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indiegalnyc
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Posted: Wed Jul 1st, 2009 16:57 |
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I'm hoping someone on this board can help. I have Sarcoidosis that had been under control with Diflucan and melatonin (skin sarc), but now it's in my heart. Of course, the 'experts' as well as my family are pushing Pred and the other junk.
I'd like to start the MP but I have an issue with Vit. D. My Vit D1,25 does run high, as Dr. Marshall states, but if I don't take a small amount of supplement each week, my D25 runs too low, and my hair falls out. Even if I am willing to go bald for my Sarc, I don't know what's happening with my bones due to the low D25, as low as 5.
Any suggestions? As with Cardiac Sarc, time is of the essence that I start on some treatment before it takes my life.
So glad to have found you!
Elizabeth
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Elizabeth
Cardiac Sarcoidosis
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Rico
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Posted: Wed Jul 1st, 2009 19:32 |
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Elizabeth, you'll want to discuss these with your doctor(s)...
The Truth About Vitamin D: Fourteen Reasons Why Misunderstanding Endures
Albert PJ, Proal AD, Marshall TG. Vitamin D: The alternative hypothesis. Autoimmunity Reviews, in press.
http://dx.doi.org/10.1016/j.autrev.2009.02.011
A full-text preprint is available from:
http://AutoimmunityResearch.org/transcripts/AR-Albert-VitD.pdf
Marshall TG: Vitamin D Discovery outpaces FDA decision making.
BioEssays Volume 30, Issue 2, Pages 173-182, February 2008
Online ISSN: 1521-1878 Print ISSN: 0265-9247
Copyright 2008 Wiley Periodicals, Inc., A Wiley Company
http://www3.interscience.wiley.com/cgi-bin/abstract/117885976/ABSTRACT
In accordance with the copyright assignment agreement I have put a free copy of the preprint of the Full Text on my personal website at
http://TrevorMarshall.com/BioEssays-Feb08-Marshall-Preprint.pdf
What is the Marshall Protocol?
Important Safety Warnings About the MP
Medications To Avoid on the Marshall Protocol
Vitamin D-Basic Information
Immunopathology (Herx)-Basic Information
When should I be concerned about cardiac symptoms?
HEART DISEASE
SARCOIDOSIS
Osteoporosis, osteopenia and Th1 illness
From I have a yeast infection. What should I do?
| " Fluconazole (Diflucan) is sometimes prescribed to treat fungal (candida) infections. It directly inhibits the enzyme which catalyzes 25-D to change to 1,25-D and the resultant hormonal rebalancing can be profound. |
antifungal helped in case with very high 1,25D - why?
Last edited on Wed Jul 1st, 2009 19:34 by Rico
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MP Knowledge Base; Bacteriality; Success Stories; Dr Marshall's Perspective
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paulalbert
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Posted: Wed Jul 1st, 2009 20:17 |
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Have a look at what Rico says but also see this Knowledge Base article:
http://mpkb.mp-dev.com/doku.php/home:pathogenesis:vitamind:correlation
Paul
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indiegalnyc
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Posted: Sat Jul 4th, 2009 00:35 |
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| Thanks for all of the info. I've read most of it and yes, I'm totally on board with MP over Pred and MTX, etc. BUT, what I got from the articles is that there must be something else causing my hair loss, not lack of Vit. D. Does anyone else have this problem? This disease is bad enough. If I do the MP to the letter, my hair will fall out. Any thoughts?
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Elizabeth
Cardiac Sarcoidosis
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Rico
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Posted: Sat Jul 4th, 2009 00:41 |
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Are changes in hair and nails common in Th1 diseases?
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MP Knowledge Base; Bacteriality; Success Stories; Dr Marshall's Perspective
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Deedee
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Posted: Sat Jul 4th, 2009 01:51 |
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I was on Vit D supplementation, then was diagnosed with sarc, went on MP and off Vit D and diet restrictions. For about 6 months I lost hair, but it stopped falling out. When you reduce D from your diet, you go through hormonal shifts. This is also where the light sensitivity comes into play.
Vitamin D is poison to those of us with sarcoidosis. Consider how it may have played a role in the development of sarcoidsois in your heart. Vitamin D promotes the formation of granulomas.
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Sarcoidosis lymphopathy (July 08) | 125D53 25D54 Jul08 | Ph1Aug08 Ph2Nov08 Ph1Mar09 ModPh2Aug09 Ph1Sep09 ModPh2Oct09 Ph1Dec0| ModPh2July10| 25D24 (Nov08) 25D25 (Feb09) 25D15 (May09) 25D14 (Dec09) 25D11 (Mar10)
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deedavid
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Posted: Sat Jul 4th, 2009 02:12 |
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Before I was diagnosed and before I started to get constant abdo pain I started to lose a lot of hair. Fortunately I have a lot of hair so it wasn't too obvious. I became quite thin around the hairline. I believe it was the flare up of sarcoid which caused it. I think I have had sarcoid for 20 years but the symptoms were so infrequent that I didn't realize I had a chronic disease. I have only been on benicar for 2 weeks so I haven't noticed any change. But I intend to buy a wig if the hair loss gets worse. This disease scares me and I will do anything to get better. As I see it prednisone will thin your bones and increase your hair loss cause diabetes and give your cataracs with out curing your disease. MP was an easy decision for me.
Hope this helps
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sarc dx 2009 by lymph node biopsy, gran in spleen and lungs/mp started june17,2009 benicar 40mg q6h/ Tylenol#3 for back pain,synthroid, atacand for hypertension, retired.D1,25 is 59.2pg/ml, and 25d is 20ng/mol. started mino 25mg july6/09
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