My wife is alot worse off.
I've been on the MP for over 3 years and, with the exception of one bad lightheadedness IP event and a few occasions where my brain fog, depression, anxiety and anger worsened with IP, I've had it relatively easy and have seen major improvements (my depression was worst than I ever knew). I've rarely worn NoIR glasses. I've never been light sensitive, at least that I'm aware of. I really don't worry about being out in the sun. I have never noticed worsening of symptoms in the daylight.
I tell you this only because I feel that the earlier you start, the easier it is. I've seen my wife have so much difficulty - her disease was quite advanced. Hopefully, you can start the road to recovery before it becomes difficult. I'm not saying yours will be easy, but I have little doubt it will be harder the longer you wait.
Best regards.
____________________
Essential Info; FAQ; ABC's of MP; Side Topics; Perspectives
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mavis
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Posted: Wed Nov 25th, 2009 00:18 |
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Thanks Rico I will be doing it but I have a few things that have to be out of the way first , my teeth have to be pulled and then when i get that out of the way and the finances together i will start.
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terrylmcc
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Posted: Wed Nov 25th, 2009 02:41 |
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Hi Mavis,
Interesting thread here. And feel the need to post here as well.
I am a sarcie, diagnosed in 01 or 02. I found the "sarcinfo.com" online and took it to my Pulmo, and family Dr. Both turned me down. Had no idea what this treatment was about. Sis years of declining health, reduced lung function every 3 months. I was scared to death. At 45 years old i had 68% lung function. It should have been over 100% according to my pulmo Dr. And was developing neuropathy in my legs, and edema too. It was a slippery slope for me.
Anyhow I stumbled on a DR that advised me to go on the MP. I was excited to find that it was the sarcinfo.com that had grown to this new MP treatment.
Almost 3 years into the protocol, the neuropathy is gone, and the edema is gone too. I no longer have allergies, from pretty much day one they were gone. Prior to the MP, had 20 years of daily Claritin D, and flonase. Years of Advair, methotrexate, floradil, asmanex, Pred packs. All immune-suppressive. I have not had any of those in almost 3 years now. Today i did over an hour of yard work, i raked leaves and used my leaf blower. Even climbed on a ladder and trimmed some trees. I have not done anything like that in years. This may be why i feel so compelled to write this tonight.
It was not an easy road for me. But if I could have started back in 02, I would have. We all have to choose our own path, and i have told a thousand people about the protocol.To my knowledge not one has signed up. It is a new treatment, and tons of contradiction with all the vitamin D studies n such. It was not an easy 3 years for me on the MP, I had some scary sleepless nights, and a wicked god awful cough that lasted for weeks. Those were the scariest times for me. I have not had a recent, pulmonary function test. But I do have more freedom of air flow. Just in my opinion. I will test one day, to see where it really is. I think i will see some tremendous improvements.
Im sorry to hijack your thread, I hope this helps you or maybe someone else decide to do the MP. It is a choice we all made for ourselves, I for one am so happy with where it has taken me. Bless all of you who have helped me along the way.
And Dr. Marshall for his brilliant revelations that day he was standing in the sunlight and figured out this puzzle.
PS. I wanted you to also know taht i have been able to work throughout the entire MP process. With exception of just a few days. I would have normally been off work more without the protocol actually. And The glasses are a minor inconvenience, don't even worry about that part. They actually give me some form of comfort.
Best to all of you. --TerryLast edited on Wed Nov 25th, 2009 02:47 by terrylmcc
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