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Barney
Moderator
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Posted: Fri Mar 20th, 2009 17:22 |
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Welcome aboard your MP journey, Luxman.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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luxman
Member
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Posted: Sat Mar 21st, 2009 12:47 |
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Thank you so much.
I started taking Benicar at the required dosages at midnight, 21/03/09. So far, I'm not feeling anything different. My 25D was low to begin with (14.5), I'd had no 1,25D test (going to take it on Monday), so my immune system may or may not have been already active to begin with. (I have been quite symptomatic, though.)
I've set my iPhone alarm to go off at 12 and 6 am and pm; luckily I have no problem going back to sleep after waking up at 6 to take the Benicar.
I'll go out into the sunlight today, I'll cover up and wear my sunglasses. Blinds are down at my apartment as well, though I don't think I'm light sensitive (yet).
Light from a computer's LCD screen in a dark room has been bothering me for a few months now, though. Not sure if that's relevant.
Of course I have doubts: what if I have something else? What if MP won't help me? I'm always the guy who's shunned by miracles. Good thing though, I don't need to believe in this, as the science behind it looks pretty solid, so it should just work. Deep inside I do feel that I have Th1 illness and that MP should cure me. I look forward to passing my first week on Benicar and starting Mino.
Looks like this is a wonderful community, and I'm ever so thankful for your help.Last edited on Sat Mar 21st, 2009 12:55 by luxman
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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luxman
Member
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Posted: Sat Mar 21st, 2009 14:32 |
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One thing I noticed that may or may not be a coincidence: about 90-120 minutes after taking Benicar, I do get worse pain in my colon than I normally would as a symptom of my condition (whatever that is). So maybe Benicar does provoke some reaction.
Important: I don't intend all my posts to be responded to. I would not like to use up valuable volunteer resources for the purposes of getting comments or responses to everything that I post.
I do plan to document my journey somewhere, and post just about every experience that I have on the MP, such as the above; I think it may be helpful for several purposes.
However, if you think I should do such extensive posting on a personal blog or forum somewhere else, and use this forum exclusively for major status updates, please let me know, and I will comply happily. Thanks.Last edited on Sat Mar 21st, 2009 14:35 by luxman
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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luxman
Member
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Posted: Sat Mar 21st, 2009 19:57 |
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OK, still on my first MP day. I got a horrible headache, weakness and general malaise, similar to what I had about 3 weeks ago. Before getting sick last October, I had these headache days/weekends every once in a while. (In fact, these episodes were a precursor to my illness back in September or so.) I had also had such an episode days before my Bell's palsy set in in 2001.
As there's hypertension in my family, and I've also had some high BP readings, I just assumed that these headache episodes must be signs of hypertension. Today, I assumed that my BP should be extremely high, 170 or 180 systolic. That got me worried.
Later today I bought my first-ever blood pressure monitor, and did several checks... And it looks like my BP is in the 128-150 range, which is not that high for me. (Anxiety, and a phobic fear of high BP may also play a part... There have been a lot of high BP scares in my family, so I've been imprinted with a dread of high BP since childhood.)
So maybe my headaches and associated periods of weakness and mild nausea and increased dizziness are not hypertensive episodes at all.
I also wonder if their appearance on my first Benicar day are a coincidence...
We'll see how it all goes on.Last edited on Sat Mar 21st, 2009 20:02 by luxman
____________________
microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Sat Mar 21st, 2009 23:25 |
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Luxman,
Please print out the Phase 1 link I have listed below:
ABOUT THE MARSHALL PROTOCOL > Essential Information About the MP (Required Reading) > PHASE ONE of the Marshall Protocol
Start a 3 ring notebook and as you are starting each Phase....print it out and add it to your notebook.....you will find that you can almost do MP without another person saying a word to you....but...we will still be here to help you.
I used to hate it when everyone answered my questions with links but I learned to read/reread and then I was off and running.
No coincodince. I treated everything as an IP.....and it all worked out. Some were painful as I did not learn to increase my Benicar to help with pain. I add extra Benicar all the time.......for headaches, nausea and all IP's that were tooo painful.
Hope this helps and glad you are bringing us along on your journey by posting.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Sat Mar 21st, 2009 23:26 by Barney
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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luxman
Member
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Posted: Mon Mar 23rd, 2009 14:13 |
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Thanks for the links, I actually like them... If some question has already been answered several times, and that answer has gone through several revisions and has been polished by authors and editors... Then that's probably the best answer out there.
I'm okay with understanding things, however, my memory concerning facts and names and such has never been very good (blame the CWDs, eh?). So even if I've read it before, it still helps to read stuff over and over again.
Third day into MP, there's nothing special to report. I'm feeling the same way as I've been typically feeling in the last few weeks.
One question that I've had for a while, one for which I've found no answer as yet anywhere: what are the typical symptoms of a Th1 disease? I have seen the term "typical Th1 symptoms" mentioned, but they were never listed. Did I miss something?
I'm asking because I've never been diagnosed with anything, and my symptoms are pretty nonspecific. They sound like IP symptoms, but that doesn't make much sense to me, as I'm not on any antibiotics. (Is there such a thing as "spontaneous IP"?)
Thanks a lot again!
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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bobsyouruncle
Member
| Joined: | Wed Jan 7th, 2009 |
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| Posts: | 140 |
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Posted: Mon Mar 23rd, 2009 14:19 |
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Hi Luxman
I also felt nothing for 3-4 days on the Benicar (other than lowered BP, which no issue) and then my thyroid glands swelled for 2-3 days. After that I felt great. The herxing kicked in for me when I started the Minocycline.
Everyone is unique. So I am just relating my experience. But I was also expecting more to happen the first few days I was on the Benicar.
Bob
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Sarcoidosis 2000. Sjogrens. Pituitary adenoma. Insomnia. Arthritic/muscle pain. Fatigue. DDD? Skin. D25Jan09 22.7, D25Nov09 18.8, D1,25 67.7 Jan09. Ph1 2 March 09. Ph2 9 May 09 NonMPmed: Lexapro. Ambien. NoIRs. Light/sun limited.
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luxman
Member
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Posted: Tue Mar 24th, 2009 11:34 |
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It's morning here (11:30), and it's been one of my better days so far. Dizziness is less than usual, and other symptoms are also kind of weak. Not much to report, really.
____________________
microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Tue Mar 24th, 2009 15:08 |
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Luxman,
Remember that you can also take xtra Benicar whenever you need to calm the dizziness or any IP.
Are you reading more and more...........I hope.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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luxman
Member
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Posted: Tue Mar 24th, 2009 15:55 |
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Thanks for the tip, I'm reading all the time. In fact, everyone thinks I'm obsessing too much...
Just to clarify, dizziness is not a new, IP-related symptom in my case... In fact, constant, nonstop, 24/7 dizziness has been my most prominent symptom for the past 5 months! I would really like to see it go away one day...
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Tue Mar 24th, 2009 17:58 |
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I do not think you are obsessing, I think you are becoming very wise, cause someday you may be in my place helping new MPers and you need to keep learning. I read for about an hour or two this am when I could not sleep.
Lux, I am in stage 5 (not on any abx for over a year now) and all I have is benicar to stop the herxing which is helped with plenty of benicar (I take 7-9 Benicar per day).
Don't be afraid of it, it is organ protective.
HANG IN THERE, WE WILL MAKE IT!!!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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bobsyouruncle
Member
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| Posts: | 140 |
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Posted: Tue Mar 24th, 2009 20:56 |
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Hi Luxman
I also read like crazy and spent a lot of time on this site for the first 2 months. I think it's part of our coming to terms with the whole MP thing and until we have have all our answers, we keeping coming back again and again until it makes sense. Given that the MP seems to become a way of life for a while, which is a big adjustment for most of us, I am not surprised that we revisit the site and spend so much time reading and questionning. When something like this is new, it is like oil floating on water, but eventually we absorb the new ideas and philosophies and it becomes part us. Between now and then, we read and obsess a little - I think the obsession is functional and part of the adjustment and rewiring of our brain to a different way of thinking. At least we are not the only ones - there's lots of us MPers.
Bob
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Sarcoidosis 2000. Sjogrens. Pituitary adenoma. Insomnia. Arthritic/muscle pain. Fatigue. DDD? Skin. D25Jan09 22.7, D25Nov09 18.8, D1,25 67.7 Jan09. Ph1 2 March 09. Ph2 9 May 09 NonMPmed: Lexapro. Ambien. NoIRs. Light/sun limited.
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luxman
Member
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Posted: Wed Mar 25th, 2009 15:08 |
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Thanks for sharing your reading/"obsessing" experiences...
As soon as my first GI symptoms appeared in October, along with the nonstop dizziness, I've been freaking out (fearing cancer among other things), and have done really insane amounts of reading and research on the net. I often found myself correcting my GPs as we were discussing symptoms and potential diagnoses...
It would be really reassuring to know that I do actually have a Th1 illness because then I'd know that the MP would take care of this. And really, this has been the only explanation so far that has made any sense to me.
I realize I need to read a lot about the MP, not just for practical reasons, but also because I would like to understand as much as possible of the underlying science. And we know that a lot of it is really counterintuitive and intricate. (I just came across a thread where apparent contradictions were cleared for a poster, e.g. why high 1,25(OH)D levels are bad if it's a VDR agonist... And it helped me a lot, there are some points which I didn't get before that.)
I'm waiting for a week to pass without any surge in symptoms so I can start the minocycline.
Now, this might have been stupid, but I've performed a little experiment. After my Saturday headache, my condition improved on olmesartan alone. I have had most of my symptoms (dizziness, IBS, back pain, coughs), but no great fatigue or weakness, and my dizziness has also been quite tolerable.
Before starting the MP, I had been taking a herbal "anti-mycoplasma" capsule by Raintree Nutrition. As I started the olmesartan, I stopped taking this supplement.
Now, yesterday evening, I tried taking two capsules (a third of my previous daily dose). Now, after 14 hours or so, my dizziness has worsened again. So maybe the antibacterial capsules are (and have all along) caused IP? Or is it, again, a coincidence?
In any case, I'm done experimenting. I'll hope to see my symptoms descend to a lower level again, and when they stabilize there, I will start the mino.
Any guidelines on the exact timing? I was thinking maybe I'd start this weekend, since nothing extreme has been happening on olmesartan alone. No light sensitivity, no new or increased symptoms... Just maybe some mild palliation (that may also be partly due to abandonin the herbal stuff).
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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bobsyouruncle
Member
| Joined: | Wed Jan 7th, 2009 |
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| Posts: | 140 |
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Posted: Wed Mar 25th, 2009 15:18 |
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Hi
Just curious, as I have been watching your posts, did you get your 1,25 D results yet? You seem to be looking for some clarity on if the MP is the right thing for you and for many folk that seems to be a major clarifier. I can see you were going to go for the test.
As for the rest of your questions ... I'll leave it to the pros ... I am a newbie too
Bob
____________________
Sarcoidosis 2000. Sjogrens. Pituitary adenoma. Insomnia. Arthritic/muscle pain. Fatigue. DDD? Skin. D25Jan09 22.7, D25Nov09 18.8, D1,25 67.7 Jan09. Ph1 2 March 09. Ph2 9 May 09 NonMPmed: Lexapro. Ambien. NoIRs. Light/sun limited.
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luxman
Member
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Posted: Wed Mar 25th, 2009 15:21 |
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bobsyouruncle wrote: Hi
Just curious, as I have been watching your posts, did you get your 1,25 D results yet? You seem to be looking for some clarity on if the MP is the right thing for you and for many folk that seems to be a major clarifier. I can see you were going to go for the test.
As for the rest of your questions ... I'll leave it to the pros ... I am a newbie too
Bob
Good observation. I've only recently got the prescription for the 1,25D test, I'll go this week. My 25D was really low, though (14.5), and that's already an indication.
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microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Wed Mar 25th, 2009 17:53 |
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Bob,
Don't cut yourself short, you understand the science better than I do and I also have a hard time retaining that part. You seem to be able to take it all in. I always did MP in blind faith so to speak by just following each phase instructions, I knew it worked and I never worried about the science. Just call me crazy. Barney
Lux,
They say that we learn from our mistakes.....I hope this is true for you with any supplements. I know you learned....I am just giving you a hard time for trying this. I spend hours on the site just trying to convince people to do MP and only MP and to think of everything as an IP....I should have asked you to move on to Mino and I didn't so I feel to blame for not moving you ahead on MP. I'm sorry.
On Curemyth1, nobody pushes the signature line, which is an advocates lifeline to looking after you. So please, for all us advocates please keep your signature line up to date.
PS Glad you are starting mino at 25mg and I hope you increase slowly but not to slowly...but please make sure the IP is slow or gone before moving up.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
Last edited on Wed Mar 25th, 2009 17:56 by Barney
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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luxman
Member
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Posted: Wed Mar 25th, 2009 21:48 |
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Hi,
My sig line is actually up to date, as I'm not on Mino yet... Now I feel pretty stupid for taking that herbal stuff last night. My dizziness is really bad, it might easily have come from that. A Herx of sorts, even if it's not a "real" antibiotic, just a herbal one...
So I'll wait until I go back to feeling at least as well as I did yesterday... And once I'm there for two days or so, I'll start the Mino.
I will also change my signature to reflect that change as soon as it happens.
Thanks, Barney, for watching over... It feels really reassuring.
____________________
microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Thu Mar 26th, 2009 02:02 |
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Lux,
Lots of meds are made from herbs, so don't cut them short at being potent.
you said it was not a real antibiotic but herbs are strong too, so be very careful with them.
looking forward to you taking your mino.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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luxman
Member
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Posted: Thu Mar 26th, 2009 02:08 |
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Yep, lesson learned!
Oh, and Barney, there's really no need for you to apologise. I knew that herbs and supps are contraindicated, so I did something I shouldn't have, and it was my decision. As far as pushing me to do the Mino: I've only been on Olmesartan for four days, and I believe 1-2 weeks are the minimum recommendation... So I guess I should have just stayed on Olmesartan for a week without doing anything stupid.
So when the week's out, I'll start the Mino. Things can still be going according to plan...
Thanks again for the support, I can't tell you how much I appreciate it.
____________________
microscopic colitis(?), 24/7 dizziness, cough, tinnitus, etc. progressing since 10/2008. | 25D: 14.5 (02/2009) | Started Olmetec on 21/3/09. Started Mino 25mg 28/3/09, 50mg 7/4/09, 75mg 3/5/09. Current meds: Olmetec 40mg Q6H, Mino suspended
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Barney
Moderator
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Posted: Thu Mar 26th, 2009 05:26 |
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will be looking forward to your starting mino. take good care of you.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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