| Author | Post |
|---|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Thu Jan 10th, 2008 21:57 |
|
| When applying for life insurance, I was rated higher because of my (recent) history of sarcoidosis which I'm told is grouped in the cancer family. Is that correct? or should I fight them on that. Maybe I'm not understanding where Sarcoidosis fits into the grand scheme of things. I have it on my skin and that's it so far as I know. Last edited on Thu Jan 10th, 2008 21:57 by shenderson
____________________
"Idaho Shelly"- Sarcoidosis
|
Julia
.
|
Posted: Thu Jan 10th, 2008 22:56 |
|
Hi SHenderson,
Welcome to our Marshall Protocol questions board. Our expertise is in helping people learn about a new antibiotic treatment for sarcoidosis and other 'autoimmune' diseases, which is having a very significant success rate (see Marshall Protocol Success Stories).
We now know that Sarcoidosis is caused by Cell Wall Deficient (CWD) bacteria, which have learned to live within the very cells of the immune system that are supposed to kill them. The Marshall Protocol (MP) is the only treatment currently in use that can help your immune system to kill the CWD bacteria. The standard treatments such as Prednisone and other immunosuppressants will only allow the bacteria to flourish and multiply, without anything to kill them.
Some researchers are finding evidence that cancer may be very similar. See Cancer and Th1 inflammation.
However, that's probably not why your insurers bracket them together. Perhaps they treat them as similar in terms of seriousness of the disease, incapacity expectancy, life expectancy, etc. Sarc is a systemic disease, so if you have it on your skin, it's likely that it's in other organs too, and will eventually show other symptoms as the bacteria multiply. I'm not trying to scare you, but the earlier you catch it, the easier it should be to clear the bacteria from your system.
If you do some reading here or on our main study site http://www.MarshallProtocol.com, you'll meet a group of people with various 'autoimmune' diseases, including many with sarcoidosis, being treated with the MP, and a high percentage of us have got our lives back. It's well worth investigating! No-one is trying to sell you anything - we have to get a doctor to prescribe the medications, and just ask the MP moderators for advice, which is given freely.
Here are some links you might like to have a look at:
Sarcoidosis Facts
"What is the Marshall Protocol?"
Simple Explanations
Hypervitaminosis-D Symptoms
The Marshall Protocol is relatively new, so your doctor probably won't have heard of it yet. If you want any further information, don't hesitate to ask here at your own personal thread.
Good health!
Julia 
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Sat Feb 9th, 2008 03:09 |
|
This contains all natural fruit juices so it does have Vit D in it. I'd like to use it if it's approved. I've seen amazing healing with it and maybe it will help keep us generally healthy?
Here's a link from their website at http://www.buildthejuice.com:
Monavie - Vitamins & Minerals
Thanks,
Shenderson
____________________
"Idaho Shelly"- Sarcoidosis
|
Julia
.
|
Posted: Sat Feb 9th, 2008 08:11 |
|
SHenderson,
I've merged this with your earlier question, as we like to keep each person's questions in their own individual thread for continuity.
You can save yourself a lot of money by switching from this very expensive juice blend and eating real fruit and veg instead! Monavie (click for ingredients - which I found hard to find - they're not very forthcoming with details) removes most of the fibre that fruit comes packaged in to prevent us over-consuming, and adds the preservative sodium benzoate, which is known to cause health problems in some people.
Fruit doesn't have vitamin D as a rule. But 'Monavie Active' has added glucosamine from shellfish shells, so it might have D. It also contains 'Esterified Fatty Acids' made from beef fat.
Please see Why do I have to stop my alternative treatment and avoid most supplements?
Julia
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
|
Chris
Support Team*
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 803 |
| Status: |
Offline
|
|
Posted: Sat Feb 9th, 2008 21:11 |
|
I have it on my skin and that's it so far as I know.
Sarcoid is systemic, it will spread, if it hasn't already. You should take a look at the hypervitaminosis-D symptom page, to double check now whether you have other th1-associated symptoms, and keep checking.
http://www.marshallprotocol.com/forum2/2588.html
Chris
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Sun Feb 10th, 2008 22:30 |
|
One of the biggest noticeable problems I've experienced that I think is related to Sarcoid is the lack of concentration, foggy thinking and slightly blurred vision. Are these from the sarcoidosis, and if so, will they clear up as the MP begins to work? I'm still tracking down a doctor to work with me on the MP. Approximately how much do the two drugs cost without Rx coverage?
Shenderson
____________________
"Idaho Shelly"- Sarcoidosis
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Sun Feb 10th, 2008 22:31 |
|
Oh, and I forgot, memory loss!
Shenderson
____________________
"Idaho Shelly"- Sarcoidosis
|
GeorgeinRollaMO
Member
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 332 |
| Status: |
Offline
|
|
Posted: Sun Feb 10th, 2008 23:34 |
|
Hi,
I just paid for some Benicar at Costco Online Pharmacy last week. Their price is now $930 for 480 tablets.
I get my mino from my medical insurance drug supplier....Medco. I pay $16 for a ninety day supply ... regardless of the mg size of the capsules.
Medco will not supply me with the Benicar. I went round and round with them on this. I lost!
What is ridiculous is that prior to the MP, I was taking human growth hormone (Hgh) at the suggestion of my med doc, which cost twice as much as supplying the Benicar would have. When I started the MP, I stopped the Hgh. The Hgh may have been instrumental in my getting a AMAS test score that said that I had cancer somewhere in my body, which the MP took care of. Hgh has been implicated in prostate cancer in men over 50. Did I ever save my insurance a bundle!!!!
Wishing you, and all, wellness!!! 
Dark Vader..aka, George
Last edited on Sun Feb 10th, 2008 23:37 by GeorgeinRollaMO
____________________
Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Sun Feb 10th, 2008 23:37 |
|
| Thanks George, wow! And how long does the Benicar last you?
____________________
"Idaho Shelly"- Sarcoidosis
|
GeorgeinRollaMO
Member
| Joined: | Sat Oct 20th, 2007 |
| Location: | Rolla, Missouri USA |
| Posts: | 332 |
| Status: |
Offline
|
|
Posted: Mon Feb 11th, 2008 00:00 |
|
Four pills per day.....about four months. That amount saves a little on postage costs, but more importantly, assures me a supply without my having to think much about it....often.
I have made the committment to be in this for the long haul. It took me three years to get my 25D down to below the magical test score of 20 ng/ml necessary to turn on the innate immune system. That is what supplementing very heavy with the product called 'vitamin' D will do to one. I started with a 25D of 61 ng/ml, and it rose a few more digits before it started down.
Wishing you, and all, wellness!!!
Dark Vader..aka, George
____________________
Borreliosis (but really Th1 inflammation). Start D values, July '04, 125D/57, 25D/61...over supplementation with D (fish oil).
|
Julia
.
|
Posted: Mon Feb 11th, 2008 07:16 |
|
Shenderson,
Yes, the 'brain fog' is from the sarc, and common to other chronic diseases. And yes, one of the greatest joys of the MP is when you start getting your mind back  . And your memory, though that takes longer, because short-term memory is in a different bit of the brain - so I'm told!
Julia
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Wed May 21st, 2008 22:03 |
|
Hi, I have been unsuccessful in finding a doctor to work with me on the protocol but will continue to look. I have a question though: my recent chest xrays and heart tests looked fine to my doctor and I've known about my cutaneous Sarcoid for about 5 years now- my question is the memory loss and mind fog, could it be neurological in nature and are there tests to see if it is Sarcoidosis affecting my mental acuity?
____________________
"Idaho Shelly"- Sarcoidosis
|
Julia
.
|
Posted: Wed May 21st, 2008 22:18 |
|
Shelly,
Why would you need further tests? We know that sarcoidosis is systemic and can affect any organ in your body, including the brain - the CWD bacteria hide out anywhere. Most of us have suffered some degree of 'brain fog' and memory impairment. Brain fog goes away on the MP. So does memory loss, eventually, but it takes longer.
Nice to see your photo! Please ask all your questions here in your own personal thread.
Please note: MP Memberships Temporarily Closed.
Julia 
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good!Julia's story
|
shenderson
Member
| Joined: | Thu Jan 10th, 2008 |
| Location: | Idaho USA |
| Posts: | 7 |
| Status: |
Offline
|
|
Posted: Wed May 21st, 2008 22:23 |
|
| Thanks, I know that's true but I am starting to panic as I can't get any help with this and feel very vulnerable professionally as I look for a new job.
____________________
"Idaho Shelly"- Sarcoidosis
|
seanlane
Member
|
Posted: Mon Aug 4th, 2008 21:29 |
|
Hey Shelly,
Hope you haven't stopped posting ...MP will work for you I am sure.
I had to go see Dr H....... in Arizona to get started....
I know she is out of state, but she can help you get started and help you get through the unsteadiness that you feel when approaching the MP, even if you just need someone to talk to who understands.She may be helpful in fnding a doctor near you as well.
The science is sound,
Sean
[Doctor's details removed for her privacy - moderator. Please use Private Messages.]
____________________
Bi-polar hypervitaminosis d neuropathy arrhythmias tinnitus MCS CFS food sensitivities 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8[Sept/08] 25D=11.7 July/09 Ph3 9/09
|
Chris
Support Team*
| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
| Posts: | 803 |
| Status: |
Offline
|
|
Posted: Wed Aug 6th, 2008 15:48 |
|
Shelly,
The brain fog and lack of concentration are definitely due to the sarcoid, See: Cognitive dysfunction in women with chronic disease: a summary of my upcoming presentation at the 2008 Days of Molecular Medicine conference
Chris
____________________
sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
|
Current time is 09:51 | |
|
