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Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Tue Jun 9th, 2009 13:14

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Good afternoon,

my name is Verena, I am 35 years old, living in Germany (near the dutch border).

I was wandering, if the MP was the right treatment for a Multiple Slerosis in an early stadium. My MS started with double vision and half a year later an opticusneuritis, two more episodes since then.

In addition, I have problems with:
- red eye on only one side
- dry eyes (already tested for bacteria and virusses - negativ)
- high light-sensitivity
- painful elbows and knees
- hypophysis a little to big
- low bloodpressure (in the mornings some times extremely low)
- sometimes problems to find the right words in second half of cyclus
- an edometriosis.
- migraine with aura in my youth
- high androstendion level (358)
- allergy against penicillin
- allergy against some pollen (took ceterizin for about the last ten years during springtime and summer, after cortison therapy against MS last year, this year medicamentation is not necessary)
- prolaps in my neck since I fell of a horse three years ago (obviously nothing to do with immune system...)


In 2007 I had an adenom removed, I had a non working extra thyroid gland right above the left clavicula containing that 4 cm big adenom. Blood tests since then come out with normal parameters for thyroid hormons.

As to exposure to virusses:

About 15 years ago I was bitten by a tick. As we are in an area, where ticks don't seem to be too dangerous, my doctor is sure, that I did not catch lyme disease. Was acutally never tested.

During university times, I lived in a students home, where some of us officially had an epstein barr infection. I was sic too, but did not see a doctor, so maybe this has to be added as well.

As to exposure to strange and unusual bacteria:

My husband used to travel to africa and asia a lot and once came home with some nasty bleeding stitches. He saw the Institute for tropical diseases, but they had no idea what it was.

In 2004, I spent my holiday in Thailand and caught a strange kind of flu.

In my youth, I took part in some excavations of medieval graveyards and once cut my hand, whilst digging up a sceleton.

Diseases in family
Part of the family`s living in australia, my great-cousin has some autoimmune diseases and is on the MP as well. Great-uncle died of MSA. Grandmother in Germany died, as far as I know, of Alzheimer.

Well.

I already discussed the MP (the information I got from my cousin) with my doctor. If provided with enough information, she said, she was willing to join. She is fluent in English.

Some of my questions:

1) can I join the MP or could the low blood pressure be a problem with benicar? To me, it originally seemed to be used against high blood pressure.
2) which blood tests do I have to do, to find out, if I have actually TH1 inflammation?
3) where can I get a discription of the MP and the medical backgrounds for my doctor?



Best regards,
Verena





 




____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Joyful
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Joined: Fri Oct 19th, 2007
Location: USA
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 Posted: Tue Jun 9th, 2009 14:45

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Welcome Verena! :)

The MP is effective in restoring the body's immune system so that all of the types of infectious agents we all have encountered (even the unusual ones) can be slowly but surely conquered.

You will notice some links in the signature line for my post. Use them to explore and learn more about the MP. The more you learn, the more effective you will be in working with your doctor.

This article from the new MP knowledge base (a work in progress) should also be helpful: Convincing a reluctant physician to prescribe the MP. I know you mentioned your doctor is already willing, but this article should lay a good foundation for you to get started.

I'm glad you found us. :cool:



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Verena
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Joined: Fri May 15th, 2009
Location: Germany
Posts: 87
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 Posted: Tue Jun 9th, 2009 16:14

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Hello Joyful,

thanks a lot!




____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Barney
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Location: Deming, New Mexico USA
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 Posted: Wed Jun 10th, 2009 01:21

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Hello Verena,

We have MS patients who are succeeding on MP.

1. After 40mg Benicar no longer acts as a bp med, it is then an anti inflammatory. You will see some low bp's as do almost all of us, no matter what our disease.

2. You will need the following tests:
D-Metabolites Tests

If you were diagnosed w/MS that is confirmation you need MP but you will need 25D and 1,25D results.

 

Drink plenty of water, xtra salt (sea) (regular salt is mostly chemicals), lots of rest while avoiding the sun and avoiding Vit D in your foods!!!!!

 

 HANG IN THERE, WE WILL MAKE IT!!!BARNEY:D

 

Last edited on Wed Jun 10th, 2009 01:22 by Barney



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Sarcoidosis diabetes asthma| loss r/kidney| hysterectomy osteoporosis| Start MP 1/1/05| My Story| ABC of MP| Bacteriality|
Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Thu Jun 11th, 2009 16:27

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Hi,

another question. Since two days, I have another inflammation, behind the right eye, feels like the beginning of another opticusneuritis.  Normally I would take cortison, which would stop the pain quite soon. On the other hand, I would like to start the MP as soon as possible, too. So, what can I take instead of cortison, to stop the pain?

I would like to see my doctor tomorrow, to discuss things...

Thanks,
Verena



____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Joyful
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 Posted: Thu Jun 11th, 2009 17:20

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Verena,

In the case of eye inflammation, in the past it has been understood that using only the smallest amount necessary of steroids is appropriate, even though the MP (especially the Benicar) will eventually address the problems.

Please use the links in my signature line to do searches on the MP site for information on eye inflammation, Ok?

I hope all goes well with your doctor appointment. :cool:



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Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Fri Jun 12th, 2009 07:06

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Thanks, Joyful.

Having another appointment on Thuesday.

Just read Eye inflammation, vision and bacteria and will now get tinted glasses. Since I was a child, I had problems with light. I remember sitting in the darker part of the living room with hands before my eyes, in order to avoid the artificial light, when I was still going to Kindergarten... Have been to about 10 different eye-specialists since 1992, and all they came up with was: dry eye.

I hope, Inge is reading this part. Thank you so much!!!!!

Last edited on Fri Jun 12th, 2009 07:06 by Verena



____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Sat Jun 13th, 2009 16:10

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Hi there,

another question, a more social one, this time. Is there a possibility to get in contact with other Multiple Sclerosis Patients in the MP? And are there other German people around, which are dependant on the German Health Care System? (Kassenpatient?)




____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
IngeD
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Joined: Tue Oct 16th, 2007
Location: Melbourne, Australia
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 Posted: Sun Jun 14th, 2009 07:46

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Hi Verena. Welcome to the MP. You are in good hands here :)

I too had eye issues as a child. Many photographs have me either screwing up my eyes or crying. I remember my father taking me to eye specialists who said my eyes were perfectly ok but I could't tolerate any bright light :( I used to HATE the flash lights they used then and bright sunny days.

So.... most likely my inflammation now is the Immune System working like mad to clear up chronic inflammation.

Would like everyone here to know that Verena is my cousin or should I say I am her great-cousin :)

Take care :) IngeD



____________________
Rickettsiosis;PerNeurop;Chron Bronch&cough; adhesions; IBS; pre-diabetes; IR; HTN; 1,25-D of 50.83 pg/ml;Benicar 40mg q6h start 24Jan07 Mod Ph2 start 28Mar07;25D(ng/ml):26.4 19Dec06;16.4 24Mar07;12.8 22Jun07
Joyful
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 Posted: Sun Jun 14th, 2009 20:18

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Verena, :)

Annamarie (Limburg) has MS, you might like to check out her progress thread (Hepatitis and multiple sclerosis) and maybe even post her a PM.

She asked the same question here: Results MP in MS.



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Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Wed Jun 17th, 2009 16:48

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Hello,

here are my results of the VitD Test:

25-D:  19,6 ng/ml
1,25-D:  54,2 pg/ml
Steroids/TNF drugs:  No (last time in June 2008)
Olmesartan:   No

Some other results, Mid Mai:

Lymphocytes 46,1
Granulocytes 45,7
Cholesterol 233
Leukocytes 7,3 /nl

In Germany, they do not put VitD into the food or milk.
But, I usualy eat a lot of fish and Thai Products containing fish sauce or Japanese Food with algues etc.
Sun exposure is quite low, as I am working indoors and late hours.

Would be glad to read your comment on the results.
Verena






____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Cynthia Schnitz
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 Posted: Wed Jun 17th, 2009 17:06

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You can get feed back on your D results here:
http://curemyth1.org/forum5/
Cynthia



____________________
MP start 10/08 (no breaks),Spondylitis'97,early Diverticulosis'98,early AMD'08,Calcium anomaly'95,TypeII Diabetes(?)'02,Degenerative hip disease'12, 25D=8.6ng/mL 1/14(preMP 125D/25D=47/43) My progress: http://www.marshallprotocol.com/forum30/13911.html
IngeD
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Joined: Tue Oct 16th, 2007
Location: Melbourne, Australia
Posts: 58
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 Posted: Wed Jun 17th, 2009 17:23

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Hi Verena. The link Cynthia gave you was to the forum where people post their test results. Make sure you study the first topic on how to interpret and post your results.

After you have used the calculator, create your own topic in the same thread with the interpreted results and any questions you may have.

All the best. IngeD:cool:

 



____________________
Rickettsiosis;PerNeurop;Chron Bronch&cough; adhesions; IBS; pre-diabetes; IR; HTN; 1,25-D of 50.83 pg/ml;Benicar 40mg q6h start 24Jan07 Mod Ph2 start 28Mar07;25D(ng/ml):26.4 19Dec06;16.4 24Mar07;12.8 22Jun07
Verena
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 Posted: Wed Jun 17th, 2009 17:51

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Hello,
just got the results from the lab out of your calculator:
----

Feedback on vitamin D results
25-D:  19.6 ng/ml
1,25-D:  54.2 pg/ml
Steroids/TNF drugs:  No
Olmesartan:   No

In countries where milk is supplemented with Vitamin D, it is unusual to see 25-D levels in this range unless Th1 inflammatory disease is present. Assessment of the degree of inflammation involves assessment of both sources of ingestion, and the measured 25-D level. If the individual has been carefully avoiding all exogenous sources of Vitamin D, this level might possibly be within normal limits, and a therapeutic probe is suggested to confirm the presence or absence of Th1 disease.
This level of 25-D is just above the therapeutic range. This is a good place from which to initiate therapy concomitant with avoidance of ingested Vitamin D.
The value of 1,25-D is elevated, indicating the VDR dysfunction typically seen in Th1 disease.
---

Some other results, Mid Mai:

Lymphocytes 46.1
Granulocytes 45.7
Cholesterol 233
Leukocytes 7.3 /nl
Creatinin 0.57



As to the tests: The blood was drawn in the lab, that performed the test.
I did not avoid foods with vit D. We eat a lot of thai food, containing fish sauce and japanese foods, a lot of fish etc. I did not avoid the sunlight more than I do normally, and am working mostly indoors.

I took ceterizin for two days, End of April. No other meds this year. 10 Days Doxycyclin in Dezember 2008, because of infective flu, oral Cortison for 6 weeks, starting End of June 2008, only low dosed, starting with 100 mg, against opticusneuritis and something to prevent stomac pain. Can't remember the name of the med. No VitD supplements in Foods in Germany. No Benicar, no ACE Inhibitor.
As I was diagnosed MS already, I am quite sure, that I have Th1 infection. But what about the "relatively normal" 25-D level?


Thanks for your answers,
Verena





____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
inuk2600
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 Posted: Sat Jun 20th, 2009 08:37

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It seems like the calculator is strongly suggesting that a TH1 inflammation is very likely present. For somebody that eats a lot of fish (high vitamin D intake), a high 1,25D and low 25D is a hallmark of TH1 inflammation.

Last edited on Sat Jun 20th, 2009 08:47 by inuk2600



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CFS symptoms | 25D9(Mar09) | 25D14(Jun09) | Ph1Apr09 | Ph2Aug09 | Ph3Jun10
Verena
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Joined: Fri May 15th, 2009
Location: Germany
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 Posted: Tue Jun 23rd, 2009 08:54

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Hi all,

I have another question. As I am absolutely cluless in medical questions, I hope, that my question will not be considered as anti MP. I just try to understand the possible differences between some autoimmun diseases and need some arguments for the discussion with other "half-informed" MS-folks.

MS seems to be on of the rare "autoimmun" disease, where oligoclonal bands are found in the cerebro spinal fluid. Then I understood, that matrix metalloptroteinases are somehow relevant, (B. C. Kieseier, T. Seifert und H.-P. Hartung,) see:

http://www.springerlink.com/content/gxc4x8l3qtaqrff0

MMP-9 seems to be exclusive for MS.

So, could it be possible, that in the case of MS, minocycline helps, because it lowers this metalloproteinases ?

But please, no "you must understand, its all the same disease" - answers. The reason for beeing sick seem to be the same, the reactions of the body are obviously not (see oligoclonal bands)

Thanks a lot,
Verena


Last edited on Tue Jun 23rd, 2009 09:07 by Verena



____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
IngeD
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Joined: Tue Oct 16th, 2007
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 Posted: Wed Aug 12th, 2009 17:54

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Great to hear Verena. Wish it were a bit sooner for you. Make sure you do lots of study ahead of time so you can be well prepared.

I will post below some information normally passed on to new members just in case you have not come across this as yet.

All the best :) Inge :cool:

Before you begin the MP, you must read and thoroughly understand the Phase One Guideline and review the items on this checklist.

You will not get well and your health will continue to deteriorate if you don't treat the underlying bacterial cause of Th1 inflammation with the MP. Please see Is the MP an applicable treatment for my disease?

Members provide personal testimonials to the efficacy of the Marshall Protocol in Marshall Protocol Success Stories. You may follow the progress of a few of our members in their phase 1 progress reports or the Alumni Forum.

Many medications must be avoided on the MP. Be sure to inform study site Staff of all medications and supplements (both Rx and OTC) you are taking.

If your doctor is unfamiliar with the Marshall Protocol, this thread contains suggestions to get your doctor on board with the MP.

If you need a supportive doctor, post a request for the doctor list in this thread. You may also contact members in your local area to ask about their MP doctor.

To verify that the MP is the right treatment for you, ask your doctor to test your D-Metabolites. When you get the results, post the actual numbers in Help with understanding D-metabolite tests (see How to post your D-metabolites tests) for expert analysis because results within the normal lab ranges can still be abnormal. For details see Vitamin D Tutorial.

Because vitamin D is immunosuppressive, it's important to avoid vitamin D supplements (multivitamins, any kind of fish oil, Omega-3 capsules) and all foods naturally high in vitamin D to bring 25-D down to a therapeutic level of 12ng/ml or less.

Order the required sunglasses (NoIR, Bolle100, Oakley or Zeiss) as soon as you decide to do the MP because they may take a few weeks to arrive. You should not begin Benicar without them because your eyes may become photosensitive. Ordering information is in Protecting Your Eyes.

Avoiding sunlight exposure is usually necessary to some degree. Before you begin to do that, please read Should I avoid sun exposure and vitamin D while I'm waiting to start the MP?

Presentations by experts, tutorials about the MP and testimonials by recovering members were videotaped at our 2005 and 2006 International Conferences. Click here to obtain these DVDs.

The Marshall Protocol is a serious and lengthy commitment which should not attempted without fully understanding it.



____________________
Rickettsiosis;PerNeurop;Chron Bronch&cough; adhesions; IBS; pre-diabetes; IR; HTN; 1,25-D of 50.83 pg/ml;Benicar 40mg q6h start 24Jan07 Mod Ph2 start 28Mar07;25D(ng/ml):26.4 19Dec06;16.4 24Mar07;12.8 22Jun07
Verena
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Joined: Fri May 15th, 2009
Location: Germany
Posts: 87
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 Posted: Tue Aug 25th, 2009 14:28

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A German Clinic seems to be testing Olmesartan against MS. For all those, who can read German:

http://www.dmsg.de/multiple-sklerose-news/index.php?kategorie=forschung&anr=1952

My medical English is too poor for an translation, but in short, they explain, that they found high Renin-Angiotensin-Aldosteron Systems in the lesions in heads of dead MS - Patients. Then they treated enabled Mice (which had lesions in nerves and could not walk) with Olmesartan and got them walking again.....

Sounds very promising....

Greetings to all,
Verena




____________________
Migraine s. 1976, Eye Inflammation s. 1992, MS s. 2007, Olmesartan s. Oct/09 Phase 1 s. Mar/10, mod. Phase 2 s. Sept/10
Knochen
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 Posted: Tue Aug 25th, 2009 15:48

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Interesting.  Sadly, testing in mice is not going to give results that can be easily translated to man, since mice have a different VDR than humans. 

Still, if you can use this to convince a doctor to treat you with the MP, who cares if some researchers are looking in the wrong place?:D;)



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I can help you understand the recovery process, but only your physician is licensed to give you medical care.
Diesel
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 Posted: Tue Aug 25th, 2009 16:59

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Maybe this will help.

http://www.breakthroughdigest.com/multiple-sclerosis-ms/blood-pressure-medication-could-treat-multiple-sclerosis/

Diesel



____________________
Vit.B12 Hydroxo-cobalamin injection dependant 1995 Sublingual Methyl-cobalamin and Adenosyl-cobalamin tabl. 2008
Osteoporosis 2007 True knowledge exists in knowing that you know nothing

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