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jcsh124
Member
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Posted: Sun Jan 13th, 2008 11:44 |
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Sunday 1-13-08
Hi,
I’m a newbie and feel kind of lost. I’ve been poking around the site and don’t know if I’m a candidate for treatment. I am also not sure how this message board or site works. Yes, I have read the intro messages and am still confused, enough on my stupidity.
I’ll start with a little history. I was diagnosed with Mononucleosis April 2006. The symptoms eased a bit and then I was diagnosed with Epstein Bar and Chronic Fatigue Syndromes January 2007. When first diagnosed April 2006 I was told that I had previously had Mono! I was not aware and could only reason that it must have been around 1989 when I was always feeling tired and drained of energy. At that time I went to many doctors and finally was referred to an Internist. He thought it was a virus which was going around at that time. In November 1989 about 3PM I came down with a very high fever at a UVM basketball game. It was so bad I could not open the car door or drive due to the enormous pain in my hands and most of my joints. Got home and experienced high temperatures and then chills for about one to two hours. I then fell into a deep sleep. Upon awakening I felt better: but, “beat up” and exhausted. I knew, at that moment that it had left. I felt “beat up” and exhausted; but, I felt a spark inside. What a great feeling, I was not tired or drained. I do not know if this is the way Mono exits; but, it surely was gone, whatever it was.
Now I am tired all the time and have no energy or spark! I have been doing fairly well with the feelings of depression, uselessness and anger. When I found out I had Mono I resolved to ride it out and not let it upset or depress me. Well, now about two years later, I’m getting anxious, I want to move along with my life. I had been advised, when diagnosed with Mono, to take vitamins and various supplements, I did.
I think I am feeling a bit better just because I want to move along with my life. I don’t have the energy, only the desire.
My questions are: What do I do now? What is the procedure? Is there a checklist?
Thank you for reading this and thank you for your time and concern.
Sincerely,
John Heine
Huntington, NY
Last edited on Sun Jan 13th, 2008 11:46 by jcsh124
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John
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Julia
Advocate
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Posted: Sun Jan 13th, 2008 14:04 |
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Hi John,
Welcome to our Marshall Protocol questions board. Message boards can be confusing, and with all the info here, this one is doubly so. But don't worry, that's exactly why we have this questions site - we're here to help you find your way around, and guide you to the info that will answer your questions 
We do this by giving you links to click on, that will take you to the pages you need, most of which are on our main study site, MarshallProtocol.com. The links open in a new window, so you don't lose where you were. And please ask all your questions here in your own personal thread by clicking 'reply' each time. I'll delete the other thread you started
I think most seasoned message boarders would tell you, never press 'preview'!! It often sends your laboriously typed posts off into cyberspace somewhere, never to be seen again. If you just post without previewing, you have several hours to 'edit' if you find you've made a mistake.
Another trick is to highlight, right-click and 'copy' your entire post (which puts it on your own computer's 'clipboard') before you send it. Then if anything goes wrong, you just press reply again, right-click and 'paste'.
Now to business... your symptoms would certainly sound familiar to many of our members, even though their diagnoses may be different. We now know that all these chronic 'autoimmune' diseases are caused by tiny bacteria (click to learn more). We all have a different mix of them, gathered through the years, leading to different sets of symptoms.
The Marshall Protocol is the only treatment that tackles the root cause of your symptoms. Here are some links for you to have a look at:
Is the MP an applicable treatment for my disease?
"What is the Marshall Protocol?"
Simple Explanations
Before you begin
Diagnostic test for the MP: D-metabolites tests
Hypervitaminosis-D Symptoms
Success Stories
Amy's introduction - a blog by one of our members
No-one here is trying to sell you anything. There's a lot of reading to do, but there's no rush - the bacteria are slow-growing!
Julia 
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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jcsh124
Member
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Posted: Sun Jan 13th, 2008 21:10 |
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| Will this post be here for quite some time so I may read all the links? If not is there a way to save it. Thanks for your reply and all the information. Sincerely, John
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John
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markt9452
Member
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Posted: Sun Jan 13th, 2008 21:15 |
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| They should keep it and some day you can come back and tell us how well your recovery is going.
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Julia
Advocate
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Posted: Sun Jan 13th, 2008 21:17 |
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| John, the thread will stay here indefinitely, but if it doesn't get any additions it may drop off the first page of topics as new ones are added. You can always find it quickly by clicking on 'My Account' at the top of any page, and it will be in your 'watched topics' list.
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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jcsh124
Member
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Posted: Mon Jul 14th, 2008 15:51 |
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I have not been on the site for quite some time because I found I became confused and frustrated; but, at the same time, I felt a great sense of hope. Lately I have been concentrating on trying to deal with life as best as I am able at this time. Sometimes “things” are OK, other times I get tired and lack any energy and that is not to say that I ever feel like I have any energy. Then all seems to become just a matter of existing. In general I have an attitude of “I don’t care” concerning most “things”. But, at times, my dreams rise to the surface. Now I have come to accept the fact that they will never become reality until I have the energy to pursue them and that is a very depressing feeling.
What I have learned from the site is that I most likely am a candidate for the “Protocol” and would be one to benefit from it. I became frustrated because I could not determine the answers to some key points. It’s actually funny; I can’t stay awake, can’t concentrate or retain information to study the procedure which would cure the aforementioned symptoms. In computer programming this would be called a “loop”. I have symptoms which will not allow me to learn how to get rid of the symptoms because I have the symptoms!
The key points are: How long does it take? How does it impact daily routine? What are the costs? Is there an information “package” for doctors? I have been sent links and e-mails concerning some of my questions. I just get so tired and mindless when I read for a long time. I loose focus and interest. My doctor is a hematologist and head of medicine at a local hospital which is one of many in the North Shore Medical Group on Long Island, NY. I have spoken with him and he asked me to provide some information concerning the “Protocol”. He was not familiar with it. So, at this point I feel bewildered. I believe I have a general understanding of what ails me, what the “Protocol” is about and I am confused and overwhelmed by what I need to do now. From the letters I have read on the site, it appears the “Protocol” would change my life dramatically for the better. I am so excited that there is possibly a way out of feeling like a walking dead person.
I now would like to present what I think my physical condition and symptoms concern and then what I think the “Protocol” entails and what it could do for me. First, I believe that throughout my life my body has become the host and is congested with various “microbes or bugs” which have become part of my cells (me). They have worn down my immune system and my recent bout with Mononucleosis, Epstein Bar and Chronic Fatigue Syndrome has acerbated my condition to its present state of dead tired and lacking energy all the time. Those are my thoughts on my physical condition and symptoms.
Now I will discuss how I think the “Protocol” works. Firstly, some initial and specific testing needs to be performed to establish a “base line”. Then I take Benicare to help my immune system perform. Next or in conjunction with the Benicare I take antibiotics which eliminate the “entrenched” “microbes or bugs”. There may be some situations which may arise that need to be addressed and monitored carefully. There is a requirement to eliminate vitamin D intake and sunlight. Also, there are restrictions regarding any light exposure due to extreme sensitivity. There are also some reactions that are extremely tough to endure and I am not sure exactly or vaguely what they may be. Finally, how it all ends is a mystery to me.
I have questions and concerns about:
1. The Time Frame – do I need to stay inside for a year, month, or a week? Will I be able to go to work? I currently live alone; will someone have to stay with me? Will I be capable of preparing meals?
2. The Expenses – what are the costs for the tests, medications, special care, special foods or clothes, other specialty items? What am I to expect, hundreds, thousands, tens of thousands or hundreds of thousands? Are loans or financial aid available?
3. The Outcome – am I putting to much faith on the “Protocol”? Will I be fortunate enough to write letters like the ones which have been written to me with so much praise, kudos and hope for the future? Do I need to stay on medications, a restricted diet or restrict exposure to the sun for a long time or possibly the rest of my life?
Oh, so many questions and concerns plague and confuse me. I do not know where to concentrate my limited energies in order to obtain the maximum benefits so I am able to start the “Protocol” as soon as possible. I feel I have let two plus years just pass me by as I sat on the sidelines of life. I think I need just a little push and a little help to point me in the right direction. This letter has taken much thought, effort and energy to put together and write.
My most eminent problem is providing information concerning the “Protocol” to my doctor. This is a question I am unable to answer and would ask your help in resolving this problem.
Thanking you for your time, expertise, concern and interest in this matter.
Sincerely,
John Heine
Long Island, NY, USA
(email and white space edited out)
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John
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arhayw
Member
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Posted: Mon Jul 14th, 2008 19:04 |
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Hi John,
You will likely get a better response from one of the Moderators soon, but I saw your post and wondered if you could enlist a friend or family member to help you process the info available and be an advocate for you with your doctor. This is the strategy that has enabled me to start and continue the MP.
Renee
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CFS/FM/autoimmune hypothyroid/ began MP July'04
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 492 |
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Offline
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Posted: Mon Jul 14th, 2008 23:59 |
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John,
The MP works to activate your compromised immune system (capability far more powerful than antibiotics). This means the MP is all about helping your immune system remove many different types of bacteria living together in communities inside of you, that found your body to be a great place to homestead.
You can discover if bacteria have hijacked your immune system with properly done blood tests known as D-metabolites tests. If your doctor is a Hematologist, then it should be a simple matter for you to ask for these tests to be done correctly. Also:Phase One Guideline pdf file
Which diagnostic tests do I need?
What is a therapeutic probe? How long does it take?
That literally depends on you and where the progression of your disease is at this point in time.
This is a "relative" question too, as "it" has layers of meaning you might not realize even by asking. Those only interested in time "it" takes to feel like a live human again, or a resolution of some of their symptoms have a different time schedule than those interested in other outcomes.
Don't worry if you can't grasp that concept now. You won't be the first that didn't get what that means until later  .
Read: What degree of healing is possible using the Marshall Protocol?
How does it impact daily routine?
"It" is a shifting sand answer for this question too. But for a ballpark answer, initially, if you are like most, then it is safe to assume that what you are doing right now isn't working to help you get well, so expect to change things in order to get well.
Most find they have to control light and eating habits differently, and of course, work with their doctor with prescribed medications in a way that is also different than what you might expect.
Many continue with their current careers, if light and eating habits can be adjusted. Some are too sick to work before they start the MP and most need to curtail activity for rest initially as the body goes through the healing process.
Read: How will the MP affect my life? Can I continue to work?
or play or manage my Family?
What are the costs?
Read: How much does the MP cost?
Is there an information “package” for doctors?
Read: Papers and Presentations for Physicians
Reading is hard for some who are quite ill. You and your family or friends may appreciate sitting together to view this video presentation:
http://www.Bacteriality.com site. A good place to start is presentation in vimeo (movie) format. Here is Amy's description and the link:
"In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 89 minutes."
http://bacteriality.com/2008/05/07/mpintro/
Best to you John--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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jcsh124
Member
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Posted: Fri Jul 25th, 2008 03:58 |
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Thanks JRFoutn and arhayw for all your help and encouragement. I am currently working with my doctor and waiting to see what he will recommend. If he will administer the procedure I’ll ask for a referral. I now anxiously wait, for I am looking forward to becoming well so I may participate in life fully. Oh, such a thought.
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John
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