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marion villa
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Posted: Thu May 7th, 2009 20:46 |
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| I hope everything goes well
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RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
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christine neisel
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| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
| Posts: | 48 |
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Posted: Sat May 23rd, 2009 02:48 |
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Hi,
Wanted to ask about possibly going off the mp due to chronic constipation. I am in phase II, now on 3/8 zith and .75 mino. On phase II since last September.
I have been having back problems and it's possible that the constipation has caused the back pain. Also the medication (Amitiza) I am on at the present time is $4.17 a pill using two a day plus other laxatives which has turned out to be an expensive venture. I have gastroparesis which is what's know as a slow moving stomach and prone to produce constipation. I read that one could possibly have constipation as a herx?
It is not my wish to go off the mp, but feel I need to get the constipation under control. Any suggestions would be appreciated.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Barney
Moderator
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Posted: Sat May 23rd, 2009 03:55 |
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Christine,
Maybe this link will give you the answers to solve the problem, please read:
Marshall Protocol FAQs (Required Reading) > I'm constipated. What should I do?
If you still need to lower your MP meds, you could lower the Zith and mino to minimum, but first I would try an enema. That sounds more logical to me than more meds that do not seem to be working.
I hope this helps you but if not post again and we can discuss more possibilities.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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marion villa
Member
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Posted: Sat May 23rd, 2009 04:41 |
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yes it may be herx, so yes the enema I vote for too, and try to give your tummy a massage with some oil in the clocks arms direction, ----->------->, well round in your tummy and with some pressure, this in other moment than the enema, of course...
marion
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RA,SLE,skin problems fatigue and pain. noirs,well covered if going out, PHASE 3MP| My Story| ABC of MP| Bacteriality|
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christine neisel
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| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
| Posts: | 48 |
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Posted: Tue May 26th, 2009 01:35 |
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Hi Ladies,
Many thanks for your information. I will cut back on the zith to 1/8 and the mino to .25 for a few rounds and see if I can tell any difference.
So glad you are there to answer my questions.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Sallie Q
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Posted: Sun May 31st, 2009 04:26 |
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Hi Chris
fortunately I like figs and prunes, these helped me a lot
I am allergic to exercise but do some tummy exercises lying on my back, i think these help with the necessary muscles
hope it is going well for you 
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b.cancer1990 SjogrensCFS 60%dysreg.vD 25D13.2ng/mL Sep08ph1 Jan09modPh2 25D~19 May09ph3 NoIR lowLuxEtc 25D 5 ng/mL Jan2010
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christine neisel
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Posted: Tue Jun 2nd, 2009 01:15 |
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Hi Susie,
Thanks for your suggestion. I am trying everything I hear of. I did cut back on the zith and mino and it is getting some better. thanks. chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Barney
Moderator
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Posted: Tue Jun 2nd, 2009 01:29 |
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Christine,
If need be, you can drop the Zith altogether and get totally settled and then start it over again. You will not lose doing this, you will gain and things might get a lot easier for you to move ahead.
Never think that moving back on abx is bad, that you are losing, cause that is not true....learning how to move the MP meds around is the beauty of this treatment. You never lose, you only gain. Even w/just Benicar, you are still killing those 'critters'.
Hope this helps you figure it out.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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christine neisel
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Posted: Thu Jun 4th, 2009 19:52 |
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Hi Barney,
Thank you for the information about cutting back the zith at this time. I will try it and see if anything changes. While the constipation isn't as bad at this time, I am still taking from three to four laxatives. a day. My back pain, on the right side under the shoulder blade is always present when I try to stand on my feet. Hope to see an orthopedist as the chiropractor was a modest success. This has been around for at least three years and not getting better. We had hoped to be taking some trips, but don't want to waste our money if I can't stand for the tours. Seems like sarcoidosis may be taking a back seat to my other mundane issues. Thanks so much for your input. Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Barney
Moderator
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Posted: Thu Jun 4th, 2009 21:23 |
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Christine,
If you want to go on a trip and get to enjoy it....this is what I need to know to help you........
please go to the MY ACCOUNT button, right, top of this page, click on profile and make a signature line w/your 25d test result, your diagnosis and any other pertinent info.
when you post, always put your MPmeds and nonMP meds at the top like this and then go on and make your comments and ask questions. This is the way it is done on the study site and you can ready to move to it with no problems:
MPmeds w/mg and amts)
nonMPmeds: ditto
This gives the Moderators a way for defininte knowledge of your meds to help you with.
After you do this, then we will work on a vacation for you, that I am sure you are going to enjoy.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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christine neisel
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Posted: Sat Jun 6th, 2009 03:33 |
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Hi Barney,
MPMeds: Benicar 40mg 4 times a day, .25 Mino every other day
NonMp: Mira-lax 2 times daily, citrcul 2 times daily, and stool softeners and others as needed. Occasionally I take a zanex when I have leg twitches or jerking motion.
I did update the signature line and guess got carried away with too many characters.
My last D-25 test was 27 and the two previous ones were 18, and 23 and I am not sure they are a true reading as I have been doing the same thing. I am very good with the diet and about 90% on the sun/light issue. I have been able to keep up my regular exercise routine with no problem. The pain under the shoulder blade is most prevelant as the day goes on toward nite.
I have been on phase II since December and am now back to the Benicar 4 a day and .25 mino every other day. May try the zith again in about three weeks to a month. Thanks for your help. Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Barney
Moderator
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Posted: Sat Jun 6th, 2009 06:07 |
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Hello Christine,
Okay....thank you for making your post easy to read and for the signature line.
Since your 25D level is 27....I would drop off the Mino and get it back down to at least 20 before resuming Mino. Definitely NO ZITH.
You need to use Benicar 40mg/4 hrs while dropping the Mino....you will still kill bugs and you will still have IPs but you can control them w/20mg Benicar under the tongue. Should you need more relief and you have pain pills you can add them in and Tylenol if need be...but I really think if you use the Benicar like this, you will be able to go easy on the pain pills. MAKE SURE YOU ALWAYS HAVE BENICAR ON YOU AT ALL TIMES AND DO NOT MISS A PILL. I carry a little 'tube' bottle I bought at Walmart in my pocket.
You should be able to cover up including Noirs, hat, long pants, long sleeve shirts or a jacket, shoes/sandals and socks.
You will need to drink so much water you think you will float, this should also aid your constipation. Not drinking can dump you in the ER.
You will need to use xtra salt (sea), regular salt is mostly chemicals.
You will need to rest. My suggestion for a vacation....try to plan things in the shade as much as possible, try several evening/late evening events. Go and take a nap during your outings.
An umbrella will also help for xtra protection on the days you are in the sun also.
Also, your diet, you need to add some apple, salad etc... to get some relief from the constipation. If necessary use an enema to keep you moving. It is better to do that than end up in ER or take pills, etc.
If I did not cover everything, please let me know.
HAVE A WONDERFUL VACATION!!!!
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
Last edited on Sat Jun 6th, 2009 06:08 by Barney
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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Deedee
Member
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Posted: Sat Jun 6th, 2009 14:26 |
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Check out these umbrellas:
http://www.uv-blocker.com/
I recently went for a walk on the beach at dusk with a very large UV umbrella and my NOIRS (fully covered) and even went for a swim with the umbrella (and hat, and NOIRS and long sleeved shirt!) I could position the umbrella so that it fully blocked the sun. I was able to enjoy myself without worrying about the effects of the sun and it was great to be with my family outside. It is now a week later and I had no additional IP. I hope it works for you, too.
My D is 15. I was having trouble bringing it down and was stuck at 25 when my husband had dropped to 14. I had to think about what I could be doing differently than he was and it all pointed to the yogurt I was eating. I called the company and learned they used fortified milk. The label did say less than 6% Vitamin A, which we use as a guideline on dairy, but I have found that labels just do not tell the story. For example, I picked up a can of herring and a can of sardines the other day and it did not list Vitamin D and the Vitamin A was listed as 0%. So in regard to the D, take a hard look at what you might be eating that could have hidden D.
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec09 | 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09)
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christine neisel
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Posted: Mon Jun 15th, 2009 20:50 |
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Hi DeeDee and Barney,
Have been away from home for over a week visiting family. Thanks so much for your information. Will definitely follow some of your suggestions and let you know the outcome. Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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christine neisel
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Posted: Wed Jun 24th, 2009 01:07 |
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Hi Ladies,
Have finally gotten home after two weeks away. While gone I only had enough Benicar for four a day. I didn't seem to have any problems with dropping the mino and zith. At this stage should I increase the Benicar to every four hours? My constipation is somewhat better and I eat more toward the fiber side. My pain in the back I am going to see an accupuncturist first, then next would be the thearpist as my doctor thinks it's muscle related. I am somewhat discouraged about the D-25 count, but will keep on the schedule. Had an annual ct scan of the chest area and nothing has changed since 2007. I am going to try to get the generic Benicar from Canada and see how it goes. Thanks for all your help. Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Barney
Moderator
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Posted: Sun Jun 28th, 2009 03:59 |
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Christine,
Glad you had a nice trip.
It took me 4+yrs on MP to finally get relief from the muscles...it is definitely IP and believe me I took a few pain pills plus Benicar. Nothing helped until MP got them under control. I had been under every kind of therapy for legs/hips you could imagine and nothing had ever helped.
Sometimes it takes a long time to get your 25D down so don't get discouraged but keep in mind to avoid fish/seafood.
It would not be harmful at all to take Benicar 40mg/4hrs. You will need to use 20mg Benicar sublingual to control IPs as you will still have them, just not as bad (IMO).
Drink plenty of water, xtra (sea) salt (regular salt is mostly chemicals), lots of rest while avoiding the sun and avoiding Vit D in your foods!!!!!
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
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christine neisel
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Posted: Thu Jul 9th, 2009 17:29 |
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Hi Barney,
Thanks so much for your information and encouragement.
I have been off all drugs but the Benicar since early June. This past week, I think I did a no-no. We were treated to ice cream and I think it did a number on me as I have had about five days of nausea and feeling generally weak. The doctor suggests that I try sucralfate and prilosec, is this any problem with my Benicar? I realize that I should have two hours between these medicines and the Benicar.
I have had two sessions with the acupuncture man and his theory is something amiss with the pancreas. So many theories on a back ache. I did have x-rays that showed arthuritis, degenerative disks and scolosis for the back. I don't know how much good is done at this time, but he sure knows where the really sore spots are on your body.
Thanks for your help.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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christine neisel
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Posted: Fri Oct 30th, 2009 19:27 |
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Hi All,
Benicar 4 times a day.
Spray B-12 once daily
Started Phase II some time ago, but went back to Benicar only when the Vitamin D went to 27. Been on Benicar for over a year. Have been doing well. Am seeing an actupuncturist and she has helped greatly with the constipation and back ache under my right shoulder. Should have recent Vitamin D results soon and hope to pick up Phase II again.
My question is: Has anyone seen their bone density test go from osteopenia to normal? Could this be connected to taking Benicar? Thanks.
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Joyful
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| Joined: | Fri Oct 19th, 2007 |
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Posted: Sat Oct 31st, 2009 04:12 |
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Try this article for a start: http://mpkb.org/doku.php/home:diseases:osteoporosis_osteopenia.
And this thread: http://www.marshallprotocol.com/view_topic.php?id=8793&forum_id=39.
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MP Stories | Bacteriality | MP Search | MP Knowledge Base
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Chris
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Posted: Sat Oct 31st, 2009 17:37 |
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http://www.marshallprotocol.com/view_topic.php?id=8793&forum_id=39&jump_to=185448#p185448
Joyful sent you the right links, but I still feel like bragging.
I'm not all the way back, but it's well more than half-way back to age normal. This happened in the last 2 years, so the improvement started after 3 years on the MP. The bone density went down a bit in the middle, though the rate of decline did slow in the first years of the MP. Both the GP and the rheumatologists were quite impressed.
--Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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