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Aussie Barb
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| Joined: | Sat Oct 13th, 2007 |
| Location: | Australia |
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Posted: Sat Sep 13th, 2008 18:10 |
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RobertTownsend wrote:
POSSIBLE AVAILABILITY OF OLMESARTAN THROUGH A NEW ZEALAND COMPOUNDING PHARMACY
I have been having discussion with a few compounding pharmacies in New Zealand with a view to having one ( and only one - becuase of the the small numbers of patients) stock bulk olmesartan for supply to the New Zealand MPers. I have located suitable bulk stocks in Australia and have confirmed that the NZ compounders are able to import such stocks from this Australian source.
However this becomes a chicken and egg problem - the NZ compounder will not import in bulk unless they are reasonably assured that at least 10 or more people would start to use the service. The single disadvantage is that the product would only be supplied in gel cap capsules - so they cannot be sucked or cut in half, as is the case with the tablets imported from Germany.
The other stumbling block is of course price - unless we get a commitment from NZers to use this supplier if it became available, we might not be able to get the price down to something comparable to the present German source ( though without the hassle of personal importation)
Could those who would be willing to support this approach let me know by personal message
Robert Townsend
Melbourne
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| Barb's Story|
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Aussie Barb
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Posted: Sat Sep 13th, 2008 18:32 |
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Meredith wrote:
Some other helpful info for new NZ MPers. You can buy Noirs from the Foundation for the Blind via their website
https://www.rnzfb.org.nz/equipmentshop/products/glasses/
$65 including postage
Meredith
Admin add: from PROTECTING YOUR EYES
You will want the style that fits your head best to block the most light.
You will need at least two pair of NoIRs: They are
-amber 2% (these are the darkest)for outdoor use
-amber 10% (these are medium) for indoor use
It is a good idea to purchase a third pair when you can graduate to using less eye protection. These are the:
-amber 40% (these are the lightest)
These are the specifications to ask for.
dark amber for outdoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
2% visible light for outdoors
medium amber for indoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
10% visible light for indoors
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| Barb's Story|
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Aussie Barb
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Posted: Sat Sep 13th, 2008 18:34 |
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Present arrangements re Benicar in NZ are:
headsuppoka wrote:
i get votum from info@inter-apotheke.de
it gets to NZ usually in less than one week. email them your rx, cc details, address and order the votum or olmetec from them. be sure to order less than 100 tablets or else customs will seize them.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| Barb's Story|
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Aussie Barb
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Posted: Sat Sep 13th, 2008 18:53 |
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Make sure to be safe to start the Marshall Protocol by having an adequate supply of Benicar on hand and your doctor's permission to increase to 40mg every four hours if symptoms become intolerable. Please discuss this issue with your Dr before you begin.
To contact other Members in New Zealand by private message.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| Barb's Story|
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Meredith
Member
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Posted: Sun Sep 14th, 2008 03:26 |
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Thanks for starting this for us, Barb! 
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CFS, depression, arthritis, 25D16(Aug08), noirs, covered up, light exp. commute, Ph1 Sept08
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Dr Trevor Marshall
Foundation Staff
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Posted: Wed Sep 17th, 2008 14:45 |
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Soozi
Member
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Posted: Thu Nov 20th, 2008 04:08 |
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Hello fellow New Zealanders,
I have just joined this site feeling excited.
Not sure whether this is a right place to post this kind of message but time will tell.
For some time I have been suspecting that I might have CFS although it might be relatively mild(?) one if so as I have had reletively active life style except the flu-like symptoms here and there. Whenever I am sick with flu-like symptoms I just don't know what to do with it as all the test my GP has done came back pretty normal range. Apparantly I am perfectly normal in every aspect.
And my GP thinks I am either depressed and need more regular excercise or my immune system may be low thus I get run down easily etc. I do get sick once or twice a month and it lasts three to seven days at times. However this time I have been sick for a whole month and had to drag myself to work every day with the usual lie of "flu". It was not a pretty time.
Funny thins is that I don't usually get the typical cold or flu like everyone else's getting. It's always the same whenever I am; feeling the chill, no energy, low motivation, very grumpy, depressed, body aches, headaches, back pain, light fever, hot and cold easily, sweat, and lots of mouth ulcers...and feeling miserable.
I really want to try 25-D and 1,25-D blood test to see if the numers will tell something about this but a bit reluctant to bring this up to my GP due to the past experience.
So I am wondering...
if there is anyone out there in Auckland(I live in Mt Eden) area perhaps I can share(?) the GP who is already supportive of MP? It might save time and pain of trying to convince my GP, also whoever GP is he/she would be able to use resources better while serving more than one patient.
If this sounds liek you, would you please contact me via PM please???
Thanks in advance, and hope the good progress everyone.
Soozi
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Soozi
Member
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Posted: Fri Nov 21st, 2008 20:16 |
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| sorted out this through "Request for Doctors List".
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jbeardsall
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Posted: Sun Nov 23rd, 2008 18:45 |
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Here is the address of the pharmacy I emailed you about before.
http://www.pillz.org/buy/benicar.html
I think I worked out the cost to be $NZ 250.00 per month but im feeling unwell & not thinking straight so check it out.
I definitely would be interested in buying it in NZ for a lower price but whether this is a reputable firm I dont know.
Pharmaceutical Compounding is a company Ive bought drugs and supplements from for about 4 years. They are very good maybe you'd like to try them.
Their phone number is 094421727
Post a reply to jbeardsall
Regards
Jean
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J Beardsall
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jbeardsall
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Posted: Sun Nov 23rd, 2008 19:12 |
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Do NOIRs protect against UVB, and UVA as well as infra red rays? I have seen so much information scattered through this web site and not all in one place - Im a bit confused. It appeard that NOIRs protect only against infra red light.
Jean - NZ - Northland
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J Beardsall
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Aussie Barb
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Posted: Sun Nov 23rd, 2008 21:48 |
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Jean
I believe the Information you are looking for may be in the 2nd post from the top of this thread. and please see the ABC of MP when searching for Information.
Thanks, Barb ...
You will need at least two pair of NoIRs: They are
-amber 2% (these are the darkest)for outdoor use
-amber 10% (these are medium) for indoor use
These are the specifications to ask for.
dark amber for outdoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
2% visible light for outdoors
medium amber for indoors
100% UV Protection.
100% Blue Light Protection (the amber is the blue block)
100% Infrared Protection
10% visible light for indoors
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| Barb's Story|
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jbeardsall
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Posted: Mon Nov 24th, 2008 17:39 |
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Hi Aussie Barb, No, My question has not been answered in the above threads or in the [url=A B C]A B C[/url] I know NOIRs protect against infra red light - but do they protect against UVA & UVB as well? A lot of the info seems to suggest that they do; but doesn't specifically say so as far as I can see.
Ive asked the equipment people at the foundation for The Blind and even they couldnt tell me straight off but are going to have to get back to me.
I urgently need the answer so I can be prepared to start my treatment as my health is going down fast.
Thanks - Jean
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J Beardsall
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Dr Trevor Marshall
Foundation Staff
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Posted: Mon Nov 24th, 2008 20:39 |
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The info is on the NoIR website. The glasses we use proved "100% UV protection"
http://www.noir-medical.com/catalog.htm#NoIR
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jbeardsall
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Posted: Mon Nov 24th, 2008 23:52 |
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Thanks very much. This website shows that NOIRs protect from infra red, ultraviolet and blue light - This is what I needed.
Jean
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J Beardsall
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jbeardsall
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Posted: Thu Dec 11th, 2008 01:42 |
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| What is the actual price per pill? Can you tell us where you buy it at the moment because my doctor is ready to start the protocol with me but we dont have a supplier yet.
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J Beardsall
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jbeardsall
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Posted: Thu Dec 11th, 2008 01:47 |
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Here is the address of the pharmacy I emailed you about before.
http://www.pillz.org/buy/benicar.html
I think I worked out the cost to be $NZ 250.00 per month but im feeling unwell & not thinking straight so check it out.
Ive just been and checked their price and they are quite expensive about US $1.46 each
I definitely would be interested in buying it in NZ for a lower price but whether this is a reputable firm I dont know.
Pharmaceutical Compounding is a company Ive bought drugs and supplements from for about 4 years. They are very good maybe you'd like to try them.
Their phone number is 094421727
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J Beardsall
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jbeardsall
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Posted: Sun Dec 28th, 2008 20:34 |
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Hi Robert, Can you tell me where you get your olmesartan, (benicar, olmetec) I thought I could get it from Australia but The Cincotta Chemist online Pharmacy says they can only supply it when an Australian doctor prescribes it - which leaves me out in the cold.
Jean
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J Beardsall
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jshrewsbury
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Posted: Sat Apr 11th, 2009 07:43 |
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Please count me in,if we can get it cheeper then Northwest pharmacy.
Sorry I dont know how to do a private message.
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Auto immunity inflammatory disorder, severe food allergies, alergic to sun, internal injuries
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Sallie Q
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| Joined: | Sat Aug 9th, 2008 |
| Location: | Hope, Australia |
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Posted: Sun Apr 12th, 2009 04:08 |
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To send a private message
On the other side of the page from <reply> [i.e. on the left]
Click on the name of the person to whom you wish to send a private message
Then select
[Send a Private Message]
PS you must be logged in at the time, not just doing a quick read
Sallie
West Island
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Sjogrens; b.cancer; postviral fatigue| D25was13.2ng/ml@ph1-Sept08 |Nov08mod.ph2 /Feb09ph2/ May09ph3| D25 7ng/ml@Jun10 | http://mp-lifestyles.org/category1/ | for recipes, menus, clothing tips, discussion of various MP issues...
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Soozi
Member
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Posted: Sat Apr 18th, 2009 23:38 |
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Hi,
Anyone here in Auckland on MP perhaps would like to PM me please. 
I had tried one Dr on the Dr list I was given but she did not know much about the MP. I had also tried to convince my GP(Family Dr) to support me on this but she is not comortable at this stage and referred me to the CFS specialist instead! I was going to try one other Dr on the list in the area but thought to send this in case there are some more supporting Drs in the area.
Also I would like to see how other people on MP in my area are doing and how they are bringing in Benicar to the country etc.
I am not sure how many are in Auckland area and the degree of their illnesses but would be nice to have some kind of communication and form support(within the capacity). Even venting over the illness that the majority of friends or even family members do not understand would give some mental relief.
Thanks,
Soozi
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