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IamPsalm84:11's Questions moved to MP site July '12

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IamPsalm84:11
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Joined:	Mon Apr 30th, 2012
Location:	Laurel, Mississippi USA
Posts:	20
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Posted: Wed May 2nd, 2012 05:30

Quote

MP hopeful
support needed

I just wanna feel better. I'm too young for this. I'm fed up. I refuse to accept that this will be my life. I have an appointment with a young doctor, and I've researched all of this. But I am having so much trouble organizing it in my brain that I'm afraid I still don't k ow how to successfully pitch this to my doc. Frustrated and hopeful.

____________________
MP not started/ currently looking for MD/ bipolarism d2008/ joint and muscular pain mimicking rheumatoid arthritis (runs in family)/ brain fog (over simple words, such as "foot"; extreme fatigue from minimal exertion/ ADD symptoms/ adult acne

Sallie Q
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Location:	NSW, Australia
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Posted: Wed May 2nd, 2012 07:48

Quote

Hello young hopeful

This is the comprehensive material we recommend to print off for your doctor

http://autoimmunityresearch.org/preprints/Proal2010CellularMolecularImmunologyPreprint.pdf

The first thing doctors usually worry over is Olmesartan taken at 4 to 6 times the daily dose used for other treatments.

| .olmesartan/safety |

Essential reading for those about to commence the Protocol follows. Once you keep these in mind, you will feel more confident and that usually will impress the doctor that you understand what you are contemplating
| .pre-MP checklist |
| .safety warnings |

and we ask you to help us both by making a signature line along these lines and updating it whenever you get a v.D 25 blood test
| .signatureline |

ps I took months to get my head around this, and I still have such trouble trying to recall something from the back of my mind, some days worse than others
Sallie

____________________
index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences

IamPsalm84:11
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Joined:	Mon Apr 30th, 2012
Location:	Laurel, Mississippi USA
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Posted: Wed May 2nd, 2012 15:42

Quote

I hope my sig line is better

I have printed all of the info and will bring it to the doctor's office today to give him an opportunity to review it. My appointment is on Monday.

Any and all tips are welcome and appreciated.

Thanks so much!!!

Cynthia Schnitz
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Joined:	Tue Jul 29th, 2008
Location:	USA
Posts:	3335
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Posted: Wed May 2nd, 2012 17:25

Quote

You have a PM (Private Message), where it says '1 new message', upper right. Cynthia

____________________
MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress

y
Member

Joined:	Sat Oct 9th, 2010
Location:	USA
Posts:	45
Status:	Offline

Posted: Sat May 26th, 2012 05:48

Quote

IamPsalm,

This is in reply to your post in sstarli's thread:

Are you able to travel any distance? If I'm reading the map correctly, looks like you're about 3 1/2 hours from Memphis, TN. One thing you can do is click on your state location (under your user name where it says "Joined: Location:...". This brings up a map of the US. When you click on a state it gives you the names of members from those states. So, if you can travel, try states around you. If you've said somewhere you can't travel, sorry, this won't help you.

People with the most posts are your best chances. PM them and ask if they can point you to a possible doctor. They may not be able to help - their doctor may not be willing to take more MP patients, or other reasons. But it is worth a try.

You do live in an area where there are not many members with many posts - I realize you have a difficult challenge and it's frustrating. good luck.

____________________
lyme, cfs; 125/25D 77/38 (8/10)

IamPsalm84:11
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Posted: Sat May 26th, 2012 23:30

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Thank you so very kindly, y, for the info. Unfortunately, traveling isn't very nice to my body. However, I may very well be willing to travel just to get to the point at which traveling won't do me in for several days. I have always loved to travel, and my declining health has made it nearly impossible for me to tolerate. Thanks for the pointers. I shall definitely give it a shot.

y
Member

Joined:	Sat Oct 9th, 2010
Location:	USA
Posts:	45
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Posted: Sun May 27th, 2012 06:57

Quote

IamPsalm,

I understand. If I had to travel right now I couldn't do it, either. I lucked out - my doctor said 'no' for the first 25 minutes of my 30 minute visit and then all of a sudden said 'ok'. It helped that he knew how difficult Lyme is to treat and that I had tried everything else he could think of.

I checked the other site and I don't see anyone there close to you either. If you can't travel, other members aren't going to be much help to you, due to where you live.

I realize that a large part of the problem is you can't even get to a doctor to ask them if they'll do it without paying the huge first-visit fee and going through the exertion of a potentially useless visit. It is so hard to get past the 'front office'.

Guess you've already thought of these ideas:
put the word out to friends and relatives what you're looking for and ask them to ask their doctors if they'd be willing.
target doctors or nurse practitioners just setting up an office that don't already have a full load of patients - they might be more likely to answer a letter or return a phone call.

You've already heard the other essential advice which is to get as well educated as you can on the protocol so that when your opportunity comes to argue your case you're ready.

Maybe someone will come into your life that is willing to donate a day to drive you to a farther away doctor. Perhaps check at local churches and see if they have people looking to do a good deed? It may be even with a driver you're not up to going so that may not help either.

Have you had your D level tested yet? That's one thing you can do without a doctor - at least the D25, not sure you can get D1,25 without a script. It will make you feel like you're getting started. And you can read up on the glasses situation and look into welding glasses or NoIRs so when you find the doctor you're ready to go. Small consolation compared to not having a doctor, I realize.

____________________
lyme, cfs; 125/25D 77/38 (8/10)

IamPsalm84:11
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Joined:	Mon Apr 30th, 2012
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Posted: Sun May 27th, 2012 21:49

Quote

Well thank you for all of your info, again!! I didn't realize that I could get my D level tested w/o a script. The only thing is I dunno how long it'll be before I find a willing doctor, so would it really be beneficial to get that done now if I could possibly not even rely on the values/results due to the possible passage of time between the test and my finding a doctor? And, no, it isn't the driving that does me in -- it's the travel altogether.

Cynthia Schnitz
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Posted: Mon May 28th, 2012 03:53

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It would be fine to wait. Some people start to have some strange effects if they start to cut down on the D while waiting to get a doctor, so maybe you could just go easy on the D sources on general principles while waiting for the doctor, and back off the D reduction if it causes problems. Cynthia

y
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Joined:	Sat Oct 9th, 2010
Location:	USA
Posts:	45
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Posted: Mon May 28th, 2012 06:00

Quote

Yes, IamPsalm,

Just like Cynthia says - it is fine to wait. It's up to you - your personality and the way you want to do things. Me - I'd want the information, but I didn't mean to give the impression it was something you needed to do - got lazy at the end and didn't put all the if's and's and but's around it.

And like Cynthia says, there are downsides if you start trying to lower your D before you start the Olmesartan because you won't have the protective effects of the Olmesartan on board.

The upside is if you're one of the people that has trouble getting your D level down - then you're at least making some progress while you're trying to find a doctor - assuming you don't have a bad reaction to avoiding D sources - and assuming your level isn't already down.

I'm going by when I found the protocol. I already knew my D level was high so I was going to be working on that even if the doctor I wanted to say yes wasn't ready to say yes yet. So it was helpful for me to know it. The rule of thumb, I think, is to test D level in the 3-6 month range. You can throw that in when deciding if you want to test it or not.

The testing was really just meant to be a small thing you could do to start feeling like you were doing something. Sometimes taking one small step on a project can give us ideas for other challenges the project presents. The main thing is keep reading and you've already heard that plenty of times.

____________________
lyme, cfs; 125/25D 77/38 (8/10)

IamPsalm84:11
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Posted: Mon May 28th, 2012 23:21

Quote

and I have certainly not read enough, yet. There's so much information, but that's a great thing. Many times, I have found that a possible source of treatment may be touched on and get my hopes up only to find that there's just not enough information. Thank you for pointing to at least a starting point. Baby steps are DEFINITELY the way for me.

IamPsalm84:11
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Posted: Fri Jun 1st, 2012 18:29

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Just wondering..........is there anyone out there who has actually COMPLETED the protocol? My doc said that I'd probably have to go to an entirely different state to find a doc willing to prescribe the MP. He did raise one point....he said he'd looked over the info I gave him (don't know how extensively), and he didn't find any "evidence" of efficacy that the medical community could use. Any pointers on either of these issues would be great!!!

IamPsalm84:11
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Posted: Fri Jun 1st, 2012 19:10

Quote

Can one initiate the MP without a physician in the US?

Frenchie
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Joined:	Tue Aug 25th, 2009
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Posted: Sat Jun 2nd, 2012 08:54

Quote

This forum has members who have experienced improvement on the MP:

http://www.marshallprotocol.com/forum46/

It is not feasible to do the kind of double blind placebo study that is the basis for most drugs coming onto the market, but as a general rule patients who start the MP do so because other treatments have not worked for them, and a good number have exerienced benefit.

You may be able to find a web site that will sell you the necessary medications without a prescription, it is not recommended to go without a doctor but it is ultimately your decision.

____________________
Gulf War Syndrome, 1,25D 62 pg/ml Oct09, Ph1Jan10, 25D 12.9 ng/ml Nov 10

IamPsalm84:11
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Posted: Sat Jun 2nd, 2012 16:51

Quote

Once it is "completed", and one is discontinuing the protocol, what is to be done to keep the bacteria at bay? Or is Th1 spectrum one of those "forever" things that one would have to treat prophylactically? I haven't been able to find a clear-cut answer to the latter on the knowledge base or otherwise. Plus, I ASK FOR PRAYER, AND LOTS OF IT! I spoke with a new doctor with a private practice, today, and HE LISTENED! He listened to what I had to say about what I've been through that's brought me to this point; he listened to what I had to say about the research I've done on the protocol, he immediately questioned Benicar as a treatment modality for bacterial overload when I mentioned it and perked up just as quickly when I issued my rebuttal regarding its organ-protective properties and its activity on VDRs!!!! He's asked me for a week for him to research all of the info (mpkb AND posts on this forum because there is no other evidence)!! PLEASE PRAY GOD'S WILL IN MY LIFE REGARDING THIS ISSUE, AND FOR HIS FAVOR IN THIS SITUATION!!!! PRAYER WORKS -- I'M LIVING PROOF!!!

Last edited on Sat Jun 2nd, 2012 19:16 by IamPsalm84:11

Chris
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Location:	New Jersey USA
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Posted: Sun Jun 3rd, 2012 03:21

Quote

Efficacy? Ask the doc what he has that has 'efficacy' in producing a cure for bipolarism or RA or chronic fatigue. He's got nothing but prednisone and prozac.

The way my doc said it was 'There's nothing else that cures sarcoid, so why not try the MP - benicar and antibiotics aren't dangerous.'

And for CFS, you can show him the recent presentation by Inge Linseth
http://www.youtube.com/watch?v=2IMdAV6SIM

____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story

IamPsalm84:11
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Posted: Sun Jun 3rd, 2012 03:27

Quote

Hahahahaha!!! Right?! Very well said, Chris! Actually, I told this new doc what the other doc said about CFS' not really being "recognized" as a diagnosis in this area. He responded, saying that it's not so much that they don't recognize it as it is nearly impossible to treat. So, I said, "Benicar". He said, puzzled-looking, that Benicar is a blood pressure med. I rebutted with the evidence that I'd studied on the knowledge base, and he was very impressed and said he knew exactly what I was talking about re: the VDR. So, back to the CFS, I asked him if he'd feel better were I to call it "myalgic encephalomyelitis" (also picked up from the knowledge base), and he laughed and said that made him feel MUCH better!

Thanks for the link. I will be sure to bring it to his attention. Also, I'm not afraid to ask for prayer more than once....no such as too much!

Sallie Q
Board Staff

Joined:	Sat Aug 9th, 2008
Location:	NSW, Australia
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Posted: Mon Jun 4th, 2012 21:47

Quote

my prescription for losing a Reply
is
type your Reply on Wordpad first, Notepad may do if it is short.

Then copy and paste here. It is bad enough to lose a reply in normal times, but if your RA sx are playing up it is utterly frustratin

____________________
index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences

IamPsalm84:11
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Location:	Laurel, Mississippi USA
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Posted: Mon Jun 4th, 2012 22:17

Quote

That is a very, very good idea. I will try to remember to initiate that practice!

It will be later, though....

IamPsalm84:11
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Joined:	Mon Apr 30th, 2012
Location:	Laurel, Mississippi USA
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Posted: Tue Jun 5th, 2012 18:36

Quote

Can anyone elaborate on the use of prescribed and OTC therapies versus Quercetin for IP? I'm not able to find any information in these forums on Quercetin save its name and the fact that people take it for IP. I have found it on the search engines, but I haven't really been able to make the connection.

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