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micklog
Member
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Posted: Sat Jun 28th, 2008 23:14 |
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First off I am very excited to be back and getting into the mP, So please excuse my general questions, but I have to know how these things work so my mind can understand something as its pretty messed up these days. Two questions
LOW D25 Paradox::
So per some quote, "F vitamin D-25 is low, it indicates aggressive TH1 inflammation and a rapid convesrion of the active metabolite Hormone I,25-D"
this seems paradoxical in that somewhere else in the site, it says "we need to get vitamon D-25 levels down or the antibiotiocs will not haveany effect"
??So it apears that we need to get vitamin D-25 levels down (by avoiding Vitamin D) so we will stop feeding the beasts/inflammation, but if we are very sick, then aour Vitamon D levels are already low as they are being depleted by the 1,25-D process or whatever
Benicar
it seems that benicar is an antibiotic??. I guess the reason I am asking is that given my illnesses I know it is sometimes difficult to get many DR's to go alomg with prescribing what you need and not want they want to do...
so my question, what are some illnesses. maladies that dr;s and the medical profession will lok at prescribing benicar for other than high blood pressure
Thank you
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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Julia
Advocate
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Posted: Sun Jun 29th, 2008 13:56 |
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Hi Michael, and welcome!
Since you first joined the main site, the study cohort has grown to the point where we simply haven't enough medical moderators to advise everybody. Please see MP Memberships Temporarily Closed.
You are welcome to ask your general questions here, but we're strictly non-medical. We can point you to the right 'shelf' in the MP 'library' to find the information you need, if using the search facilities doesn't get you there.
Have a look at the Vitamin D Tutorial and see if it answers your vit D query. If not, come back to us.
Benicar isn't an antibiotic in its own right. It helps the immune system to 'find' the CWD bacteria, so that it can deal with them. The following links should help:
Benicar Applications Beyond Hypertension
Benicar-Basic Information
FDA safety insert
The need for a Benicar blockade
Please ask all your questions here in your own personal thread 
Julia 
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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micklog
Member
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Posted: Mon Jun 30th, 2008 23:02 |
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Thanks Julia
I can live with that for now; I will do more research on the vitamin D question, see question at end of my diatribe
so just so you have some idea on my background. I believe I have had chronic lyme for maybe 20+ years. I grew up in tick infested area of canada where it was not unusual to have 20 or more tick bites a year (we were on a ranch so constantly in the long grass
however about 20 years ago after a camping trip in Northern Ontario I came down with this very bad flu/body leg ache for a good 3 weeks. I was approx 30 years old at this time and in retrospect I now believe I began to have many neuro symptoms (anxiety, not as much brain power etc which was pretty unusual for someone at 30). I thiunk this was possibly another infection of some sort of lyme related illness
So i became sort of a hermit socially since my 30's. Then about 5 years ago i lost my hearing (right ear) and gained some back with a series of steriod shots to the inner ear (Think bumble bee bite on your brain)
then I was bit by a spider and it swelled up like a gold ball (probably another lyme infection). This was about 4 years ago. Then my health began to go seriously down hill for the past 4 years
the last 2 years have had severe body aches which has limited a lot of activity. I have done a very retsrictive diet for last 2 years so should have no problem with this (ie chicken, celery, fruit and apple sauce-organic
i also decided to get my mercury fillings out 7 months ago as I had 20 years of mercury laden allergy shots and leaking fillings to deal with. I have been chelating (dmps and ALA per Cutler protocol) for the past 7 months and was starting to feel a little better until I had my root canal removed about 5 weeks ago..now a lot of my pre mercury fillings removal problems are back (bad mCS, always smelling fumes;very bad body ache, face burning, head fiog more severe, hard to think whatsoever, very easily fly into rages as I am extremely sore feels like my whole body is on fire), knee and arm joints very sore... headache and eyes are very very sore and strained
Since folic acid is not recommended as its cell regenerative per this site, then i presume Inositol would be a no no as well
ps thank you for the Dr list, I have an appt later this week
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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natalie17
Advocate
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Posted: Tue Jul 1st, 2008 04:51 |
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Hi Michael,
From my quick search of Inositol I found that it can be obtained from food sources even though it is not classified as a vitamin (I read this on the wikipedia page for Inositol), it is recommended you stop all supplements unless there is a deficiency.
See:
Why do I have to stop my alternative treatment and avoid most supplements?
Recommended nutritional supplements for a dietary deficiency
Welcome for the Doctor's list & good luck with your journey,
Natalie
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Severe CFS/ME already heading back to health thanks to the MP (into my second year..) Natalie's Story | ABCofMP
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micklog
Member
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Posted: Thu Jul 10th, 2008 21:31 |
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General question
what do people use to take up their windows as i am sure regular blinds do not filter the light,
is there anything otehr than black tape. I have complete south/eastern exposure at my home. so sun beats in all day long and I am planning to work from home more.
I am hesitant about putting up black anything as it will just attract more heat
are there any white UV protector blinds that anyone knws about or uses. Ia m in Nothern California
Thanks
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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wytnez
Advocate
| Joined: | Sun Jan 20th, 2008 |
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Posted: Fri Jul 11th, 2008 01:10 |
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Hello Miklog,
I used dark thick curtans. In my bathroom I just used aluminum foil and that worked great. I got dressed by candlelight. Hope this helps.
Saj
AVOIDING SUNLIGHT and BRIGHT LIGHTS
Ideas How and why to protect skin and eyes while on the MP
Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
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Maureensew
Member
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Posted: Fri Jul 11th, 2008 03:05 |
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Hi, I bought black out fabric, cut it(no hem required) folded over top of the existing curtain rods and secured with clothes pins. I was surprised to find that the fabric is white. I expected it to be black and depressing. On the contrary it is pure white and very nice.
Blessings to all! Maureen
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Maureen FM PH1 July08 125D75 25D33.6(Apr 08)25D28.4(Aug08) wellbutrin omeprazole enablex amitriptyline NOIRs covered up 30lux home
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micklog
Member
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Posted: Fri Jul 11th, 2008 23:36 |
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Potential with constipation due to die off/Herx on Benicar and Minocycline.
I am a little concerned about not being able to keep my bowels moving and this die off plugging me up more once on Benicar and Mino
I have had a lot of problems with constipation and I am sure a big part is due to the many bugs and how their toxins get processed or plug up my liver/gallbladder and intestines.
Right now. I take *4-5 tablespoons of organic psyllium every day; 6-8 tablets of magnesium citrate (170 mgs per tablet) and approx 8 grams of buffered vitamin C spread out during the day. If I go off this regiment I become constipated and get more ill than i already am. I know that it is recommended that i give up most supplements (ie magnesium and Vitamin C)
I also try to eat 3-4 strips of celery with my protein and fruit including organic apple sauce and have cut out all processed foods and sugars over the past 2 yearsa nd this helps somewhat
Any thoughts on what else can be done to keep things flowing
Thanks
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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natalie17
Advocate
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Posted: Sun Jul 13th, 2008 07:10 |
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Hi Michael,
I cannot offer you medical advice, but I can link you to the right 'shelf' of the MP 'library'..
I'm constipated. What should I do?
What kind of probiotics should I use?
Also, here is a link to a discussion on regularity
from http://mp-lifestyles.org
The only thing I can think of suggesting that you haven't mentioned is making sure you get adequate fluids throughout the day.
See Water: How much should you drink every day?
(consult your Doctor if you plan on increasing it significantly).
I sincerely hope you find some relief,
Natalie
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Severe CFS/ME already heading back to health thanks to the MP (into my second year..) Natalie's Story | ABCofMP
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micklog
Member
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Posted: Fri Jul 25th, 2008 00:39 |
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Thanks for everyone's help. I am trying to line up/fine tune my diet, sorry i cannot line up this darn email
Food questions:
Tea: I get the idea that weak caffeinated tea is better than green tea?? And that weak hot tea is suggested to be taken with the minocycline dosages?? any other teas that are not a problem when on the MP??
Fruits: It says that peaches, plums and berries are the best due to I believe lower sugar amounts? any other fruits that are not advisable or are recommended? What about apple sauce, it seems to help me stay regular??
Potatoes: I see that potatoes are not recommended due to starch conversion to sugar I believe. what about sweet potatoes(yams) and carrots.
Sugar substitute:Splenda is the recommended choice correct??
Thanks as always for all replies.
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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wytnez
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Posted: Fri Jul 25th, 2008 01:34 |
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Hey Michael,
You are correct in that splenda is recommended. I believe that decaffeinated tea is recommended whether green or black. See
http://www.marshallprotocol.com/forum39/8252.html
Strawberries and Blueberries are lowest in sugar. It is good to stick to a low carb diet to refrain from feeding the bacteria. Although the fruits are good for you eating the good carbs are best like romaine lettuce, tomatoes, cucumbers, olives, broccoli etc.
http://www.marshallprotocol.com/forum2/10823.html
Always drink plenty of water and get rest when needed.
Take good care, heal and be blessed.
Saj
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micklog
Member
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Posted: Fri Jul 25th, 2008 01:34 |
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LAB TESTS
Background; had amalgams removed 8 months ago, chelating per Cutler protocol with DMPS and ALA..will post detailed supplement program on next post
Symptoms, Fatigue, Brain fog and brain mercury due to bad protocol, fatigue, leg burning and body burning around close proximity to EMF's (electro-magnetic fields); shortness of breath; low adrenals, hypothyroid per temperature testing; dealing with liver flukes and other parasites for past 4 years along with what I believe to be chronic lyme (grew up in tick infested area of canada); eyes are very strained; sometimes hard to watch TV or read
Test results Per Quest Diagnostics July/09/2008; was fasting; assured me blood tests would be handled per MP recommendations
D, 1,25 54 pg/ml:
D,25 31ng/ml
** do not know why these are expressed in different levels ie pg/ml for D,1,25 and ng/ml per D25
Cardio CRP less than 0.16
Hematology; Hemoglobin 14.7; Hematocrit 43.1
Chemistry: Urea nitrogen 17 mg/dl; Creatinine 1.18 mg/dl; eGFR greater than 60 ml/min
Liver: Alkaline Phosphatase 36 U/L
Lipids: Triglycerides 101 mg/DL
Overall: I guess not to bad although d,15 is high which means infection/inflammation BUT unsure if D25 is Ok given its expressed in a different measure
Thanks
Michael
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 492 |
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Posted: Fri Jul 25th, 2008 01:36 |
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Michael,
Food sort of scares a lot of folks at the beginning. Maybe if you looked at priority issues first, then move forward from there.
Priority and simplicity I've arrived at:
- No D.
- Low carb it. Bacteria thrive with sugars/carbs/starches.
- Avoid chlorogenic acid, folates, genestin and similar.
- Supplements are iffy. Avoid most &/or get off at earliest reasonable time.
- Eat real food in variety. Fresh and simple OK ingredients work fine.
Overthinking food too much at the beginning is popular, but gets sort of upsetting and confusing for some, especially if brain fog is significant. Maybe just focus on getting off D sources when starting the MP first. Once you get that task committed to memory, then life gets simpler.
After mastering the D detail, gradually walk through the other priorities while introducing more real, fresh and simple foods.
BTW, apples without skin --as in applesauce-- might have a #3 item above to consider . Anything you feel you have to eat regularly, for any reason, might need some work and experimentation on your part to see just what exactly is happening. Yoghurt and "good" bacteria are decoys of sorts, for example.
What you want to down Benicar with is your choice. Most the time I just crunch it on down and if I'm next to water, swallow some. No big ritual or fixing and takes a second or so is all. Never did tea of any kind, so it clearly is not required, just suggested as an option with conditions as tea has a #3 thing.
Good to see you are reading the information on the study site. Excellent!
Post your D tests for expert evaluation in the special thread just for D tests:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Best to you Michael--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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wytnez
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Posted: Fri Jul 25th, 2008 01:37 |
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Hey Michael,
Thank you for posting your tests. A nurse will review them and post a reply.
Saj
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micklog
Member
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Posted: Fri Jul 25th, 2008 05:02 |
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Other Items Prior to blood tests: Two weeks prior to Blood tests, I eliminated all direct Vitamin D supplements and Fish oil/Flax oil/Borage oil and cut (I would say by 80%) all exposure to direct sunlight.
I have ordered the Noirs and plan to start on Benicar in about 10 days
Thanks
Michael
____________________
Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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JRFoutin
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| Joined: | Sat Oct 13th, 2007 |
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Posted: Fri Jul 25th, 2008 05:04 |
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Michael,
Help getting your test results read:
Post your D tests for expert evaluation in the special thread just for D tests:
Help with Understanding D-metabolite tests
Moderators will help you understand the values returned from lab tests in this forum
Best to you Michael--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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micklog
Member
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Posted: Thu Aug 28th, 2008 01:08 |
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can someone help me with what i am doing wrong; have Severe IP think i should have been increasing Benicar to 40 mgs every 4 hrs???
BENICAR: NO PROBLEMS: I started Benicar on August 11th Monday and found 20 mgs every 3-4 hours produced not too many symptoms, my joints were a little sore and some muscle aches
MINOCYCLINE:WOW SOMEBODY IS GETTING A BUTT KICKING: so i started first dose at 9;00 am on Monday 25th. nothing too bad to report but by Tuesday midday (12: noon) i was in much pain, flue like aches all over and neuropathy in legs, arms, feet and face and neck., so i took another dose of mino (25 mgs) and a 40 mg dosage of Benicar ). This would have been 27 hours from first dose. It (one time dosage of 25 mgs Mino and 40 mgs Benicar did not seem to do to much to improve symptoms). I went back to 20 mgs Benicar every 3-4 hrs
Today Wednesday August 12th, (back to 20 mgs Benicar every 3-4 hrs) much more of the same pain, fatigue and bad flu like symptoms; neuropathy throughout body (ie legs, arms, feet, hands, neck and back). I do not think there is any part of me that is not burning; nasal sinus's are draining and throat is slight soreness to it; bronchial passages seem tight and lungs seem sore, sort of a burning pain deep in my chest (not my heart); eyes feel like gravel is in them; relatively anxious; slightly disoriented; too tired to talk; tinnitus and ears are burning and constpiated (i am upping dosage of pysllium-big time)
QUESTIONS FOR SEVERE Immunopathology
A) Phase 1 guidelines say to consider taking a 40 mg dosage of Benicar, which did not seem to do too much to alleviate symptoms above?? any suggestions??IT looks like I should have continued on with 40 mgs of Benicar (Bottom page 7 of 9) until symptoms subside
ok i think i have learned my first lesson as i was running low on Benicar and dr was on holidays last week, i did not want to run out so maybe this is what i should have been doing (40 mgs Beniacr every 4 hours) and not increasing the MINO dosage to 24 hours)
B) With Mino it seems to be a little confusing for worsening IP; as i read it on Page 8 of 9; it seems to say FORGO the next dose of MINO (which i did not do; in fact I shortened it to 24 hours, i guess i goofed??)
However it looks like if OPTION 1: (increased dosage of Benicar -40mgs every 4 hours) does not work, then try OPTION 2 (stopping next dosage of Mino ) and if this does not work then its OPTION 3 (taking Mino more often -25-mgs every 6-12-24 hours) . Is this correct??
C) BUT the recommended protocol is to take dosing schedule every 48 hours (excluding what is recommended) for Severe IP
Thanks, live and learn
Mick
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Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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JRFoutin
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| Joined: | Sat Oct 13th, 2007 |
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Posted: Thu Aug 28th, 2008 01:49 |
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Michael,
Good you are reading the Phase 1 guidelines. I find them to be very insightful about Benicar dosing, as well as options for holding immunopathology at a steady pace.
I also found a wealth of information by scanning the FAQ:
HELPFUL HINTS FOR THOSE ON THE MARSHALL PROTOCOL
Log sheet; B/P monitors & technique; the right kind of Benicar; digital timers/ watches/ pillboxes; pill reminder alarms
I'm eager to get well. How can I speed up my progress on the MP?
Downloadable MP Documents
FORMATTED FOR DESKTOP PRINTING
There is probably more there to learn about immunopathology. It's alphabetical, so you can find topics easily.
One thing that everyone learns sooner or later: The MP science predicts that you will feel rotten before you feel better. Pay attention, or it will get your attention one way or another (wink). Fortunately, there are known controls to help you manage immunopathology during phase 1 to avoid feeling more rotten than you can handle. Rest and avoiding overdoing anything is good advice you don't need a doctor to tell you.
Phase 1 is an important training ground to learn your own response patterns and what works for you, and what doesn't. If you don't pay close attention to yourself during that time, you might miss some key indicators.
If you carefully chart and track your own responses, then you will have a better idea of what to expect, when to expect it, and what to discuss with your doctor so you two can figure out adequate supply of necessary prescriptions to help you adjust and manage, just in case you get a flurry of bumps in the road all at once.
I can't possibly express more emphasis on making sure your doctor understands how important it is to be an active member of the Private Section for Health Professionals. It is his/her job to know the journey before you get there. You might explain just how much you dislike some kinds of surprises.
Also, be sure you are better prepared to conference with your doctor on key issues by investing in quality study time, and certainly, by preparing well for all visits.
Best to you Michael--Janet
[Increasing tip removed as it is an old link, please pardon]
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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micklog
Member
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Posted: Thu Aug 28th, 2008 02:53 |
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Janet
again I am sorry to sound annoyed but these links have a habit of not answering specifically what my question is and
link on Increasing Tip... I cannot access, says I do not have permission and link on Downlaodable Documents, the first PDF is a dead link, so i cannot really tell if there is anything in here that will specifically answer my questions
Thanks
Mick
Last edited on Thu Aug 28th, 2008 03:05 by micklog
____________________
Muscle/Joint Fatigue, constant flu like; hypothyroid; hypoadrenal; head fog, eyes strained even before MP: clinical lymes diagnosis and mercury toxicity; 1,25 D= 54 pg/ml ; D,25=31 ng/ml; PH1June08; T3, NoIRS; and covered up
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JRFoutin
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Posted: Thu Aug 28th, 2008 03:09 |
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Mick,
I removed the increasing tip, as it has been removed per recent updates but the link still was in the FAQ. Please pardon and thank you for telling me.
The most important thing you can do right now is rest and pay attention to what your immune system does with phase 1 medications. Those should be reported back to your doctor, and if you are charting you will be able to see patterns in your discovery process.
You described some variety tried with both the Phase 1 medications. If you are charting, that may give you some help to see how that compares to times when you are not doing doing anything different than baseline for where you are in the MP.
This is an extremely important thing to learn about yourself, as it makes the rest of the decisions for the future MP a little easier when you need to manage immunopathology. It makes it very easy for you and your doctor to determine prescription requirements for your comfort and maximum control.
It is extremely important to chart so you begin to learn about when it is best for you to make changes that are described as part of the Phase 1 Guidelines.
From my own personal experience, I learned there was a good day/bad day pace clearly associated with a medication pulse. Some have that kind of response. Others don't. The important thing is to find out your response pattern.
Were you able to get the charts? If you don't want to use that, you can make your own spreadsheet online or off. It doesn't really matter where the data is kept. Just use what is easy for you to capture big picture trends during a long process. (Think time lapse camera that captures the movement of flowers and plants, not otherwise observed in real time.)
It can be very frustrating, and some angst is also considered a notable response. You might even look back after a few times like this and say "gee, what was I so moody about the last 24 hours?" Be sure to chart that too. I wish I had been charting that better when I started the MP.
Your noted type of responses are very similar to mine when I first started the MP.
Hang in there Mick, it looks like the MP is working as predicted.--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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