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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
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Posted: Thu Jun 26th, 2008 23:31 |
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Dade,
The danger (and this could be significant, life-threatening danger too) in working outdoors is that one might have trouble getting 25D into therapeutic range of 12ng/ml or lower (one might be tricked into believing there is a plateau if D is not in range), and that both unchecked heat and light have been identified as a sure way to find trouble.
Knowing what I know now about the Marshall Pathogenesis, if I had to work outside (regardless of my MP status), I'd invest in serious opacity layers of apparel and/or leather coverage (not just gloves and hat) and buy zinc-laced sunscreens by the crate  . If I was a guy, I'd grow a full beard and style my hair so it was thick enough to block light too.
Double layers of NoIR lenses worked for me for a day here and there when I had to be out driving around early in the MP while being quite light sensitive. I have no idea if that would work over extended periods of time for anyone else and am really not comfortable even to suggest it for long periods of time, but you can tell us all later how your choices are working for you.
If changing careers could save your life, then that is something to think about. You might also consider "working for a living" to be less important than "working to live". There are many career paths but only one you.
Best to you Dade--Janet
How do I divide the antibiotic when it only comes in xxmg?
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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Julia
Advocate (on leave)
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Posted: Fri Jun 27th, 2008 01:40 |
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Hi Dade1,
As you're not a member of the MP study group, it's essential that your doctor should join the Private Section for Health Professionals for professional support and in order to access Phase 2/3. Please see MP Memberships Temporarily Closed.
I so agree with Janet. Your health must come first.
Julia 
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Always consult a physician
Essential Info; FAQ; Julia's story
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dade1
Member
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Posted: Fri Jun 27th, 2008 16:16 |
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Dear JR Foutin,
Thank you for the replying to my question. I really do appreciate someone that has vast experience with the M.P. and will take the time to answer my questions. I do not know how to break down [medications*]. I had no problems with seperating the Mino during the first phase. I truly do not know what i can do about staying out of the sun, My business is Machining and special welding on heavy equipment. I wonder why i am not having the photosensitivity problems that so many other people incur during the M.P.? I am going to proceed with Phase two and see what happens. My doctor that prescribed the M.P. for me is not very cooperative about voluntarying to be on the physicians website, why I do not know. I am kind of on my own with this now, except for the generious help from people on this website. My doctor is 400 miles away from my location!
Thanks, Dade1
*Moderator edit of meds per site rules.
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JRFoutin
Advocate
| Joined: | Sat Oct 13th, 2007 |
| Location: | Oregon USA |
| Posts: | 556 |
| Status: |
Offline
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Posted: Fri Jun 27th, 2008 19:18 |
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Dade,
How do I divide the antibiotic when it only comes in xxmg?
Pill splitter is the tool of choice for hard tablets, but careful cutting is still required. Newer clear pill splitters are helpful.
Light sensitivity question -- some are more light sensitive than others, but if not protected from light and heat, I wouldn't count on any assurance of safety or efficacy of the MP.
You might find a doctor closer to you for immediate support, especially if you have to visit the emergency room for any reason (like a car accident or whatever). Doctors who are members of the study site have the best access to leading edge details of what their business is about. But some people are not yet ready to employ strategic thinking for business cases.
SUGGESTIONS TO GET YOUR DOCTOR ON BOARD WITH THE MP
Please do not post your meds on this site.
Best to you Dade--Janet
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12/99:Sarc, 9/00:noPred, Mar05:no-D+lo-lght+NoIRs, 8/09/05 began MP. MP ph3 yr3 and getting better every day.
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dade1
Member
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Posted: Tue Jul 22nd, 2008 02:05 |
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Can the M.P. Protocol cause you to have changes in your digestive tract. I am about to platue on the first phase now getting ready to proceed to Phase 2. My digestive tract has changed quite a bit lately and I was wondering if anyone else has experienced this. I wonder if i am eliminating the good bacteria that it takes to have normal digestion. The problem is getting worse and i am concerned on how to treat this problem. Dade1
Moderator joined your post into your questions thread. thank you.
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Aussie Barb
Research Team
| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
| Posts: | 135 |
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Posted: Tue Jul 22nd, 2008 02:53 |
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see What should I do for my stomach problem?
also re Immunopathology-Basic Information
thanks, all best. Barb...
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dade1
Member
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Posted: Wed Sep 17th, 2008 22:05 |
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I am having a lot of bloating problems after just starting the second phase of the protocol. It seems that the antibiotics are the culprit. Anyone else experience this problem. The first phase of the protocol did not bother me with all of this bloating and gas.
Thanks, Dade1
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Julia
Advocate (on leave)
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Posted: Thu Sep 18th, 2008 01:22 |
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Yes, I've had that problem - I take it as a good sign that the MP is dealing with my disease, even though I didn't know it was in my gut. Certain antibiotics cause the problem more than others, but it is not the abx, but the immunopathology (herx) as the bugs die 
The link Barb gave you, What should I do for my stomach problem? says (about 2/3 of the way down the page): Eating carbs such as refined sugar, flour and some high-sugar fruits can make digestive gas or belching worse. It gives some suggestions for management of symptoms.
Please keep all your questions here in your own thread by hitting 'reply'. If you lose your thread, click on 'My Account' at the top of the page and the link will be there.
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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dade1
Member
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Posted: Thu Sep 18th, 2008 02:11 |
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Julia, Thank you for your reply. I to have O.A. to go with the RMSF that i am trying to fight off. Given time, will the M.P. help with my O.A. as well? I hope so!
Thank you, Dade1
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Julia
Advocate (on leave)
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Posted: Thu Sep 18th, 2008 21:30 |
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| Some of us are also hoping the MP will resolve our osteoarthritis. All I can so far say is that it certainly hasn't got worse at the rate my rheumatologist predicted, and indeed, I see very slow but definite improvement
____________________
Always consult a physician
Essential Info; FAQ; Julia's story
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dade1
Member
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Posted: Wed Sep 24th, 2008 23:34 |
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| Julia, That is way i feel about it also. I am going to keep on it and see what happens. Thanks for the reply. Dade 1
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