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Cynthia Schnitz
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| Joined: | Tue Jul 29th, 2008 |
| Location: | USA |
| Posts: | 3335 |
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Posted: Wed Feb 22nd, 2012 17:27 |
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We have quite a few people on the MP in their 70's. I don't think you can be too old, but some people are too sick. Not that they would not benefit, but some people are so sick that the little bit worse they get on the MP at the start can be just that little bit more needed to push them over the edge. You will have to decide for yourself if you think you can take a little worse symptoms and survive. I know we had one member that said she really didn't care if it killed her, as she had reached that point of not caring any more. It has been a long pull for her, but she is no longer worried about her survival any more.
Cynthia
PS. I don't think your doctor realizes the difference in price is about a factor of 6. It is the difference between being able to do the MP, or not being able to afford the MP.
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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sstarli
Member
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Posted: Thu Feb 23rd, 2012 22:02 |
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Cynthia Schnitz wrote:
We have quite a few people on the MP in their 70's. I don't think you can be too old, but some people are too sick.
That's not me, at least I don't think It is I have always been a lot younge physically and mentally than I am so even though I felt like crap for the last few days and I do have TH1, 2 and no telling what else, it doesn't have me.
I took your advice and stopped trying to cut out eveything until I have the benicar and then I will get serious but until then I am going to not sweat it. I think my immune system turned on when I weaned from predisone. Anyway I made it.
I didn't go to the uroloist so I am still not on antibiotics and hope I can stay off of them until I start the protocol. She gave me a script for xanex they sincerely help me. I am not sold on the antidepressant and think I may just stop that. The only antidepressant I need is to be able to walk and drive, I do appreciate the xanax though.
Not that they would not benefit, but some people are so sick that the little bit worse they get on the MP at the start can be just that little bit more needed to push them over the edge.
You will have to decide for yourself if you think you can take a little worse symptoms and survive. I know we had one member that said she really didn't care if it killed her, as she had reached that point of not caring any more. It has been a long pull for her, but she is no longer worries about her survival any more.
That is exactly the way I feel, so what if it kills me, I'm dead anyway, as far as I'm concerned, and this is my shot at life and I'm gonna do it! Thanks for telling me about the member who went down this road before me and gave me hope.
I'm going to practice the quote feature and try to use it. Today is the first time I've felt like doing anything except whinning and sleeping.
Thanks again for all that you are doing for us that have no hope......and that is a lot!
sstali
Cynthia
PS. I don't think your doctor realizes the difference in price is about a factor of 6. It is the difference between being able to do the MP, or not being able to afford the MP.
Unless this is covered by medicare she and I will discuss this when I go back.
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Sallie Q
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| Joined: | Sat Aug 9th, 2008 |
| Location: | NSW, Australia |
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Posted: Thu Feb 23rd, 2012 22:44 |
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anti-depressants
IMO best not to "just stop" : like many meds, best to wean down
that way you find out if maybe you need a little to stay on even keel enough to follow through on committing to MP, but probably not need quite as much as a busy doctor prescribed, [possibly to guard against suicide risk... treating depression is a tricky business for both patient and doctor  ]
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index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
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sstarli
Member
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Posted: Wed Feb 29th, 2012 17:55 |
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Sallie Q wrote:
anti-depressants
IMO best not to "just stop" : like many meds, best to wean down
that way you find out if maybe you need a little to stay on even keel enough to follow through on committing to MP, but probably not need quite as much as a busy doctor prescribed, [possibly to guard against suicide risk... treating depression is a tricky business for both patient and doctor ]
Hi Sallie,
It's been several days since I posted; I was waiting to feel better. I do feel some better today
I have huge blisters on my upper legs that the Dr. said was vascular something It would probably hurt if I had feelings in my legs.
I have absolutely no energy I don't feel like getting out of bed and I don't most of the time.
How do I apply to join the study site, do I need to be on the protocol before doing that? I have been waiting to get those prescriptions, but I wan't to be ready and if it's not necessary to wait I want to get started. I am sure my Dr. will write the script but if for somme reason she doesn't I'm going to get the medicine without a script. I think I will go ahead and use the links I got from someone on where to get Olemesartan without a prescription.....just in case
Thanks again for all that you do for those of us who had no hope. I am so excited about beginning the Protocl but I am trying to be patient, which just may be the lesson I'm supposed to learn from this. As a rule I am a very immpatient person or was.
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Sallie Q
Board Staff
| Joined: | Sat Aug 9th, 2008 |
| Location: | NSW, Australia |
| Posts: | 1099 |
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Posted: Mon Mar 5th, 2012 22:15 |
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sstarli
how are your blister? I'll offer the link that may help
| .skin |
also look around the site MPKB for cardio vascular info
while you are waiting for the prescription
go over your preparations
| .pre-MP checklist |
| .light limits |
| .tools for MP |
Print out, attach to your refrigerator and carry copies
| .emergency |
Good preparations can be the best thing for reassuring your doctor
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index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
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sstarli
Member
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Posted: Sat Mar 10th, 2012 19:05 |
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Hi Sallie,
I have been having internet malfunctions, bad weather, Iguess.
My blisters pop up, burst and leave a red spot. Doc said it was vascula vialitis...not sure of spelling but it has to do wth inflammation of the blood vessels. My whole body is inflammed probably.
We are starting the Marshall Protocol not this coming Monday but the next. I was so dissappointed that I didn't get the prescriptions last Monday but she has been doing lots of reseach and she feels like she will be better prepared if she educates herself another two weeks. I'm just thrilled that she has definitely made a committment to give me the prescriptions next Monday....Yeah.................
I'm reading every waking hour about this journey I am about to go on. I am so appreciative of those of you who are leading the way. Thank you just don't sound adequate for what is being doe for those of us who had no hope.
Has anyone ever had the itchies all over their body? I am tearin up my skin everywhere I can reach. The blisters don't itch or if they do I can't feel it. I have been taking benadryl evey 4 hours for over a week and it doesn't seem to help at all. It just makes me feel tired and sleepy and I do that enough without benadryl 
What prescriptions do I need to start? Benicar and minocycline I know but what othe atiibiotics . Hopefully the Dr. will know what to prescribe but I want to make sure.
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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CousinTC
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| Joined: | Wed Dec 1st, 2010 |
| Location: | California USA |
| Posts: | 172 |
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Posted: Sat Mar 10th, 2012 19:52 |
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Sstarli, You might want to tune in here at the Conference today...2PM PST
http://MarshallProtocol.com/conferences
You are welcome to join us
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MP Start Sept'10 | Lyme, Bartonella, Erlicilosis, Mycoplasma, Osteo Arthritis, FM, CFS May'09, Hypothyroid '97 | pain (right hip/leg, neck, ears, teeth, GI, low back, fingers), hypotension, | last 25D=9.5 ng/mL Sept'11
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Cynthia Schnitz
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| Joined: | Tue Jul 29th, 2008 |
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Posted: Sun Mar 11th, 2012 03:57 |
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No need to stock up on the ABx, as you don't really want to rush into them. Wait and see how much the olmesartan affects you. However, you may want to stock up on some of the things we use to palliate if the immune system gets going too fast. Quercetin, Guaifenesin, Benadryl cream and capsules. Cynthia
PS. Don't buy any Azithromtcin, as we don't want anyone in the early years of the MP using it.
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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sstarli
Member
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Posted: Mon Mar 12th, 2012 00:44 |
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CousinTC wrote:
Sstarli, You might want to tune in here at the Conference today...2PM PST
http://MarshallProtocol.com/conferences
You are welcome to join us
I don't have any speakers for my laptop so I couldn't hear the conference but I put where I can find it when I get speakers. Thanks for the invite
I am getting my blood work done tomorrow to start the MP next Monday. I will keep in close touch after I take the first dose of Ben
ss
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Sallie Q
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| Joined: | Sat Aug 9th, 2008 |
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Posted: Tue Mar 13th, 2012 01:20 |
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If you are using windows (i.e. not Apple Macintosh), then look along the bar which says start with a flag in four colors [at one end of the bar].
Down the other end you should find a grey circle with a smaller circle at one side inside. That is the speaker Volume icon.
When you click on it you can adjust the volume of your internal speaker, push the bar up to hear the conference.
Later you can push the bar down again so your ears are not blasted every time there is a typing error or something else the computer wants your attention for 
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index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
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sstarli
Member
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Posted: Tue Mar 13th, 2012 02:18 |
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Sallie Q wrote:
If you are using windows (i.e. not Apple Macintosh), then look along the bar which says start with a flag in four colors [at one end of the bar].
I have a fairly new Acer Laptop. The only flag on my tool bar has nothing to do with sound. It says "your files are not being backed up". I don't know that having backed up files is all that important anyway, lol.
There is a small speaker on the tool bar and it's all the way up. I was sure it should be lowder that that. If I had ear phones they work just fine. Hopefully my ears aren't being attacked by the "critters". lol. Well they better have a field day cause they are being declared war upon.
Down the other end you should find a grey circle with a smaller circle at one side inside. That is the speaker Volume icon.
When you click on it you can adjust the volume of your internal speaker, push the bar up to hear the conference.
Later you can push the bar down again so your ears are not blasted every time there is a typing error or something else the computer wants your attention for
I think I need to take it to Best Buy and make them fix or adjust it I have done everything ...I can't even use net flix because I don't have ear phones or speakers. I am sure a real computer knows exactly what to do but I'm lucky just to know how to do what little I can do, lol. But.................I'm learning. I'll let you know if I can find the things you told me were on my tool barto increase the sound, and they are not  So, obviously I'm not clicking in the right places, lol.
I have windows 7, btw.
Thanks for the help sorry I'm so puter stupid, but I am going to get it
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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sstarli
Member
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Posted: Tue Mar 13th, 2012 02:54 |
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Hey Sally,
What is a sound card and how can I tell if I have one or not? That may be the problem. I just took for granted that it would be included in the laptop, but knowing what I'm beginning to understand is everythng is "extra" so that may be the answer. Where would I find the sound card?
Thanks
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Sallie Q
Board Staff
| Joined: | Sat Aug 9th, 2008 |
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Posted: Tue Mar 13th, 2012 05:35 |
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I guess it's one of those tiny little things inside the box
but my streak of geek done run out, starli
the only cards I know of come in 4 suits
____________________
index to MPKB | MP Sep'08 depression'65, breast cancer'90, Sjogrens| sx CFS, low adrenal,ADD,migraine,BCC; mild stroke, RA| MP conferences
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Cynthia Schnitz
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Posted: Tue Mar 13th, 2012 16:30 |
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"I think I need to take it to Best Buy and make them fix or adjust it I have done everything"
I would do this for a start, just to make sure you have the sound up as high as it can go. You know, you don't need much of an ear phone. I have old ones, even single ear bud ones, I have been hanging onto for years. Maybe you could check around with friends and relatives, and I bet someone has something that would do. Sometimes they come with phones.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Chris
Support Team*
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
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Posted: Tue Mar 13th, 2012 19:34 |
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It would be pretty unusual for any laptop made in the last 5 years to not have speakers, or at least a headphone jack.
What's the make & model? Most likely we can find the instruction book online someplace.
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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sstarli
Member
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Posted: Tue Mar 13th, 2012 19:55 |
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The volume is all the way up and it does have sound but it won't get loud enough to hear without a head phone which wouldn't be a problem under different circumstances as head phones are inexpensive but I am unable to get them and those who can keep forgetting when they go into town It usually isn't a problem but I really wanted to hear the conference.
If I get it figured out or find someone to take it to best buy I'll let you know what the deal is. AS I said it is fairly new and it has sound it just isn't loud enough to hear without head phones or speakers of some kind and I can't find out why.....yet
Thanks you guys for the help
sstarli
____________________
lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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sstarli
Member
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Posted: Sat Mar 24th, 2012 22:55 |
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Another dissappointment
I'm done with Doctors I can do this with your help. I need the urls for the places I can get the medicine withut a pescrion. I'm gonna do "come hell or highwater"
I had another MRI done will see the results Monday. Lyme disease must be loving the treatment I've been doing for neurosarcoidosis. I feel like "they" are killing me.
I can't eat have lost lots of weight everything I try to eat turns to acid and it is horrible. What could be causing this. If I ask my Dr. she will just "give me sommething for that"
I will the meds as soon as I get the addresses. I think Cousin T sent them to me but I can't find them. I'll keep looking though.
Thank you guys for all that you are doing for us who had no hope.
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Joyful
Foundation Staff
| Joined: | Fri Oct 19th, 2007 |
| Location: | North America |
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Posted: Sat Mar 24th, 2012 23:21 |
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Hello sstarli.
I'm sorry for the disappointment.
However, we are not able to provide support without you obtaining a healthcare provider to follow your treatment.
Try to be patient with the process and use the delay to learn more about the treatment so you can present a confident face to the next doctor you interview.
http://mpkb.org/home/index
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Search the MP Knowledge Base __ Be Kind, We Are All Fragile
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sstarli
Member
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Posted: Sat Mar 24th, 2012 23:38 |
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Being patient has never been my "long suit" but now it's harder because of my age I don't think I have the time to let the medical professionals give me more drugs.
I will find a doctor somewhere.
I found the url's I was wondering and both drugs I need are out of stock and April 1 is the earliest they will have either of them. Then it may take 6 weeks to get them. I may be dead by then whine whine
I have been pretty ill, I can't stand at all now and the neuropathy is getting mmuch worse.
I keep reading and hoping and Thanking God for you guys.
sstarli
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lyme disease, neurosarcoidosis,neuropathy, bladder and bowel incontinence, constant uti, toenails curling up and peeling back, skin dry and flakey, hole in retina in right eye and no telling what else.
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Cynthia Schnitz
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| Joined: | Tue Jul 29th, 2008 |
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Posted: Sun Mar 25th, 2012 02:46 |
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____________________
MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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