 |
| Author | Post |
|---|
marion villa
Member
|
Posted: Thu Sep 3rd, 2009 19:50 |
|
jean.
This takes time....
be patient, dont be discouraged and follow the D and light avoidance the best you can,
and please be careful about the abx because if D starts going down, you will start reacting stronger IPR..
good about your O2, when you become healthy you can borrow other mper this machine
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Sat Sep 5th, 2009 01:43 |
|
Thank you Marion for your encouraging words.
Benicar 40m Q4 hrs (blood pressure dropped again)
Mino at 75mg Q48 hrs, (down from 100 )
I reviewed the list of foods to avoid with a dear friend of mine and we came up with a list for me that I can stick to with foods I can eat. All natures food, vegetables, fruits, chicken, turkey.
My main problem iI believe, was not checking lables. There is a lot of hidden folic acid, and other ingredience I wouldn't have dreamed there be in certain things. Vegetable oil is made from soy! Rice milk has sunflower oil! I should have been more careful with the lables.
My light exposure last month was a concern too.
I think I should have checked my Vit. D levels more often, so I would have known I had a problem earlier on. Note taken and my Dr. and I will be checking it in 4 weeks. Does that seem good time, or should it be sooner, to see If I'm on the right track? What do you think?
I have my Oxygen converter Something to be happy about. Thanks to my Dr. for perscribing. I took a nap today with the PulseOx recorder from the oxygen company, it was reading 85% without the oxygen. Needless to say I was shocked into deep breathing and brought it up to 95% right away.
When I saw my Dr. and found out about the Vit. D levels still being high. I talked with him about my BP issue. I told him that I increase Benicar to 4 hrs and decreased Mino by 25mg. That worked very well for me and my BP was back up in a day and a half. He was concerned about the increase of Benicar, I supplied him with the printouts of why it needs to be done, how safe it is, etc.
He asked me to go back to the 6hrs Benicar dosage and I did, but since then, my BP has dropped again.  I am currently back on the 4hrs of Benicar 40mg. and hoping to feel better by tomorrow.
I need to get the BP thing straightened out again and figure my D levels.
I remain possitive and know this is the course for me.
Jean
Last edited on Sat Sep 5th, 2009 02:15 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Mon Sep 7th, 2009 22:07 |
|
jean:
bilingual brain fog!!!! not borrow but lend!!!
In my own experience, the folic acid in the food, which we have to avoid, hasnt given me symptoms. For me It has been more difficult to avoid since all flour here is added with folic acid and also tortillas, and a lot of products you can´t imagine!! But i havent had troubles with that, though....
With D it is another story,I have been very careful mostly the first 6 months, to avoid yolk, fish, mushrooms and all D added artificially stuff like milk , soy drinks etc. And I had to, because each time I ate D food, I felt like punishment from hell: tachicardia, shallow breathing, cramps, diarreah, sweats, nausea etc.... very convincing way to take the good path.
the sun.... If you arent too light sensitive ( as me) try not to expose to sun if you really dont need to, and cover yourself well, and also your windows, because a sunflair has effects in the breathing.
The cooking oil is not problem since you use just tablespoons to cook or fry, dont worry too much about it, the main thing is to watch the supplements in the food, the natural food hasnt that much D...
As my friend John McDonald said once "the MP isnt a diet ".
you should follow the MP guidelines for your own good but , believe me, D will come down with the care you are taking.
I also believe thet benicar Q 4hrs and lowering the mino is a good move for you, until you gain force and feel better.
marion
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Tue Sep 8th, 2009 01:18 |
|
Hi again Marion,
I understood exactly what you meant. Don't worry.
Thank you for following my progrress, including my ups and downs. I understand this is your time and I much appreciate your willingness to help.
Benicar 40mg Q4hrs
Mino 75mg Q48hrs(down from 100)
Mino 25mg as needed on off days
My Blood pressure dropped again. My Dr. asked me to go back to the Benicar 6hrs and I did when i felt better, but then I started feelling worse again. So, I put myself back on the 4hrs of Benicar and am feeling a bit better again.
How do I communicate to my Dr. that the MP needs to be followed exactly? I tried to tell him, gave him print-outs of what to do when BP is low.
Anyway, Got a light meter – house needs improvement in a few rooms, natural light is too high:
Lux17 family room
Lux 27 recreation area
Lux 20 kitchen
Lux 4 (lowest # it reads) dinning room
Lux 8 Living room
Lux 12 my bedrom
Lux 4 bathroom
My husband’s Aunt is coming over to help put up addition coverings, drapes
As usual I’m keeping my NoIRs on all day. 2% outdoor, 10% indoor. This link helps: Light avoidance simplified
Eatting only natures food, I’m not dieting, no worries there. Just no foods with added stuff.
I got 50% zinc oxide for parts of face and hands (until I get gloves) I've been using this all summer, I'll just be inside from now on. I'll put it on until I fix the drapes, etc.
Symtoms:
Shallow breathing
Low oxygen when resting/sleeping (I have supplimnetal oxygen )
Low Blood Pressure last measured 90/55
Fatigued
Occational chest pains
Should I ask my Dr. for a Vit. D test in 2 weeks instead of 4 weeks? Jusst to see if I'm back on track. Or is it too soon for the D levels to drop?
Thanks again Marion,
Jean KollerLast edited on Tue Sep 8th, 2009 01:46 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Thu Sep 10th, 2009 02:23 |
|
I Have an urgent questions below. Could someone answer it?. If you need to talk to me I can private message you with my phone number.
OK, I got the house all low Lux for sure now. No sun light.
On the other hand I think I have an upper respitory infection. I checked the link:
http://www.marshallprotocol.com/forum32/3473.html
But it dosn't give me access to
"Before you resort to discontining the MP to treat with another antibiotic regimen for a suspected upper respiratory bacterial infection, you should adjust your MP antibiotic/s (continue Benicar) to see if the symptoms improve. If they do, it is an immune system reaction not an acute infection."
Adusting my MP antibiotics. Can someone help me if it says for cases of respitory infection? The link says I don't have access.
I have read and printed this link for my Dr.
The Notice for emergency medical personnel lists the abx that can be perscribed. I usually get a prescription for Zithromx (Z-Pack) for my pre - MP bronchitas. It says in the above link that it usually causes an allergic reaction. Is this because of the MP?? Or is it OK for me since I've had it before.
Is there another abx listed on the "Notice for emergency medical personnnel" link that would help my respitory infection better??
If anyone has any other info. I'll gladly welcome it
Jean Koller
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Sallie Q
Member
| Joined: | Sat Aug 9th, 2008 |
| Location: | Hope, Australia |
| Posts: | 266 |
| Status: |
Offline
|
|
Posted: Thu Sep 10th, 2009 05:41 |
|
Dear Jean
Your D25 levels may have suddenly dropped right down from what they were a few weeks ago, into the range where your immune system can really get to work
two strategies to use before calling emergency are
a) 20mg Benicar sub lingual + start 40mg Benicar q3hrly
b) take Mino every day, perhaps the same dose every day
If by either method or using both there is relief of symptoms, then talk to a medical advisor about what is happening. Meanwhile remember to drink plenty of water as the anxiety adds a need for extra water, also the extra water means a little extra sea salt will help get back on an even keel
is someone with more MP knowledge than me talking to Jean off thread ?
if not moderator or research staff pls talk to JeanLast edited on Thu Sep 10th, 2009 05:47 by Sallie Q
____________________
b.cancer1990 SjogrensCFS 60%dysreg.vD 25D13.2ng/mL Sep08ph1 Jan09modPh2 25D~19 May09ph3 NoIR lowLuxEtc 25D 5 ng/mL Jan2010
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | USA |
| Posts: | 601 |
| Status: |
Offline
|
|
Posted: Thu Sep 10th, 2009 07:30 |
|
Hello Jean.
I'm sorry you are getting these symptoms now. 
The most important information you need right now is that:
it would be very, very bad if you took a Z-pack.
You could end up with life-threatening immunopathology.
Don't do that. Very dangerous.
It's hard to watch.
Sallie Q has offered some very good ideas about what may be happening and how to respond in the post above mine.
If you truly have an acute infection, or if you are getting a stronger immune response, you should consider the strategies in the Managing immunopathology (IP) article.
An immediate tactic I would personally use is to start taking mucinex/guaifenesin around the clock along with plenty of water until the worst started to calm.
For your appointment... Some people have taken Minocycline more frequently to attempt to manage an acute infection. A typical dosing that you can discuss with your doctor tomorrow is taking 25-50mg of Minocycline every 12 hours.
See also: Acute respiratory infections
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
jmb88
Member
|
Posted: Thu Sep 10th, 2009 13:31 |
|
Ok, I'm taking all the info in right now.
Thanks Joyful, Matt, Aussie Barb for the PM's.
NO ZPACK - I will make sure of that
Increase Benicar to 40mg Q3 hrs/with SL 20mg
I will adjust my MP abx to everyday/or every 12 hrs - to 50mg
Take Guiffessen
Lots of water with extra salt in my diet.
I know it is an infection because the mucus I am expelling is dark green with spots of brown. (sorry for the gorss description)
I just went down to 50mg of Mino because of IP, Low BP anyway.
Just a note: (My Dr. is not comfortable with increased Beni, but I have no probem with doing this becasue I have felt much better doing so.
I'll make my appointment now.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Thu Sep 10th, 2009 20:04 |
|
please dont take any zithromax!!
it can cause a severe IPR and you never want that. why do you think it is an infection and not IPR,?
do you have green discharge or fowl odor or enormus fever? more than the difficult to breath'?
remember that IPR is an issue in our mp lives, maybe you are having a big one, as sally q says.
Adjust your ABx means that you decrease the mino or take it more frequentely ,knowing well how have you been reacting tho mino previously, there are people who feel relief with low frequent does of mino, and others who have to decrease it ti lower IPR...that you now now, ibelieve.
and take benicar each 3 hours, maybe a humidifier also.
take care please and keep calmed.
if you need other abx please read
http://www.marshallprotocol.com/forum32/1124.html
http://www.marshallprotocol.com/forum32/10124.html
http://www.marshallprotocol.com/forum32/7604.html
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Thu Sep 10th, 2009 22:26 |
|
Thank you Marion very much
I will NOT take the zithromax!!! Aussi Barb and Joyful already told me that.
I have seen my Dr. and we will hold off on any additional abx for now. He wants me to call Monday morning to see how I'm doing.
Thanks for the links - I have them all printed out already. This is What I'm doing:
NO ZPACK - I will make sure of that
Increase Benicar to 40mg Q3 hrs/with SL 20mg (this is working)
I will adjust my MP abx to everyday/or every 12 hrs - to 50mg (this is working)
Take Guiffessen (this is helping)
Lots of water with extra salt in my diet.
I do have an infection because it is green mucus comming up from my lungs.
I have tried the adjusting abx and it is still green clumps, this is infectious bronhcitas for me.
I'll post back tomorrow.
Thanks, Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Fri Sep 11th, 2009 18:31 |
|
Hi
I have been reading and reading the web-site on how to handle my upper respiratory infection.
I hope I can make my self clear on the message, I am really trying to do the right thing for my health. I appreciate all the help the moderators and members give me. Thank you , Thank you Thank you. But I am a bit confused regarding the info. supplies
My Dr. suspects an infection in the bronchiai is very possible.
- If he prescribes Avelox will I need to stop Benicar and Mino?? Is this too strong?
- Should he prescribe Ciaforan (Cefotaxime) instead and will I need to stop Benicar or Mino?
- Or possibly should I wait it out and see if it clears itself while I continue with the Phase I meds as listed below?
I was told never to stop Benicar while on the MP.
I found what I interpret contradictory information and need to clearify it before I proceed.
On this link: “Medications to Avoid on the MP Medications to Avoid While on the Marshall Protocol
If you need to take a short course of an antibiotic that is not on the Marshall Protocol, you must discontinue Benicar and any MP antibiotics you are taking. Most non-MP antibiotics do not provoke immunopathology but Benicar may potentiate its action and cause intolerable symptoms so it's best to be cautious.
I need to take a different antibiotic for awhile. What should I do?
Then in this link: Managing an acute respiratory infection while on the MP
http://mpkb.mp-dev.com/doku.php/home;diseases:acute_infections:respiratory
It says"
beta-lactam antibiotics – Patients who are candidates for penicillin may wish to ask their physician for an alternative to penicillin such as claforan (Cefotaxime).
Please inform me which one is safer, better for my purpose.
I do not want to stop the MP!!
I am currently on:
Benicar 40mg Q4hrs for inflamation
Minocycline 50 mg everyday for IP reaction and respiritory IP
Guaifenesin
Albuterol inhailer (non-steroid)
If there is someone in the US who can call me or I can call them, my phone number is 314-368-7289.
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Fri Sep 11th, 2009 19:50 |
|
jean:
I am no moderator, but I have taken avelox for a flu which was indeed a flu last winter.
I didnt stop benicar, I stopped other abx, but I didnt ough to. I stopped them because of the normal IPR was giving me a bad time with the bad feeling of the flu.
I took only te avelox, and had a mild unpleasnt reaction about headache and dizziness, but he´lped a lot with the green mucus and the fever.And it worked quickly.
I think it is better not to mix 2 abx like avelox and claforan, better take only one and see how it goes.
Moderators, what do you thinK?
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | USA |
| Posts: | 601 |
| Status: |
Offline
|
|
Posted: Sat Sep 12th, 2009 01:02 |
|
Jean,
I think you can fill the prescription so that if you decide you need it over the weekend you will have it on hand.
Marion,
Thank you for sharing your experience with Avalox. It's good to know that it worked without having to discontinue the Benicar.
Perhaps we can update the knowledge base article with a little more information to add clarity. (Not now, my brain is half on vacation with the migraines as of late.)
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
jmb88
Member
|
Posted: Sun Sep 13th, 2009 14:56 |
|
Hi and again thanks tJoyful, Marion and all who are helping me with information.
Today:
Benicar 40mg Q3hrs
Minocycline 50mg Q25 Hours
Guaifesesin every 4 hrs
inhailer - albuterol - 4hrs
drinking lots of water
supplimental O2 rest and sleep
My breathing is a bit better. The mucus is changing form green to a pale yellow - progress. It is probably the minocycline increase that is helping the infection.
I filled the Avelox prescription, but haven't taken it, so far.
I still feel my lungs shrinking, I'm trying to visuallize them as healthy and open!
Still unable to get a reading from my BP machine, maybe time to get a new one.
Tired all the time.
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | USA |
| Posts: | 601 |
| Status: |
Offline
|
|
Posted: Sun Sep 13th, 2009 15:16 |
|
Hello Jean.
I am so happy to hear there is a ray of sunshine (put on your NoIRs) coming through for you.
When you say an increase of Mino, do you mean 50mg every 24 hours?
Keep picturing your lungs opening up!
You are going to recover!
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
jmb88
Member
|
Posted: Sun Sep 13th, 2009 19:13 |
|
Joyful,
I am continuing the 50mg everyday just for now.
When I feel the infection is gone, i will go back slowly to the 48hrs of mino, then continue in Phase I slowly.
Everything is well today.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | USA |
| Posts: | 601 |
| Status: |
Offline
|
|
Posted: Mon Sep 14th, 2009 04:58 |
|
"Everything is well today."
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
marion villa
Member
|
Posted: Mon Sep 14th, 2009 19:15 |
|
good!!
re evaluate if you do need the avelox, and if you do, dont hesitate to take it. If you can hang on it is ok.
maron
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Thu Sep 17th, 2009 17:42 |
|
Hi
My BP yesterday was 96/54 at the pharmacy. I was walking around but tried to rest a minute before taking it.
I didn't need the Avelox, I did not take it. The infection is gone, but my mucus, which was a lot has increased, that might last a bit. It is mostly clear or thick whitish.
I felt better when I was on the 3hrs - Benicar 40mg, buy my Dr. said to go back to 4hrs, then 5hrs, eventually back to 6hrs since I was feeling better.
Yes, I've read that this is part of the disease and i know it is sometimes common with patients. It is just hard to function I do feel dizzy and sometimes feel like I will faint if I close my eyes.
My blood pressure is already low. Can I take Benicar?
When I did that my BP dropped again and I feel like fainting most of the time, if I don't keep moving.
I'm eating salt and I have read all the links regarding "Low Blood Pressure"
My question is: Should my Dr. keep my on the 3 - 4hrs of Benicar 40mg??
I need to advise my Dr. that the study site suggests that.
I'll let you know what happens. Please advise me if i got all the info right?
Thanks for all your help Marion and Joyful and anyone else who has an opinion.
Jean
Last edited on Thu Sep 17th, 2009 17:45 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Thu Sep 17th, 2009 21:21 |
|
jean.
as I know benicar Q3 is used in difficult moments and you have felt that relief. The recomended dose is 40mg Q4 hrs and sometimesQ 6 if everything is going well.
If you can convince your doctor to prescribe it each 4 hours, dont hesitate to do that. it is better to have in your hand plenty of benicar eventhough if you personally choose to take it each 6 hrs
maybe moderators could give a better opinion
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
Current time is 14:09 | Page:   1 2 3 4 5 6   |
|
|
|
|
