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maddoj
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Posted: Thu Oct 8th, 2009 15:29 |
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I'm traveling to the US in a few days and I was wondering if Sarcoidosis patients need to et the shot?
Please respond
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PTMKaren
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Posted: Thu Oct 8th, 2009 16:48 |
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Any requirement for a swine flu/h1n1 vaccination would be new, and you'd best check the USA government sites for correct info.
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maddoj
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Posted: Thu Oct 8th, 2009 21:28 |
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That wasn't what I was refering to. I was talking about having sarcoidosis and having the possibility of picking up the H1N1 virus. I'm going to get the shot when I arrive. Thanks anyway. I am an American living abroad. Not much H1N1 where I'm at now.
Sarcoidosis/lungs (lung biopsy) 25D9 Ph1May 2 NoIRs limited outings covered Mino 25 mg started 5/2/09 Phase 3
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k
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Posted: Fri Oct 9th, 2009 09:56 |
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Please use the google search function at the top of this page. Thank you.
new outbreak - Mexican porcine 'flu
Should I get the flu shot? Vaccines? TB test?
____________________
CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept 09=10 NoIRs cover-up low lux home lite exp r/t to work
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matthew.gatenby
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Posted: Fri Oct 9th, 2009 11:22 |
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The flu shot vs the flu is a funny story coming from australia we got it here and got it bad
i have avoided flu shots and funnily enough a flu shot is the last time before being diagnosed with sarc that i remembered being ill, i mean with the flu , i got the flu shot and ended up with a really strange set of symptoms that i had no relief from till i started this protocol , coincidence .. maybe ..
currently they are doing studies and they do not know why but they have found that somone that has been getting regular flu shots is more prone to getting the swine flu this has come from some reputable doctors and studies , but it leaves them scratching there heads saying statisitcally it is true , but they have no idea why
i had many people around me get this flu but dont think i ever got it myself.. and i have not had a flu shot in years since that one i got ...
basically id make the judgment , if my lungs were not functioning well and if i got a severe case of the flu i would go and get vaccinated straight away..
but i am not in this position and we are ending the flu season here i will wait see how people that get immunised go and then make a judgment .. no rush for me ..
a few of the people that had it .. got pretty sick , reasonably healthy people and they we off for a week and say its the worst flu they had. one person with an ear infection ended up with a burst eardrum.
i guess i breaks down like this
there is a chance you can pick up cwd bacteria from these injections but you are on a protocol that will fight them , so the risk there is minimalised
the flu seems strong if you couldnt cope with it , get immunised .
if you have been having regular flu shots, get immunised.
will it have any adverse reactions because you have sarc or are on the mp ... no
if the virus mutates and they do regularly being single stranded dna they have no error checking on their cell replication if a mutation occurs that is benificial to the virus then that strain continues to replicate, this happens all the time , will the immunisation hep .. not at all.
if a virus cell replication occurs that is non benificial to the virus .. i.e the virus kills it host then that mutation does not spread and they rise and fall shortly.
flu viruses are deadly in their simplicity and rare in those cases
the main killer of flu viruses is not the virus
but a co infection , i.e opportunistic bacteria such as pnumonia.
and in rare case cykotine storms , where the virus is so different to other viruses it has seen the body fires an immune system overreaction and floods the lungs essentially drowning the lungs with whit blood cells to fight the intruder.
olmesarten is used to dampen these storms in influenza paitents , being on the mp , you have the benifit of a functioning immune system and using a drug that if your body reacts is used to dampen the cykotine storm..
so vaccine .. will protect you as at the curent strain .. however it is likely to change
but the mp , will ensure your immue system is up to the challenge and if its over reactive will protect you ..
stress less 
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maddoj
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Posted: Fri Oct 9th, 2009 12:53 |
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| Thanks I like your analysis..I'm reading this over twice..(smile)
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Deedee
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Posted: Fri Oct 9th, 2009 23:58 |
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Ever heard of the additive SQUALENE that is in the multi-dose H1N1 vaccination? Before you roll up you sleeve, you will want to google this for info.
____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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matthew.gatenby
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Posted: Sun Oct 11th, 2009 03:45 |
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deedee ,
i dont see your point on the use of squalene are you reading mercola articles 
MF59 Adjuvants have been used since 1997 , so if you have ever recieved a flu vaccine you have had it .
the squalene got a bat wrap after they found antibodies in soldiers and the defence force found that all people have these antibodies and the levels were no different ..
it was looked at also for the 1976 swine flu disease but we all really know the cause ofthe problem. contaminated vaccines.
Adjuvants, have been used since vacines were made of protines not dead virus cells.
when they use protines the body does not produce sufficient antigen to be immune form the virus so they are used as a catalyst for production.
"Antigen is the active ingredient in a vaccine that causes the human body’s immune system to develop antibodies that help fight an invading virus. Depending on the results of clinical studies, adjuvant could be added to a vaccine to boost the immune system’s response and potentially reduce the amount of antigen necessary for the body to recognize and fight a virus."
i know the process might sound a bit dubious , but if you look at all science it is .....
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Deedee
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Posted: Sun Oct 11th, 2009 03:58 |
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Mercola is not the only one concerned about squalene. It is not in all flu shots in the US. It has not been approved for any flu shots in the US until this year and only for the H1N1 in multi-unit shots. This additive has not been tested in the U.S. It creates an exaggerated immune response, and that is not something I want for myself. I did take the seasonal flu shot WITHOUT Mercury or Squalene. I know I may get more bacteria with the shot, but I am hoping the MP will take care of that. I am not putting squalene in my system and if I can not find a H1N1 shot without mercury and squalene, I am not taking it.
We all have to make our own decisions about the flu shots.
It would be interesting to know what the research team thinks about people with Th1 disease taking shots with squalene.
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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Enyao
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Posted: Wed Oct 14th, 2009 01:21 |
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If you have Sarcoid and are on any immune system suppressants, you should NOT get the H1N1 vaccine. My doctor explained to me that the H1N1 vaccine is a live virus as apposed to the flu shot which is not. A live virus in a small enough dose will not affect most people and they will build up the anti-bodies. However, if your immune system is suppressed you do not have a way to fight the small amount of virus and it will grow.
I think we need to keep in mind that there are those with Sarcoid who have not started the MP and are still on drugs like Prednisone, MX and Imuran.
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matthew.gatenby
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Posted: Wed Oct 14th, 2009 01:47 |
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Panavax H1N1 contains
http://secure.healthlinks.net.au/content/csl/cmi.cfm?product=cscpanva10909
Ingredients
Active ingredients:
Purified, inactivated virus fragments
from influenza type:
* Pandemic (H1N1) 2009 influenza
virus strain, 15 micrograms (0.5
mL dose)
It contains thiomersal as a
preservative in the multi-dose vial.
Other ingredients:
* Sodium chloride
* Sodium phosphate-monobasic
* Sodium phosphate-dibasic
anhydrous
* Potassium chloride
* Potassium phosphate-monobasic
* Calcium chloride
The vaccine may also contain trace
amounts of egg proteins, neomycin,
polymyxin, sucrose and detergent
(sodium taurodeoxycholate).
The vaccine does not contain lactose,
gluten, tartrazine or any azo dyes
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Deedee
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Posted: Wed Oct 14th, 2009 02:32 |
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"It contains thiomersal as a preservative in the multi-dose vial."
Thiomersal is mercury. I do not inject mercury into my system.
Your can get seasonal flu shots without mercury. They supposedly make the H1N1 without mercury and squalene, but I don't know how to find them. My MP doctor will not give the H1N1 shot. I was able to get a non-mercury and non-squalene seasonal flu shot from him. It looks like the best bet for as few additives as possible is the single-dose shot without mercury.
In the US, the nasal spray has a weakened live virus but the shot has a dead virus.
The ingredients you listed, Matthew, are what the manufacturer you looked up has in their vaccine. It can differ depending on the manufacturer. Novartis has squalene that they named MF59, for example. http://www.novartis.com/newsroom/media-releases/en/2008/1252754.shtml
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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matthew.gatenby
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Posted: Wed Oct 14th, 2009 03:05 |
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deedee i posted about mf59 3 posts ago
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Deedee
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Posted: Wed Oct 14th, 2009 03:27 |
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Yes, I understand squalene has been widely used outside of the US, but in the US it has been unapproved until this year when several companies sought permission to add it to the multi-dose shot. It is considered by some critics to be dangerous and the cause of auto-immune reactions, or at best to not be adequately tested.
So unlike you, who has been getting squalene in seasonal flu shots in Australia since 1997, I have never had squalene and I don't ever want squalene.
Starting this year and in the H1N1 shot only, squalene may or may not be in the shot. You would have to ask if you don't want squalene and you want the H1N1 shot in the US. The single-dose shots are not supposed to have squalene. Squalene was added to the H1N1 vaccine to stretch the multi-dose vaccines further. Smaller amounts of the virus are used with the squalene shots because the squalene exaggerates the immune response. I don't think it is prudent for me to have my immune system exaggerated, especially when I am ramping antibiotics and managing IP. If someone in the US is concerned about mercury and squalene, they need to ask if the shot contains it and hope whoever reads the label understands the unique name each manufacturer seems to give squalene (EX MF59).
It may be different in your country. We have multiple manufacturers. I am not sure if the label info you shared is your only manufacturer or an example of one of your manufacturers.
Of course, if someone is not concerned about these additives, it is a non-issue. It is an issue for me.Last edited on Wed Oct 14th, 2009 03:29 by Deedee
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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matthew.gatenby
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Posted: Wed Oct 14th, 2009 08:52 |
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squalene was looked at by the us governement , and the defense department for investigations those reports say nothing
i agree with you deedee on many factors.
introducing these unecessary elements is totally benifical
i think the andy clark protocol which is more of a health protocol see mercury as the evil of all evils.
have a look around at the surveys and statistics
yes the nasal or "mist" sprays are live viruses .. agree 100% that i wouldnt be doing that .. seems wrong on so many levels
what i am trying to say and revert to you previous posts is look for you available vacines find one that is a protine synthsis
and preferable with an an immunomodulator that isnt a world wide test we already know we fall into the few percent they dont really care about.
but i dont want to overcomplicate this issue for people , if someone here has a serious problem with lung functionaity .. would you tell them not to get the shot , would you tell them to reasearch something or otherwise avoid it for a chemical that can be produced y the humn skin .
what i am saying is simple its a choice they have to make it .. if you want facts these are the facts .. saying wether you are not going to or are going to is influencing someones decision ...
state the facts thats it ... the decision is the persons , just like the mp .
and as i said in my first post on this issue
"the flu seems strong if you couldnt cope with it , get immunised .
if you have been having regular flu shots, get immunised.
will it have any adverse reactions because you have sarc or are on the mp ... no "
thats about the start and end of it ..
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k
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Posted: Wed Oct 14th, 2009 09:49 |
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Matthew said:
"the flu seems strong if you couldnt cope with it , get immunised .
if you have been having regular flu shots, get immunised.
will it have any adverse reactions because you have sarc or are on the mp ... no
thats about the start and end of it ..
With all due respect Matthew, it is not quite that simple, and that is not consistent with the advice being given by Dr Marshall. For example the below (my emphasis added):
Despite inherent risks, receiving the flu vaccine or pneumovax may be important to prevent acute infections in certain MP patients. For them, the risk of acquiring more slow-growing L-form bacteria, mycoplasma, etc. may be preferable to the risk of developing an acute infection.
The decision whether or not to receive the flu vaccine or pneumovax is a matter of weighing the risks versus the benefits. The flu vaccine is most useful to people with compromised immune systems.
The following are some key questions to help MP patients decide whether or not to receive the flu vaccine: Is your respiratory function severely compromised? Are you in such a debilitated condition that if you got the flu or pneumonia you might not survive? Is your risk of exposure to germs excessive? Do you want to take the chance of making your Th1 inflammation worse by possibly acquiring a new batch of pleomorphic bacteria that are so small they slipped through the vaccine filters? MP patients should talk with their health care practitioners about the risk/benefit ratio regarding the flu v or pneumovax. The benefits of the flu vaccine and pneumovax do not outweigh the risk for most MP patients with chronic inflammatory disease, but patients who are in a high-risk category should consider receiving these vaccines.
Please refer to the following links for the full MP advice/views on this topic:
Vaccines and TB tests
Should I get the flu shot? Vaccines? TB test?
new outbreak - Mexican porcine 'flu
k
Last edited on Wed Oct 14th, 2009 09:50 by k
____________________
CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept 09=10 NoIRs cover-up low lux home lite exp r/t to work
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RM
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Posted: Wed Oct 14th, 2009 09:59 |
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Hi Guys,
This was sent to me in an email, thought you might find it interesting. On a very current subject and confirming vit D as a steroid. If this could be validated in respect of the researcher mentioned and his view on the swine flu vaccine it would mean the new vaccine could be very dangerous to MP`ers.(although i wouldnt necessarly agree with his take vit D statements, he has recognised it as a steroid and immune suppressant).
Moderator edit: Information removed for staff review.
R
Last edited on Thu Oct 15th, 2009 06:39 by
____________________
Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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eClaire
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Posted: Wed Oct 14th, 2009 19:44 |
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You know, I feel like I am between a rock and a hard place with this issue.
While my lungs are not so compromised now, I live with mild COPD from the result of previous scarring from infections in my 20s and 30s (I'm in my 50s now), and I have just in the last 9 months started having some mild lung IP here and there... nothing really to write home about. Also, I feel like I am sick enough that I might not survive the flu.
I feel like I am in the middle, like a deer in the headlights. My gut, however, tells me not to get the vaccine and to live with the consequences. Then I get nervous and second guess my gut, and my gut keeps saying, "No. Live with the consequences."
I think the decision whether to take the vaccine or not is an individual one... one that many of us is struggling with. In the end, we have to live (or not) with whatever decision we make. I follow my gut, and you yours... whether with the assistance of your doctor or not... to each her own.
And so you may be thinking, "Your point is...?"
I have none. No answers for anyone. No desire to inspire fear, no desire to allay fears. Nothing. Just yakking perhaps because sometimes my own answers fall out of my mouth when I do. Perhaps I am just trying to make peace with my gut and so by making this public display my gut gets to have its say about me in print.
Wishing everyone peace of mind in whatever decision you make, Claire
Last edited on Wed Oct 14th, 2009 19:45 by eClaire
____________________
42mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings;
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009 * Olm.alone.Jun10
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RM
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Posted: Wed Oct 14th, 2009 21:02 |
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I think everyone can identify with those feelings, i think fear and searching for an answer/comfort is why most people are posting and i think you hit it spot on there too, when most people here have been so ill they fear something like this flu and what it might do to them in their condition. Hopefully with benicar regulating our immune systems it will be better at fending this off (if the occasion arises).
I have had the prev flu vaccine in the past years but i dont think i will be taking any this year and as Claire rightly points out this is my own personnel decision.
Its good to ask questions and discuss things (keeping in perspective of course) it is after all how we advance and move on.
We will make it guys
Ps!(gee i`m positive today!-the old brain herx aint got me)
R
Last edited on Wed Oct 14th, 2009 21:11 by RM
____________________
Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Karon
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Posted: Thu Oct 15th, 2009 15:52 |
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Hi Claire 
I love when you think out loud. Don't ever stop!
My gut spoke loud to me. I have to make the choice for both my children too, the youngest being 10 and 11/12.
Hell NO is my undisputed choice. 
My gut, head, and spirit all agree.
Jake is not in public school, so the fear of infection is very low.
I / we rarely go out in public and carry hand sanitizer when we do.
We are on the MP and feel that the flu has little chance in our home.
We have never gotten the flu shot even when we were supposed to. 
Jake had a heart defect and was supposed to get one every year. It somehow always got screwed up by his last DR. and was never given.
I look at this and other types of mishaps as divine intervention.
If we do get the flu...... we will deal with that.......together, and with the MP.
No need to introduce more bacteria/virus and other ingredients to slow our healing and killing. We don't even eat yogurt for the same reason.
This is my opinion, and my choice, for my family.
Those are some of my reasons.
Love to you from,
Karon and Little Man Jake, and Jenny
in Ca.
____________________
LYME,PTSD,RA,CFS,ChronInflamDisease,
Depression/Anxiety
Naproxen/Tramadol/Valium/Flexiral/Otc sleepaid, PRN
125D =73 25D=20(May08)| 25D=14.4(Jul08)| 25D=14(June09)[PH1-Apr08| [Ph2-Aug08] [Ph3-Apr09]
Lowlux Home Work NoIRS NoSun covered up
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