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Bobby
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Posted: Mon May 24th, 2010 22:48 |
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Dear all,
I am a 40 yr old male, living in the south east of France. I came across the MP 1 year ago while conducting a search relating to low vitamin D. In April 2009 my 25 vit D was 13.3 µg/l and my 1,25 vitD was 20 ng/l, but I suspect the blood sample was not frozen, so I guess I could dismiss this value. In March 2010, my 25 vit D was 4.4 ug/l, while I was doing nothing at all to lower my vit D. Also my PTH is elevated most of the time, with high-normal calcium.
Despite battling a multitude of health problems for a long time (>20 yrs), the medical guys never found anything that they were very worried about. You know the drill, hypochondriac, stress etc… In March 2008, a hair test found high calcium, phosphorus and strontium, which may indicate bone resorption. Although no osteoporosis was demonstrated in spine and hip, I did get to find out about my low 25 vit D and high PTH. Further analyses into a possible parathyroid adenoma are pending.
My symptoms list is basically a who’s who of symptoms of the people posting on the MP sites. My major symptoms are mental problems such as memory loss, poor concentration and brain fog, fatigue, excessive sweating, high BP, chest pains, cardiac problems, breathing problems thought to be hyperventilation, exercise induced SOB (asthma?), IBS, muscle weakness, skin lesions (especially face and scalp) etc. I had mononucleosis in 2008, but I wonder if I ever really recovered.
Is it possible that a parathyroid adenome could develop as a result of Th1 disease? I suppose I do have a problem with my salt (calcium) metabolism. For example, if I don’t drink enough water I retain water, showing as a big belly. Also, my endo sent me for a induced hypercalcemia test to see what is the cause of the high PTH. They gave me 3 grams of calcium and tested calcium and PTH several times within the following 2 hrs. PTH went down indeed, but the thing is that I felt pretty bad starting the day after with headaches, fatigue, cardiac troubles etc., which lasted over 3 weeks. Did anybody ever have a problem like that? In general, I am pretty sensitive to interventions in my body chemistry, so I am a little wary of all the pills that the MP involve...
I seem to have problems specifically with the left side of my body: left sided headache and neck ache, bloodshot eye, ear ache, pain in the left shoulder, left sided chest pains, pain down the left arm, left tumb twitching and pain, left knee popping, left great toe pain. Heart was tested OK. I wonder about this left side phenomenon. Anybody has something similar? Why could this be?
When I took some vit D supplements prescribed by my doctor, I felt pretty lousy after that, with an increase of cardiac and other symptoms. This was the same when I took 20 µg (~400 IU) of calcifediol, or 0.25 µg of alfacalcidol (# IU?). When I eat foods containing this amount of vit D, I don’t suffer much. Any thoughts on this? I do seem to have problems with carbohydrates occasionally, is this common for Th1 related afflictions?
I am planning to start the MP, but MP doctors in France are scarce, to say the least. I am trying to try to convince my doctor of the merits of the MP, but of course with no guarantee of success. I would very much like to know if anybody in the south-east of France managed to get a doctor on board for the MP, and would be willing to share the data of the doctor in question with me by PM. I have posted on the ‘requesting a doctor’ topic on this forum, but the only French doctor on the list is 5 hrs away. If I have to I will go there though.
Does anybody know by chance whether there is a lab in France that does a reliable 1,25 vit D test?
When browsing the posts on this site, I often find the links to the marshallprotocol site and the tinyurl site not working, showing a message saying that I am not allowed to view the topic. Could anybody provide any clue as to why this is happening?
Thanks for any response!
Bobby
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Joyful
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Posted: Tue May 25th, 2010 11:50 |
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Hello Bobby. 
You asked: "When browsing the posts on this site, I often find the links to the marshallprotocol site and the tinyurl site not working, showing a message saying that I am not allowed to view the topic. Could anybody provide any clue as to why this is happening?"
The answer is that some topics on the main study site are only visible to members on that site.
I'll try to get back to some of your other questions when I have more time. Perhaps some other members of our support community will reply as well. 
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Marty.K
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Posted: Tue May 25th, 2010 17:26 |
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Bobby,
You can try http://mpkb.org/doku.php it has all the information you need to find out about MP.
You can also ask the lab technician after they draw blood that you want to watch them put it in the freezer since its so common for all the labs to make mistakes.
If that doesn't work again, you can try the therapeutic probe to see if you if you get any IP
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs, 
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Cynthia Schnitz
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Posted: Tue May 25th, 2010 18:32 |
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Had I known that the only reliable lab in the US had just become unreliable when my significant other was preparing to start the MP, I'd have insisted that the packaging for the sample had a big label on top of it saying 'KEEP FROZEN UNTIL ANALYSIS'. Don't know whether they would have done it for me or if it would have helped, but at least there would have been hope of getting a meaningful result. Personally, your symptom set says TH1 to me, and I'd go with the MP if I were you no matter what the result of the 1,25D test.
I had a calcium problem, different from yours, which is why I started the MP (calcium problem pretty much gone after a few months on MP). And it was a return of my odd symptom after a single dose of high vit. D that brought me to an article about the MP.
While you are waiting to get things lined up for going on the MP, start by being very careful about light exposure to the eyes, as this is a very common reason for brain fog. I recall two totally inexplainable incidents, exact repeats, of coming to the stop sign at the end of a particular off ramp from the freeway, and I didn't recognize where I was. This is the way I'd gone home from work for most of the 20 years I worked at the same place, and lived at the same place. After starting the MP, I realized that I had been driving into the setting sun for half an hour, and I was suffering a sun flare (I never wore sun glasses). If I'd known that my foggy brain might have been helped by protecting my eyes from the sun, I might not have been in such a hurry to retire early before anyone noticed that I had out lived my usefulness as a test engineer in an aerospace research group.
Avoiding vitamin D, food and sun, may also act as a mini therapeutic probe. You will likely see some changes.
Cynthia (my story link in my signature line)
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Bobby
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Posted: Wed May 26th, 2010 22:14 |
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Thank you very much for your responses Joyful, MartyK and Cynthia, it’s great to feel support on my MP quest. I hope I will make it, with the support of my wife (and 4yr old daughter!). Many have, so why not me?!
About the links, I was just wondering why I don’t have access because these links were provided to members of this site, as I am too. Are these links only opened up to those members that are offered the link? I am not sure I get it. Sorry for being so dense…
I do plan to ask next time to have the sample frozen for the 1,25 vitD test. How they treat it at the other end I won’t know of course. It seems the blood was sent to Paris (from Marseilles) and it was taken on a Friday afternoon. Maybe I can find a lab here where they do the test themselves, a hospital maybe?
I suppose that my symptoms are consistent with Th1-mediated disease. I have not previously mentioned many of my problems, such as insomnia, frequent urination, mood swings, eye floaters, dry skin, stiffness, fasciculations (thought it was ALS), back pain etc. I must forget a few. My mother also has a range of problems, and in hindsight my father had as well. I suppose I better start the MP asap, if I would like to try to reestablish my usefulness as a biochemist. I am currently not able anymore to perform at the level I should, and I do not have gainful employment. So in my case I guess I don’t want to outlive my usefulness before this even has really begun. Hope it’s not too late, considering the French attitude to hiring older employees. Well, I understood that in the USA this is much less of a problem! I will see.
I did not know that brain fog can be induced by sun light in the eyes, I never consciously experienced these mental problems in connection with light exposure, but I will pay more attention now. I did get very tired at times after a walk, or have palpitations when being in the sun too long. In any case, my most severe problems have mostly occured at night. Could that have anything to do with the circadian rhythm, having light reactions half a day later? I have not been able to clearly relate it to food intake. Stress of course does no good, but this is universally true, except in Th1 patients it is probably exaggerated.
I guess for me, a mini therapeutic probe was the fall of my 25 vitD over the past year, when it went down from 17 to 4.4 µg/l. I noticed I have fewer cardiac and intestinal problems. Unfortunately I am more tired than before and the brain problems are worse. It seems to have been a shift of the type of problems for me. How is that for a therapeutic probe? One other thing: never in my life have I felt so bad as when I was in the USA for half a year. I figure now this was related to the vit D fortification there. Kind of a reverse therapeutic probe!
I still hope that somebody in France can help me out with a MP doctor.
Thanks again.
Bobby
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Marty.K
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Posted: Thu May 27th, 2010 04:16 |
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I'm not sure about your links problem. You will have to be more specific. Maybe you can post one of them.
I never got my 1,25D tested before starting. I tried getting it done, but the results never came back. This is why I am saying just make sure you watch them put it in the freezer and check the temperature. I should have done that my self.
I also had some mild reactions when avoiding vit d. But it really became obvious when I started Olmesartan and even more when started Minocycline.
All the answers to your questions are in the MP Knowledge base. There is allot of information to take in. So just keep on reading....
I never found a MP Doctor where I live. But, once you do enough reading. You can teach the doctor you already have.
Good luck
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AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
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Bobby
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Posted: Thu May 27th, 2010 07:39 |
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Hello MartyK,
Here is a link that works for me:
http://www.marshallprotocol.com/forum30/12971.html
Whereas this one about light sensitivity doesn't:
http://www.marshallprotocol.com/forum32/7328.html
These links come from a random post on this site, but it's the same everywhere for me. I actually have done my share of reading on the MP, but often very interesting links to patient testimonies are not working. I hope I am not missing something obvious (but unfortunately it happens).
It appears that the responses to changes in vit D (down or up) are not the same for everyone, but I suppose that my vit D sensitivity and my very low level (4.4 µg/l, without avoiding vit D foods or light) indicates Th1. I was looking for some kind of confirmation that I already have. Sorry!
To get a French doctor on board, I am a bit limited since there is not so much MP literature available in French (but I am glad that there is some!). I am not sure at all if my doctor is willing to read in English. I do find my way alright on the different MP sites so it's up to me now. Wish me luck!
So to sum up my questions a bit more concisely (see first post for details):
- Can a primary hyperparathyroidism (adenome) be a side effect of Th1 disease?
- What could be the reason of my left-sided problems?
- Why am I so sensitive to low amounts of vit D supplements but not very much so to vit D in food (in roughly comparable amounts)?
- Are there other French MP doctors that are not on the list?
- Why are certain links provided on this site not working for me?
I understand that the answer to none of these questions are essential to starting the MP! Still, any feedback is highly appreciated.
Thanks a lot!
Good luck to you all,
Bobby
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Joyful
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Posted: Thu May 27th, 2010 17:26 |
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Hello again Bobby.
Looks like you have a good attitude for finding a path to recovery that works for you!
Question: Can a primary hyperparathyroidism (adenome) be a side effect of Th1 disease?
A: Yes.
Question: What could be the reason of my left-sided problems?
A: I don't know, but I am your mirror twin. Almost all my worst troubles are on my right side. Especially dental issues with right molars... root canals, etc.
Question: Why am I so sensitive to low amounts of vit D supplements but not very much so to vit D in food (in roughly comparable amounts)?
A: Real food seems to be handled by the body much more efficiently than synthetics. So that would be my best guess. I have noticed the same thing about calcium in food v.s. supplements.
Question: Are there other French MP doctors that are not on the list?
A: I don't know the answer for you on that.
p.s., the first link is to a forum that is visible to the general public... the second link is to a forum that is only visible to members of the main study site (and it is to the deprecated/older FAQs). The latest information is typically available at the MP knowledge base here: http://mpkb.org ... and there is a fairly good search tool for it.
Last edited on Thu May 27th, 2010 19:43 by Joyful
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Bobby
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Posted: Thu May 27th, 2010 20:31 |
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Alright Joyful, thanks for taking the time to respond. I guess the take home message is: everything you need is on the mpkb site! That is a formidable site indeed. I'll just stay tuned for a potential response about a French MP doctor, and I'll leave you to do more important things. If I have questions that are worth your while I'll be back (almost sounds like a threat....).
Bye bye!
Bobby
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Joyful
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Posted: Thu May 27th, 2010 21:58 |
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Should I be worried? 
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Bobby
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Posted: Thu May 27th, 2010 22:48 |
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In fact, yes! I was trying to open some tinyurl.com links from the PDF file on Phase 1 from the mpkb site, and I cannot open them either. For example: http://tinyurl.com/4bere doesn't work. I really think there is something fishy with my computer settings. Or am I persona non grata?!?! Is the tinyurl site also restricted? Any explanation here?
Bobby
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Joyful
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Posted: Thu May 27th, 2010 23:12 |
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That's a link to older FAQ. The information referenced is now in the MP KB at this page and included links. See: http://mpkb.org/home/tests
The ball is now back in your court.
p.s., I'm actually not having that great of a day, so I've been hanging around the forums waiting for easy questions to come up. Just don't ask me the quadratic formula, or anything particularly scientific.
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Marty.K
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Posted: Thu May 27th, 2010 23:14 |
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Bobby,
I wanted to check this out for my self, to see if you are right. While I was trying to find the phase 1 document, I came across this which explains your problems:
We are reorganizing our capabilities to cope with rapid growth over the past few months, and you have caught us right in the middle of those changes.
Until our new support software is in place, if you are not already a member of the study cohort, we would ask you to post any questions you have about this notice, the study, or the MP at the CureMyTh1.org site. ** Ask your Questions in Here **
from this link: http://curemyth1.org/forum2/1309.html
I understand your concerns and that this might be irritating to you.
____________________
AIH, ITP, 25D5.2 June10, Phase1 Nov09, Olmesartan 40mg q4hrs,
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Cynthia Schnitz
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Posted: Fri May 28th, 2010 15:54 |
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| Marty, that is a year and a half old. C
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=10.1ng/ml 12/12, (preMP 125D/25D=47/43) | My progress
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Bobby
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Posted: Mon May 31st, 2010 21:49 |
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Alright alright I got it! The MP sites are in constant motion as they get updated and reorganized, so don't get stressed when a link doesn't work, just look elsewhere, especially on the mpkb site. Did I get that right? In any case, even if I do get irritated at times (I have a nasty temper sometimes..), I quickly realize that the mere fact that I am cruising around on these sites means that probably one day I will be well again. Irritation quickly disspates. I am not going to complain, and I recommend all of you who are putting a lot of time into helping the people that have questions and need help witht the MP, even if it is something trivial such as old non-functional links!
Sayonara,
Bobby
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Joyful
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Posted: Tue Jun 1st, 2010 06:19 |
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Hi Bobby.
I understand that the MP treatment helps to mellow you out a bit.
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Marine
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Posted: Thu Sep 30th, 2010 21:29 |
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bonjour,
Je viens de lire votre post sur le site.
Je recherche un médecin en France pour un protocole Marshall.
pourriez-vous m'aider ?
Mon mail : marine.kerouredan1@wanadoo.fr
Cordialement,
Marine
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