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jmb88
Member
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Posted: Tue Feb 24th, 2009 16:02 |
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Hi, I have had symptoms for several years. In 2007 the symptoms got to be unbearable. I have extreme fatigue, sensitivity to light, breathing problems, heart palpitations, joints and muscle pain. I was told I was depressed and given inhailer for my breathing problems and antidepressents.
My test results:
Vitamin D, 1,25-DIHYDROXY 36 pg/mL
Vitamin D, 25-HYDROXY 25 ng/mL
Vitamin D3 25 ng/mL
Vitamin D2 <4 ng/mL
My blood was drawn on Jan 2, 2009
I used Quest Diagnostics, they said it will be frozen
I've been avoiding foods with Vit. D supplements since Dec. 2008
I've been avoiding the sun since Dec. 2008 too.
I'm currently only using Combivent inhailer and Symbicort inhailer
I tappered off of the effexor in Nov/Dec. 2008
I was not on on Benicar, I don't have a Dr. yet to help me with the MP.
I don't have access to the required signature line link
My symptoms are once again getting wose and I have an appointment with my Dr. to discuss the MP on March 11. I sent him a letter and some printouts from the MP site, Phase I and letter from Dr. Marshall, etc.
What can I do about my symptoms while I wait, my chest is painful and heartbeat has sporatic palpitations.
Looking for guidance, Jean
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jmb88
Member
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Posted: Thu Feb 26th, 2009 16:41 |
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Hi, It's Jean again. I haven't received a reply to my test results yet, maybe that is because I didn't ask a question.
I didn't know what OTC stood for so I didn't add that so now I will.
I'm taking:
1000 mg Vit. C
Ortho biotic for candidia (yeast) perscribed by my Preventive Medicine Dr.
I am not taking yet, but have been perscribed by my Preventive Medicine Dr. who is helping me with possible food allergies:
Fluconazole 200mg - Antifungual
Activated charcoal capsuls -binds toxins and helps eliminate
I wanted to know, before I start the MP is any of these would be counterindicated. I have been to the link that lists meds that should not be taken, however I just wanted to make sure.
My appointment with my doctor is still on March 11. I want to have all info available so I can make sure I start properly. I'm still hopeful that he will agree to put me on the MP. I ordered my NoiRs yesterday!
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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Dr Trevor Marshall
Foundation Staff
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Posted: Thu Feb 26th, 2009 17:04 |
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Fluconazole is absolutely not compatible with the MP. Are you sure your physician understands the science behind the therapy?
http://mpkb.mp-dev.com/doku.php/home:othertreatments:antifungals
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jmb88
Member
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Posted: Fri Feb 27th, 2009 05:38 |
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Thanks! I printed the link.
I did not start the fluconazole!
It was prescribed by a different doctor, not the one who, hopefully, will be helping me with the MP.
I will see my primary doctor, who is a very well versed doctor with immune diseases. He is a progressive thinker and I remain hopefull that he will agree to help me with the MP. He has my letter, printed a copy of Dr. Marshall's letter and phase I doc.
I printed the phase 1 document, and all the required reading for myself too. I spend all my free time on this site. At first it was confusing a bit, but now I understand where to go for information.
I have my appointment on March 11 and will remain hopeful. I cannot live with these symptoms any more. My symptoms are rearring their ugly head again, same time of year too. I now know that the drop in Vit. D is the cause, detail in phase 1 document.
My next post will be after my March 11 appointment. Wish me luck. I'll be viewing and studying
Thanks for the support.
Jean K.
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jmb88
Member
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Posted: Thu Sep 3rd, 2009 13:41 |
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Hi,
I'm here to post my most recent Vit. D levels.
I am very discouraged now.
Vit. D, 25-Hydroxy,
LC/MSMS
Vitamin D, 25 OH Total 26 ng
Vitamin D, 25 OH, D2 <4 ng
Vitamin D, 25 OH, D3 26 ng
Checking if these are the right test?
My Vitamin D has not changes. Although, this is the only test I had since I started the MP in March 09. I believe my D levels were low before but were not checked. I had some light exposure in Aug.
Can not proceed to Phase II because of this. I can be more diligent with the food. I often have my dinners cooked for me by my husband, he's wonderful. I think I need to simplify and cook my own dishes to make sure.
I avoid light by covering up. Besides the 3 hrs of sun in Aug., it is just errands I do with Hat, Noirs, long sleeves, long pants (even in hot summer), zinc oxide on hands and face (only skin showing)
My doc can't move me to Phase II, he said lets take another 4 weeks and get it down. I'm not giving up. I know this has been working for me
I'll post back on my thread to give more info.
Jean
Last edited on Thu Sep 3rd, 2009 13:42 by jmb88
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jcwat101
Research Professional
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Posted: Wed Sep 9th, 2009 03:39 |
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I wonder if you use a zinc oxide product with a high level of zinc, like the Kabana, which uses 25%? That might help and like you said -- the foods and time.
Joyce Waterhouse
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20 years with CFS/FM/Lyme/IBS, MP info: http://mpkb.org, food/supplement/medication allergy/sensitivity info: http://SynergyHN.com
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jmb88
Member
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Posted: Wed Sep 9th, 2009 14:56 |
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Thanks Joyce,
I got the 50 percent zinc oxide last week. It goes on white, so I look like a clown. But that is ok for now.
Does the Kabana with 25 percent have a white look?
I'm in my "cave" all drapes are up. I'm working really hard this time My symptoms are increasing also.
I'm on oxygen for rest and sleep. Thanks for the advice.
Jean
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jcwat101
Research Professional
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Posted: Wed Sep 9th, 2009 15:12 |
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You must have gotten the type for diaper rashes, as they don't allow more than 25% for sunscreens. The Kabana looks slightly white the first few hours after putting it on but it is from relatively invisible micronized zinc and should be much better than the diaper rash stuff. The Glycolix has minimal effect on skin color, though it has other chemicals and not quite as much zinc and is more expensive. See the list at this site: http://tinyurl.com/ca76l6
For my face, if I am in the position to wait several hours or overnight before going out, I use the Kabana on my face. If I have to go out soon after I put it on, I use the Glycolix.
For hands and neck, etc... I always use the Kabana.
Joyce
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20 years with CFS/FM/Lyme/IBS, MP info: http://mpkb.org, food/supplement/medication allergy/sensitivity info: http://SynergyHN.com
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jmb88
Member
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Posted: Wed Sep 9th, 2009 17:28 |
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Thanks Joyce,
I read the link many times. I was wondering if using the Zinc Oxide that I got, which is probably for diaper rash, would work for now, until I find out where I can buy the Kabana and Glycolix.
Does the Kabana have to be put on many hours before going out?
Thanks, very much
Jean Koller
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jcwat101
Research Professional
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Posted: Wed Sep 9th, 2009 19:13 |
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You can use the diaper rash stuff, if you want.
This type of sunscreen works as soon as you put it on and continues to work until you wash it off, even for several days.
Google Kabana to get to their web site. I order Glycolix through Amazon.com but you may be able to find stores that carry either or both.
Joyce
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20 years with CFS/FM/Lyme/IBS, MP info: http://mpkb.org, food/supplement/medication allergy/sensitivity info: http://SynergyHN.com
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jmb88
Member
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Posted: Wed Sep 9th, 2009 20:55 |
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Great! Thanks so much.
Jean Koller
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jmb88
Member
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Posted: Sat Oct 10th, 2009 21:36 |
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Hi,
I recieved in the mail today the results from my Vit. 25 D test:
Date: Sept 28, 2009
Result: Vit. D 25 - 14 ng
Jean
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MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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jcwat101
Research Professional
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Posted: Sun Oct 11th, 2009 00:59 |
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Came down quite a bit. Great
Joyce
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20 years with CFS/FM/Lyme/IBS, MP info: http://mpkb.org, food/supplement/medication allergy/sensitivity info: http://SynergyHN.com
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jmb88
Member
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Posted: Sun Oct 11th, 2009 03:49 |
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Thanks Joyce,
I'm happy, I feel crappy, but this is what we signed up for right.
Thanks for the encouragment and advice on zinc oxide.
Jean
____________________
MP start date: Mar.11,2009, Phase I, 40mg Benicar (6 hrs), minocyline 100mg (48 hrs), albuterol inhailer, clonazepam for sleep, chr. fatigue,asthma,joint pain, Paresthesia,chr. bronchites, fog brain, anxiety, insomnia, depression.....
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