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Ending Benicar
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Hobbit
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 Posted: Thu Feb 2nd, 2012 00:04

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My wife is trying to find some help with getting off the 4 a day Benicar, anyone out there that can help her?
Her pain is nearly unbearable and her spasms are almost constant. She is taking hydro every 3 to 4 hours now; although only supposed to take them every 8 to 12.
She has not seen any progression with the protocol, only deterioration. How can she slowly eliminate the Benicar without causing a risk to her life? (We were told that if she were to stop altogether that she would find herself in the ER and may die.)
I know there must be someone who has the right information, could you just share it with us and our MP doctor.

Carricol
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 Posted: Thu Feb 2nd, 2012 01:23

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Hi Hobbit.  Sorry to hear that your wife is having somany problems. 
Could you please provide more information.

How long has she been on the MP?

What is she taking besides Benicar?  Any other medications?

If she is on anti-biotics have they been suspended?

What is her diagnosis?

It sounds like this is herx.  Is there anything else going on?  What has she done to try to dampen it back?

Has she tried guaifensen and quercetin? 

http://mpkb.org/home/mp/managing_immunopathology

If she needs to wean off Benicar see below.  Please be advised that Patients who stop olmesartan are terminating their recovery:

http://mpkb.org/home/mp/break/olmesartan

Please be advised that the herx reaction can make one feel like their symptoms are getting worse.  This is not regression.  Instead it is strong indication that the immune system is active and doing what it is supposed to do. 

http://mpkb.org/home/protocol/immunopathology

 

Last edited on Thu Feb 2nd, 2012 01:30 by Carricol



____________________
Sarcoidosis, Arthritis, Fallen Arch, Vascular Insufficiency, Cataracts,fatty liver,low thyroid,diverticulosis, Fuchs Dystrophy, depression| 1,25D 16 (Oct08) | Ph1 Nov07, Ph2 Jan08, Ph3 May 09 Ben Only: Jun 10- Sep 10|Break Sep 10-Dec 10|Resume MP Dec 10|
Hobbit
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 Posted: Thu Feb 2nd, 2012 04:08

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Carricol

My wife's diagnosis is MS
She has been on the protocol for 14 months and has gone the full cycle,
Benicar started in Jan 2011
Myno started in Feb 2011
Stopped Myno in April (I believe) as she was progressing well without it.
Started Guaifensen and Quercetin in Sept. after starting Myno up again in July (She had a bad time when she started again).
Had some swelling and spasms were the reasons for Guaifensen and Quercetin also tiredness.
She has ramped up the Benicar to six a day on several occasions and is currently 4 daily.
Finally started taking Hydro 500 and Tamsulosin in Dec. for pain. First week or two she could go up to 10 hours on one Hydro with a Tam after about five or six hours. Now she is taking Hydro every 3 hours and sometimes in between she will take tam.
I need to research spasm drugs, as I believe if we could control the spasms a bit she would not have to take the pain meds so often.
We have tried to stay as close to the recommended diet as possible and avoiding everything possible that we can.
Used cane to assist in walking until May or June last year then used walker around house and wheel chair when we went out. Now is using wheel chair to get around a little in the house. She needs my assistance to shower, I do all the cooking, cleaning, and household chores. Along with that I work 40 hours a week and care for our livestock.
I have read about taking a break from the protocol, they say to replace the Benicar with Valsartan but the protocol does not say how to wean off the valsartan. She needs a break from the pain as she cannot get more than 30 to 35 minutes of sleep without having a spasm. Her longest period of sleep in 3 days lasted about an hour and 35 minutes. She cannot find a comfortable way to sit and lying down is a no-no.
Right now her muscles are tense from her toes to her shoulders and radiating down her arms.
Yes, we are aware that ending the Benicar is ending her recovery, we need help as she is getting very bad.....suicidal I'm afraid.

CousinTC
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 Posted: Thu Feb 2nd, 2012 06:29

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Dear Hobbit,  I hear that you and your wife are suffering.  Beating this disease has been, by far the hardest most painful event of my life.  It takes a long time and the sickness does not leave easily.  If your wife decides to terminate her recovery, that is a decision that you both have to make.  Maybe taking a break for a bit would be an option for you and her with the intent to regroup and stabilize and then begin again.

At 14 months, I was just barely beginning to turn the corner.  It took my body right close to 18 months to get past enough of the horrible pain and anguish that had been plaguing me for me to realize that the MP would work for me and was working for me.  I hope you two don't stop just shy of this miracle. 

I know this disease can be relentless.  I have lived through that and am still living through it but it is getting better, much better.  No one told me this would be easy.  It is tough but for me, there is no other way.  I have tried everything else.  I have had to dig my heals in and fight tooth and nail for my life.  It has to come from the inside.  There is no other way, at least, not for me.

I have passed on your message to the Moderators and someone should be getting back to you here regarding the use of Valsarten in getting off Benicar as safely as possible.  If your wife chooses to take a break or terminate, I put a link here for you: http://mpkb.org/home/mp/break

I wish you the best, CousinTC



____________________
MP Start Sept'10 | Lyme, Bartonella, Erlicilosis, Mycoplasma, Osteo Arthritis, FM, CFS May'09, Hypothyroid '97 | pain (right hip/leg, neck, ears, teeth, GI, low back, fingers), hypotension, | last 25D=9.5 ng/mL Sept'11
Joyful
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 Posted: Thu Feb 2nd, 2012 06:30

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We would like to continue assisting on the main site. Is this your wife's last post?

   http://www.marshallprotocol.com/view_topic.php?id=14172&forum_id=19&jump_to=226473#p226473



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Hobbit
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 Posted: Thu Feb 2nd, 2012 18:49

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Joyful,
The link you gave me is to the study site and I do not have permission to go there. She has posted several times and now I have joined in order  to find help.
She cannot reason very well anymore and her memory is getting worse than mine.
All I know is that her pain is mine and I want it to stop. We now at a point where I will more than likely have to make a lot of decisions about her health care.
Also had "good" (ha ha) news today, as of the 30th of January our insurance provider will no longer cover our MP doctors office visits (because he is helping her with the MP) and they will no longer cover any medical device or procedure that has anything to do with the Protocol as it is experimental and investigatory. Thank You Blue Cross Blue Shield. Next we will probably have our Med provider drop any scripts from said doctor. Insurance is a wonderful thing.......pay for 45 years and not have over $10 K in claims (at a time when it costs $500 for an office visit) in that time then when you need it the most they drop coverage because you don't want to go to a MS doctor who can tell your wife "that with a bunch of steroids she may live another 3 years in a wheel chair".
We are still in a discussion about the MP.

Joyful
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 Posted: Fri Feb 3rd, 2012 04:28

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Tough place. My heart goes out to you and your wife. :(
We are working to get you an account on the main site.



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Marty.K
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 Posted: Fri Feb 3rd, 2012 18:59

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Hi Hobbit

Is your wife still on quercetin? Some people get spasms or cramps from taking it. If she is still on it, stop it to see if that the cause. You should see a difference in about 2 days, if shes getting a bad reaction to it.



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AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs, :D
Hobbit
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 Posted: Mon Feb 6th, 2012 01:22

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Marty,
Yes, she stopped the quercetin quite a while back as we thought it may be causing some of her problems (water retention in legs and feet plus spasms were stronger, upped the benicar to help with spasms(5 then 6 per day). We went to ER on Thursday, Dr. there prescribed fentanyl patch, and baclofen. She actually feels pretty good most of the day. Spasms still there only less painful and not as strong or so close together. We help the fentanyl with tramadol 2 to 3 times per day. Still 4 a day benicar and have added Ibuprofen to help with swelling and water retention.
Will try and check back in when ever possible (every 2 or 3 days).
Thanks for your concern and the information.

Dr Trevor Marshall
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 Posted: Tue Feb 7th, 2012 22:32

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See my note in the BCG thread about potential Tramadol problems.
 

PeterHK
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 Posted: Tue May 1st, 2012 01:19

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I'm wondering what the BCG Thread is...



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MP October'08 (no breaks)
DX: Asymptomatic lung Sarcoidosis 97' after radiotherapy for a seminoma in the testis in 1995..
03' prednisone for lung sarc.
08' Sarc in kidneys, uveitis and hypercalcemia, mild anemia.
12' Gout, Creatinine 2.4mg/dL
Cynthia Schnitz
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 Posted: Tue May 1st, 2012 02:13

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Peter, I have answered this in your thread, here,
http://www.curemyth1.org/view_topic.php?id=1375&forum_id=7&jump_to=41291#p41291

You can get more on BCG by putting it in the search box above.

Cynthia



____________________
MP start 10/08 (no breaks),Spondylitis'97,early Diverticulosis'98,early AMD'08,Calcium anomaly'95,TypeII Diabetes(?)'02,Degenerative hip disease'12, 25D=8.6ng/mL 1/14(preMP 125D/25D=47/43) My progress: http://www.marshallprotocol.com/forum30/13911.html

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