 |
| Author | Post |
|---|
DNStog
Moderator
|
Posted: Tue Jun 30th, 2009 04:30 |
|
Each MP patient is unique and there is no strict guideline. Taking Mino more frequently has helped me...sometimes 25mg, sometimes 50 mg, sometimes increasing the time between regular doses. You can be creative with it as this link indicates:
IncreasingAndDecreasingMinoDosageforIPs
Also to help you assess your possible need for supplemental oxygen, see HowCanITellIfINeedSupplementalOxygen
Wishing you well, gently---Donna
____________________
MP started 12-27-04
Sarcoidosis Systemic/Uveitis/ Hypothyroidism/ Raynaud's Phen/Paraesthesia/rhinosinusitis/ asthma/depression
|
jmb88
Member
|
Posted: Wed Jul 8th, 2009 03:44 |
|
Thanks Donna,
I've been taking the Benicar 40mg/4hrs, during the day and I tried the Mino 25mg 24hrs, in between the regular does. It seems to have helped a bit. I think I'll try it again tomorrow because I'm having some really bad fogg brain and extreme fatigue. As usual my lungs are tight and it helped with that too.
I got my "pulseox" today and have been using it. So far full oxygen saturated blood. I'll keep it by me for when the numbness happens, for peace of mind.
Leg pain is gone. That was strange. I'm not putting it out of my mind yet, we'll see, I'll be hopfull on this one.
My anxiety is less too, it starts with the buzzing in my body-up and down my arms and legs and I know it's starting.
I've been walking the dog three times a day now for exercise - to get the lymph nodes flowing, circulation too. I will try to do that everyday, of course covering up is necessary. I walk her at night, that's my favorite time. Maybe a 1/2 mile each walk.
Doing better for now. Managing the IP. thanks for all your help!
Friday 7/10 I'm having my D levels checked for Phase II. This appointment was made 2 months ago. I'm curious where my levels are anyway. I started the MP 1,25 D at 36ng. Even though I'm still at 75mg of Mino - Phase I, I want to know so I can make any adjustments in time so Phase II won't be delayed.
That's it for now,
Jean
Last edited on Wed Jul 8th, 2009 04:13 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Tue Aug 4th, 2009 04:33 |
|
Day 148
Benicar 40mg Q6hrs
Miniocyline 100mg Q48hrs
Noirs, indoors
milk thistle - organ pain in abdomon
I’ve been in Phase I for four months so far, and I started 100mg Mino 3 weeks ago.
I’m curious that this link below states to watch out and not to be in Phase I for too long. I just want to clarify that I’m not taking too long according to New Phase I guidelines that indicate to take it slower than previously, so I’m just curious if I should be more aware of how long this phase should take and if you could be on phase one "too long". I'm just curious. Thanks for the input. Archived Link removed by Admin..
Update
When symptoms get intolerable I up my Benicar to Q4. This helps best.
If I need more relief taking the Mino at 12mg or 25 mg in between has been helpful.
Most annoying symptom that is persistent is the parathisis. I haven’t found anything able to help with this symptom, it come and goes at its own will.
Lung symptoms have been regular, nothing intolerable, occasionally increase Benicar for this and mino pulsed inbetween at a low dose - 12mg .
Fatigue comes and goes with bursts of energy. I grab those burst of energy and run with it. When this happens, I feel like my old self again.
I’ve been having a bit of depression too, this usually happens to me when I initially increase my Minocycline, so I’m ready for it. Distracting myself from this is working well. If I have time I’ll focus on a hobby (thank’s Matt for the advise)craft projects with the kids this summer!
I was vacationing for two weeks and covering up like crazy. I've got this great black hat that the brim comes down and actually covers the face. I'll try to find out where my sister bought it and share the info.
I will be testing my D levels this Friday. I was supposed to test it two weeks ago, but this week will do. I will let you all know the results. My doctor and I discussed it and I will be starting Phase II modified. When, I don't know yet, there is a quiz to take and my D levels to find out.
We felt with the lung and possible cardio involvement, the modified is best. I do realize that after I complete modifide Phase II, I will go back and complete regular Phase II.
I hope you are all having a great summer.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Sun Aug 9th, 2009 20:03 |
|
Day 154
Benicar 40mg Q6hrs
Miniocyline 100mg Q48hrs
Noirs, indoors
milk thistle - organ pain in abdomon
Days have been good and not-so-good, almost regularly. It's been predictable lately like it is at the end of each increased cyle of Minocycline.
Tuesday I am scheduled to get my D levels checked again. I will post them and ask for the questionaire to enter Phase II.
Symptoms:
1. fatigue - increased on the day after I take the 100mg Mino
2. Lung tightness - every 2 to 3 days it increases then lets up a bit
3. abdominal pain - organ discomfort - I use the Milk Thistle-seems to be helping
That's it for now.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
k
Member
| Joined: | Fri Oct 19th, 2007 |
| Location: | Australia |
| Posts: | 164 |
| Status: |
Offline
|
|
Posted: Tue Aug 11th, 2009 10:47 |
|
I see your question about length of Phase 1 didn't get answered. I clicked on the link but it didn't open.
One thing to be careful about on the MP sites is that you are reading more recent information. The main MP site has been around for quite a number of years now, and some of the earlier information has been superseded as the experience has grown and the research advanced.
The most up-to-date information on Phase 1 is the latest Phase 1 guidelines:
http://autoimmunityresearch.org/phase1.pdf
There is no longer the emphasis on starting mino quickly and getting through Phase 1 'quickly' as there once was. Now there is much more emphasis on Benicar, and less on the abx.
It would help to review some of the most recent MP presentations and papers:
http://mpkb.mp-dev.com/doku.php/home:publications
regards, k
____________________
CFS severe menorrhagia & dysmenorrhoea anxiety depression paxil 600mg calcium daily Ph1Oct07 Ph2Feb08 Ph3Sept08 25D:Jul07=50 Oct07=23 Jan08=13.2 Oct08=12.8 Sept 09=10 NoIRs cover-up low lux home lite exp r/t to work
|
jmb88
Member
|
Posted: Fri Aug 14th, 2009 22:25 |
|
Day 159, Friday 8/14/09
Benicar 40mg Q6hrs
Miniocyline 100mg Q48hrs
Noirs, indoors a lot
milk thistle - organ pain in abdomon
Thanks to K for your response. I think I just ran across an out-dated page on the MP study site. And thanks for the link to the presentations and papers. I've seen some of the presentations and they are amazing, they bring it all together and make it all make sense.
More recently I've had a bit of intolerable lung/cardio involvement. I increased my Benicar to 4hrs, and added 25mg of Mino on the off abx days, helped a bit.
This has happened many times in the past, mostly before the MP. There was no way to control it then, but now with the MP, I have some tools to help, especially my own personal miricle med "Benicar". It felt like my lungs were closing up, not like asthma though. It's very hard to describe to people I know, but you MPers might understand. It is like I can inflate my lungs, only with a very purposfull inhale, then they close up really quickly. It feels like I have to assist my body to breathe. During the day I can manage, if I force myself to sit and be still. It's at night when I fall asleep that I can no longer assist myself in breathing in. Anyway I wasn't panicing, I had my "pulseox" and it continued to show my blood oxygen in the 90's. I don't know what it was when sleeping all night but that seems to have passed once again.
Any other suggestions are welcome, if anyone else experiences this.
Thanks it for now,
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | USA |
| Posts: | 601 |
| Status: |
Offline
|
|
Posted: Sat Aug 15th, 2009 17:37 |
|
Hello Jean.
Here are some more links for you:
Managing immunopathology (IP)
Length of the Marshall Protocol
Stages of illness and recovery
andNotice for emergency medical personnel
Hospitals and emergencies - For Patients
(always better to be prepared before you need to have these items printed out)
____________________
MP Stories | Bacteriality | MP Search | MP Knowledge Base
|
jmb88
Member
|
Posted: Sat Aug 22nd, 2009 16:56 |
|
Day 167
Benicar 40mg, 6hrs (4hrs when needed)
Mino 100mg, 48 hrs (add 12.5 mg on odd days when IP is worse)
Milk Thistle
Noirs, staying indoors
Covering up
Hi All,
Thanks everyone for the links.
Still having a rough time in the lung department.
I started, as you can read from my posts, after being in Phase I, 100mg Mino for 4 weeks. The bad lung IP showed up just around the time I was feeling no IP and was going to consider Phase II.
I will stay at this stage and ask my Doc for the DLco test on Monday, since breathing is difficult.
Feeling a bit down, since every breath is painful. I've increase the Benicar.
I will try to rest some more till I hear from my Doc.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Sun Aug 23rd, 2009 14:04 |
|
Hi all,
Just posting for some information.
I have been unable to get a reading on my Blood Pressure. It is too low to detect on my home machine. I had my husband test the machine out and it worked fine for him.
I've been extremly fatigued and dizzy. I realize low BP is part of the disease.
I am continuing of cousre with the Benicar 40mg every 6hrs. I read the new Phase I over again to double check what i should do. I have had bad IP, so according to the New Guidlines - Phase I, I stopped the Mino for a dose to see if that helps.
I've been searching the study site to find out what tests I need, I can't seem to find the info I am looking for. It had something to do with low blood pressure and fixing it.
I want to be informed when I call my Doc on Mon. morning as to what to do.
I don't want him to freak out about the low blood pressure.
If anyone knows where the link is that explains why my BP could be so low and what to do about it. I think it might have had something to do with hormones or something.
Just reaching out,
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Sun Aug 23rd, 2009 15:52 |
|
Hi,
My husband found this link: http://www.marshallprotocol.com/forum32/1080.html
I think it is what I needed, Please if anyone has another link or info it is welcomed. Dizzyness is scary, but will rest and take it easy.
Doing fine, I read the link and feel better. I am going to the pharmasie today and have them check it out so i don't have to wait till Monday.
I just need the number for now, I know I shouldn't be hung up on a number for BP, but my little home monitor isn't reading anything.
Hangin in there,
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Mon Aug 24th, 2009 14:55 |
|
Hi again,
I am currently on Benicar 40mg, 4hrs, for intolerable IP. I skipped my 100mg Mino dose on Sat. and will resume with a lower dose today - 75mg as per the new Phase I guidelines.
Please let me know if I am interpreting this correctly.
I called my Dr office this morning about getting a DLco test and they said I would have to see the Dr with an appointment - totally understandable - but he can't see me until next Tues., over a week. Nothing I can do.
Next, I've been looking over my logs of IP over the past few weeks to see something which could have triggered this intolerable IP and severerity of it.
Well there was sun exposure on Aug. 13 and 21, about 3 hours total, I was covered up, but outside.
Could these thing have triggered what is happening now?? Probably.
Thats my update. ANY COMMENTS ARE ALWAYS WELCOME.
My BP at the pharmacy was 90/51, the lowest for me so far. I know it is the disease not the Benicar. My breathing is compromised too so I take now, as I stated above, 40mg of Beni Q4hrs. for 2 days now.
I will log back on to let you know when I take the 75mg of Mino tonight.
Jean
Last edited on Mon Aug 24th, 2009 15:20 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Mon Aug 24th, 2009 23:15 |
|
jean:
Maybe your D is comming down, maybe this dose is killing more bugs than you can take for the moment, maybe you got more light in some moment...
whatever it was proves that MP is working, I know it looks and feels bad, but are good news.
the guidelines say to increase benicar Q 3 hours, or to take 20 mg sublingual inbetween doses and see if it works, then low the abx, or stop taking them and see what happens.
the low pressure is a common IPR symptom, I have had it like you but only once when I started mino and had intolerable IPR, but resolved as soon as I learnt how to manage my abx doses.
Never hit me again so far. please take a look to this links, there is a lot to read, maybe repetitive and boting but pleas take a look and see if it helps.
As I was told when IPR reached me. " you have only to eat and sleep"
http://www.marshallprotocol.com/forum32/1080.html
http://www.marshallprotocol.com/forum32/4703.html
http://www.marshallprotocol.com/forum32/3948.html
http://www.marshallprotocol.com/forum32/2177.html
http://www.marshallprotocol.com/forum37/3077.html
be well
marion
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
Deedee
Member
|
Posted: Tue Aug 25th, 2009 02:35 |
|
Be aware that your DLCO2 can change dramatically, depending on how much inflammation is going on. If it is worse, it doesn't mean it won't get better again. Just wondering why you felt you needed a DLCO2, or is it just time for your yearly checkup?
If you are working hard with your breathing to keep your sats above 90, consider using oxygen during these times. Last edited on Tue Aug 25th, 2009 02:42 by Deedee
____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec09 | 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09)
|
jmb88
Member
|
Posted: Tue Aug 25th, 2009 04:19 |
|
Thanks DeeDee and Marion for your responses!
Today
Benicar 40mg Q4hrs, 20mg SL 2 hrs after dose.
Minocyline 75mg (previously 100) skipped a dose two days ago
Staying indoors, Noirs
Tomorrow
I will continue with the Benicar 40mg Q4 since it seems to be helping (Marion, I noted the Q3 and will keep that on hand if necessary)
Minocycline 25 (only if IP is bad tomorrow) taken from Strategy #2 in the "Managing Immunopathology" link http://mpkb.mp-dev.com/doku.php/home:mp:managing_immunopathology
The reason I was considering the DLco test was because last week my throat was closing up(since increasing the Benicar, it is been better) and I read the DLco test would show if I needed oxygen. I just can't see my Dr. writting an Rx for oxygen without some evidence, maybe I'm wrong. I will explain to him my feeling that during the day, i am able to keep the PulsOx above 90, but while I sleep I worry because I wake up so unreasted, lightheaded,and by the time I'm put the PulsOx on my finger I've increase my heart rate, etc., so it is hard to tell what's happening at during sleep.
I still have to wait for my D level results to come back, so I don't know presently what they are. All I know is something hit me hard last week which I hadn't felt this bad at all since starting the MP. My guess is the sun exposure? And I agree, this shows that the MP is really working, I just have to get a grip on the IP for mow.
Marion I read the links, thanks for them, they put me at ease to read them over again.
Going to bed now, I'll check in tomorrow.
Thanks again for the responses - much appreciated.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Deedee
Member
|
Posted: Tue Aug 25th, 2009 14:32 |
|
Here is information on Pulmonary Function Tests:
http://www.marshallprotocol.com/forum32/10992.html
PFTs are usually ordered to determine how well the lungs are functioning. To determine whether or not there is adequate oxygenation of the blood, a arterial blood gas or saturations measured by an oximeter are usually used.
If you are fearful about your oxygen level when you sleep, perhaps you can ask for prn oxygen from your doctor. Some insurance companies will not prescribe oxygen unless you saturations are below 90%. Remember that when you are exercising/walking, your oxygen needs are greater, so you can have OK sats while sitting, but then not when you walk so have your sats measured while you are walking, too.
You say when you breathe, it is painful. Shortness of breath is distressful, but not usually painful. Can you describe that pain?
I had a lot of lung IP in my first 6 months of the MP. That is really funny because it is not supposed to be in my lungs. (ha ha) My lungs are much better now that I am on the other side of the IP. I have realized dramatic improvements beyond where I was prior to the diagnosis. No more wheezing, for example. Anyway, just a reminder that if your IP is too hard, the new guidelines encourage you to drop back on the antibiotics. I know you dropped to 75, but you can always move back up if you drop even more, or space out the days to every 3 days (of course this is for you and your doctor to decide.) It is my experience that when I have to reign in the IP, it takes a few weeks of dropping back on the antibiotics before the IP is back to a low roar, instead of a loud roar.
admin add: owning a pulse oxymeter can be helpful
What should I know about supplemental oxygen?
Evaluating the need for oxygen.
____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec09 | 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09)
|
marion villa
Member
|
Posted: Tue Aug 25th, 2009 21:30 |
|
Jean;
please say to your doctor that you are having trouble breathing and you cannot be upset with that. You must have peace by breathin the amount of oxigen you need!!!
My mom needed oxigen daily 24 hrs a day, and we ended buying a machine that gets the O2 from the air and puts it on a line with a mask, it isnt like a tank, it is more like a motor machine, you plug it in the electricity,the O2 goes ina bottle with distilled water to get humidity. doesnt know how to say it in english "concentrador de oxigeno" it wasnt so much expensive for us because the insurance in Mexico works different rom the US and we had to pay for the oxygen tanks and that WAS very expensive. So at that time to buy the machine was the choice. Please check it maybe you can rent one. So then you can have your O2 without pleading it to the far away doctor. http://www.concentradoresdeoxigeno.com.mx/concentradoresdeoxigeno.html
Pleasee look at this link, it is inspanish but has good pictures
see oxygen concentrator Admin.
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Wed Aug 26th, 2009 03:57 |
|
Today I did wind up adding 25mg of Mino.
I'm still on 40mg of Benicar every 4hrs. with 20mg SL as needed. I'm feeling just a bit better.
Thanks for all of your advise. I will be persistent with my Dr. I will insist on some supplemental Oxygen at night. I will let you know what happens.
I printed the Oxygen machine that Marion linked and I will bring it with me to the Dr.
I do own an Oxygen meter and it has been helpful. The thing is I really don't know what is happening at night, I just know my symtoms when I awake. I took a walk tonight, after sundown and brought the pulseOx with me, it remained above 92 for the whole walk, 20 min. It is really when I relax that my chest muscles are tight and shallow breathing happens.
About the pain I am having. It litterally feels like daggars when I breathe in sometimes. This past intolerable IP makes my lungs feel raw. Is this something nobody has experienced?  Especially in the morning, I try to inhale and I feel like I'm breaking up my lungs and peeling them apart. Lots of mucus comes up too, but the mucus is constant. I take Guifessin for that and it helps a bit, my (non-steroid) inhailer only helps a little now. It is the Benicar that works the best when I increase it.
My BP was100/62 today. I little improvment from the past 3-4 days. I've been resting and adjusting my Meds. I will continue with the lower dose of Mino (75mg) tomorrow.
I will be at my Dr. office tomorrow in the waiting room until he will see me.
Thanks for all the info and encouragement. I can take it , I really have no other choice, this is working and I will stand behind the science. Just a rough patch, and I will be back on track. all the knowlege is here.
My D levels should be in. Another reason to go to his office.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
marion villa
Member
|
Posted: Thu Aug 27th, 2009 04:01 |
|
jean.
My thought is that symptom has to be about the lying down position. When you are standing or sitting, your lungs have more freedom to work, if you are on your bed, the lungs carry on your weight and it is difficult to take the air. my mom used to lift her arms over the head when she was lying her bed to feel more air coming in. Maybe you can experiment to have big pillows and to liedown like a little sitting.
the oxigen concentration that you have in a tank or in a machine is bigger than the one in the air, so if your inhalation is smaller you will get enough O2 to live, without much effort.
that is why you need to have some.
marion
____________________
RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
|
jmb88
Member
|
Posted: Sat Aug 29th, 2009 01:17 |
|
Day 173
Benicar 40mg 4hrs
Minocyline 75mg (down from 100)
I'm feeling better. My BP is back up to about 106/65
The increased Beni helped and reducing the Minocyline, back 25mg (from 100 to 75mg)
My Dr. perscribed a PulsOx recorder, to record my oxygen levels at night. I will try it for 2 nights and Monday they will get the report.
Since the symptoms wax and wan, I don't know if tonight will measure anything abnormal or not, I guess we'll see.
Marion, I think you're right about lying down, my breathing definatly becomes shallow. I will try proping up the pillows and sleep on an incline.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
jmb88
Member
|
Posted: Thu Sep 3rd, 2009 13:59 |
|
Day 177
Benicar 40mg, 6hrs
Mino 100 mg, 48 hrs.
Some discouraging new today. My Vit. D tests cam out and I have not dropped at all.
I haven't had them tested since I started in Mar 09, I believe because of my sympoms all along that they must have droppped at some point, but since I wasn't testing I don't know.
I had some sun exposure, which I think caused the droppin BP in August. I've been eatting my husband cooking, which I don't check so much. I have to cook simply for my self completely seperately from the family from now on.
I got new curtain in the living room, others where just shading the light.
Test results were posted in the Vitamin D test results forum as follows:
Vitamin D 25-Hydroxy
Vitamin D, 25 OH Total 26
Vitamin D, 25 OH, D2 <4
Vitamin D, 25 OH, D3 26
I know by my symptoms that the MP is working for me. I think my Vit. D was down at some point but wasn't tested regularly enough, that's my fault.
I will keep reading on how to get Vit D. down. I will watch the bacteriality again. I have lots of reading to do. I have had the "Foods to Avoid" posted clearly in my kitchen. I think some eggs from cooking, and some Folic Acid from all the enriched foods, got into my diet. I will stick to only the basics, no carbs, just chicken, veggies and fruits that are not on the "Foods to Avoid" list.
I got my Oxygen perscription yesterday and I have an oxygen converter for rest and sleep. Thanks Doc!
My lung symptoms are still there, I'm getting worried about the whole thing. This Vitamin D levels make me feel like a huge set back.
I am once again in my basement, out of the light.
Jean
Last edited on Thu Sep 3rd, 2009 14:03 by jmb88
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
|
Current time is 11:12 | Page:   1 2 3 4 5 6   |
|
|
|
|
