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matthew.gatenby
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Posted: Mon Mar 23rd, 2009 11:39 |
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Advice needed
tonight .. approx 1hr ofter taking 50mg Mino
severe ip
profuse sweating - i was soaked
dizziness , faint like i was going to pass out
chest pain - right lung
all resolved lasted 30min
+ back shoulder pain
still going
is this respitory or cardiac herx ..
sounds like cardiac to me.
this was sever , i dont know wether or not it was all ip or a bit with panic attack
its hard to tell .. the sweating was the most intense and i really though i was going to pass out .. i am going to drop back to 25mg mino next dose ..
seems lie the mino really wants to give me a hard time which in ways is a good sign the mp is working was just a bit scary
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bobsyouruncle
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Posted: Mon Mar 23rd, 2009 13:03 |
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Sorry to hear that Matt.
I can only relate it to a vasovagal response. Vasovagal responses can occur as a result of an affected nerve which induces this kind of response. Folk normally get it for other reasons ... but I was wondering as the pattern of faintness, chest pain, and sweating match up.
Consider: http://www.marshallprotocol.com/forum32/4703.html
Did you try extra Benicar? Did it help?
Also consider:
http://www.marshallprotocol.com/forum32/1420.html
Please share what you learn as it will certainly help me if I go through anything similar.
Bob
Last edited on Mon Mar 23rd, 2009 13:12 by bobsyouruncle
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Sarcoidosis 2000. Sjogrens. Pituitary adenoma. Insomnia. Arthritic/muscle pain. Fatigue. DDD? Skin. D25Jan09 22.7, D25Nov09 18.8, D1,25 67.7 Jan09. Ph1 2 March 09. Ph2 9 May 09 NonMPmed: Lexapro. Ambien. NoIRs. Light/sun limited.
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matthew.gatenby
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Posted: Mon Mar 23rd, 2009 20:02 |
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yeah i still dont know what it is, mabye the virus/flu i have ontop of ip..
as i keep feeling unwell,
but the issue last night , started with me getting really tired and i was sitting at the time , calm as
the next minute i fely like i was going to pass out then, sweating profusely.
i notice i am sweating more and more lately but this was intense i was drenched .
i have not had a situation like this ever.
i am on a course at the moment otherwise id be straight to the doctors getting a heart check .. which i may go to the doctors tonight afterwards.
i am feeling very yuk.
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Deedee
Member
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Posted: Tue Mar 24th, 2009 01:35 |
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You said in an earlier post you think it is the flu since your co-workers have it also. Please let us know how you do with your doctor visit. I hope you are well fast.
Are you still planning to drop back on your mino?
http://mpkb.mp-dev.com/doku.php/home:medications:managing_immunopathology
Last edited on Tue Mar 24th, 2009 01:37 by Deedee
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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matthew.gatenby
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Posted: Tue Mar 24th, 2009 02:50 |
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deedee thanks for the post .. i am trying to organise to get to the doctors ..
most people are over the flu now and i thought i was as well , i am not sure .. plain not sure
i think ill get a referral to a cardio just to make sure..
i am pretty game , so i think i will try 50mg mino as i decided to go and stay with some family for a few days.. why go back now..
i tired excess beni , but it never seems to do anything for me ...
but like weve said i cant tell wether its the flu or not .. in the meantime i will rest and keep following protocol.
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Barney
Moderator
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Posted: Tue Mar 24th, 2009 03:16 |
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Matthew,
More Benicar, less Mino............IMHO!!!!!!!!!!!
You are moving tooooo fast, imo, you do not have to hurry, less IP is wonderful and makes life on MP much better.
Have fun with your family.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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matthew.gatenby
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Posted: Tue Mar 24th, 2009 20:19 |
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ok , i think i am getting to the end of the flu thought it was herx , but since ive been avoiding mino i doubt it..
last night suddenly severe stomach cramps (had me on the foor) hadnt had pain like this snce my appendix as a child (its not them cause there no longer there), and diorreah .. sorry to tell you all that one and the smorning still lower abdomen cramping and it continues .. i tell you herx is going to seem like nothing once i finally get through this ..
thanks to all who have sent me messages and showed concern.
i will go to the docs if the abdomen pain continues through the day..
if i didnt have this course on id be there .. or in bed ..
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Barney
Moderator
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Posted: Tue Mar 24th, 2009 21:51 |
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Matthew,
Hope you feel better soon.
HANG IN THERE,WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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matthew.gatenby
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Posted: Wed Mar 25th, 2009 20:24 |
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missing course 
but would just prefer to be well .. i still have diorreah and bleeding.. have had blood test and results ok .. have stool test being done.
they are talking about a colonoscopy .. i have had one of these before .. but i concerned about being on the mp and having one .. any feedback
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matthew.gatenby
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Posted: Thu Mar 26th, 2009 01:08 |
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i know some of the treatments for ibs and chrones disease is again steroids .. but i will not be taking them..
i feel like i am getting better.
and today photosensitivity kicked in.
go immune system.
appart from being ill my herx of lung pain and back pain .. my most common symptoms of herx .. is decreasing .. i will be keeping an eye on my herx ..
i dont think the current situation is related as i believe this is just my illness showing its ugly head.. and if it is .. i will consider it being the mp working .. as it is meant to aggrevate lung issues.. the diorreah i dont see as being mp but from food as one of my family got it as well .. just no where near as bad .. but perhaps it is contributing to the rest ..
i took my mino today and it really felt like it help settle my stomach and other stomach symptoms .. perhaps its kicking the bacterias ass ..
with these things options are limited or non existant ..
and its been a real trial but i am looking forward to getting better and kicking its ass.
i just want to know about lowering blood pressure and anestetics...
as i dont mind having tests done .. but a little scared about getting knocked out while being on the blood pressure medicine ..
hope everyone is well
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jayemcee
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Posted: Thu Mar 26th, 2009 03:09 |
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G'day Matt. After much procrastination, I made it to the computer room today and have caught up on a few posts. Have just done an update of my own, where you will see that Harold has to have a colonoscopy tomorrow in Melb. I usually have one at the same time, but he is on a more regular program now as they found polyps, so want to keep a close eye on things. (Not literally) I was pleased I wasn't called as I too wondered about being on MP and what to do about anaesthetics etc.
It would make it a lot easier if other medications didn't react with MP meds wouldn't it? That's my big worry that if I had an accident or got seriously ill, I could be medicated or anaesthetised with stuff that could react adversely without me being able to say anything. And if you did tell a paramedic, what would they do because they wouldn't know what to give you instead of the usual meds. If I get to Melb. tomorrow, must ask our son who is a paramedic. Wouldn't be their fault if they gave you a drug that acted adversely.
You seem to have been through the mill lately yourself. Hope it eases off a bit, though when nothing's happening, we worry that things aren't working!! Good job we've heard that things get better eh? Cheers, Jan
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Fibromyalgia/CoronaryArterySpasmSyn/Arthritis/CFS/Angina/Glaucoma/Sleep Apnoea/SpinalDD/RLS/Insomnia 1,25D45.8 Ph1Nov08 ModPh2Feb09 25D13.6 Jan09 Duotrav NoIR's covered up, low light
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Barney
Moderator
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Posted: Thu Mar 26th, 2009 03:29 |
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Matt & Jan,
The following link is something you should be carrying on you in case what you are talking about happens. Please print it out and carry it, so no errors are made.
Information for emergency room personnel - ANNOUNCEMENTS AND NEWS ...Information emergency room personnel should know about a patient who is on the Marshall Protocol is in this link (click here). It is recommended you print ...
http://www.marshallprotocol.com/forum18/12026.html
I am sure this would be good for a paramedic to see also.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Thu Mar 26th, 2009 03:31 by Barney
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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Barney
Moderator
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Posted: Thu Mar 26th, 2009 03:43 |
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Matt & Jan,
I googled (above) and found this link about colonoscopy:
COLONOSCOPY questions - General Information and FAQs - ABOUT THE ...Has anyone experienced colonoscopy while doing the MP? Is it compatible with the meds we're taking? Is there anything I should know about the anesthetics ...
http://www.marshallprotocol.com/forum37/9161.html
Hope this helps you.
PLEASE when you have questions, google it at the top right hand part of the page. Trevor had that added for our delight in getting answers quickly.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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matthew.gatenby
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Posted: Thu Mar 26th, 2009 05:53 |
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thanks for those links barney..
i was not well enough to google at the time and knew a considerate soul would help me out so thankyou.
i had to see me standard gp .. my mp gp lives in the city and i could not make it.
i gave her some documentation on the mp. and you know what i think she actually read it.. to my shock as she was very distanced from it earlier.. asking me how it is going and shat have i seen.
she has sent my sample off for analysis .. and referred me to a gi specialist or whatever they are.. but she told me to wait ...
hows that .. she goes make sure the diorreah cleans up and your well again and see wether the current inflamation settles..
then i should go and get one done .. she said there is no point going while you could be "irritrating" the infection with your protocol and the current infection ...
i was suprised and happy about that.
still not feeling a 100 percent but i am on the rise i think
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jayemcee
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Posted: Thu Mar 26th, 2009 07:43 |
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| There's a reply in my thread Barney. Have checked out all the provided links too. Thanks and have printed out for future ref. Jan
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matthew.gatenby
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Posted: Thu Mar 26th, 2009 22:39 |
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3 rd day of the diarreah still sick , low fever .. back feeling ordinary ..
i hope this clears ups soon
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Sallie Q
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Posted: Fri Mar 27th, 2009 03:26 |
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 we too hope it's clearing up by now
had some pretty intense bathroom activities myself at one stage but only lasted an hour or two,
good to know your closer doctor is openminded (and thoughtful) 
hang in there
Sallie
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matthew.gatenby
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Posted: Fri Mar 27th, 2009 03:31 |
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sallie ,
thankyou for your kind words.
its very much appreciated ..
i am still no great .. but i am operating ..
i am running a fever and my wbc was a little high .. so it is a sign of infection
good news is if my wbc is high it means my body is fighting it i just need to hydrate and have some patience..
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Barney
Moderator
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Posted: Fri Mar 27th, 2009 13:34 |
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Hey Matthew,
Here is a GET BETTER msg for you.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
____________________
Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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matthew.gatenby
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Posted: Sun Mar 29th, 2009 23:36 |
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hey all i am back.. well not totally but i am feeling what the call health once again ..
got through the "did you get the number plate of the truck that just hit me"
all my tests have returned nothing of the bad bugs ... so that is good .. until i go and see gi ..
my fever has subsided.
i will always wonder what this was the flu. my immune system kicking in .. i dont know..
but it was not fun...
i have always has ibs kind of symptoms but nothing to bad .. if this was my body killing that off .. hallelujah! a i will be able to tell over the coming weeks wether or not it was ..
in this period . i managed to do something . be it crazy or not but i tried the daily doses of antibiotics .. this time it really helped .
it is possible that my illness was bacterial that i picked up and this assisted in cleaning it up.. as i seemed to feel better after taking the small dose daily..
i have seen a lot of people say the most fun is at 50 min ... so goodbye 50 min
as of today i am now on 75mg mino ... yeah baby ... yum yum yum.
as apart from the flu/virus on the last dose of antibiotics there was no herx .. only a small reminant of pas 50mino herx 's
so it was time to go up...
missed a few doses of benicar/olmetec here and there over the time form being ill
as i was sleeping in excess .. seem to have that back on track now.
today i have an earache .. not tinnitus .. which was common but and earache ..
this is new ... i have not had earache for a long time .. always seemed to produce excessive wax - tinnitus but earache .. ear ache .. this stuff is strange seriously ..
if my herx for today is earache .. i am laughing , my butt off ..
actually after the week i had , i better not do that!
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