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Michael
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Posted: Fri Nov 20th, 2009 13:55 |
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Hello,
first of all: please indulge my bad english. Although I had advanced-course in school I may -better: I definately will- make mistakes in syntax or won't find the fitting words.
So, why did I sign up here?
My spouse suffers from multiple sclerosis and takes part on the MP. I began to read stuff about the MP, because I was interested in possibilities to stop her course of disease. The more we discussed about her symptoms, the more we found similarities. So she asked me to take the Vit-D-Test to find out if it's possible that I am suffering from a TH1-Inflammation, too.
Well, here are my results:
Vit-D3-25: 12,2 ng/ml
Vit-D3.1,25: 63,9 pg/ml
Seems signifikant, doesn't it? Ok, now I ask myself: should I take part in the MP, too? I like to discuss that with my partner's MP-Doctor, when she visits him in January next year (his surgery is far away from our location). So I still have time to think. I write this to you all, because I am interested in what you think about my case. Here are some informations:
I am 28 years old. In adolescence I had mood-swings, was often tired, flappable and so. In the following years these symptoms got worse, so in 2004 I went to the psychiatrist for the first time. He told me, I'd suffer from a lightly endogenous depression. I had to take meds against it for two years. This helped a little bit, besides my environment got better, so I could get off from meds in 2006. A little later I had an appendix-operation. My inflammation-values were that high, that I had to take antibiotics intravenous for a whole week. A few weeks after that my hairloss began. I still have enough hair on my head, but it became continouesly thinner until now. My mood-swings stayed beside me (they are more loyal than most people are...), but I could handle them. Nevertheless, it all got worse again, so I went to a psychologist (I didn't want to take meds again, so I prefered not to visit the psychiatrist again). Well, we've made a behavioural psychotherapy. I've learned diverse Techniques to handle with my symptoms, when they become too strong from time to time, but they haven't gone until today. Additionally since a year there is a new symptom, which I didn't know until this time: a sometimes very strong disturbance and an abstract anxiety (abstract means: I often don't really know, why I feel so anxious, but I do...).
Also I had physical symptoms during the last year: when I'm stressed out, I become dizzy, so that I sometimes have to sit down until it's gone. My right eye begans to „flicker“, and after these stressing situations I'm often tired, flappable and my mind darkens („Everything's bad! Nothing makes any sense! Everything tires and sickens!“ blah, blah, blah) Because of these physically symptoms I had several neurological tests. There were no noticeable results, except the fact, that my trigeminal nerv reacts lower than in average. The neurologist says, that's no alert.
Beside that I had following symptoms: I can't stand too bright light, I hate high temperatures, I don't like beer anymore (in younger years I drank lots of... today I prefer wine), my eyes sometimes feel like they burn (especially when I'm stressed out or emotionally down)... and, last but not least, I sometimes feel tired and agitated at the same time. This sickens me most, I guess.
When I look on my family, there are also many symptoms which eventually can be connected to TH1-Inflammation:
my father had lung-cancer (thank godness he's healty again), my mother has an anxiety disorder and low blood-pressure, my grandmother suffers from rheumatism, dementia, a light depression and had skin-cancer a few years ago, my grandpa is cardiac and hearing impared, my other grandpa died in 1992 because of lymph-gland-cancer and was a diabetic, my aunt (father's sister) suffers from a strong depression (four suicide attempts til now), another aunt (father's sister, too) has problems with her hip-joint.
I'm really not sure... does it make sense to start the MP? As I said, I want to think about it and then talk to my partner's MP-Doc. But I'm really interested in your opinions!
Regards,
Michael
Last edited on Fri Nov 20th, 2009 14:00 by Michael
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Depression (dx. 2004); D-25: 12,2 ng/ml, D-1,25: 63,9 pg/ml (tested 11/2009); Benicar s. 01/2010
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Cynthia Schnitz
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| Joined: | Tue Jul 29th, 2008 |
| Location: | Arizona USA |
| Posts: | 554 |
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Posted: Fri Nov 20th, 2009 16:50 |
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Just a member here, but your symptoms definitely sound like TH1. Your D values are worse than mine were (47/43), and I have made terrific progress in the last year on so many things that it is mind boggling.
http://mp-lifestyles.org/forum1/100-1.html
My improvement list is near the bottom of the page and is not typical, but you sound like you are pretty functional still. How long has your wife been on the MP, and how has she progressed? Will you both be able to handle things when you go on the MP if it slows you down greatly? For some it is worse than others. For me it wasn't a particular problem. In fact, it wasn't even much noticeable to my significant other, so that he is planning to go on the MP soon, and thinks it is going to be a piece of cake. He is a doubting Thomas, but says he will be pleasantly surprised if it does affect him. Snicker, snicker.  Cynthia
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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
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Michael
Member
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Posted: Sat Nov 21st, 2009 13:56 |
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Hello Cynthia,
thanks for your reply.
Cynthia Schnitz wrote:
How long has your wife been on the MP, and how has she progressed? Will you both be able to handle things when you go on the MP if it slows you down greatly?
My partner -we're not married- is on the MP since octobre. About her progress you can read something in her own thread ("Verena's questions")  . You're right, I am still working, there are no greater problems. She is working still, too. If the MP slows one of us down, it would be a bigger problem for her than for me, because she is a freelance lawyer with own chancellery whereas I am working as an employed remedial teacher in a big facility of the handicapped aid. This facility is affiliated to public service, which means, it wouldn't be a bigger problem for me to stay away from work for one or two weeks in case of slowed down by the MP.
Your partner thinks the MP would be a piece of cake? Errm, I disagree when I look at my partner's casually petulance (hope she won't read this  ).
Last edited on Sat Nov 21st, 2009 14:07 by Michael
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Depression (dx. 2004); D-25: 12,2 ng/ml, D-1,25: 63,9 pg/ml (tested 11/2009); Benicar s. 01/2010
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Cynthia Schnitz
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| Location: | Arizona USA |
| Posts: | 554 |
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Posted: Sat Nov 21st, 2009 16:33 |
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| Sorry about not using the word partner. It is a good word even for those that are married. Think I will start using it. It is easier to type that Significant Other. Have you thought what you two will do if neither of you can drive at night for a year or more? Dr. Blaney, the most experienced of the MP doctors, on one of the videos, says that he generally asks couples which one wants to go first. Don't think that is on the internet, but on the one of the videos offered for sale/donation, LAX 2006. Reviewing it, he wants couples to be on different phases, so that one is sort of over the hump (my words) when the next one starts. Certainly, I think Verena should be far enough along to have a good idea how her experience will be, as I see she is only near the end of her first month. Cynthia
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Ph1 10/08 Ph2 12/08 Ph3 6/09 125/25D 47/43 preMP 25D14 12/09 Calcium anomaly(gone?),Spondylitis,early Diverticulosis,early AMD,TypeII Diabetes(?) MyStory
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Verena
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| Joined: | Fri May 15th, 2009 |
| Location: | Germany |
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Posted: Sun Nov 22nd, 2009 11:56 |
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Hi Cyntia, hi all,
me and Michael just discussed his postings and realized, that he left out some symptomes, that in my opinion are quite relevant.
- his condition changes in a way, that reminds me of a kind of relapses
- from time to time he suffers from a light aphasia
- He reacts quite slow sometimes, for example, when he was a child, he had trouble catching a ball for that reason.
- The mood swings are really BAD! As far as I realize, his mood changes two or three times a day (but I am off working between 8 and 12 hours). Some time its as bad, that he seems to be a totally different person.
What I found most alarming, was, that his symptoms get worse in summer, especially at times, when we still found sunbathing a good thing to do :-(. He would get worse in the evening or on the next day. He gets a lot better in the cold. Last June, we spent a day indoor skiing, outside temperature was about 30 Celsius (hot!) and inside it was -4 Celsius, which is just below freezing temperature. We both felt way better, especially his mood was that good, that I hardly recognized him *ggg* (thats the return for "petulance").
All together, he and his symptomes reminded me a lot to my own condition a few years ago. When we received his VitD Tests, I was a little bit shocked, though, because his values where worse, than mine have been before starting Olmesartan. so actually, I think, that he is even sicker, than I am, as strange as this may sound.
Unfortunately, besides "Depression", up to now, he didn't get a proper diagnosis. The neurologial tests done in my opinion stayed quite on the surface, he was refused a MRI-scan for example. So, without something "significant" it could be hard to get Doctors in the region to cooperate...
Greetings,
Verena
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Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. 10/09
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paulalbert
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Posted: Mon Nov 23rd, 2009 13:24 |
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Hi Verena,
You might be interested in this article, which is mostly on on sunshine and depression.
http://mpkb.org/doku.php/home:othertreatments:sunshine
I haven't put it in yet, but there's another interesting paper on how sunshine can trigger flares in multiple sclerosis.
So, you're not alone in this regard.
Best,
Paul
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Verena
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| Joined: | Fri May 15th, 2009 |
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Posted: Mon Nov 23rd, 2009 17:55 |
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Hi Paul,
thanks a lot for the link. We just read a bit on the homepage of the German States Statistical Office at http://www.destatis.de/jetspeed/portal/cms/Sites/destatis/Internet/DE/Content/Publikationen/Querschnittsveroeffentlichungen/WirtschaftStatistik/Gesundheitswesen/AktuellSuizid,property=file.pdf
there is a study on the correlation of month and mortality by suicide (on page 10) of 2006. The results are actually significantly higher for Summer months. That does make sense!
Greetings,
Verena and Michael
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Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. 10/09
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paulalbert
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Posted: Mon Nov 23rd, 2009 18:27 |
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Verena,
I don't speak Deutsch but there's a good chance the study you point to and my KB article are pointing to the same evidence. I believe the chart in the KB article is of a review.
I agree - definitely food for thought.
Paul
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Michael
Member
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Posted: Sat Jan 9th, 2010 11:52 |
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STARTED OLMESARTAN
I've met my partner's MP-doctor, discussed my symptoms and showed him my Vit-D-Test-results. He thinks, that the MP might be the right treatment for me, but he isn't so sure, because my only diagnosis so far (depression) is no proof for an TH1-Inflammation. Nevertheless, the physician thinks that we should try olmesartan for a while to find out how I feel, because my symptoms (see top of the thread) in combination with my Vit-D-Test-results are strong references for the possibility of an TH1-Inflammation at hand.
So I take olmesartan since yesterday, at first every 8 hours (my partner also started with this cycle, but had to change to every 6 hours because of IPs).
Last edited on Sat Jan 9th, 2010 12:00 by Michael
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Depression (dx. 2004); D-25: 12,2 ng/ml, D-1,25: 63,9 pg/ml (tested 11/2009); Benicar s. 01/2010
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Chris
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| Joined: | Wed Oct 24th, 2007 |
| Location: | New Jersey USA |
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Posted: Mon Jan 11th, 2010 23:42 |
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Michael,
Now that you are starting the benicar, are you also avoiding light with the NOIRs, etc.?
Starting benicar can make light sensitivity a lot stronger.
Take care,
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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Michael
Member
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Posted: Tue Jan 12th, 2010 15:24 |
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Hello Chris,
thank you. I know, that taking benicar can aggravate light-sensitivity. My partner started benicar (in germany it's called "olmesartan") a few months ago and has to wear NOIRs from time to time, when her light-sensitivity raises.
Myself, I don't need them until now. I always was a little bit light-sensitive, when the sun shines to bright or when, like at the moment, snow relflects it. That didn't get worse with benicar until now.
Well, I recognized some other things:
- One week ago I had an inoculation against hepatitis. On my first day of taking benicar the puncture hurted a bit, in the next few days my whole upper arm did (like a light "burning")
- On the second day my face and eyes got "hot", felt like having fever, but my body temperature was ok (don't know if this is IP, because I had those feelings many a time before starting benicar.... it's not new to me)
- On the third day my scar (appendix-operation in 2006) hurted; felt like the pain came from the inside
That's it until now.
Greetings, Michael
Last edited on Tue Jan 12th, 2010 18:05 by Michael
____________________
Depression (dx. 2004); D-25: 12,2 ng/ml, D-1,25: 63,9 pg/ml (tested 11/2009); Benicar s. 01/2010
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Michael
Member
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Posted: Wed Jan 20th, 2010 18:05 |
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Day 12 with benicar
A few weeks before starting benicar I was without depressive symptoms. That changed today. After lunch hour I had light mood swings (for the first time since about five weeks) shortly before the next pill. A few minutes after taking it my mood returned to normal.
After work (6 p.m.) until now (8 p.m.) it feels like depression is about to return, but it doesn't come through. It's a similar feeling I had while taking "mirtazapin" (an antidepressant) which I took from 2004-2006. The difference is, "mirtazapin" didn't only prevent depression, it also reduced me quite a bit. In contrast to those days today I'm not reduced at all.
Last edited on Wed Jan 20th, 2010 20:15 by Michael
____________________
Depression (dx. 2004); D-25: 12,2 ng/ml, D-1,25: 63,9 pg/ml (tested 11/2009); Benicar s. 01/2010
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