MP and Th1 Discussion, Advocate Moderated Home
   
Members

Calendar

Help

Home
   Not logged in - Login | Register 


Warrior's progress
 Moderated by: Admin  

New Topic

Reply

Print
AuthorPost
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Sat Jan 24th, 2009 06:41

Quote

Reply
I have been taking Benicar since December 15th and off the prednisone completely from -1-5-09 and I could not start Minocycline as I was away from home, out side the country. Currently I am taking Bencar 40mg twice a day other wise I cannot work if I increase to every 8 hours and I feel dizzy and light headed. I have been taking Ciprofloxacin due to cold and URL since Monday 1-21-09, how soon can I start to take Minocycline and is there any drug interaction with Cipro. ? should I start while I am on Cipro or wait until the 7 day course is completed ?.

My eczema on the legs has flared up ever since started the MP and lot of eatching, is there any medicine to take ?.

Thanks a lot.

Warror.



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Dr Trevor Marshall
Foundation Staff


Joined: Fri Oct 12th, 2007
Location: Thousand Oaks, California USA
Posts: 1134
Status:  Offline
 Posted: Sat Jan 24th, 2009 10:53

Quote

Reply
Warrior,
It really sounds as though you are doing way too much at once. These questions come to my mind:
1. How long did you take to wean Prednisone? We have a guide to this linked from the ABC of MP

2. Have you read the Phase 1 instructions carefully at http://AutoimmunityResearch.org/phase1.pdf

The guide points out that once the benicar has activated your immune system, your body will become especially sensitive to antibiotics. Did Doc take that into account when he prescribed the Cipro?

Info about skin eruptions is covered under 'skin' in the ABC of MP
 

warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Sun Feb 1st, 2009 04:39

Quote

Reply
Dr. Trevor Marshall,

 

It is a privilege to hear from you, my sincere to you for the wonderful gift of MP treatment that you and your team of moderators offering to the many help less patient like us and I am grateful to you and salute to you for your dedication and research.

I was memeber of the MP.com , my test results and signature lines are posted there. I spoke to you an year ago, started wearing no IR sunglass and avoiding vitamin –D altogether that gave me big symptomatic relief but did not have the courage to take Benicar the first time since I could not tolerate the dizziness/side effects and low BP but I am desperate and tried from last December. I have started taking Benicar in small doses to get used to it. Prior to December 2008, I was on 1 mg prednisone for a month and tapered it off over 3 weeks while I was taking benicar but I was afraid of taking 40 mg over 8 hours.  I have been taking 40 mg twice a day but I have been convinced that the 3rd dose in the night makes a big difference in controlling my sinus inflammation.  Through out my 3+ years of sarcoidosis I used to spit mucous (from sinuses) whenever I come down on Prednisone/ exposed to cold air/ cold water, which gives me secondary infection, and fever and I have to increase my prednisone as well as use antibiotics.

 

I am feeling much better now, after increasing the Benicar to 40mg every 8 hour.  FYI, I developed URI during the transit in plane, I should have increased the Benicar to higher dose in the plane, since it is first time, I was not aware of it. Having had fever and secondary infection, I had to take antibiotic other wise I could not get back to work.

 

 

I have read the phase-1 MP guide lines, after completing the 7 day course of Cypro on Tuesday (cleared infection) I took my 1st dose of Mino on Wednesday /40mg x 2 Benicar, by evening got body aches and increased spitting. On Thursday I was sick with body aches/feverish and infection came back spitting yellow sputum and I had to back to work and I had to continue to take Cypro to over come infection and I am still taking till today.

 

I am planning to continue taking 40mg Benicar 3 times, (Correct MP dose} stop Cypro today and take Mino once you tell me OK.  I read in MP link that Mino can be taken safely while I am on Cypro if needed. To your above point that “body is sensitive to Antibiotics while I am taking Benicar” – could you pls explain, 1) if you meant , to a certain type of Antibiotic or all types? 2) if I get in to same condition again then what should I do differently?. I will increase Benicar to once every 6 hours as I am convinced Benicar is the answer.  Sorry for a long reply and next time I will be short.

 

 

Thank you.

Warrior


MY test results, in case you have not seen on the MP forum.

Diagnosis: Diagnosed with Sarcoidosis, infiltrated upper lobes.
Liver biopsy: Multiple non nectrotizing epithelioid granulomas.No micro organisms identified on special stains. Associated acute and chronic lobular Hepatitis with micro granulomas.No Cholestatis, portal inflammation or peacemeal Necrosis identified.
Syptoms:No energy,fatigue,leg cramps,spit mucous/ congested sinusses on lower doses of prednisone/exposure to cold air/cold water.
 
-The date the blood was drawn  >>12/15/07
-Which lab did the tests>> Quest labs- Pleasantville, NY
-Was the 1,25-D sample was frozen for shipment?>> yes
Results:
       D 1,25 Dihydroxy= 79 pg/ml        
       D, 25 OH total = 19 ng/ml     

       -Angiotensin Conv. Enzyme: 49          (Range: 9-67  U/L) 

-How long have you been avoiding foods with vitamin D in them? 
      >> A week before the blood test. Vitamin-D fortified milk & multi vitamins

-How long have you been avoiding sun/lights?
       >> Not aware until I heard from MP web site.

-List all meds, supplements (both prescription and OTC) you have been taking and why. >>Prednisone 15 mg ( currently at 7.5 mg, trying to wean), Actonol 35mg /week ( To prevent osteoporosis due to steroids), Nexium for acid reflex –30mg twice a day.

Vitamin-C (Ester-C). Zyrtic-D once  a day as needed to control spitting ( On exposure to cold air and sinus ).

-When and for how long have you taken prednisone or any other immunosuppressant in any form?

>> I started at 40mg on 1/25/04 and currently at 7.5mg per day.  I came down to zero after using for one year and the symptoms came back . Every time my condition flares up, I have to go up on my prednisone. Recently I came down to 3 mg in August. But after having been exposed to sun light during my last trip to Asia, in Aug-September, my condition flared up in Novemeber followed  by exposure to cold weather suffered from Bronchitis /UR/Sinusitis.

-When and for how long did you take Vitamin D supplements (including any vitamin-mineral supplements), omega-3 supplements and/or any kind of fish oil?    

>> Vitamin-D from Milk & Soy milk up until 1 week before prior to getting the Vitamin- D blood tests I was taking Multi vitamins and calcium.

-15days use of Flaxeed oils-, 4 months prior to blood teats.

-Took fish oil for two days , one month prior to blood test. Which triggered a flare up symptoms.  ( I am allergic to sea food & egg plant)

-Were you taking Benicar when the sample was drawn?
           No

-Were you taking ace inhibitors  when the sample was drawn?
               No







 

Last edited on Sun Feb 1st, 2009 04:52 by warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Fri Feb 20th, 2009 02:40

Quote

Reply
Dear Dr.Marshall,

 

I have been taking 40 mg Mino for every8 hours from 1-30-09 . prior to that I was taking 20 mg for every 8 hours . Once I met the full dose , I felt much betetr. Stated on Mino from 2-1-09 and I feel much better after starting mino for every 48 hours.

 

I am taking 50mg Mino from 2-15, the day after I take it I feel better and how long I have to continue 50mg. My intestines make noise often. I am able to manage with Low B.P symptoms so far.

 

My blood test results 2/18 are posted below, pls note the following items came out of range and what should I do ? my Internist says to cut back on Benicar which is the reason for the test results. ACE test-high/Creatinine-high/hemoglobin -highand my 1.25 hydroxy is lowered to 26.

 

My blood test results are as below and pls give me your feed back.

 

-The date the blood was drawn  >>2/16/09
-Which lab did the tests>> Quest labs- Pleasantville, NY
-Was the 1,25-D sample was frozen for shipment?>> yes
Results:
       D 1,25 Dihydroxy= 26 pg/ml         (Range: 19-67  PG/ML) 
      

       -Angiotensin Conv. Enzyme: 126          (Range: 9-67  U/L) 

 

 Hemoglobin AIC                    - 6.4        Range <6.0%

Alkaline  phosphatase           -129   H  Range  40-115 u/l
 

          AST                                -36-      Range 10-35  

           ALT                                 -68      Range 90-60 u/l

 

Hemoglobin                            -13.1  Range 13.2-17 g/dl

Hematocrit                               -37.5  range 38.5-50%

 

MPV                                             - 7.4  Range 7.5-11.5 fl

 

Kidney function:

Creatinine                                 1.39      H   0.5-1.30 mg/dl

Bun/Creatinine ratio                    17  ok   range 6-22

 

EGFR NON AFR AMERICAN     54 L   RANGE  >= 60ML/MIN/1.73 M2

-How long have you been avoiding foods with vitamin D in them? 
      >> 1 year

-How long have you been avoiding sun/lights?
       >>1 year.

-List all meds, supplements (both prescription and OTC) you have been taking and why. >>

Vitamin-C (Ester-C). Zyrtic-Dx ¼ tablet once  a day as needed to control spitting ( On exposure to cold air and sinus ).

-When and for how long have you taken prednisone or any other immunosuppressant in any form?

>> I started at 40mg on 1/25/04.  I came down to zero after using for one year and the symptoms came back . Every time my condition flares up, I have to go up on my prednisone. From December – 15th stopped completely.    

>>
-Were you taking Benicar when the sample was drawn?
           Yes

-Were you taking ace inhibitors  when the sample was drawn?
               NoThanksWarrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Wed Feb 25th, 2009 04:14

Quote

Reply
Hello moderators,

 I have posted questions twice but I have not heard a reply from you and I need your advise with regards to my blood tests results in particular with creatinine increase due to Benicar medication.Shal i lower Benicar dosing to two times 40 mg or continue 3 times 40 mg.

 

Thanks

Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Dr Trevor Marshall
Foundation Staff


Joined: Fri Oct 12th, 2007
Location: Thousand Oaks, California USA
Posts: 1134
Status:  Offline
 Posted: Wed Feb 25th, 2009 04:27

Quote

Reply
Warrior,
It is your physician who by law must interpret your bloodwork data for you. What we can share is up-to-date science, and those things which fall within our personal expertise (eg Vit D levels).

Your responsibility is to diligently search for the info you need. For example, you will find info about elevated creatinine both in my presentation at West China Hospital, and our Knowledge-base pages on that topic:

http://mpkb.org/doku.php/home:publications:marshall_westchina_2008

http://mpkb.org/doku.php/home:protocol:olmesartan:kidney_disease

http://mpkb.org/doku.php/home:diseases:kidney_disease
 
 

Last edited on Sun Oct 25th, 2009 19:48 by

warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Fri Feb 27th, 2009 03:15

Quote

Reply
Dear Dr. Marshall,

Thank you very for the directions and providing the links to the information and I was worried when my physician asked me to cut down on the benicar dosage and I shall follow-up with my physician.:D

Best regards

Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Thu Apr 9th, 2009 02:11

Quote

Reply

I have increased Mini dosage to 100mg on March 28th. The IMP has been tolerable how ever on 4-4-09, I had to stay awake and drive until 3 Am as a result I was very tired the next day and onwards though I slept a lot, I am experiencing fatigue and sinus inflamation (constant post nasal drip.) I have to keep spitting if I drink water and during night time. I have read somewhere that some people develop sinus allergy for Doxycycline usage, is it true and if so what to do. I am taking 40mg Benicar at 8-hour intervals. Should I take for every 6 hours?

Can I take Zartac-D for sinus secretions?

Thanks
Warrior
Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Deedee
Member
 

Joined: Tue Jul 29th, 2008
Location: Asheville, North Carolina USA
Posts: 435
Status:  Offline
 Posted: Thu Apr 9th, 2009 04:07

Quote

Reply
For the first 5 months I had a productive cough and lots of sinus drainage.  That has resolved now.  I did not have yellow or green drainage and I did not have a fever, which may have indicated an infection.  I considered it IP and it was.  I have now realized amazing improvements in my lungs and sinuses.


Best to you, Deedee

Last edited on Thu Apr 9th, 2009 04:09 by Deedee



____________________
Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec09 | 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Fri Aug 21st, 2009 03:10

Quote

Reply

Dear Dr.Marshall.

I have been on MP since January 2009, and I am currently on phase -2 from July,1st but I cannot find a place to post my progress over your web site (neither at Curemyth1 or Marshall’s protocol web sites) and recently my earlier postings from February/March/April have been deleted. What should I do? I am really worried, is there any way I can start to post my recovery over your web site with the past test results as well as current below test results from 7/31/09. 

1.25 Hydroxy  vitamin -D = 21 pg/ml

Vitamin- D 25 Hydroxy total = 8 ng/ml

Vitamin-D 25 Hydroxy D3 = 8

Vitamin-D 25 Hydroxy D2 = 4

Ace level= 144 u/l (high)

Himoglobin /himoto crit = 12/35.4 (Low)

Sodium = 129 mmmol (Low)

Alkaline Phosphates = 147 high u/l

Under phase -2 from July 1st, started with 33mg of Zithro and 25Mg of Mino.

Benicar 40mg every 4-6 hours a day.

I feel mentally and physically energetic and quick/feel good over the first 3 days of cycle but as I go in to 7-8-9-10 the day I feel fatigued and feverish due to MP

Currently, I am taking Mino = 50Mg and Zithro = 33mg. I have developed photosensitivity for sunlight and bright light over the past 1 week and it is making me sick, sneezing and my sinuses drain a lot (post nasal drip) some time I have to keep spitting the sinus secretions over the night.

Pls advise how to be reinstated and I will post regularly with out fail and also how to cope with the Sun light, I remember your saying that no one can get better with out protecting from Sun. I do drive 1 hour to work and 1-hour back to home, I am wearing 2% MP recommended sunglasses out side.

 

Thank you for your help.

Warrior

Your posts from MP site are here <<click
Your posts from curemy site are here. scroll up.
Do let us know if you have posted under any other ID Username apart from warrior.
You may continue to post your progress here.
and also see What do I do about Phases 2 and 3?
Signature line to fill.
Thank you, Admin.



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Wed Aug 26th, 2009 02:42

Quote

Reply


Thank you for providing the related MP link, which is helpful, I have been experiencing photosensitivity in the form of running nose and sneezing, feverish and fatigue. 

From today afternoon, I developed cough during my drive back from work (One hour) and I chewed one 20mg Benicar pill to counter the IP, which helped a bit. Is it fair to assume that what I am experiencing is real IP (but not merely photo sensitivity) due to my Immune system started to work and the symptoms are similar to how I felt when I first got the decease. This is the first time I am feeling the real sickness since started MP, Is this what the IP is or I am not able to counter the inflammation due to Sun expose by increased 1.25D ?

FYI, last Saturday, when my symptoms flared up I have stayed indoors and had taken an additional dose of Mino, (50mg) with in 24 hours which has in fact increased my sinus discharge and inflammation and I am tending to belive, not to increase the Mino to counter the IP.  Medications to counter the IP- used Allegra-D, is it OK to use?

Currently, I am on Phase -2 (Mino-50mg alternate days & Zith -33mg every 10 days, Benicar 40Mg,every 4 hours, 4 times a day

1) Am I doing right ?

2) Any medication changes you suggest ?

Thanks.

Warrior

Last edited on Wed Aug 26th, 2009 03:02 by warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Sun Sep 20th, 2009 03:00

Quote

Reply

Thank you administrator.

 I have my signature line filled in the MP site but not at the Cure my TH1 site and I am posting my progress lines in the Curemyth1 site but I am not getting replies regularly, is it because of lack of my sig.line, I can add quickly.  I am really having tough time coping with the photosensitivity & IP, 2 months in to my PH2 and I am really worried. My breathing test results have come down from 67% to 58% when tested last week. I really need your help in getting me back on track. Pls guide me the right way, what am I doing wrong ?, with out your replies, it is very scary to go through the protocol. Shall I post in the MP site or Curemyth1 w/sig.line added?

FYI, I really believe and seriously following the MP guidelines and I will start posting regularly once you let me know but I need your moderator support.

Thank you.

Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Chris
Moderator
 

Joined: Wed Oct 24th, 2007
Location: New Jersey USA
Posts: 508
Status:  Offline
 Posted: Tue Sep 22nd, 2009 21:24

Quote

Reply
On this one hour drive, are you driving east in the morning and west in the evening?  If true, you'd have the sun in your face each way.  That can be way too much sun for some (like me).  You might try a hat like this one: http://www.sunprecautions.com/product.asp?itemno=4810K09+REG+IND&CAT=&SUBCAT=  or use a scarf for equivalent coverage. 

Do the symptoms moderate a lot on the weekend?  That's another indication that you are getting too much light at work.  It might help if you described your work conditions.  Is it brightly lit with fluorescents? Are there lots of windows?  Are you using a zinc-oxide sun block?

Pick one of the sites for posting, as it's confusing for the moderators to have to try and read both sites to figure out the history.



____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
Sallie Q
Member


Joined: Sat Aug 9th, 2008
Location: Hope, Australia
Posts: 267
Status:  Offline
 Posted: Thu Sep 24th, 2009 03:33

Quote

Reply
Chris has a good point,
and somewhere I have seen is possible to fit extra protection inside your car window to cut down on light and glare. (sorry, not sure where)
I actually picked up something in a "$2 shop" which claims to do just that, but have not tried it out as forget where I stored it when I got it :X ADD strikes again ;)



____________________
b.cancer1990 SjogrensCFS 60%dysreg.vD 25D13.2ng/mL Sep08ph1 Jan09modPh2 25D~19 May09ph3 NoIR lowLuxEtc 25D 5 ng/mL Jan2010
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Sun Sep 27th, 2009 06:11

Quote

Reply

Thank you Chris.

  You are the first to reply me with asking questions, which gives me confidence and relief for all these days I am worried of not enough support from the MP sight except for referring me to different links. I drive from North to South in the morning and S/N in the evenings, Sun falls on the right side going and on left side coming home. Using foldable wind shield screens on either side of the front windows to block the sun which makes it difficult to drive, if I take my 2% IRs to dial a phone number immediately, in couple of seconds, I sneeze & sinus drip /running nose and if I don’t wear glasses for longer time, my mucous color changes in color to green lumps? I cannot understand how the mucus color change takes place so quickly duplicating secretions from an infection condition.? Lately, I am using a wrap around cap that goes around my cheeks & ears. Biggest challenge is the Sunlight from the living room sky lights (need to cover it fully). For the past my cough increased due to longer Sun exposer. Benicar 40mg every 4 hours

Yes my room is bright with fluorescent lighting, windows fully closed, I will remove couple of Flor.l bulbs from my room The symptoms are not high during the weekends as I rest but they got worse over the two days, driving guest around. My sinus discharge and inflammation is unbearable, after taking Mino-.25MG, stopped Zythro for the past 3 weeks due to unbearable sinus discharge. Shall try Zythro again or wait? No Zinc in the sunscreen. Started to use K2 cream on face & hands. Taking sinus Tylenol 1 tablet on days too much running nose. Productive cough, sore throat like symptoms.  I am trying 0.25mg every 12 hours/6 hours.

Thanks again.

Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Chris
Moderator
 

Joined: Wed Oct 24th, 2007
Location: New Jersey USA
Posts: 508
Status:  Offline
 Posted: Mon Sep 28th, 2009 19:07

Quote

Reply
Order a bunch of suncream.  There's lots to choose from, Kabana or Blue Lizard or make your own.   See the current suggestions.

Don't go without it.  The K-cream works, but the zinc-oxide uses a different pathway to help and you sound sun-sensitive enough to want to try to do both.

Bright sun would, at various times, either induce an immediate migraine, or an immediate (but brief) sneezing fit for me.  What light does through the eyes does seem to be much faster than other pathways for generating trouble, at least for me and apparently for you.

Flourescents at work and skylights at home?  You've got a bit of work to do.  Can you get by wearing a broad-brim hat at work?   Or even just a ball cap to shade your eyes?  I used glacier glasses with custom lenses as even the light from around the edges of the NOIRs was too much.   Some of the current NOIR styles are much better about that.

I never liked the window shade idea.  Summer was the wrap-around hat/mask, winter was a cap with ear-flaps and a winter mask.   This way, nothing gets in the way of driving.  It can be stuffy & uncomfortable, but it's better than the effect of the light.

By the way, yesterday the wife & I & kids and grandkids spent several hours out and about in the NJ countryside (Hacklebarney State Park) with no ill effect.  I did double up on the Benicar but the only problem was being a well-deserved tired at the end of the day.  It helped that it was a rainy day, but even so it's been a long time since I've been able to be out so much.   At your stage of the game, that would cost me at least a day in bed, a year later into the MP and it would have been impossible.  Take the light problem seriously now, it will make things go a lot smoother.




____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Thu Oct 15th, 2009 04:14

Quote

Reply
Hi Chris,

 

I am sorry for not able to reply sooner as I replied to you two weeks ago, I lost connection and the typed email was lost too. The past two weeks have been very tiring and crushing experience. On 10–26, after I took my Mino-50mg dose (lternate day), my sinuses got over inflamed and started to sneeze and discharge excess mucus and had a breathing difficulty through nose, after reading  the MP found out that if IP is not controlled by Benicar and Mino, we need to use the 2nd ABX in their respective protocol and I tried Azithro and other Homeopathy medication to bring the immune reaction under control and it did help otherwise it was like past prednisone days experience But by Sunday morning it was controlled to my great relief. It is becoming a problem with my sinuses after taking the Mino, they are discharging a lot and making me sick.Incidentally the skin eczema flared up on the leg. 

 

 Last Saturday 10-10, also after taking Mino, I played a physical game  I came down with body aches and feverishness , sinus problem and I slept the whole of Sunday and I took Sinus Tylenol & Homeo to overcome sinus congestion. Given the conditions I am taking Benicar 40 mg for every 4 hrs but I want to delay OR hold off on the Mino and Azithro for ca ouple of weeks and resume otherwise I may not be able to continue my daily work.  How safe and what is the effect of ABX over a period of 9 months, does it make the body week and develop resistance to it ?, also what is the relationship between the sinus discharge and ABX . My Sun photosensitivity is slightly better now, what should I do with the eczema, lot of itching on the legs and crawling sensation on the ears.

 

Thank you

Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Chris
Moderator
 

Joined: Wed Oct 24th, 2007
Location: New Jersey USA
Posts: 508
Status:  Offline
 Posted: Fri Oct 16th, 2009 02:23

Quote

Reply
1.  Physical exercise at this stage can greatly increase herx, as can a hot shower, or anything that helps the antibiotics perfuse into more of your body.

2. No, the body doesn't become weak and reliant on the antibiotics.  That's due to several factors:
  a. use of bacteriostatic abx - they don't kill the bug, but help your immune system to identify & kill the bug
  b. use of pulsed low doses, at a sub-inhibitory level.   Higher, continual doses do inhibit the immune system.

http://mpkb.org/doku.php/home:mp:allergies
http://mpkb.org/doku.php/home:protocol:mp_antibiotics:dosing
http://mpkb.org/doku.php/home:mp:mpmeds:antibiotic_dosing

Sinus discharge is likely a herx.  http://mpkb.org/doku.php/home:symptoms:respiratory:respiratory_immunopathology

Eczema - just another herx showing a problem that was previous sub-clinical.  This page http://mpkb.org/doku.php/home:symptoms:skin has a few suggestions.

--Chris

Last edited on Sun Oct 25th, 2009 19:54 by



____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
warrior
Member
 

Joined: Fri Dec 19th, 2008
Location: Irvington, New York USA
Posts: 33
Status:  Offline
 Posted: Sat Oct 24th, 2009 03:32

Quote

Reply

Hi Chris,

Thank you very much for your clarification and direction and it is re-assuring and helpful to know the facts with ABX and allergies resulting from abx. Since I have been having hard time with my bad immune response, having suffered for a month, I had taken a break from ABX by stooping Mino since last week and Azithro, scheduled dose on 10-17-09 as I am not able to tolerate alternate day Mino, and as a result I felt much better from sinus inflammation and nasal congestion, the photo sensitivity has come down as well and really felt good until Wednesday. On Wednesday, I had to step out of the house a couple of times in to Sun for few minutes followed by driving out in a car for about 4 hours out of urgency. FYI, I had applied sun screen lotion to face  and hands and covered my face most of the time wit a muffler & wore two Noirs ( 2% + 10%) one over the other shielded the front side dorr glasses with shades. By evening I was very tired and some how my blood pressure came down to 95 / 60 and I was afraid to take my 4thth dose of Benicar before going to bed. The next day was a bad day with thick nasal discharge and fatigue and by the days end developed mental fog. Today morning woke-up at 3:45 AM with congestion, hard to breath, took a sinus Tylenol and went back to sleep at about 5:00 AM. I felt like getting ready and go to work early but tired and slept. Morning when I got up at & , I could not pull myself from the bed very tired. (At 4J0 am I was fine but at 7 AM more tired and it is always like that). Finally woke-up at 8:40 am and drove to work at 9:40 am Today I could not focus on work, keep forgetting people’s names and don’t remember what I did the very few minutes ago. Misreading appointments and felt very frustrated. I am really upset with myself for exposing myself to Sun and paying a price for it. I have resumed my ABX this evening thinking it may help me over come my mental fog. Took Mino – 25 mg started with less and Azithro 1/8th of 250mg. Pls advice, if I did the right by resuming the ABX? . I spoke to my manager. She I supportive but wants to know how they can help me, I asked her to keep my meetings away from sun lit rooms. Could you help me suggest, how to over come the mental fog and making over come making mistakes at work.

Thank you.
Warrior



____________________
Sarc/Pulm,liver,spln,fatige,Meds-Prednisone-4mg, Vit-C,125D79,VIT-D19,Auyur-8-07. Noirs since 02-13-08- Ph1Dec15-08 Ph2July09 Noirs Covered up no low lux home light exp r/t work & 25D8 (Aug09)
Cynthia Schnitz
Member


Joined: Tue Jul 29th, 2008
Location: Arizona USA
Posts: 556
Status:  Offline
 Posted: Sun Oct 25th, 2009 02:37

Quote

Reply
Well, I have been waiting to see if someone else would comment on your post, but I see no one has yet, so I will put my 2 cents in.  Skipping that 4th dose of benicar was probably a big mistake.  A bP of 95/60 is no problem at all, and is my usual reading when I a well rested at home, and would never make me think twice about taking any amount of Benicar.  There are plenty of people here with BPs lower than yours, who take Benicar quite freely.  More people seem to get in trouble not taking enough Benicar than taking too much.  If I ever get more IP that I want, I take more Benicar with out another thought.  Taking extra benicar might even have raised your BP, as I noted one other MPer reported.  You might like to reread the Benicar info on the new knowledge base,
Adjust olmesartan (Benicar) - Taking more frequent or higher doses

Cynthia



____________________
Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory

 Current time is 09:44
Page:    1  2  3  Next Page Last Page  



* We can help you understand chronic disease, but only your physician is licensed to give you medical care *

Powered by WowBB 1.7 - Entire site Copyright © 2004-2010 Autoimmunity Research Foundation, All Rights Reserved
Click here to view our PRIVACY POLICY
Page processed in 1.9268 seconds (88% database + 12% PHP). 18 queries executed.