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kbanshee
Member
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Posted: Thu Jul 2nd, 2009 08:40 |
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Just starting MP phase 1.
Weaned off cortef, menest (estrogen), androgel, vit D (I know eh no wonder I've been getting sicker & sicker.
MP MEDS:
Starting Benicar tomorrow as long as there are no additional issues on the pre-auth fight. Supposed to be in tomorrow tho.
LIGHT EXPOSURE:
Avoiding light. Have cream, NoIRs, house is already low light due to ongoing sensitivity, mostly go to doctors & physical therapy...80% of time direct from house to van (w/ tinted windows) & then direct inside. Once in awhile if feel well enough take BART (a bit more exposure). When I'm up to gardening I do it at sunset in the time when the sun is mostly gone but it isn't yet dark & I cover up regardless.
SYMPTOMS:
Already light sensitive & having many symptoms that are listed as herx so we'll see if it is just the same, the same worse, or new and additional.
[ no energy, bloating/gas, low motility, dizziness, low grade fever, brain fog/cognitive issues, pain-bone chest joint muscle, heavy perspiration, loss of feeling/pins & needles, rashes, randomly falling asleep+after full night sleep can't stay awake til 3-5 more hrs sleep, uncoordinated movement, myoclonus w/ some weird absence thing, pulsing rhythm in ears, high pressure headaches, valsalva headaches, other headaches, reaction to exertion & other random moments: skin gets hot, back head/arms, skin flush, sudden sweats, rounds of muscle pain over whole body w/ fever & a red stripe on my neck that often progresses to more of neck and face, heart pounding/early beats, photosensitivity, dimming, blurring, distortion, color spots, halos, tracers...tight pressure in neck/throat behind/above hyoid...there's more but I'll stop here.
COMMENTS:
Born w/ Noonan Syndrome. Use a power wheelchair since 1996
Had a horrendous reaction to steroids when treated with them in 1996 (1gm/day IV) Mixed opinion/weird results w/ Lyme. Never treated for it. Diag w/ MS in 1994, questioned in 2004 - found Chiari Malformation, Ehler's Danlos Syndrome, Functional cranial settling, Tethered cord syn Adhesive Arachnoiditis...had invasive traction, fusion occiput to c4, bony decompression, section filum terminale. Got rid of a lot of symptoms, left a bunch being more obvious. Dealing with many hormonal issues - can't get under control (a reason why I'm here) Hashimoto's Part Empty Sella, Sec Adrenal Insufficiency, Growth Hormone Deficiency, Hypothalamic Dysfunction, Panhypopituitarism, Etc. Post-menopause due to hysterectomy. Other=Allergic asthma, food allergies, sleep apnea, circadian rhythm disorder, neurogenic bladder, vasovagal or neurocardiogenic syncope (keep chg diag) Gilbert's syn, Psoriatic arthritis, GERD, Hiatal hernia, IBS, Had severe h pylori...skeletal issues too, but I'll stop here. Can't fit in sig file, so I've put the other stuff & made a link to a more full sig so I won't repeat this stuff again.
I'm studying up on everything. I had posted my VitD test a year ago ( http://www.marshallprotocol.com/forum22/11502.html ) and then other things went awry so I'm just at the point of starting now. Have marked many topics to keep on top of & have printed out various bits to help keep on top of things.
Cheers,
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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Gary
Member
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Posted: Thu Jul 2nd, 2009 16:38 |
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Kriss
You seem as well prepared as you can be. Given all the problems you have and their severity, you might consider staying on Benicar only for a bit longer than typical - on the order of a month. You'll know more once you see how you react to it.
Again due to all your problems, you may want to have someone stay with you for a couple days when you start Benicar and again when you start mino.
Best of luck
Gary
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Dx Sarc 2000 Started MP 5/2004. Massive improvement since start. Still some symptoms/herx.
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kbanshee
Member
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Posted: Sat Jul 4th, 2009 11:22 |
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I have a partner who is as up to speed as I am so that isn't a problem (having someone here). My awesome local pharmacy fronted me some Benicar while we work out the insurance. They are excited I have something to try that looks like it will help. I took my 3rd Benicar at 2am (doing 2/8/2/8... Hope the alarm wakes me up at 8). I usually sleep 3 or 4 am til 1or 2 pm & lately (since I came off doxycycline after a year in feb & was on vit D supp b4 I found this site) I've been up maybe an hr & can't stay awake most days & sleep 2-5pm too. I'm really hoping that part stops!
K
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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kbanshee
Member
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Posted: Mon Jul 6th, 2009 01:48 |
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Doing ok so far. Felt, really, better than usual the first 48 hours.
Today I had one of my can't stay awake days...hypersomnia/narcolepsy thing that I REALLY hope is actually a Th1 thing. (I get up, have breakfast & meds & then can't stay awake. No REALLY can't. Then sleep for 2-5 more hours and am then reasonably alert.)
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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kbanshee
Member
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Posted: Fri Jul 10th, 2009 11:21 |
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Anyone have suggestions on best way to get additional Benicar while going thru appeals? I've ordered some online but it probably won't get here before I run out. What specialist (type) generally has samples? Have u had any trbl with getting doc to write for extra 30 or however many and filling that via $ instead of insurance? Ideas?
Thanks.
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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Gary
Member
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Posted: Fri Jul 10th, 2009 15:28 |
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I often had the IP reaction of waking up in the morning, eating, and then falling back asleep for a few hours. So, congrats on your first IP reaction!
My gf is getting her Benicar from a pharmacy that ships it in from Australia. It's about the same cash price as mine is with good insurance, so we gave up on any battles with insurance companies.
See the "Benicar Purchasing Strategies" section either on this site or on Marshallprotocol.com.
Gary
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Dx Sarc 2000 Started MP 5/2004. Massive improvement since start. Still some symptoms/herx.
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kbanshee
Member
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Posted: Sat Jul 11th, 2009 08:15 |
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So. My first week report.
MP MEDS: Benicar Q6 40mg
ADDITIONAL MEDS: Increase in use of ibuprofen to deal w/ meds on top of other usual meds.
LIGHT EXPOSURE: Increase in already existing photosensitivity. Struggling to figure out how to cover up on warm days. Wore a hoodie w/ hood up & MCS mask & gloves when I had to take BART to go get more Benicar today (outside for 3 blocks). About expired from the overheat & was soaking wet from sweat. I am always overheated as it is pretty much. Low indoor light all indirect.
SYMPTOMS:
Most of the symptoms on the Herx list I was already having. Don't know if that is common or not. Some things got worse.
The daytime sleeping is a continuation, but got worse & felt different too...not sure how to describe the difference.
Low energy/asthenia increased a little maybe, but not a lot...after the first 2 days when I felt better/less fatigued.
Cognitive stuff didn't really increase.
Muscle cramps increased.
Dizziness increased a lot.
Fevers didn't really change. I'm usually about 96°F when I get up & some days during the day I randomly pop low grade fevers usually about 99.4-99.9 & then when it goes away I go back to basically 97.
Feeling a bit fluish.
Headaches have increased & aren't just valsalva based.
Continuing myoclonus. Continuing pain (bone,chestwall/ribs,joints,muscle, tension-jaw, etc). Continuing paresthesia. Continuing heavy perspiration & night sweats.
Having some increase in swollen glands. Uncoordinated movement is about the same, but maybe a bit worse.
Tremors worse on a few days.
COMMENTS: RE: previous note from Gary...I've read the Benicar purchasing strategies. Since I see specialists in most system areas, I was hoping that someone would be able to suggest which specialty tends to have samples as I wasn't really up to calling all my doctors to see if they had it. I ended up getting the rest of my prescription for cash@cost from my pharm. And they filed the reimbursement request for me while I was there.
With everyone doing Q6 now instead of Q8 are you changing your prescriptions to Q6 #120 or still doing Q8, but #120?
KrissLast edited on Sat Jul 11th, 2009 08:16 by kbanshee
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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DNStog
Moderator
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Posted: Sun Jul 12th, 2009 03:30 |
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New MP guidelines advise taking 40mg every 6 hours. As you probably know, Phase 1 guidelines were revised recently offering suggestions which apply to all Phases of the MP. Additional links are available within the guidelines giving suggestions which could allow you a better comfort level. Many patients have found that a printout out of this document can help when you most need it.
http://AutoimmunityResearch.org/phase1.pdf
Dr. Marshall’s Prague presentation, link provided below, emphasizes the importance of Benicar and how it has shown to be more important than antibiotics.
video: http://vimeo.com/4307469
transcripts: http://AutoimmunityResearch.org/prague_2009/science.pdf
During the recent Workshop on Clamydial Infection in Prague, Czech Republic, Dr. Marshall gave an overview of "The Marshall Protocol."
video: http://vimeo.com/4293599
transcripts: http://AutoimmunityResearch.org/prague_2009/MP.pdf
RE: Sweating ---Dr. Marshall wrote: Excessive sweating is caused by the disease, and by immunopathology. It will disappear as you progress through the MP. Eventually you will see heavy clothing as insulating you from the heat - a concept that one of my academic advisers advanced to me in the 1970s, and one I never really understood until the last few years.
And.... When I was ill I used to buy the capilene thermal underwear from Patagonia. For example: http://tinyurl.com/6n9htg and http://tinyurl.com/5jydjb
This stuff wicked away the sweat beautifully, so that it didn't collect and stain. Additionally, it didn't rot like the cotton undies did.
I still wear the stuff. You might have noticed me walking around Stockholm in my shirt without showing any signs of cold. Now you know why... The interesting thing is that it is brilliant in both hot and cold weather, so I wear it whenever I travel...
DNStog wrote: When in Phase I, II and the beginning of Phase III, the use of a Cakoon UV brella made dodging the sun and heat much easier. According to their advertisement when I purchased my first one, it blocks UVA, UVB, and infrared. 
A silver metallic like coating covers the umbrella which lowers the temperture by at least 10 degrees when under it. Below is a link for all of the different sizes. My favorite was the small one that is 6 1/2 inches when folded. It was really easy to use by manually extending it just enough to go from car to building. My daughter, who is not a patient, loved the large one for sitting in the sun at baseball games, etc.
Here's the link for those interested.
http://www.sun-uv-protection-products.com/umbrella_uv_brella.html
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MP started 12-27-04
Sarcoidosis Systemic/Uveitis/ Hypothyroidism/ Raynaud's Phen/Paraesthesia/rhinosinusitis/ asthma/depression
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jmb88
Member
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Posted: Sun Jul 12th, 2009 05:08 |
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Hi Kriss,
Welcome aboard the MP!
I started Phase I this year: March 2009. Regarding your question about sample Benicar, my doctor wanted to give me free samples, but was dissapointed when he checked and all his samples were the wrong kind of Benicar. So, just a bit of caution on that issue.
I wanted to let you know that my Doc didn't hesitate to write the Rx for extra Benicar when I printed out the Phase I guidelines that indicate you should have extra on-hand for any intolerable IP or herx. He writes one perscription for 120 pills and another seperate for 20 extra each month.
Good luck and I think the UV umbrella that Donna suggested is the way to go, especially in CA. I lived there for 7 years in the 90's sun is everywhere. I think I'll be getting one myself .
Take care,
Jean
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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kbanshee
Member
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Posted: Sun Jul 12th, 2009 21:39 |
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The sun umbrellas & hats look great. I should hopefully have enough $ to get one in a couple weeks as long as I don't have to pay for all my Benicar.
I've read most everything on all the sites, though I have a hard time w/ recall/memory/maintaining new information. I have quite a few posts marked/printed to pdf so they are handy on my phone/bookmarked so I can refresh my memory regularly along w/ having the phase 1 stuff printed w/ the herx tracking sheet and a few other things including the ER stuff & I carry it in a clipboard w/ a storage section in it w/ me everywhere (one of those few perks w/ having a wheelchair for mobility is that I can get away with carrying more with me than I could otherwise!).
I am doing Benicar Q6 40mg. Struggling a bit to get a good supply in, but I'm good at fighting the insurance company so I will get to the bottom of it. I had my doctor write me an extra prescription for #120 40mg that I've ordered online for cash so that I have (once it comes in) a safety stash so that while I'm fighting it out with the insurance I don't have to worry. It was just irritating this week b/c I don't have that yet & I was chiding myself for being too anxious to start and not waiting for my backup Benicar to come in to start.
I'll look into the long underwear too. I saw Dr Marshall write that up somewhere on the sites & have it on my list.
Ok. passing out again. Thanks for the notes/feedback/info everyone.
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
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Posted: Thu Jul 16th, 2009 06:34 |
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Hi Kriss.
I love that poster for MCS hospital rooms!
When I started I got all focused on buying the right clothes to be out in the sun with and then had so much sun sensitivity that I just don't go out before sunset if I don't have to. So the clothes I bought will have to wait.
The main important items for me are: a couple pairs of 2% Noirs (1 wrap around & 1 fit-over) to use doubled up; a 4" wide brim sun hat (indispensable); sungloves; and a dark brown large rain coat shell to drape over my body when riding in the car. I don't walk outside or drive, so I haven't needed much more.
You might hold off on shopping for the long underwear to see what you are really going to use. (Save more money for Benicar. )
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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kbanshee
Member
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Posted: Sun Jul 19th, 2009 02:28 |
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Thanks for the feedback. I'm thru my 2nd week & took my first antibiotic this morning and I'll write a full report when I'm at my computer. I have a question though...not sure who might know the answer, but hopefully someone will...
Over the last several years since last couple of surgeries, I've been getting Botox shots in my lower back and neck to help manage the muscle spasms and pain. Is there a major reason to need to break from doing that and as a result probably need to increase pain meds... Anyone with knowledge on this?
Cheers
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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kbanshee
Member
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Posted: Sun Jul 19th, 2009 10:08 |
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MP MEDS: Benicar Q6 40mg, 1st Mino dose today (Saturday).
ADDITIONAL MEDS: Increase in use of ibuprofen to deal w/ meds on top of other usual meds.
LIGHT EXPOSURE: Low indoor light all indirect. Minimal exterior exposure, covered up, still working on more blocking cover, but currently incl. sun hat (certified blocking), pants/long sleeves, NoIRs, often MCS mask.
SYMPTOMS:
Most of the symptoms on the Herx list I was already having. Don't know if that is common or not. Some things got worse.
The daytime sleeping is a continuation, but got worse & felt different too...not sure how to describe the difference.
Low energy/asthenia continued to be high.
Cognitive stuff didn't really increase.
Muscle cramps increased.
Dizziness increased a lot.
Fevers didn't really change. I'm usually about 96°F when I get up & some days during the day I randomly pop low grade fevers usually about 99.4-99.9 & then when it goes away I go back to basically 97.
Feeling a bit fluish.
Headaches have increased & aren't just valsalva based.
Continuing myoclonus. Continuing pain (bone,chestwall/ribs,joints,muscle, tension-jaw, etc). Continuing paresthesia. Continuing heavy perspiration & night sweats.
Having some increase in swollen glands. Uncoordinated movement is about the same, but maybe a bit worse.
Tremors worse on a few days.
COMMENTS: Benicar was declined by insurance. Working on appeal. In mean time I've gotten a fwd of Benicar from my pharmacy (120) & purchased an additional 120 via mailorder so that I have a quantity in house.
Again: With everyone doing Q6 now instead of Q8 are you changing your prescriptions to Q6 #120 or still doing Q8, but #120?
I also got recent blood tests back...non-normal results & Vit D results:
C3A Desarg Fragment H 403 ng/mL [ref range <205]
Triglyceride H 270 mg/dL [<150]
CRP, Cardio H 3.9 mg/L [>3.0-10.0=high risk per AHA/CDC]
Vit D.............1, 25-D............D25-OH...........D25-OH, D3..........D25-OH, D2
6/25/09......39 pg/mL........63 ng/mL........05 ng/mL........58 ng/mL
4/21/09................................150 ng/mL*........<4 ng/mL........150 ng/mL
11/6/08 ................................37.7 ng/mL
3/08................37 pg/mL........uncalc.............21 ng/mL............<4 ng/mL
* was on supplementation, stopped 5/15/09
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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Rico
Moderator
| Joined: | Wed Oct 17th, 2007 |
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Posted: Sun Jul 19th, 2009 12:36 |
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Wow! Your 25-D level was 150ng/ml? I don't recall reading anyone's level that high. Incredible how much it came down in 2 months. Did the lab rate the 150 as being high?
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Essential Info; FAQ; ABC's of MP; Side Topics; Perspectives
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Jul 19th, 2009 16:44 |
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Kriss,
About the Botox, I really have no idea what effect it might be having on your recovery. I have met the doctor who discovered the Botox therapy (a very rich person indeed) and he didn't know exactly what the mode of action of Botox toxin was...
Wikipedia has a suggestions as to at least one mode of action, but omits any discussion of whether this bacterial toxin is recognized by the innate or adaptive immune systems, which is the thing likely to slow your recovery...
http://en.wikipedia.org/wiki/Botox
If it were my choice, I would use every other pain management therapy available before I resorted to using Botox 
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kbanshee
Member
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Posted: Sun Jul 19th, 2009 19:53 |
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The lab definitely rated it as high. I can tell you that I was quite far past the point of feeling like hell & it was what reminded me of having come across this site the year before. My Rheumatologist was trying to figure out what was going on with my Vit D levels & was having me supplement w/ 50,000iu/week & when it didn't improve the situation had me try going to 50,000iu/day. I'd say that is what made me hit that crazy level. I guess the positive out of it is that I am here now, my doctor is on board (same rheumatologist was very interested when I brought her a bunch of printed articles & everything else on CD. She's actually my MP doctor now.
It came down quickly I suspect b/c I stopped the supplementation & then about 5 weeks after stopping supplementation I started avoidance (sun/foods). Hopefully it will continue to come down towards the goal of 12 eh?
Rico wrote:
Wow! Your 25-D level was 150ng/ml? I don't recall reading anyone's level that high. Incredible how much it came down in 2 months. Did the lab rate the 150 as being high?
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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kbanshee
Member
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Posted: Sun Jul 19th, 2009 20:06 |
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Thanks Dr Marshall. I was leaning towards that thought myself...avoidance that is.
I appreciate the weigh in / reinforcement. I've been sketchy about it the times I've done it but I've not had direct bad reactions & it helped at different points, but I find myself waiting till I can't handle it any other way b4 using it anyway. (I was probably looking for an 'authorized excuse' to avoid it entirely now that I think about it that way.)
I'll continue to avoid the botox barring circumstances that cause me to entertain the idea again.
Kriss
Dr Trevor Marshall wrote:
Kriss,
About the Botox, I really have no idea what effect it might be having on your recovery.
<CLIP>
If it were my choice, I would use every other pain management therapy available before I resorted to using Botox
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Jul 19th, 2009 20:28 |
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Have you tried the TENS units:
http://mpkb.mp-dev.com/doku.php/home:othertreatments:tens
..Trevor..
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kbanshee
Member
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Posted: Sun Jul 26th, 2009 11:13 |
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MP MEDS: Benicar Q6 40mg, Minocycline 25mg Q48
ADDITIONAL MEDS: Increase in use of ibuprofen to deal w/ meds on top of other usual meds.
LIGHT EXPOSURE: Continuing to work out the overheating vs covering up. I'm having trouble seeing well enough thru the 2% NoIRs. Too dark...should I try just wearing the 10%? Low indoor light all indirect.
SYMPTOMS: Most of the symptoms on the Herx list I was already having. Don't know if that is common or not. Some things got worse. Feeling like I need to adjust my scale down, but when I describe how I'm feeling/compare w/ other people I know having major health issues they usually comment that they don't know how I'm surviving.
- The daytime sleeping is a continuation, but got worse & felt different too...not sure how to describe the difference. Feels like more of an acceptance of it? I am feeling like I just have to sleep & it's ok.
- Low energy/asthenia fluxuating with Mino. (6-10)
- Cognitive stuff didn't really increase. (6-7)
- Muscle cramps continuing & while I didn't believe it could be possible, muscle weakness/heaviness increased. (9-10)
- Dizziness increased a lot in the first few days. It has stayed at this level. (7-9)
- Fevers didn't really change. 96-99.9 deg.
- Continuing to feel a bit fluish off and on.
- Headaches have increased & aren't just valsalva based.
- Continuing myoclonus.
- Continuing pain -bone,chestwall/ribs,joints,muscle, tension-jaw, etc (5-8 w/ 60mg Kadian am/pm & 15mg MS-IR 2-3x). Continuing paresthesia
- Continuing heavy perspiration & night sweats. Having to change shirt a couple of times a day to not be sitting around in wet clothes.
- Having some increase in swollen glands.
- Uncoordinated movement (8). Tremors (5).
COMMENTS: I have always felt better when I'm on antibiotics. It is making for quite a yo-yo feeling w/ the Q48 hr Mino, but I'm not feeling any worse than usual. I'll continue a few more rounds on the Mino 25 & then look at going ahead & stepping up to 50.
KrissLast edited on Sun Jul 26th, 2009 11:38 by kbanshee
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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kbanshee
Member
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Posted: Mon Jul 27th, 2009 18:12 |
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Herx seemed to increase yesterday...felt super crappy (technical term) had to sleep all day & xtra dizzy. Passed out twice. Re-read posts on managing extreme dizziness/passing out & increased salt. Upped water a bit but I drink a lot of water. Other than the 16oz I lost hold of requiring bed evacuation & clean up (bogus!).
Are electrolyte mixes ok to use? I have packets I add to a liter of water from healthfood store (calcium carbonate 25mg, magnesium hydroxide/carbonate 30mg, manganese gluconate .5mg, chromium 5mcg, potassium 100mg, stevia 2.5mg) that seem to help when generally feeling cruddy, but not sure about MP use.
Felt some better after my mino dose in evening. Will up Benicar if extreme dizziness/passing out continues today.
Other than electrolyte Q don't probably need input on dizziness etc since plenty of info on sites, just wanted to report.
Hangin in hangin on
Kriss
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Mult neuro gastro endo pulm genetic skeletal+see http://killerbanshee.com/mp/ |1,25D37 25D2<4 25D3-21|Ph1 7Jul09|25D39-6/09|25D19-10/09|Ph2 23Oct09|Kadian Nexium Cytomel Synthroid Humatrope Provigil Cymbalta+|NoIRs LowExp CoverUp LowLux
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