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seanlane
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Posted: Fri Jun 6th, 2008 20:58 |
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I have no choice but to work around direct sunlight.
While wearing the best eye protection,zinc oxide, clothing etc. is it still possible for me to effectively do the MP?
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seanlane
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Posted: Fri Jun 6th, 2008 21:10 |
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Is it true that some foods provide a more favorable environment for mycoplasma to grow in? Does limiting acid forming foods help? I have read the information about diet on this website and it seems to mention limiting sugar/carbs...which I know can cause problems. What I am asking is- it just speculation that consuming a diet that is more "alkaline" is better for you or has it been proven to be helpful?
Thank you,
Sean
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Julia
Advocate
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Posted: Fri Jun 6th, 2008 22:26 |
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Sean,
There's no reason why you shouldn't try the MP, but you're likely to find it tough going. See Why does exposure to natural light increase symptoms? If you're lucky, you might just take longer to kill the bacteria. If you're unlucky, you'll be unable to keep working at an outdoor job until you're better. Members report differing degrees of light sensitivity. But then, if you don't do the MP, it's probably only a matter of time before you're unable to work at the job you're doing now anyway 
For your second question, see Should I try to maintain a 'healthy alkaline' environment in my body?
Julia 
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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Knochen
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| Joined: | Wed Oct 17th, 2007 |
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Posted: Sat Jun 7th, 2008 01:24 |
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What sort of work do you do? Does it involve physical labor in the sun, or just exposure?
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seanlane
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Posted: Sun Jun 8th, 2008 02:45 |
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Just sun exposure in a hot climate, but you know what after looking into the information at bacteriality.com and how much it ties in with everything I have experienced I am at a point if I have to dress like an eskimo from AlaskaI will do it.
The understanding of the VDR information is very compelling, and the photos of what is causing my bipolar/chronic fatigue/neuropathy make me sick and sorry at the same time. I don't have any D test yet....don't even know how to go about that.
I do know I have got one doctor who wants me to take 100,000 iu of vitamin D a week---did not do that.
I think I have always had problems with L-form bacteria Had,psoriasis from when I was very young....then after cat scratch fever I was diagnosed bi-polar after mania than depression...then food sensitivies....then after trying to treat food sensitivities with accupuncture....I developed uncontrollable spasms -diagnosed as Guiann Barre, now food sensitivites and neuropathy and fatigue ,moodswings occur like they are one illness...now I really want to kill these things. I am glad I read more into the VDR thing, other wise I don't think I would see things accurately enough to try and take th right measures.....any suggestions welcome.
I always sensed everything was related somehow in all of these years of fighting,
I havent started but I am really glad I stumbled on this website
Thanks,
Sean
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expate
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Posted: Sun Jun 8th, 2008 03:38 |
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Glad you "stumbled" too. Sometimes it takes a fall to show us the way up.
 dette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 ng/ml (4/08), 25 - D 34 ng/ml (8/08), started Ph1 7/17/08, Covered up. NoIRs. Home low light.
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seanlane
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Posted: Mon Jun 9th, 2008 01:48 |
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I can only access logged in status through received links in my e-mail.
Even when I change the password and reset the cookie it will not allow me to login, it happens every time, what can I do?
Thank You
Last edited on Mon Jun 9th, 2008 01:49 by seanlane
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natalie17
Advocate
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Posted: Mon Jun 9th, 2008 02:11 |
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Seanlane,
I have merged your most recent question into your existing thread - this is your personal thread, please continue to ask any future questions here. Even if they are seemingly un-related.
I will see what I can do for you re. your login difficulties.
Update; Sean, there is no problem with the site. Suggest seeing the 'forgot my password' link at the bottom of the login page. Note that you would not be able to respond if you weren't already logged in (even if it is via email links).
Natalie
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Severe CFS/ME already heading back to health thanks to the MP (into my second year..) Natalie's Story | ABCofMP
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seanlane
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Posted: Mon Jun 16th, 2008 14:15 |
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| Where are some good places to start looking for noIR sunglasses?
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Knochen
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Posted: Mon Jun 16th, 2008 14:24 |
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http://www.noir-medical.com/ 
You want amber lenses, 10% and 2%
Style #35 are the "fashionable" wrap arounds and best for general wear if you don't need fitovers. http://www.noir-medical.com/spectrashield_all.htm
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Julia
Advocate
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Posted: Mon Jun 16th, 2008 16:18 |
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| Sean, I've merged this question into your own personal thread - please ask all your questions here for continuity. To find your own thread if it isn't visible, click on 'My Account' at the top of the page, and it will show you all the topics you've posted in.
____________________
Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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seanlane
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Posted: Thu Jun 19th, 2008 03:46 |
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Which noIR amber is best? 10% or 2%?
What advantage do fitovers offer ? I am assuming less light?
What do the majority of people on MP order?
Thank you so much,
Sean
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seanlane
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Posted: Thu Jun 19th, 2008 04:31 |
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I noticed that Dr. Marshall states that accupuncture is okay for moderating IP.
I was doing accupunture for food sensitivities,CFS, and anxiety.
It seemed like it was really working to offset my symptoms.
Then my immune system went haywire after a virus and I had uncontrollable muscle spasms that started in my left leg and eventually encompassed my whole body.
The fatigue and weakness that I was trying to get rid of became completely overwhelming....much worse than anything I had before..not to mention pain shooting up my legs.
After a neurologist diagnosed me with Guinne-Barre Syndrome, I was too weak to go back to accupunture. After 4 weeks I went back......and to my horror the accupunture ignited a firestorm of symptoms within 5 minutes after the treatment.
Now I am wondering what effect does accupuncture have on the immune system.
I know there are different accupuncture treatments, but do they modulate the immune system?
And for some people, are there instances when their immune function could be ramped up too much?
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natalie17
Advocate
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Posted: Thu Jun 19th, 2008 07:08 |
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Sean, I've merged this question into your own personal thread - please ask all your questions here for continuity. To find your own thread if it isn't visible, click on 'My Account' at the top of the page, and it will show you all the topics you've posted in.
Click "Reply" on any post in your thread to ask a new question.
Most members get both the 2% and the 10% NoIRS. 2% for use outdoors, and 10% for use indoors (especially when looking at the computer or television screens).
The fit over style is handy for people like myself to 'fit over' reading glasses. So, if you use them, you can wear your regular reading glasses underneath.
Suggest you read NoIR Sunglasses.
See Acupuncture
You may also be interested to read Massage & Physical Therapy.
Regards,
Natalie
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Severe CFS/ME already heading back to health thanks to the MP (into my second year..) Natalie's Story | ABCofMP
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seanlane
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Posted: Sun Jun 22nd, 2008 02:17 |
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I know from reading that Benicar is likely to produce IP[herx],
But I have also read testimonies that say Benicar was so anti-inflammatory that they felt better when taking it.
I understand at different dosages it can vary these states.
My question is- When you increase the dosage of Benicar,say, to make your symptoms more tolerable, does that mean you kill less bacteria?
Last edited on Sun Jun 22nd, 2008 02:18 by seanlane
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seanlane
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Posted: Sun Jun 22nd, 2008 03:31 |
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I am having a hard time trying to stay in my thread, when I ask questions sometimes it is in the thread sometimes not........what do I need to make sure I do?
Also, where do I post my diagnoses, 1,25 D test etc,
Is there a way to access a list of MP topics without going to somebody elses questions to look for them?
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seanlane
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Posted: Sun Jun 22nd, 2008 03:45 |
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Seanlane....Body temperature
Does body temperature affect immune function?
I am pre MP, have a myriad of bad symptoms...the list keeps growing...probably like the bacteria.
For ten years I found some relief in taking regular hot baths that would induce sweating for 30 min. or so after geting out.
My symptoms would get worse as I lay feeling like I was gonna die from the agony.
After a some time had passed I would gradually feel better..and then better than I had before I took the bath.
It seemed the more I did this, the easier it was to get thruogh some pretty bad days,
feeling worse to feel beter.
Does body temperature effect the immune system, or are you just releasing endorphins?
And is it unsafe to do this when doing the protocol?
Moderator Note: 3 posts here. others moved to thread. Thank you.
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natalie17
Advocate
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Posted: Sun Jun 22nd, 2008 05:06 |
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Hi Sean,
To reply in your own thread (ask a new question), just hit "Reply" in the top right hand corner of anyone elses response.
Suggest you read -
BENICAR-Basic Information
How does Benicar work? Should I take it every six or eight hours?
When you have had your D-Metabolites tests, please see;
Help with Understanding D-metabolite for expert analysis and help with understanding your results.
You may access a lot of frequently asked about topics on the page ABC of the MP.
I don't think body temperature affects immune function. You may like to read this interesting link.
Hot baths on the MP often increase your immunopathology. See explanation in;
Why isn't the MP working? what am I doing wrong?
(If you hit Ctrl and F at the same time it'll bring up a 'find' box and you can search for 'bath' in it .. this trick is especially handy for the ABC of MP I mentioned above...).
Best,
Natalie
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Severe CFS/ME already heading back to health thanks to the MP (into my second year..) Natalie's Story | ABCofMP
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seanlane
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Posted: Tue Jun 24th, 2008 18:07 |
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I am going to start MP in the fall, I really want to folow it to the letter and feel that I stand a better chance of avoiding sunlight then. I can't see myself with gloves on in 108 degrees in August!
I recently read a book that I am sure makes the well-informed folk at MP squirm a bit
that puts the MP in a top five list of treatments for Lyme.
I think it is in the top one of one.
However...is there anything I can do now other than avoiding vitamin D to gain a possible if even slight advantage over my pal Mr. Biofilm during the next three months while I am waiting?
Are anti-microbials such as Samento gonna kill anything?
On your mark, get set, Herx!
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Julia
Advocate
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Posted: Wed Jun 25th, 2008 22:01 |
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Sean,
Take care with reducing vitamin D and avoiding light. Some people find it starts immunopathology, and without the help of benicar, things can get quite uncomfortable.
See Should I wear NoIRs, avoid natural light exposure and eliminate vitamin D before starting Benicar?
As to whether other treatments can do any good, Dr Marshall would say no, and some members would say they have had some minor good effect. Personally I would say, start the MP sooner rather than later. You're going to be on it quite a while, so you'll have to get used to wearing gloves in hot weather sometime!
Julia 
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Sarcoidosis, uveitis, hypercalcaemia, osteoarthritis, eczema. MP May 04.
Leading a full life - good old MP! Julia's story
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