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RM
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Posted: Thu Jul 9th, 2009 07:01 |
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I need help from this programme.
I havent worked now for 6 months due to my illness and am in danger of loosing my job. I can now trace my recently diagnosed fibromyalgia symptoms back some 6 years or more where my GP would have layed me off work for stress/fatigue etc for up to 8 weeks at a time in the latter of this period. The symptoms got worse/tolerence levels lower over the years until I couldnt even stay consious in work and it was painful to walk and move around. My symptoms have not improved with being off this time and i am constantly in pain, dizzy and with no energy levels at all.
I am going to consult my GP to see if he will start me on this programme and ask work to offer me a phased return of a few days per week.
I am currently taking Spasmonal Forte once or twice per day (120mg) and sometimes Lansoprazole (30mg) for my ibs. I also take Ramipril 5mg for blood pressure.
Would these drugs be ok with the MP?.
Thanks
Last edited on Thu Jul 9th, 2009 07:10 by RM
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Rico
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Posted: Thu Jul 9th, 2009 12:20 |
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Medications To Avoid on the Marshall Protocol
What is the Marshall Protocol?
Simple Explanations
PHASE ONE of the Marshall Protocol
Important Safety Warnings About the MP
Papers and Presentations for Physicians
D-Metabolites Tests
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Essential Info; FAQ; ABC's of MP; Side Topics; Perspectives
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RM
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Posted: Thu Jul 9th, 2009 14:28 |
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Rico,
I had copied/downloaded all of those to read myself and show to my GP as there doesnt seem to be an option for GP`s to register anymore.
In the medications to avoid i couldnt see any of mine but am unsure of this as i am aware there could be different names or equivelants.
I really appreciate you comming back to me, this all seems a scarey/difficult process with a lot of pain/discomfort over long periods.
Reading through all of this i cant help wondering if my own VDR is pulsing on/off because of my current meds or other reason as further reading of MP`ers posts on their pains/lack of energy/dizzyness/light intolerance etc are things i already experience and would not like this to get worse.
Thanks
RM
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Rico
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Posted: Thu Jul 9th, 2009 21:32 |
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Your GP can join...
How to participate in the Private Section for Health Professionals
Yes, it is long and can be difficult, but letting your disease worsen will likely be longer and more difficult if nothing's done.
You can use the Search field top-right to get more information.
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RM
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Posted: Fri Jul 10th, 2009 05:55 |
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Rico,
Thanks again.
Reading more i have seen a theory that this could be linked to my sarcoidosis from 30years ago.
Last edited on Fri Jul 10th, 2009 05:57 by RM
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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RM
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Posted: Mon Jul 13th, 2009 06:45 |
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Hi everyone,
I had sarc 30years ago, was always extremely fit but noticed even after the supposed recovery from the sarc i couldnt do the things i did before and would burn out easier.[strangely my mother,sister,aunt{not on my mums side of family} all developed sarc after me].
Over the years i have had various burn outs which my doc put down to stress/fatigue and had been off for various periods upto 2months at a time.
I have been able to cope with less and less activity until now i can do virtually nothing and havent worked for 6 months. I have no energy,constant dizzy spells,blackout like symptons (fall asleep talking to people etc with no concept of doing so),severe mood swings, ibs, sleep probelms,light to severe pains all over,spasams and brain fog.After loads of tests the consultant came back with Fibromyalgia but said there was no treatment.
Thank god for this site, done a lot of reading through it over the past week and am going to ask my GP to put me on the MP first.
Reading here and looking at my symptoms i was wondering if my VDR was already pulsing on/off as i seem to have similar symptoms to people that are having ip from treatment?. I am currently taking Spasmonal Forte once or twice per day (120mg) and sometimes Lansoprazole (30mg) for my ibs. I also take Ramipril 5mg for blood pressure.
Thanks
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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DNStog
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Posted: Mon Jul 13th, 2009 23:00 |
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RM...check out this link for a list of most of the symptoms for Hypervitaminosis D. I think you'll feel right at home with the rest of us MP patients.
HypervitaminosisDorDysregulatedD
Here's a list of medications to avoid on the MP:
ContraindicatedMedicine
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MP started 12-27-04
Sarcoidosis Systemic/Uveitis/ Hypothyroidism/ Raynaud's Phen/Paraesthesia/rhinosinusitis/ asthma/depression
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RM
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Posted: Thu Jul 16th, 2009 09:14 |
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Just back from my GP
Says he cant support me on this.
what can i do now?
I am prepared to do this myself, - how would i get the meds & how much are they?
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Rico
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Posted: Thu Jul 16th, 2009 11:30 |
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If you live in North America, or many other countries, you will need a prescription for the meds - therefore, you will need a doctor.
Requesting a Doctor
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RM
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Posted: Thu Jul 16th, 2009 12:42 |
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| Im in the Uk Rico.
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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RM
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Posted: Thu Jul 16th, 2009 17:35 |
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I phoned him back with the suggestion that he could replace my ramipril medication for my high blood pressure with benicar, he agreed but will only start me on 10mg then do the std blood pressure monitoring.
Is this any good as a start ?
I have been 3 days plus now reducing D and feeling better but dont know whether its this or just normal fluxing of my symptoms.
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Rico
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Posted: Thu Jul 16th, 2009 22:47 |
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Why shouldn’t we ramp up the dose of Benicar?
dosing and administration of olmesartan
Do you not need a prescription for Olmesartan in the UK?
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RM
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Posted: Fri Jul 17th, 2009 04:33 |
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Rico,
Good info there -thanks.
Yes perscription is required, I see an alternative here some are using to buy without perscription but I think I would need the coated orig benicar because of my ibs/gi probelms which are fairly bad already.
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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RM
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Posted: Sat Jul 18th, 2009 17:01 |
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Hi Guys
End of 5th day now reducing `D` , I feel better these past days than I have in 5months.
Why is that, or is it just a normal flux in my disorder?
R
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Rico
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Posted: Sat Jul 18th, 2009 17:43 |
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I don't know about your dosage, but I felt significantly better for about a week after starting the MP with the recommended Benicar dosage as it likely lowered the 1,25-D level and my hormones re-adjusted.
After a week, things returned but over time, some things eventually got better and they haven't returned.
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RM
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Posted: Sun Jul 19th, 2009 06:16 |
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Hi Rico,
I havent got a doctor yet, so I am just reducing my vitamin D intake thats all.
Last edited on Sun Jul 19th, 2009 06:17 by RM
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Cynthia Schnitz
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Posted: Sun Jul 19th, 2009 16:10 |
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I had a lot of changes on D/light reduction only. The last of my intestinal Candida went away after about 3 months. After about 2-3 months, I started to have a lot of lethargy, but I probably have had some along the way, so it was mostly an observation after the fact about the increase in the lethargy. And my toenail fungus started to go away after 2 months, and this is what piqued the interest of my family doctor and got him to agree to give me the MP meds. Course, he got cold feet when he read the Phase 2/3 instructions, but that resolved to a very happy change when I found my nurse practitioner a 2 + hour drive away who was herself on the MP. Can't beat that!
Hope your good feeling lasts a long time. Cynthia
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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
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RM
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Posted: Sun Jul 19th, 2009 19:28 |
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Hi Cynthia,
Over did it abit last nite with the good feeling and am suffering a bit more today but it still feels better than before. Going to get an early nite now to catch up.
Thanks for your reply.
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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RM
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Posted: Fri Jul 31st, 2009 08:46 |
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Hi guys,
Just updating.
A GP friend is going to monitor me on this programme, but i will have to purchase the meds using a private perscription. I am considering the Canadian pharmacy Planet drugs Direct for the Olmesartan generic, has anyone else used this and how do you provide the prescription to them?
Many Thanks
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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RM
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Posted: Fri Jul 31st, 2009 11:38 |
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Something i forgot to ask about,
I have been getting a heavy feeling in my chest and shortness of breath at times. In my neck (i take it to be my glands) just below the rear end of my jaw bone at each side are always swollen and hard. When i get a bad flare up of my symptoms these would swell to about golf ball size and it would be difficult and sore to swallow.
Could it be my sarc, my recent blood tests and chest xray proved negative for a sarc flare up, but reading through peoples posts i have seen it can appear in different organs.
Does anyone else have this symptom?
Many Thanks
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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