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Joel Clark
Member
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Posted: Thu Sep 4th, 2008 17:54 |
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I started the Protocoll the middle of 2007. In June, 2007 my 1,25 Dihidroxy level was 41.2; and my 25 Hidroxy was 33.2. My last level for the 25 was 22.9 taken July 7th, 2008.
My Dr. has me getting lab work every 3 months doing the following:
BUN
Creatinine
Vitamin D 25
Is this what you would recommend as well?
Joel Clark
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Joel Clark
Member
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Posted: Thu Sep 4th, 2008 18:10 |
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I've had a long time Vitamin B Complex allergy which gets worse as the time goes on, and I'm hoping the Marshall Protocol will eventually help (I've been on the protocol for about a year). My latest Vitamin B12 level taken on 7-7-08 was 253 which is probably the highest I've had it, but the Drs. still feel it is very low. Do you have any suggestions on how I can bring it up without taking supplements which in the past has caused symptoms such as skin rash, ashma, swelling of the the tongue, etc.
Joel Clark
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Sep 4th, 2008 21:10 |
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Maybe you could explain why your Physician feels a need to try and force your body to accept a level of Vitamin B which it clearly does not assimilate.
Abnormal homeostasis of Vitamin B is not making you ill. Fix the disease which is making you ill and all your metabolites will normalize out to levels which Doc can be proud of...
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Joel Clark
Member
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Posted: Thu Sep 4th, 2008 21:14 |
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natalie17
Member
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Posted: Fri Sep 5th, 2008 04:30 |
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Joel,
Welcome. I have merged your questions together for continuity. Please continue to ask any future questions in here - even if they seem unrelated.
I started the Protocoll the middle of 2007. In June, 2007 my 1,25 Dihidroxy level was 41.2; and my 25 Hidroxy was 33.2. My last level for the 25 was 22.9 taken July 7th, 2008.
My Dr. has me getting lab work every 3 months doing the following:
BUN
Creatinine
Vitamin D 25
Is this what you would recommend as well?
Suggest seeing -
What tests do I need to monitor my progress on the MP?
The Importance of Reducing 25-D
Regards,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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Julia
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Posted: Fri Sep 5th, 2008 09:22 |
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Joel,
In addition to the links Natalie gave you, you could also look at What do my lab tests mean? (halfway down the page for BUN) and My kidney function tests are worse since I started the MP. What should I do?
Julia 
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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Joel Clark
Member
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Posted: Fri Sep 5th, 2008 15:37 |
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Thank you!
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Joel Clark
Member
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Posted: Mon Sep 8th, 2008 13:31 |
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Are Fibromyalgia symptoms (muscle aching, weakness, cramping) considered Herxing?
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Rico
Moderator
| Joined: | Wed Oct 17th, 2007 |
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| Posts: | 318 |
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Posted: Mon Sep 8th, 2008 19:36 |
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They can be...
Immunopathology (Herx)-Basic Information
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MP Knowledge Base; Bacteriality; Success Stories; Dr Marshall's Perspective
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Joel Clark
Member
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Posted: Wed Sep 10th, 2008 03:45 |
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What effect does light in the eyes have on hormones?
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JRFoutin
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 594 |
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Posted: Wed Sep 10th, 2008 03:59 |
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Joel,
Eyes have their own renin-angiotensin system and they have a straight shot back to a lot of very critical brain control centers. You may appreciate reading more:
The Effect of Sunlight/Daylight and Bright Lights on Persons with Th1 Inflammatory Disease
The effect of light on the brain (amygdalla)
Thank you for your good question!--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Joel Clark
Member
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Posted: Sat Sep 20th, 2008 00:52 |
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As sources of "Vit. D" I notice you list both pork lard and bacon. Should I assume that all pork meat is a source of vitamin D?
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Jeannine
Board Staff
| Joined: | Wed Oct 17th, 2007 |
| Location: | USA |
| Posts: | 63 |
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Posted: Sat Sep 20th, 2008 05:29 |
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Pork without much fat is ok. Most bacon and the lard from bacon is what to look out for if you are trying to get your 25D down below 12.
Please read this link Proteins
Take care, Jeannine
Correct Link is now corrected please see.
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CFS FM Lyme Morgellons| pain fatigue depression flulike joint pain| 2/06 1,25D-49 25D-11 9/06 25D-11 2/07 25D-?| prozac20mgqd| MPstart 7/14/06 Beni40Q6 Ph1 8/06| Mod Ph2 5/07| Ph2 date|
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Joel Clark
Member
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Posted: Thu Nov 6th, 2008 19:33 |
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As my vitamin D 25 level approached #20 I began herxing away without taking antibiotics. How do you feel about waiting for my immune system to do it's work before starting up again with the antibiotics?
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Julia
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Posted: Fri Nov 7th, 2008 09:57 |
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Joel,
To answer this one we would need to know a bit more about where you're up to on the MP. Without mentioning the names of phase 2/3 meds, can you fill us in a bit more... approximate dates for phase 1, phase 2 (did you do modified phase 2 first?), are you on to phase 3 yet? What dose of Benicar do you take regularly?
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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Joel Clark
Member
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Posted: Fri Nov 7th, 2008 15:16 |
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I haven't left phase one yet. But I've been at it since August 2007, first just on Benicar, then added Minocycline for 6 months (only a quarter of a capsule). I was getting a strong reaction to that so the Dr. changed me to Demeclocycline (150mg). By that time my "Vit. D" 25 level was getting down far enough where I would take a quarter of a pill and herx for a week. THen I had to do some traveling and I was only taking Benicar. Now my D 25 is definitely down around 20, so I'm herxing all the time with just Benicar (I'm NEEDING 40mg of Benicar every 4 hours). Hope this is what you needed to know...
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Julia
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Posted: Fri Nov 7th, 2008 16:29 |
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Thanks for clarifying. Just a couple more questions... what strength is the minocycline that you took a quarter of? And were you taking it every other day? When you had such a strong reaction, did you try the measures in What to do when immunopathology (immune system reaction) is too strong?
Sorry for the inquisition, but it isn't recommended that you stay in phase 1 as long as that, and I'm trying to find out what was going wrong.
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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Joel Clark
Member
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Posted: Fri Nov 7th, 2008 18:45 |
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Minocycline 50mg and yes 3 times a week
One of the problems was that I hadn't brought enough Benicar with me and could only take it once every 8 hours.
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Julia
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Posted: Fri Nov 7th, 2008 20:29 |
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Thanks, now I think we might have got it. The Phase 1 guidelines (page 6, Step 7) say
- The recommended starting dose of Minocycline is 25mg taken every 48 hours (25mg every other day).
Do not use less.
Taking tiny doses of minocycline keeps the concentration down to the level where it works the best and may account for reports of continued difficulties with intolerable immunopathology.
[from What should I know about Minocycline?]
Benicar 40mg every 8hrs is a bare minimum. Every 6hrs is better, and you need to keep extra in hand in case of intolerable IP.
Now to get back to your original question: As my vitamin D 25 level approached #20 I began herxing away without taking antibiotics. How do you feel about waiting for my immune system to do it's work before starting up again with the antibiotics?
It's possible that you've been herxing on Benicar alone, but it's also possible that your progress on the MP has been so slow that the bugs are dancing again. If I were you I would discuss with doc the suggestion that you start minocycline again and follow the guidelines exactly.
And keep working at the diet to get that 25-D down to 12 or less for optimum immune system performance! 
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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Joel Clark
Member
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Posted: Tue Nov 11th, 2008 14:18 |
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My history of Vitamin D reduction is as follows:
Jun. 18, 2007 Dihidroxy 1,25 = 41.2; Hidroxy 25 = 33.2
April 30, 2008 D-25 = 29.3
July 7, '08 D-25 = 22.9
Oct. 6, '08 D-25 = 23.5
Nov. 10, '08 D-25 = 21.8
The Oct. 6 increase concerned me, but about that time my taste buds and smelling began to improve and started noticing something "fishy" about chicken, and realized that in Peru, commercial chickens are raised on fish meal as it is so readily available. So getting off that seems to have helped.
This last month as the number has begun approaching 20 I've noticed IP has begun increasing even without taking any antibiotics (I had had intentions of returning to it but had been holding off taking it this month due to my Immunotherapy for my B Cell Lymphoma - that by the way has shown marked improvement since starting the MP).
Do I gather that as bacterial load decreases, the absorption into the body of Vit. D also increases due to the fact that the bacteria foments the production of Vit. D?
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