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christine neisel
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| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
| Posts: | 48 |
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Posted: Tue Sep 16th, 2008 19:06 |
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Julia wrote: Chris, congratulations on getting started!
You can continue to ask non-medical questions here on CureMyTh1 on this your own thread. Any time you lose it click the My Account button and the link will be there. We will be pleased to hear of your progress.
For medical questions you must ask your doctor, who must be a member of the Professionals' Forum and can ask questions there.
On the study site MarshallProtocol.com you can read all that's essential, but not post. Phases 2&3 are available to your doctor.
The medical moderators are overwhelmed with the demand, and it's unlikely there will be more places in the study for a good while.
Please read Essential Information About the MP (Required Reading) and Marshall Protocol FAQs (Required Reading)
Happy herxing! 
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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christine neisel
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| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
| Posts: | 48 |
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Posted: Tue Sep 16th, 2008 19:19 |
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Hi Julia,
Have been on the MP a week today (4 times a day) with the Benicar. Have been diligent with the dark glasses and very little exposure to the sun. Still can't tell if I am going to be light sensitive as not anything definitive has shown up. Hope to start the minocycline after I see my doctor on Friday.
I can't say that I have seen a big change. Mostly my symptoms of sore chest, weakness, and dizziness seems to be on a lesser scale. Exercised up to the normal level this week for the first time in a few months. I find that getting into the pool for at least 30 minutes cools me down and takes away some of the weakness.
If I have had any herxing, it has been just some of the normal things I have experienced before, like back ache.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Julia
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Posted: Wed Sep 17th, 2008 10:41 |
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| Chris, when I started Benicar I felt nothing, apart from a little extra fatigue. Everyone's different; don't be discouraged!
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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christine neisel
Member
| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
| Posts: | 48 |
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Posted: Sat Sep 20th, 2008 16:59 |
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Hi Julia,
Wanted to confirm that the Benicar regiment (4xday) is part of all three phases of the MP? Will start the minocycline this Monday.
While I have felt better on the Benicar, today seems to have some of the old symptoms again, nothing out of the ordinary. A few good thumps of soreness in the chest area, weakness, and a little foggy.
Thanks.
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Julia
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Posted: Sat Sep 20th, 2008 18:47 |
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Yes, Benicar is the foundation right through the MP. Every 8hrs is the absolute minimum, every 6hrs is the recommendation, and you should have doc's permission (and the supplies) to increase if IP gets tough.
Benicar dosage and schedules
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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christine neisel
Member
| Joined: | Sun Feb 10th, 2008 |
| Location: | Plano, Texas USA |
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Posted: Thu Sep 25th, 2008 17:20 |
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Hi Julia,
I am on my third appeal to my drug company to pay more toward my Benicar.
I was looking on the net for Canadian drug companies checking their cost for Benicar. I noticed they included a generic Benicar (don't know whether that can be distributed in the US or not), but was interested in learning whether generic Benicar could be used on the MP?
Thanks
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Toni D
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Posted: Thu Sep 25th, 2008 17:40 |
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Christine,
This thread about generic Benicar should answer your question. Let us know if you should have any other question or concern on the topic.
Feel good and be blessed.
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christine neisel
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Posted: Thu Oct 16th, 2008 16:27 |
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Hi Julia,
Have been on Phase I for 36 days now, takiing the Benicar 40 mgs. every six hours. Started with the Mino .25 and went to .50. I was overdoing the exercise and found my body was very agitated so am trying to get back to a normal state.
I saw my Doctor today and I hope I am not looking at some problems down the road. For a month now my lab report has shown Glom Filt Rate .59. I said very nicely that the MP says that this will happen when you start the Program Anyway he wasn't pleased with my input. I am to do a 24-hour urine test and followup in two weeks. He mentioned that we may have to alter the MP. I don't think he knows as much about the plan as he should and I feel it's possible that I may have to give up the plan if he wants do a lot of changing. Just wanted to vent. The staff maintains that they have been unable to sign the doctor up on the MP site. I shutter to think what will happen if I have to ask the doc to contact the Healthcare forum. I asked that they pull up the Phase 2/3 so that I could see what was involved as I could be ready for that Phase within a month or so. I surely wished it were easier to find a physican who was more knowledgeable about the Plan.
Any suggestions would be helpful.
Thanks.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Julia
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Posted: Thu Oct 16th, 2008 21:00 |
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Chris,
Sorry to hear of these obstacles. Could you clarify please about your doctor not being able to join the site?
He needs to send an email to marshallprotocol2@yahoo.com with 'Professionals Forum' in the subject line, including his professional details and contact information along with his desired user name and password. (Note: User names which contain a comma within the name are not technically compatible within our system. He may wish to choose a username that allows him to remain anonymous.)
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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christine neisel
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| Joined: | Sun Feb 10th, 2008 |
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Posted: Sat Oct 18th, 2008 21:15 |
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Wanted to ask if a lab test of the Vitamin D and l25 D was of any benefit when finishing Phase I?
Thanks.
Chris Neisel
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Knochen
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Posted: Sat Oct 18th, 2008 21:17 |
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Hi Chris,
Normally it is unnecesary to repeat the 1,25D test once you have started. You should retest the 25D however to be sure your levels are where they should be, or at least moving in the right direction. If it has gone up, you need to look to your diet and sun exposure.
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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christine neisel
Member
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Posted: Tue Oct 28th, 2008 18:03 |
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Hi,
Have been on the Phase I about sixty days now and have found a new doctor who I think will be more MP friendly and at least will get set up as a Professional Physician on the MP site so I can enter the Phase II/III around the first of Dec.
The Doc mentioned that I was to sign a patient release form for her Is that part of Phase I requirements? Have I overlooked it some where as I don't know where to find it so that I can get it to her.
Guess I can't read up on Phase II/III before I start?
Thanks for your help.
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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natalie17
Member
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Posted: Wed Oct 29th, 2008 05:14 |
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Hi Chris,
Your Doctor may be talking about the consent to treatment form - which helps some Doctor's feel safer about prescribing the MP.
Unfortunately your Doctor will have to access the phase 2/3 guidelines through the professionals' forum and you will not be able to see them before she gives them to you.
All the best,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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christine neisel
Member
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Posted: Fri Oct 31st, 2008 01:25 |
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Hi Natalie,
I did get the consent form to sign for my doctor, thanks.
I have changed doctors and hope I will be much happier with this one. She has aleady signed up for the professional forum. She says that she sees nothing derogratory about the MP and she will require lab work once a month and will prescribe the medication. Of course, she was very firm about the patient knowing the MP guidelines. Her question to me was: "why not pay moderators to answer our medical questions"? As a physican they realize their knowledge is limited and would be more prone to take MP patients if this were so. I could only reply to her that I could see where the MP could not find enough experienced moderators to handle those wanting to go the MP.
What would be an acceptable number for the vitamin D count to be lowered after Phase I?
Thanks.
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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natalie17
Member
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Posted: Fri Oct 31st, 2008 01:45 |
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It sounds like you have a pretty fantastic Doctor.
What would be an acceptable number for the vitamin D count to be lowered after Phase I?
As low as possible. Below 20ng/ml is good, below 12ng/ml is the therapeutic range we're all aiming for  .
How often should I test D levels? What are the target numbers?
Dr Marshall : "The 25-D seems to be the most critical factor as to whether the immune system is able to start working. Any level of 25-D above about 20ng/ml is likely to be acting as an immunosuppressant, with an action very similar to that of corticosteroids.
You migh tlike to have a read of How do I know if I'm ready for phase two?
Best,
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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christine neisel
Member
| Joined: | Sun Feb 10th, 2008 |
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Posted: Sun Nov 2nd, 2008 17:06 |
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Wanted to ask if other members have noticed a less than pleasant experience after exercising on Phase I. Two different times I have done my exercising for 1 1/2 hours and later felt less than good. Some generally not feeling well as the back ache. My body seems agitated and I think I can attribute it to the exercise. I have been on the Benicar plus .50 mino each time this has happened.
Does stress pay a big part in how your body reacts on the MP? Monday I had a real stressful day, traffic, generally rushing, etc. and I have never felt more of a painful inner soreness in the chest area.
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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natalie17
Member
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Posted: Mon Nov 3rd, 2008 00:48 |
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Christine,
I am unable to exercise but I have read of other members having bad experiences after excessive exercising - and to me, especially while on the MP, 1.5 hours is a lot.
You might like to have a read of Are there any Guidelines on Exercise & the Marshall Protocol?
Stress can definitely have an effect on your symptoms. I know if I am stressed my symptoms worsen.
Suggest seeing How does stress affect Th1 inflammation?
Natalie
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I can help you understand the recovery process, but only your physician is licensed to give you medical care.| ABCofMP|My Story
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christine neisel
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Posted: Mon Nov 3rd, 2008 18:15 |
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Hi Natalie,
Thanks for your reply. I have decided that I can't exercise liked I used to before the MP. I plan to pace myself with less and I think that it will help. I am sure that my biggest hurdle so far has been from stress. I am not used to pampering myself, but with this MP, must do things more discerningly. Thanks for your help.
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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Sallie Q
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Posted: Tue Nov 4th, 2008 21:11 |
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Chris
Something I find important, I HAVE to conserve my strength instead of pushing myself to do more as I have for decades. I can come home from work, have a catnap and feel fine but I think that is partly stimulation from unavoidable light exposure in public places. Within hours I’ve done the necessary, curl up to make a few phones calls and suddenly feel exhausted then if I am really lucky sleep 7 0r 8 with only 1 wake up (used to wake 3 or 4 times a night pre-MP) Sallie
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Sjogrens; b.cancer; postviral fatigue: D25 7ng/ml@Jly10
| http://mp-lifestyles.org/category1/ |
food-gear-problem chat MPstudy members (& Dir.)
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christine neisel
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Posted: Sun Dec 14th, 2008 03:13 |
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Hi Sally,
Thanks for reminding me that we are not as strong and hardy as we were before this autoimmune business.
What level are you on with the MP? Have you seen improvement?
I start phase II today. My level of D-25 is 24.5 so hope that I can master this new phase ok.
Hope your holidays are great.
Chris
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Sarcoid-chest lymph nodes,no change since 2007.Slow moving stomach which causes constip.Pain under right shoulder blade when standing for any length of time for 3 years-Chirop.has not helped.Acupunct.has helped. D-25 was 27,in 4/09. 10/15/09 Vit.D is 14.
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