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harp
Member
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Posted: Sat Sep 29th, 2012 00:31 |
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dealing with Sarcoidosis, just flared up
just like to hear from others with Sarcoidosis, how MP working and looking for doctors in Sacramento CA. area. thanks
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Diagnosed with Sarcoidosis, initial X-ray in 1995 showed enlarged Lymph nodes, but no major symptoms besides fatigue. In August 2012, started feeling tired, watery eyes, blurry vision, shortness of breath, flu or allergy symptoms. went thru all the tests
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Sallie Q
Board Staff
| Joined: | Sat Aug 9th, 2008 |
| Location: | NSW, Australia |
| Posts: | 1098 |
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Posted: Sat Sep 29th, 2012 00:51 |
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welcome to this forum, harp
I'm not a sarc sufferer, came to this through Sjogrens
but I can give you a short list of MPSS 'sarcies' who have found MP and posted progress summaries for public view 
Bevin Black progress
cathys2007 Alumni
Deb...my story!
Donna still cruising ...
Gene's alumni updates
Guss Story
JohnMcC's progress
JohnP's progress
JRFoutin Milestone Markers
Julia's reflections
PatrickBurke's progress
Sedona progress
best regards
Sallie
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index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
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Chris
Support Team*
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 801 |
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Posted: Sat Sep 29th, 2012 05:06 |
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It's working fine, but it can appear to be tediously slow when you are in the midst of it.
If you want to hear things appropriate to your case, you should open up a bit and tell a bit of your story. Every sarcie seems to have trod a different path to and through diagnosis and treatment.
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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harp
Member
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Posted: Wed Oct 3rd, 2012 17:55 |
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MP supporter in Kaiser health
I have appointment with my doctor with month at Kaiser. Not sure if he will support MP. Would like to know if someone under Kaiser Ins. had MP treatment.
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Diagnosed with Sarcoidosis, initial X-ray in 1995 showed enlarged Lymph nodes, but no major symptoms besides fatigue. In August 2012, started feeling tired, watery eyes, blurry vision, shortness of breath, flu or allergy symptoms. went thru all the tests
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Cynthia Schnitz
Board Staff
| Joined: | Tue Jul 29th, 2008 |
| Location: | USA |
| Posts: | 3328 |
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Posted: Wed Oct 3rd, 2012 19:17 |
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Be prepared for your doctor to turn you down, as most of the plans of this type are very constraining on their doctors. If you get one that is interested in the idea but feels constrained, try to offer to buy the generic olmesartan on your own from one of the on-line Canadian companies, as the price of the name brand Benicar locally is so expensive, most insurance plans balk at using just one tablet a day. You would still like to ask for a prescription for the olmesartan (written in multiples of 90 or 180 tablets), but reassure the doctor you will not being going down stairs to the local pharmacy to fill it, as that would undoubtedly cause all kinds of fire works.
Here is the best documentation to give the doctor as this was written with doctors in mind, http://autoimmunityresearch.org/preprints/Proal2010CellularMolecularImmunologyPreprint.pdf .
Here is the link for asking for the doctors list. I believe there is a doctor in Roseville (I have a friend there, so checked it out), but he is pretty pricey.
Requesting a list of area doctors (please click here)
Welcome to our forums, Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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