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matthew.gatenby
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Posted: Tue Mar 17th, 2009 09:34 |
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Bob, that link was good...
i get the same idea from it as you ... watever kind of works for you is appropriate..
as long as you herx to some extent..
i am a bit like you bob , i take the antibiotic late at night then the next day .. nothing (or very little) usually wake up with the flu that seems to go away in a hour .. whatever ...
then the next day i have all my fun and its ready for another dose..
however today i am not getting a lot thats why i was considering ramping i will keep an eye on it for another 2 days then make my decision.
until i know my vitd has dropped further i a little apprehensive ...
my herx lately
mornings flu like symptoms
and i get abdomen right side strange anomolies throught the day .. this one i will be glad to see go .
afternoon lung sensation , its kinda like asthma kind of not
small amount of benicar ..
since starting .. cloudiness gone
numbness .. or not to the same degree few and far between
shakiness of hands comes and goes
i find my herx starts if i am running late on the benicar ..
my dosing schedule is not every 6 hrs its kind or a bit more like
when i wake .. 5-6 hrs after then again 5-6hrs after then before i go to bed..
i dont want to interrupt my sleep for a tablet .. i am thinking this is ok i am getting the 4 in per day and i areasonably regular times each day ..
i been doing really good lately full of beans ..
personality good
feels like my hormones are back .. not as emotional feeling all zen actually
i have a list of all my symptoms tat before mp i was taking to the doctor i will have to post them ..
i feel really good about the lung herx .. i guess that is one place i personally want to see some results so feeling some "action" take place there is encouraging its what i want ..
i guess i am a bit funny i am scared its not working more than i am worried about the "discomfort" from bad reactions ...
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matthew.gatenby
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Posted: Tue Mar 17th, 2009 23:02 |
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I have the flu 
i thought it was just herx but it started late yesterday and seems to have decided to stay. benicar nothing.
it has been going around alot at the moment and i have been trying to avoid those with it .. why dont they just stay home sheesh.
coughing , wheezing , sputum, asthma kind of thing.
i know this sounds strange but through out all the smptoms i have had being ill..
i cannot remember th last time i had the flu.
i am a bit scared i am goingto get pnumonia .. but i have checked my temp and bp and ll seems fine..
i read the information on what to do if i get the flu.
it does not have many tips.. but then i guess it is the flu there isnt really much you can do for it.
if anyone has some suggestions would be nice ..
and if somone can tell me when it is worth getting to the doctors ..
i took the day off to keep warm , get some rest ..
is their any cold medicatio i can take these daysi wont touch any drugs without asking in here ..
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Barney
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Posted: Tue Mar 17th, 2009 23:27 |
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Sounds like the 'thing' that went around the US this winter.
I spent a lot of time in bed and so that I could sleep, I took dayquil and nitequil. I don't know if I should have done that but it seemed to work okay with MP meds.
Also, drink plenty of fluids.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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matthew.gatenby
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Posted: Wed Mar 18th, 2009 00:22 |
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thanks barney...
your always about and giving advice ...
i think i might hang around home for a while keep warm and go out later and get some flu medicine ...
thanks for following up with jamie .. in the other post ...
i really think she needs to goand see a doctor about that test turning positive though
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matthew.gatenby
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Posted: Wed Mar 18th, 2009 07:13 |
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been asleep all day , woke up sweating , coughed upa fair bit of pleghm mostly clear a little yellow
(arent you all glad i share this stuff with you )
seating like crazy .. temp was low than high.. i keep noticing low tempretures any thoughts on this ?
and have we noticed how doctors never seem to take your temptreture anymore.
generally i feel great .. not .. wow i didnt miss the flu .. and then i remebered the last time i got the flu .. it was 2 mabye 3 yrs ago that i got the flu shot, and i got tremendously ill for 2 weeks and then a month after had all sorts of sick , just very lethargic and fell over twice .. wasjust unwell.. i even promised myself back then never to get the flu shot ever again.
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matthew.gatenby
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Posted: Wed Mar 18th, 2009 23:42 |
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mp meds :
benicar 40mg every 4hrs
50mg mino q48hrs
non mp meds :
* i have taken none until i get some verification , i checked the contravened medicines and couldnt find them listed .. not being in good mind .. can somone assist verify
i have not checked the drug digest yet but i will try to tonight before i take them.
ventolin - when needed
cold and flu tablets
cough syrup expectorant
ventolin
salbutamol
nasal spray
oxymetazoline hydrochloride
i prefer my plain saline spray
cold and flu table
phenylepherine hydrochloride
codine phosphate - cold and flu tablets
chlorphniamine malte
cough syrup
guiphenesin
phenelephrine hcl
benzoate
sorbitol
symptoms :
(currently have the flu)
currently coughing up a little phlem in mornings of to doctors todays
will ask how long i should have flu lung symptoms before they are investigsated further .. i.e sputum test , chest xray.
however i do feel better today , not great but better.
really want to get rid of the flu.
asking for the following blood tests so i can have them taken in a week or so by the time i get ready for the phase 2.
herx : none .. a bit of a dead shoulder one i used to have a bit of a problem with.
got my 50mg mino today .. mabye with the joy of the flu i just dont notice it from feeling so bad.
so i might my lift to 75mg today , ill take advantage of generally feeling crap anyhow.
Last edited on Wed Mar 18th, 2009 23:58 by matthew.gatenby
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Aunt Diana
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Posted: Thu Mar 19th, 2009 04:24 |
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Matthew,
How are you so sure that your flu is not a herx?
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matthew.gatenby
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Posted: Thu Mar 19th, 2009 04:32 |
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well it assume it isnt due to it has been 2 days .. constant ..
and other people in my office have it also..
so i can only put it down to the flu ..
id love it if it was herx .. id be mashing those bugs in massive numbers
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matthew.gatenby
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Posted: Thu Mar 19th, 2009 07:59 |
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ok with the flu ..
i was wondering if i was more succeptal to pnumonia .. i kind of saw no reason why..
hey by standard medical definition i just have some non cesceating granulomas , that are just there to make xrays look cool, and go away in 2 years ...
sowith my standard paranoia and ability to google till my fingers get rsi i found the following its a old article
but for those who dont want to read it i will cut to the conclusion :
"CONCLUSION: Opportunistic infectious complications are rare in patients with sarcoidosis. Opportunistic infections mainly occur in patients receiving corticosteroids"
now this kind of thing just gets my goat , what they will give you standardly for treatment actually puts you to a risk .. of a fairly hefty killer.
who listens to the french...
it just make me think if that is true , it makes me think of bernie mac .. i read a lot about his death was a big fan ... and they say sarcoid did not kill him and hey i am not going to argue about that .. but he was on steroids ... its written all over the place, and mabye i am just adding 2 + 2 together..
make up your own mind
and god bless bernie mac ..
http://www.ncbi.nlm.nih.gov/pubmed/15767952?dopt=Abstract
[Opportunistic infections and sarcoidosis]
[Article in French]
Girard N, Cottin V, Hot A, Etienne-Mastroianni B, Chidiac C, Cordier JF.
Service de Pneumologie-Centre des Maladies Orphelines Pulmonaires, Hôpital Louis Pradel, Lyon, France.
INTRODUCTION: In spite of CD4+ T-lymphocytopenia and corticosteroids-induced immune suppression, the risk of opportunistic infection is not usually considered to be increased in sarcoidosis. METHODS: We describe 5 cases of opportunistic infection in patients with sarcoidosis and CD4+ T- lymphocytopenia. A systematic review of the literature was done. RESULTS: We describe 2 cases of chronic necroziting aspergillosis, one case of Mycobacterium avium complex pneumonia, one case of pneumocystis pneumonia, and one case of cryptoccocal meningitidis in five patients with sarcoidosis. Four patients were receiving corticosteroids at time of diagnosis. Four patients had CD4+ T-lymphocytopenia. In the literature, we documented 65 cases reports of sarcoidosis complicated by opportunistic infection. At the time of infection diagnosis, 36 patients were receiving corticosteroids. CD4+ T-lymphocytopenia was present in 5 of 11 reported cases. Cryptococcosis was the most common reported infection. CONCLUSION: Opportunistic infectious complications are rare in patients with sarcoidosis. Opportunistic infections mainly occur in patients receiving corticosteroids, and with CD4+ T-lymphocytopenia. Except for cryptococcosis, sarcoidosis by itself does not appear to be a risk factor of opportunistic infection.
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JoshR
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Posted: Thu Mar 19th, 2009 17:40 |
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| Matt, Paracetamol and Codeine are usually fine, see Pain medications. Use the search box to look for references to the others.
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matthew.gatenby
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Posted: Fri Mar 20th, 2009 03:45 |
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is nicotine gum allowed , i was a smoker was quitting due to breathing probs before being diagnosed with sarc .. and i bought a pack of nicotine gum and chewed it today .. one of those days..
its been a long time.
i am wondering any points of view.
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matthew.gatenby
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Posted: Sat Mar 21st, 2009 07:08 |
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still got the flu
ok sugar, if i take it will it hamper my progress .. i read the articles i kind of get a yes and no from it ..
and then sucrose this is ok ?
and is this meant to be avoid all sugar .. or just dont add it to anything or drink anything that has been sweetend..
i drink my tea , without .. and now my coffee with 1 teaspoon raw sugar 2 cups a day
how much will this hamper my effort.. i really want to be effective ..
i have just been quitting so many things lately, smokes , vit d foods , sunlight,
trying to avoid folate .. it just seems to get more difficult
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Aunt Diana
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Posted: Sat Mar 21st, 2009 22:03 |
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| It's true...there's a lot to avoid. Have you tried Splenda? I don't know if they have it in Australia but it's a new substitute for sugar that works quite well. I bake with it and cannot tell a difference. Nice thing about is that it measures exactly like sugar (Ie. 1tsp splenda+1tsp sugar)
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matthew.gatenby
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Posted: Sun Mar 22nd, 2009 04:32 |
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| thanks aunt , we do have splenda i will give it a try
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matthew.gatenby
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Posted: Sun Mar 22nd, 2009 10:28 |
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mp meds :
benicar 40mg every 6hrs
50mg mino q48hrs
non mp meds :
cold and flu tablets .. last day as i am pretty much over the flu
had to use a steroid inhaler 2x over the weekend my breathing got that bad ..
but its back in the cubboard and unless a bad bout of the flu comes along again.. its staying there.
it was a not breath or use inhaler scenario.
Herx
I am sweating a lot and getting a lot of itching in my liver region (yah i really want this .. with my liver tests being abnormal if this is taking care of them bring it on)
i am piggy backing some invisible around with me currently lots of shoulder , umm just pain i guess hard to describe its like my back shoulder muscles are really tired.
i am also getting sinus pain .. this is not flu pain i am sure its like there is one point in my forehead it is focusing on.. since this today can breath trough my nose perfectly.(pre mp i learnt to breath through my mouth.. the sinus improvements are making me a happy larry)
Personal
I am going to the sydney meeting on saturday 28th March at the wholistic medical centre , any sydney people id really like to meet you.
i will bring smoked salmon, avacado and mushroom canape's covered in cod liver oil...
finally got out of the house after 2 days solid inside at home with flu, went and visited my family . took their dogs for a walk at dusk . and hung up a coat rack and 3 paintings in a dagonal fashion.. may not seem like a lot but my brain is clear and functioning , to use the ruler , find the beams , triangulate so they were all in a diagnal pattern and to do it all and turn out perfect felt really good .. it was little effort , bit of muscle symptoms because of this piggy backer i am carrying around .. but it shows such a change in my mental state , no frustration , no mistakes ... was really good. no alcohol since getting the flu going to stay this way i think.
Note : my posts do not require reply but your always welcome
Last edited on Sun Mar 22nd, 2009 10:29 by matthew.gatenby
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Barney
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Posted: Sun Mar 22nd, 2009 12:49 |
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Matthew,
Is this meeting a wholistic meeting, or a meeting of MPers.
I hope you are not planning on eating what you are taking to this meeting and if it is an MP meeting, please leave that food in the garbage disposal cause they are full of Vit D.
Bet you thought I wouldn't catch that sentence!!! lol
Glad you are getting over that nasty flu.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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JoshR
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Posted: Sun Mar 22nd, 2009 22:22 |
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Barney wrote:
Matthew,
Is this meeting a wholistic meeting, or a meeting of MPers.
It's the meeting that is mentioned in the Australian Members thread.
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5/6 CFS criteria, 125D36 Ph1Jul08 Ph2Sep08 Ph3Feb09 25D8(Sep08) NoIRs covered up (except hands) low lux home minimal light exp r/t work
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Barney
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Posted: Sun Mar 22nd, 2009 23:32 |
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That is cool JoshR. I am the only MPer within 200 miles, but I sure would enjoy having an MP Support Group meeting to go to.
Barney
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matthew.gatenby
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Posted: Mon Mar 23rd, 2009 02:45 |
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| josh , it sure is ..
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matthew.gatenby
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Posted: Mon Mar 23rd, 2009 02:46 |
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| its meeting of mpers , and the food was a joke , couldnt put anything past you barney
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