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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
| Location: | Maine USA |
| Posts: | 50 |
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Posted: Fri Apr 11th, 2008 21:06 |
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| I am trying to locate Trevor's bioessay (on the MP site) using the title that begins "Vitamin D Research Outpaces FDA.......". Thank you. Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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markt9452
Member
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Posted: Fri Apr 11th, 2008 21:16 |
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| http://TrevorMarshall.com/BioEssays-Feb08-Marshall-Preprint.pdf
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Th1 Lyme vertigo fatigue brain fog skin lesions tinnitis 125D20 D2510 Ph1Feb08 Ph2Apr08 daily lite exp covered up NoIRs| MyStory|
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Julia
Advocate (on leave)
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Posted: Fri Apr 11th, 2008 21:36 |
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Carol,
To find something on the MP site, when you have a few words of it like that, just put the words in the search box that's at the top of every page. See the information post near the top of this forum, called How To Use the Search Feature at MarshallProtocol.com 
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
| Location: | Maine USA |
| Posts: | 50 |
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Posted: Mon Apr 21st, 2008 20:49 |
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I am asking for suggestions regarding looking for an MP supportive doctor. Once I am certain that my PCP will not help, what is the next step suggested?
I have a few names of MD's or NP's who I would like to contact locally before I try to travel a distance. ]
I don't want to drop my current PCP until I have another doctor, soooo, should I ask my PCP for a referral (HMO) to a physician who might be interested in helping, but who also might not be?
Or, do I first make a phone call to a physician or nurse practioner and introduce myself to them as a potential patient (needing a referral from my PCP), etc, briefly present my medical history, introduce them to the MP, offer to send them informtion on MP, or offer them the website address? Is it better to discuss MP on the phone prior to an appointment or to wait until the first consultation with them?
I guess my point is......what is the best way to get a physician's ear.......by meeting with them first or by discussing MP on the phone so they can read up on it before meeting with me?
It probably depends on the new physician, but I am wondering what has worked the best with other members.
Thanks for all your help, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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caroldeleah
Member
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Posted: Wed Apr 23rd, 2008 20:08 |
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| Now my daughter has nodule in her thyroid gland which is scheduled to be biopsied. If it is benign, does anyone have the experience of MP helping with this condition? Thanks, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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Julia
Advocate (on leave)
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Posted: Wed Apr 23rd, 2008 22:01 |
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Carol,
Please see THYROID DISEASE
Robynr in phase 1 - some discussion of thyroid nodules
Thyroid problems are a common manifestation of Th1 inflammation, which should resolve with the MP.
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
| Location: | Maine USA |
| Posts: | 50 |
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Posted: Thu Jun 5th, 2008 05:55 |
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| Could someone please help me locate the current recommendations for a therapeutic probe while we are looking for an MP supportive physician? Thanks, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
NoIRs/LowLuxHome/CoverUp/Sunscreen
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 138 |
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Posted: Thu Jun 5th, 2008 06:07 |
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| Please be careful. see FAQ Should I avoid sun exposure and Vitamin D while I'm waiting to start the MP? Thanks, Barb ...
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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
| Location: | Maine USA |
| Posts: | 50 |
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Posted: Thu Jul 17th, 2008 07:20 |
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My daughter dx with refractory, chronic, idiopathic uveitis and Hashimoto's thyroiditis has been chided and pressured by her endocrinologist for declining/postponing to have a FNAB of a thyroid nodule which was observed clinically 4 months prior to a visit to the endocronologist (doctor's delay) as well as by ultrasound.
She had taken a 10 mg dose of methotrexate 2 days prior to the scheduled FNAB. Because being on mtx puts you at a higher risk of infection and because infection can be a risk of a FNAB, m daughter reasoned that it was too risky to have the biopsy and decided to postpone the biopsy (buying time).
We had hoped (and still do) to begin the MP and see whether the nodule resolved.
I have read everything about cancer at the Marshall Protocol site "Side Topics Related to the Marshall Protocol" and found this quote by Trevor from "Diagnosing Cancer Accurately".
It is critical that no cancer diagnosis be given unless the pathologist has stained for both Thymal masses (by using a T-cell stain) in addition to a B-cell stain. This is becoming more and more rare these days.
Then I found this quote from http://www.aafp.org:
Fine-needle aspiration is occasionally considered an alternative to excisional biopsy but often yields a high number of nondiagnostic results because of the small amount of tissue obtained and the inability to examine the architecture of the gland.7
Why would a FNAB be considered if it may not be conclusive?
Doc told us that if an open biopsy of the thyroid were to be performed, then he may as well remove it . Is it possible for a doctor to perform an open or excised biopsy and still leave the thyroid intact until a dx is reached? Or are there risks in doing that?
How could rate of proliferation be determined in a thyroid nodule?
Doc is more or less demanding that I make sure that she gets the FNAB!
I hope it is OK to ask these questions in this forum. I know that advice must not be given; however, I would appreciate anyone telling me what their experience has been or pointing me to where I can find answers. Has anyone had a thyroid nodule that resolved with MP (with or without biopsy)?
**Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu Jul 17th, 2008 20:41 |
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Caroldeleah,
Since this question is for your teen daughter, the above post was moved to your original thread on this topic so it would be easier for you to follow all questions together for continuity. Please try to use your own thread for your questions for your own recall of details over time.
It may be pretty rare that someone would have a biopsy that didn't remove the gland in today's medical world, since the surgery is so easy and the resulting cost to benefit for the physician makes perfect business sense, and there are ample well-accepted management options physicians now have to offer gland-less folks post surgery. Your current physician has already explained that to you and you seem to have captured that detail quite well.
Your doctor is stating what is likely supported by many other physicians (consensus). It is very common to just remove glands and very common that those doctors may not understand the MP perspective of what causes chronic inflammatory diseases or how those diseases may relate to cancer. Furthering the problem, cancer outcomes generally are an effective motivator (fear) so most patients do whatever their doctors say with few if any individual "consumer" questions ever offered or considered.
If the choice was mine (and this is strictly my perspective), I might ask for a second opinion from another doctor before doing any surgery that would permanantly change someone's original organ/gland setup, regardless of how simple it is to remove those kinds of things with today's surgery options.
It is that point in time I might also be looking in earnest for a doctor that is somewhat familiar with the MP at very least, or open to discuss new horizons of medical treatment with regard to recent molecular insights now available but not often captured by standard medical practice. I would also insist that doctor be a member of the Private Section for Health Professionals, where s/he has the option to dialog with others in the medical profession about any one situation for their patient(s).
Other advocates might offer their perspectives too, as mine is just one way of looking at things.
Best to you and your daughter Careoldeleah--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
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Posted: Fri Jul 18th, 2008 05:21 |
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JRFoutin wrote:
It is that point in time I might also be looking in earnest for a doctor that is somewhat familiar with the MP at very least, or open to discuss new horizons of medical treatment with regard to recent molecular insights now available but not often captured by standard medical practice. I would also insist that doctor be a member of the Private Section for Health Professionals, where s/he has the option to dialog with others in the medical profession about any one situation for their patient(s).
Dear Janet, Thank you again for your valued insight. I have done all of the above and am thrilled to say that we now have an MP supportive physician. My goal now is to involve him in our discussion regarding my daughter's thyroid condition and move on from there. Together we have begun to proceed through the MP Checklist .
**Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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caroldeleah
Member
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Posted: Fri Jul 18th, 2008 05:22 |
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I need help again with re-locating two items: 1) The sheet designed to be placed both on the refrigerator and in the car titled "To health care providers treating this patient in an emergency situation" and 2) The abstract entitled "Monitoring cognitively-impaired subjects in an interactive Internet-based clinical trial of a multi-factorial treatment based on a molecular model of chronic disease" (2 pages).
Thank You, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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Julia
Advocate (on leave)
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Posted: Mon Jul 21st, 2008 20:25 |
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Carol,
The documents you want are these:
Emergencies
Meg's poster
The reason they're hard to find is that they're pdf files, which don't respond to search engines for some reason 
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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caroldeleah
Member
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Posted: Tue Jul 22nd, 2008 04:42 |
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| Thanks, Julia
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Tue Jul 22nd, 2008 06:21 |
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Caroldeleah,
You may wonder, if an MP supportive physician does not have hospital privileges anywhere--his choice? What are some options in this situation?
The first level issue for most wanting to do the MP is finding a doctor. Sometimes doctors are not easy to find, so if you found a doctor to work with you, you have achieved a lot already. Good for you! From the FAQ:
You will need a certified health care practitioner to work with you on the MP.
Few have doctors who have experience using the MP. But these doctors are still capable of monitoring your health status.
The secondary issue of hospitals is a loaded and layered question. Physicians often have hospital privileges, or have made business agreements to work in different locations than their own office. Similarly, sometimes doctors are a member of a group of doctors in a clinic for a variety of financial and business reasons. Sometimes doctors do not want to deal with the emergency/immediate issues often handled by specialists in hospital settings, or the business case associated with hospitals.
My personal take on the issue is that a doctor with a hospital connection is good for a backup plan that includes your local hospital if you are in a car accident or something similar. Attending physicians with no clue about the MP in a hospital setting might confer with other medical professionals whether they are connected to the hospital or not. Even if your attending physician does have hospital privileges, s/he may feel compelled to follow hospital directives for insurance/business reasons.
If you have a physician that is or is not associated with a hospital (either way, in other words), the MP is still doable, but it might be a good idea to have instructions well spelled out on paper and for relatives to understand and for medical personnel, including:
ER Information for emergency room personnel
Talk to your family too, because they are the ones to advocate for their family member in some hospitals, regardless of attending medical staff. Some have made a binder with instructions and information to take with them to medical appointments and for any hospital stays.
Best to you Caroldeleah--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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caroldeleah
Member
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Posted: Tue Jul 22nd, 2008 06:39 |
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| Thanks again. You have been so helpful. Appreciatively, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
NoIRs/LowLuxHome/CoverUp/Sunscreen
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caroldeleah
Member
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Posted: Tue Jul 22nd, 2008 14:45 |
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| Does the MP supportive physician post the D-Metabolite and other lab results, or does the patient?
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
NoIRs/LowLuxHome/CoverUp/Sunscreen
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JRFoutin
Advocate
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Posted: Tue Jul 22nd, 2008 18:10 |
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Caroldeleah,
You can post D metabolites test results on CureMyTh1 for nurse moderator assessment. Instructions here:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Highly recommended that your doctor be encouraged to join the
Private Section for Health Professionals
S/He can discuss study methodology, results and the science in that forum.
Best to you Caroldeleah--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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caroldeleah
Member
| Joined: | Mon Jan 21st, 2008 |
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Posted: Mon Aug 4th, 2008 21:08 |
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When posting my first time in the 'Weaning from Steroids', I was instructed to add a Signature Line.
In my case, I simply edited the signature line at marshallprotocol.com and curemyth1.com. Is there any other place we need to go to make changes?
Thanks, Carol
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Uveitis/Hashimotos/Hypothyroidism/Thyroid Nodule/Arthralgias/RefractiveMyopia/1,25D34/ Ph1Aug08/Ph2Nov08/25D 9(12/08)/Combigan/Cytomel/RefreshPlusSgl
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Julia
Advocate (on leave)
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Posted: Mon Aug 4th, 2008 22:02 |
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Carol,
Please keep all your questions here in your own thread. If you can't find it, click on the 'My Account' button at the top of the page and the link will be there
A signature line for this site is not essential. Your signature line on the main study site will automatically be the same wherever you post on that site, in any forum. As it's your daughter, I gather, who's been accepted for the trial, the details there must be hers.
Julia 
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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