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proto
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Posted: Mon Mar 31st, 2008 18:31 |
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Hello,
After several months, the doctors said that i have a fibro but they don't know the type. I asked for doctor in Quebec on marshall protocol but there is only one clinic and I have to wait severals months and may be it will be too late.
Can you tell me if I can do Marshall Protocol and also if you know a clinic that can be received me quickly.
thank you,
best regards.
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Julia
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Posted: Mon Mar 31st, 2008 21:26 |
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Hi Proto, and welcome!
Do you mean you have fibromyalgia? If so, the bacteria that cause it are slow-growing, so you have time to read as much as possible about the Marshall Protocol, and you're going to need to, because you're going to have to educate your doctors. There are no expert MP doctors yet, so even if you found a clinic willing to take you on, you would still need to understand the treatment for yourself.
Most of us have found our own GPs more open to new treatments than our specialists. First, learn all you can. Next, print out some of the MP information (some of it is in French at this link) to take to your doctor.
See Suggestions To Get Your Doctor On Board With the MP.
To verify that the MP is the right treatment for you, ask your doctor to test your D-Metabolites. When you get the results, post the actual numbers in the Preliminary test results forum (see What to include in your preliminary test results report) for expert analysis because results within the normal lab ranges can still be abnormal. For details see Vitamin D Tutorial.
Phase One Guideline
Simple Explanations
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol.
Julia 
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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proto
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Posted: Tue Apr 1st, 2008 13:11 |
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Thank you for your answer Julia,
The only thing i know it is a Pulmonary Fibrosis but they don't know the type.
I asked my doctor for marshall protocol but he said that he will check it but until now there is not answer. Even I ask for D-Metabolites test he don't want to prescribe me the test. So now, i 'm looking for another one. I hope that i will find it qucikly. The main problem is to find a doctor that can give me a prescription to do the
D-Metabolites test, after of course i can post my result online.
best regards
proto
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proto
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Posted: Tue Apr 1st, 2008 16:15 |
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My pneumologist said that i can be put on cortison, this is for the reason that i prefer to follow marshall protocole(benicar) instead of cortison.
proto
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Julia
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Posted: Tue Apr 1st, 2008 18:05 |
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Good for you, Proto! 
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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proto
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Posted: Thu Apr 3rd, 2008 01:45 |
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Thank you julia for your encouragement.
I 'm now waiting for a MP doctor that i found in marshall protocol website I have a appointment in 2weeks.
I have a lot of muscular pains and I can't move a lot because of my lungs.
I read that the phase 1 takes about 3 months but how long its take to reduce Vitamin D to the correct level for MP.
thank you.
proto
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Knochen
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Posted: Thu Apr 3rd, 2008 10:36 |
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I read that the phase 1 takes about 3 months but how long its take to reduce Vitamin D to the correct level for MP.
It depends on where your levels are when you start. I can take a few months to get the levels down if they are high to begin with. But even if your D levels are elevated when you start the MP, you should see some benefit. That benefit will improve as your D levels drop.
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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proto
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Posted: Fri Apr 4th, 2008 12:05 |
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Thank you for your answer,
I finally got my diagnostic from byopsie.
I got my diagnostic in French but i tried to translate it correctly.
"Fibrose interstitielle avec métaplasie cubique du revêtement alvéolaire Absence de granulome"
I have an interstitial fibrosis with cubic metaplasia of alveolar coating, there are no granulome
Do you know if someone have this kind of fibrosis and it's possible to follow Marshall.
After reading documents from marshall forum i think that yes, but i would like to get a feedback from members.
thank you
proto
Last edited on Fri Apr 4th, 2008 12:10 by proto
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JRFoutin
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Posted: Fri Apr 4th, 2008 21:45 |
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Proto,
I hope your biopsy result is enough to encourage your doctor about getting D-metabolites tests that Julia recommended. Keep trying.
You may also want to read:
Which diagnostic tests do I need?
What is a therapeutic probe?
(Another option to consider with your doctor.)
Good for you for doing your homework on steroids. Keep reading!
Best to you Proto--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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proto
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Posted: Tue Apr 8th, 2008 12:15 |
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Thank you for your support, i keep trying to get a doctor to support me in MP.
I am waiting my appointment with a new doctor that knows MP because my actual doctor don't want to follow me in MP  .
I have a lot of articulation pain. I know that MP will probably help me but i have to wait my appointment in about 10 days.
Do you know what can i do to reduce my pain by waiting to get in MP.
The pain is strong so i can't sleep.
best regards,
proto
Last edited on Tue Apr 8th, 2008 12:33 by proto
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Julia
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Posted: Tue Apr 8th, 2008 12:51 |
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Proto,
Please see Pain Control. Much of it is about adjusting the MP medications to control pain, but some is also about using non-MP meds - scroll down about 1/3 of the page to 'Pain Medications'.
I hope this helps - you need your sleep!
Julia
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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GeorgeinRollaMO
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Posted: Wed Apr 9th, 2008 00:48 |
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Hi, Proto,
I have used Vicodin for pain with success while doing the MP. One needs a Rx for it down south of you. Maybe, you have some left over as I did.
Another handy product that I use for getting to sleep is melatonin. However, too often all one can buy is the larger size tablets...like 1 (one) mg or 3 (three) mg. A book that I read written by an endocrinologist says that our bodies only produce 0.20 mg per day. I try to cut any tablet to get that 0.20 mg amount or less. The book says that if one uses more than the 0.20 mg, it will put one to sleep fast, but will also cause one to wake up not too long after going to sleep. That is what I found!
Wishing you, and all, wellness!!!
Dark Vader...aka, George
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Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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proto
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Posted: Sun Apr 13th, 2008 13:03 |
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Hello,
I'm the son of proto. Proto has been hospitalized for several days so she can't write on Internet. I will write for her by the time she will be in hospital.
She noted your tips for pain, thank you for your help.
We finally got from hospital the reason of her strong pain, it's a fibromyalgia.
She has an interstitial fibrosis and a fibromyalgia.
thank you again for your assistance,
son of proto
Last edited on Sun Apr 13th, 2008 14:37 by proto
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Julia
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Posted: Sun Apr 13th, 2008 20:59 |
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Hello Proto's son,
Thanks for letting us know that your mother is in hospital. Fibromyalgia is a common complaint among our members - it isn't really a separate disease, just the Latin for 'pain in the muscle fibres', which many of us have had. The MP deals with it
Please give your mother our best wishes.
Julia
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
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proto
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Posted: Fri Apr 18th, 2008 20:33 |
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Thank you for your great support.
I came back from the hostipal.
The hospital gave me a lot of medicament to control my pains.
After that, i saw a MP doctor on the marshall forum . he didn't recommend me marshall  because there is not a person that uses MP to heal my disease.
I have an Idiopathic Pulmonary fibrosis (IPF).
My lesions in my lungs is like some cicatrix, it likes a spider net.
he thinks that MP will not be helpful.
Are there some studies cases or patients with IPF?
Do you know a doctor with a IPF patient that follows MP ?
By the time, i try to reduce my inflammation with some products.
I keep hope 
Best Regards,
protoLast edited on Fri Apr 18th, 2008 20:35 by proto
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JRFoutin
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Posted: Fri Apr 18th, 2008 21:47 |
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Proto,
Naming conventions for idiopathic diseases (often associated with unknown cause inflammatory chronic conditions, and very often associated with lung involvement with very similar outcomes) should not alter the perception of whether the MP is applicable for your situation or not.
There is a better way to determine if the MP is right for you:
1. You and your doctor should read and understand:
Is the Marshall Protocol an Applicable Treatment for my Disease?
2. For further clarification whether your situation is applicable to the MP, your doctor will consider results from:
D-metabolites tests
3. Additionally, medical professionals should understand and use:
What is a therapeutic probe?
4. Further, your doctor should be requested to ask for clarity in the:
PRIVATE SECTION FOR HEALTH PROFESSIONALS
Th1 is often considered "idiopathic." As you indicated, the fact you were prescribed steroids makes one suspect the hospital interpreted you had an inflammatory disease process going on that they have no way to stop but by stopping the immune response associated with the disease.
CAUTIONARY WARNING FOR PATIENTS WHO MAY BE HOSPITALIZED
Which diagnostic tests do I need?
I hope you are able to work with a medical professional who is willing to use all the means above to sort through whether the MP is really applicable in your situation and I hope you will not accept less than the tried and true evaluation and testing processes described on the Marshall Protocol study site, and in the Marshall Protocol Phase 1 Guidelines.
Many of us have different diagnosis sub-category "names" associated with our parent-level Th1 disease processes, but there is significant overlap between one Th1 subcategory "pea soup" version and another. Don't get discouraged if your doctor calls your Th1 by a different name and suggests that is reason enough to disregard the MP!
Inclusion criteria for participation in ARF phase II clinical study of the Marshall Protocol
Best to you Proto--Janet
____________________
12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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proto
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Posted: Sun Apr 20th, 2008 00:25 |
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thank you janet for your answer.
They said idiopathic pulmonary fibrosis (IPF) because i don't have granulome.
I would like to do D-metabolites tests but I need a prescription.
The MP doctor that i saw didn't ask the question in the private section.
He said that there is not IPF case on MP so he didn't want...
He said also that MP antibiotics can destroy my lungs instead to help them.
I read on IPF that it are intracellular and extracellular, th1 and th2
Is there a health professionals that can ask for me the question in the private section ?
I continue to ask some doctors but it's very hard to get a doctor with a IPF on MP.
Also if you know a doctor with MP and IPF let me know
Thank you,
proto
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GeorgeinRollaMO
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Posted: Sun Apr 20th, 2008 03:31 |
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Proto,
If I may add my small bit to the good things that Janet has said to you...
Once any number of the fifty-three known pleomorphic bacteria get into one's body, they change to the L-forms, and take up residence in the macrophages of the immune system itself. This causes a soup or stew of them over time. And, a soup or stew of symptoms. The cause for all of the symptoms of chronic illnesses of unknown cause is the same... Th1 inflammation.... regardless of what the medical community has given the various sets of symptoms varying names. In many if not most cases of chronic illnesses of unknown cause, no two doctors will call any set of symptoms by the exact same name. It really doesn't matter what names they use, the cause is all the same.
The 125D and 25D tests will tell if you have the Th1 inflammation that is giving you your trouble. One does not need to have all of the various symptoms to qualify. Over time, you might develop more of the symptoms. But that only means your bacteria are proliferating!!!! and that you are getting worse. Are your doctors going to treat you ONLY when you get worse?
I would suggest reading the articles at http://www.bacteriality.com and the articles linked in the right hand column, including the Patient Interviews nearer the bottom of those links. They may help you to understand that it is all a soup or stew of bacteria causing a soup or stew of symptoms.
Wishing you, and all, wellness!!!
Dark Vader...aka, George
____________________
Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
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proto
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Posted: Sun Apr 20th, 2008 16:38 |
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Thank you for your link and your explications.
I could understand that I have a Th1 inflammation and also Th2 inflammation.
MP deals with th1, it is ok for me but how does MP work for Th2 inflammation.
PS : The doctor proposed me the cortison but i didn't want it.
best regards,
proto
Last edited on Sun Apr 20th, 2008 16:39 by proto
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Knochen
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Posted: Sun Apr 20th, 2008 18:19 |
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Proto,
Have a look at this link - you'll see that if you clear the Th1, you'll clear the Th2 as well
http://curemyth1.org/view_topic.php?id=505&forum_id=2&highlight=TH2
Good job refusing the cortisone. If it's such great stuff, let the doctor take it himself!
____________________
I can help you understand the recovery process, but only your physician is licensed to give you medical care.
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