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mrs bikemonkey
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| Joined: | Wed Jul 1st, 2009 |
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| Posts: | 4 |
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Posted: Wed Jul 1st, 2009 09:54 |
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Hey guys.
Is there anyone currently on MP in the UK?
How is your progress?
Has your gp given the meds on the NHS so that you dont have to pay?
Any info would be gratefully appreciated!
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fix22
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| Joined: | Thu Feb 21st, 2008 |
| Location: | United Kingdom |
| Posts: | 55 |
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Posted: Sat Jul 4th, 2009 20:10 |
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Hi mrs bikemonkey,
Welcome .
I wonder if you could please tell us a little about your situation, such as diagnosis, symptoms, duration and severity of your illness, which general region of the UK you are from, etc. so that we can help you in a more efficient manner. Thank you .
In the meantime please look up http://www.bacteriality.com a well written and easy to understand description of the science behind the MP. It took me several months of reading, reading and more reading to fully understand the science of the MP and how to start getting well using the MP safely. I continue to read and learn and ask questions of the more advanced MP members whenever I need additional advice.
Looking forward to hearing from you, take care of yourself .
Best wishes, fix22
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cfs/lyme,multiple active bacterial/viral infections since 1991 cardiac rhythm probs/chest pain/balance/fatigue. No Ds in diet,darkened home,housebound. 10/08 D25 4.8 phase1 14/11/08, 01/09 D25 4.0 Mphase2 04/02/09 Re-start phse1 09/09
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mrs bikemonkey
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Posted: Sun Jul 5th, 2009 10:09 |
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Hey Fix22!
Had fatigue for nearly 2 years after a possible infection when I was living in Jamaica for 2 months. I have always had a weight problem and exercise was always tiring for me. So I have dieted and exercised hard for the last 4 years in order to battle with my weight problem. Diet after diet, hard exercise regime and I got there to my target weight.
Then i crashed and the fatigue and a low thyroid problem started in october last year. I went to see a private endocrinologist as my doc did bloods and they were normal so therefore he thought nothing was wrong (sound familiar!!)
This endo precribed me thyroxine which helped with the coldness, chronic constipation and hair loss but didnt touch the fatigue. In fact it has been getting worse the last 6 months and last week my gp finally diagnosed me with chronic fatigue syndrome. I am now applying for ESA cos i cant work and im trying depseratly to get rid of this fatigue - its life changing - im a hermit!!
I live in Exeter Devon, where are you?
My gp wants to precibe me antidepressants but i want a real idea of the problem and a real treatment protocol.
Are you on MP? If so is your gp helping?
Helen x
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fix22
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| Joined: | Thu Feb 21st, 2008 |
| Location: | United Kingdom |
| Posts: | 55 |
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Posted: Mon Jul 6th, 2009 00:45 |
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WOW Helen, well done for finding the MP so quickly , as you have not been suffering for a terribly long time your health could well be restored much quicker than a lot of us seasoned sufferers with many years under our belt (I so wish I had known about the MP many years ago ).
You most certainly sound like you have th1 disease (to me) and so thankfully have come to the right place to get well. Please keep reading all the information that you can on the MP, really study the science behind it and the treatment protocol so that you can speak/discuss this with your GP/other Drs. Maybe you could get your D25 and D125 levels checked (read link below for instructions) whilst you wait for a UK Drs list to be sent to you (link supplied below).
Below are some links to read with essential information to consider before starting the MP, how to request a UK Drs list from this site and a pdf file to present to your Dr to help him to understand the MP and how to get your vitamin D levels checked accurately.
http://www.marshallprotocol.com/forum2/
http://www.marshallprotocol.com/forum32/
http://www.curemyth1.org/forum5/2131.html
http://www.curemyth1.org/forum2/2502.html
http://www.ginariggio.com/MP/phase1guide.html
I live in Surrey and was diagnosed with cfs/me, chronic infections (both viral and bacterial), hormonal imbalances (too many to mention), kidney pains, cardiac pain and rhythm disturbances, chronic constipation, weight loss, insomnia, anxiety, photosensitivity, dizziness and fainting, joint pains etc etc (too many symptoms to mention) for over 18 years. It all started with a course of hepatitis B vaccinations (compulsory for my work) followed by glandular fever and a pregnancy and subsequent birth (the glandular fever was not diagnosed until four months after the birth). I was always a sickish child.
The general blood tests that were taken by my GP all came back normal too, the blood tests taken by the endocrinologist that I was referred to did not come back normal, but as he could not find a diagnostic box for me to fit into he repeated the tests (the same ones came back abnormal again) so in his wisdom he then ignored the test results and referred me to a psychiatrist (so that I could get on with my life-his words!!!) I was devastated as depression was not one of my symptoms (luckily), but I saw the clinical psycotherapist and was told that I needed antidepressants, when I disagreed with him he called in his colleague and between them they bullied me into believing that I had post natal depression (I didn't). I was so tired and frustrated with them that I took the prescription and left. The antidepressants did not help me in fact they made me feel a lot worse. An eye movement specialist diagnosed my juddering retinas and poor balance as MS or Huntingdons chorea, but this diagnosis was not followed up. I had many different diagnoses by many different specialists over many years.
I read medical books and medical papers, searched for answers on the internet and figured eventually that I had cfs/me, my symptoms fitted perfectly. I went to see several private Drs specialising in cfs/me and ended up with one who suggested further blood tests, this time to exclude infection, also to assess the function of my immune system. The tests came back grossly abnormal (positive to many infections and a terribly underactive immune system). Unfortunately traditional treatments made me feel worse and I soon became housebound,sometimes bedbound and on oxygen. By chance my brother (who also has cfs/me) came across the MP and the rest is history. At last my symptoms and Prof. Marshalls science all came together and made complete sense to me. At last there was hope for me . I have th1 and there is a treatment for it.
I have been on the MP for almost eight months now (not very long) and am on modified phase 2 and trying to take things very slowly (due to my poorly kidneys and heart). I have three daughters who also have cfs, two are on the MP after becoming housebound.
My eldest (18 years old) is on the full dose of the phase 2 antibiotics, soon to start phase 3 (started MP 8 months ago), she was diagnosed with IBS, chronic constipation, recurrent tonsillitis, hypothyroid, PCOS, cfs, OCD, depression, etc., a bit like yourself.
My youngest started the MP 3 months ago and is about to start modified phase 2 (13 years old), she was diagnosed with morphea, scleroderma, RA, asthma, eczema, cfs, mycoplasma infection.
My middle daughter (age 15) is hopefully going to start the MP after her GCSEs next summer, if her health holds out that long, she has cfs, dyslexia, depression, eczema.
Don't hesitate to write again if you have any further questions, but in the meantime please educate yourself the best that you can by reading as much information as possible about the MP.
There are other UK and non UK members as well as moderators, much more proficient (MP wise) than me, so they may wish to add something to my witterings .
Best wishes and take good care of yourself, fix22.
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cfs/lyme,multiple active bacterial/viral infections since 1991 cardiac rhythm probs/chest pain/balance/fatigue. No Ds in diet,darkened home,housebound. 10/08 D25 4.8 phase1 14/11/08, 01/09 D25 4.0 Mphase2 04/02/09 Re-start phse1 09/09
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mrs bikemonkey
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| Joined: | Wed Jul 1st, 2009 |
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Posted: Mon Jul 6th, 2009 08:38 |
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Thanks Fix22 for such a thorough reply!
All your kids are sick too
I have a list of docs now thanks, Im gonna check out the one nearest to me and ask for these blood tests for th1.
Im so happy you think i could resolve this quick now i have found MP! Thats really reassuring!
Im still waiting for my ESA so i dont have quite enough cash just yet to get the tests (im sure all in all its gonna cost!). I guess you have to pay for all the antibiotics yourself?
Please keep me updated on your progress, it sounds like two of your kids are getting results quickly!
Helen.
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RM
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| Joined: | Thu Jul 9th, 2009 |
| Location: | United Kingdom |
| Posts: | 74 |
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Posted: Mon Jul 13th, 2009 05:59 |
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Bump
Hi Guys,
I am in N.I. and would love a list of Doctors here if poss.
Had sarc 30years ago, was always extremely fit but noticed even after the supposed recovery from the sarc i couldnt do the things i did before and would burn out easier.
Over the years i have had various burn outs which my doc put down to stress/fatigue and had been off for periods upto 2months at a time.
I have been able to cope with less and less activity until now i can do virtually nothing and havent worked for 6 months. I have no energy,constant dizzy spells,blackout like symptons (fall asleep talking to people etc with no concept of doing so),severe mood swings, ibs, sleep probelms,light to severe pains all over,spasams and brain fog.After loads of tests the consultant came back with Fibromyalgia but said there was no treatment.
Thank god for this site, done a lot of reading through it over the past week and am going to ask my GP to put me on the MP first.
Reading here and looking at my symptoms i was wondering if my VDR was already pulsing on/off as i seem to have similar symptoms to people that are having ip from treatment?. I am currently taking Spasmonal Forte once or twice per day (120mg) and sometimes Lansoprazole (30mg) for my ibs. I also take Ramipril 5mg for blood pressure.
Thanks
Last edited on Mon Jul 13th, 2009 06:08 by RM
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Sarcoidosis 30yrs ago/ then-shingles/chronic stress/depression/ibs/hypertension/CFS/Fybromyalgia. 13/07/09 reducing D.09/09/09benicar 40mg/6hr.22/10/09 mino 100mg/48hr.
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Tibet
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| Joined: | Sat May 31st, 2008 |
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Posted: Sat Jul 18th, 2009 08:07 |
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hi
i am an MP watcher...never managed to find a doctor in uk to do MP with
Live in Brixham devon
Best wishes
T
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