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bshagrad09
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Posted: Sat Jun 20th, 2009 17:04 |
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I was told by my NP who wants to put me on MP that once starting Benicar it is vital that you stay on it and do not allow ER docs to take you off should you become sick or injured and wind up in the ER. She said that if they stop the Benicar (docs will think thats what's cuasing your problem) your organs will shut down.
okay, I am in a lot of pain daily and have swelling in weird places and can't move real great. I am only 42 yrs old, but I am not willing to risk organ failure for a cure.
One other thing I need to know is I have Congenital Heart Disease and my blood pressure has always been perfect and have never had to have any meds for it. I have a VSD (Venticular Septal Defect) and I am not to sure my cardiologist is going to go for lowering my blood pressure. I still have a small murmur and palpitations (sometimes bad) as a result.
I need to find something to releif this and soon. I have a lump under my arm that I was told needed to be removed, but I NP says its a results of my th1 disease. I don't know who to beleive anymore
I just need answers.
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edj2001
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Posted: Sat Jun 20th, 2009 18:57 |
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Hello bshagrad09,
Welcome to the MP.
The MP treats bacterial intracellular and biofilm infection with a vitamin D nuclear receptor (VDR) agonist, Benicar, along with sub-inhibitory pulsed doses of bacteriostatic antibiotics (ABX).
The VDR is responsible for transcribing over 900 genes many of which are important to a healthy immune system. Bacteria have found a way to interfere with this process to protect themselves from the immune system.
This science is sound and has been presented here at this web site along with information at the study site http://marshallprotocol.com/ Many very ill people are having success treating their Th1 illness with the MP.
There is no charge for this information but you must have a doctor prescribe the medications and you must work with your doctor to understand the protocol and how to administer it.
I will point you in the direction to start learning the MP with some links (below). As you progress through this information you are welcome to come back here to ask questions. This is a lot to read and will take you several days but it is very important that you understand the protocol if you plan to treat yourself with it.
The treatment is not easy. Once the immune system is able to recognize the infection it will eliminate it but that process exacerbates the disease symptoms and you will experience what is called immunopathology (IP). IP must be controlled at a tolerable level by adjusting the medications. Once again you must understand what is going on in your body to best make these adjustments.
Gene
Links to Basic Information about the Marshall Protocol
Phase One Guideline
Essential Information About the Marshall Protocol Forum
The Marshall Protocol study site
Marshall Protocol Success Stories
Marshall Protocol FAQs Forum
What is the Marshall Protocol?
About the Marshall Protocol
Why the Marshall Protocol makes sense
Simple Explanations
The History of the Marshall Protocol
Papers for Physicians
Links to reports of member progress and improving health
Helpful hints for those on the Marshall Protocol
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Sarcoidosis 1998| MP Dec 05| Gene's Story| Perspectives|
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bshagrad09
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Posted: Sun Jun 21st, 2009 01:16 |
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| Thanks for the reply. I just want to know if Benicar wil really shut down your organs or if it is safe. So far, nothing I have read has been really clear. I am more than thrilled to begin this process and my Nurse Practitioner (whose has spoken to Dr. Marshall) will help me along. I just want the facts. Thats all. Thank you for the info and I have been reading all day.
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edj2001
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Posted: Sun Jun 21st, 2009 01:33 |
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Just the opposite. Benicar is organ protective and that is why it is recommended to take more during periods of intolerable IP. There is a lot of information on benicar on the Study site.
The problem that can occurr is if it is necessary to go the the ER and have the doc there stop the benicar.
Also, Amy Proal's web site Bacteriality.com is a great source of information.
Keep reading 
Gene
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Sarcoidosis 1998| MP Dec 05| Gene's Story| Perspectives|
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edj2001
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Posted: Sun Jun 21st, 2009 02:32 |
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This is a link to some posts on the MP study site about the safety of Benicar and Dr Marshall’s comment in one of the posts:
“To be totally precise, the FDA judged that Olmesartan did not need approval for our study. They told us it was one of the safest drugs in the US formulary
At a meeting in April 2007, the FDA said there were no barriers to any US physician prescribing the drug-off label in the idiopathic inflammatory diseases.”
http://marshallprotocol.com/forum11/13250.html
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Sarcoidosis 1998| MP Dec 05| Gene's Story| Perspectives|
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edj2001
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Posted: Sun Jun 21st, 2009 14:07 |
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Here is a link (below) to specific instructions that you or a family member should take to the ER if you are on the MP taking benicar. Many people keep this with them all the time. The problem can be that the doc will stop benicar that was protecting your organs. Or, continue benicar but give a high dose of abx that could cause an intolerable IP.
Gene
http://autoimmunityresearch.org/ER.pdf
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Sarcoidosis 1998| MP Dec 05| Gene's Story| Perspectives|
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bshagrad09
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Posted: Mon Jun 22nd, 2009 14:49 |
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| Thank you for the info. I have seen that letter. The question I have is how would the ER treat an Asthma attack or anyphalactic allergic reaction if they are unable to give the patient steroids or epinephrine? It looks like there are only specific antibiotics and drugs they can give, so that kind of limits treatment options. Seems that it could be dangerous for the patient.
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Chris
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Posted: Mon Jun 22nd, 2009 19:18 |
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The FAQs are your friends,
The FAQ patch on Breathing has a note on using inhalers & nebulizers:
http://www.marshallprotocol.com/view_topic.php?id=4175&forum_id=23&jump_to=72854#p72854
Use of inhalers and nebulizers
Using steroid-based inhalants is contra-indicated, but there other approaches.
You might also note the number of folks here who've seen that their asthma troubles go away with the MP, and those who find that Benicar helps control their asthma episodes.
For example, here's one testimonial from the Breathing FAQ page: I can tell you from personal experience that I too had to get off my steroid inhaler when I started the MP. I was SO scared to do this, as my asthma was so bad. Much to my relief, the Benicar was better than the steroid inhaler!
This page might also be of interest to you:
http://www.marshallprotocol.com/forum32/5430.html
Is it an allergy or is it an immune system reaction?
A search on anaphylactic in the box in the upper right leads to this
page: http://www.marshallprotocol.com/forum32/4638.html
Why do I need to ask for a local anesthetic without epinephrine?
This page notes that while epinephrine is to be avoided, the use of epi-pens is not banned.
--Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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bshagrad09
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Posted: Tue Jun 23rd, 2009 14:45 |
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| Thank you for the additional info. You have been on MP since 2004? Do you ever think you will be off it?
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Chris
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Posted: Tue Jun 23rd, 2009 15:32 |
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I'm down to Benicar only, with still enough herx to keep me mindful of not leaving the benicar at home. I'm going out in the light a bit now, though I do stay in the shade. The kick from light is a lot less.
So, yes, I think I'll be off the MP at some time. But with a 50 year history of wierd medical notes, I think I'll see a long tail on the process. Folks like me who've had long histories of trouble and long cures on the MP aren't necessarily great poster material for the MP in regards to the general population. You need to look to the younger folk, like Paul Albert and Amy Proal who go gallivanting around the globe now to see that the time spent on the MP does vary with the amount of trouble you have, and how young you are when you start.
Chris
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sarcoid since 1983 (or much earlier), MP since summer 2004 Chris' story
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paulalbert
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Posted: Mon Jun 29th, 2009 20:18 |
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I'm kind of late to this thread, but here is a KB article on the safety of Benicar:
http://mpkb.mp-dev.com/doku.php/home:protocol:olmesartan:safety
Paul
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paulalbert
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Posted: Mon Jun 29th, 2009 20:25 |
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Like Chris, I'm still on the Benicar. My original symptoms are 85-90% gone. In some respects (depression), I'm better than ever.
Paul
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bshagrad09
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Posted: Mon Jun 29th, 2009 22:07 |
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| I have read from some people that they are having a difficult time keeping their BP up. In other words, its too low and no matter what they do it doesn't come up. That's what I'm afraid of. I have a heart murmur from Open Heart Surgery as a child and really don't need issues with my BP. I also love to be out in the sun and am not sure I want to give that up despite my pain level.
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paulalbert
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Posted: Tue Jun 30th, 2009 14:39 |
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These KB articles should address your questions:
http://mpkb.mp-dev.com/doku.php/home:symptoms:hormonal:blood_pressure
http://mpkb.mp-dev.com/doku.php/home:lifestyle:light
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eClaire
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Posted: Wed Jul 1st, 2009 00:58 |
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About not wanting to give up sunlight: It's your choice. However, if you start the MP, the choice can be taken out of your hands, as sun sensitivity can make life challenging to say the very least and sun exposure can be life threatening for some (particularly those with heart involvement).
Some people also continue to smoke when they are dying from emphysema. Again, their choice.
We're not here to convince you to do the MP. The dedication and will to get better via the MP must, as you no doubt know, come from you.
ClaireLast edited on Wed Jul 1st, 2009 00:59 by eClaire
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42mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings;
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009 * Olm.alone.Jun10
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